{"id":74481,"date":"2025-05-26T08:04:02","date_gmt":"2025-05-26T12:04:02","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=74481"},"modified":"2025-05-26T09:32:23","modified_gmt":"2025-05-26T13:32:23","slug":"samen-voor-bewustwording-steun-en-hoop-ecdga-bijeenkomst-voor-patienten-en-hun-families-2025","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/nl\/united-for-awareness-support-and-hope-ecdga-patient-family-gathering-2025\/","title":{"rendered":"Samen voor bewustwording, steun en hoop \u2013 ECDGA-bijeenkomst voor pati\u00ebnten en familieleden 2025"},"content":{"rendered":"

Tijdens de ECDGA-bijeenkomst voor pati\u00ebnten en familieleden van dit jaar in Barcelona kwamen pati\u00ebnten, verzorgers en medische professionals uit de hele wereld bijeen. Deze groepsfoto geeft de sfeer van verbondenheid en gemeenschapszin weer die kenmerkend is voor dit jaarlijkse evenement.<\/p>\n

Samen delen we kennis, bieden we ondersteuning en versterken we de gezamenlijke stem van mensen die getroffen zijn door de ziekte van Erdheim-Chester. Hartelijk dank aan alle deelnemers die hebben bijgedragen aan het succes en de impact van deze bijeenkomst.<\/p>\n

Ga voor meer informatie over onze missie en programma\u2019s naar www.erdheim-chester.org<\/a>.<\/p>\n

De Erdheim-Chester Disease Global Alliance (ECDGA) geeft geen medisch advies, stelt geen diagnoses en biedt geen behandelingen aan. Alle inhoud is uitsluitend bedoeld ter informatie. Raadpleeg bij medische vragen een zorgverlener.<\/em><\/p>","protected":false},"excerpt":{"rendered":"

This year\u2019s ECDGA Patient and Family Gathering in Barcelona brought together patients, caregivers, and medical professionals from around the world. This group photo captures the spirit of connection and community […]<\/p>\n","protected":false},"author":14,"featured_media":74482,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[2251],"tags":[2397,2256,375,378,2660,387,2662,2252,2659,2495,2491,2497,2661,2602,2402],"class_list":["post-74481","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-social-posts","tag-barcelona2025","tag-bellvitgehospital","tag-ecdawareness","tag-ecdcommunity","tag-ecdconnections","tag-ecdga","tag-ecdhope","tag-erdheimchester","tag-globalunity","tag-histiocytosisawareness","tag-patientfamilygathering","tag-rarediseasesupport","tag-strongertogether","tag-supportandscience","tag-teamecdga"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/74481","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/comments?post=74481"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/74481\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media\/74482"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media?parent=74481"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/categories?post=74481"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/tags?post=74481"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}