{"id":48251,"date":"2025-04-29T05:17:25","date_gmt":"2025-04-29T09:17:25","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=48251"},"modified":"2025-08-23T17:13:11","modified_gmt":"2025-08-23T21:13:11","slug":"what-to-expect-at-the-ecdga-celebration-dinner","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/nl\/what-to-expect-at-the-ecdga-celebration-dinner\/","title":{"rendered":"Wat je kunt verwachten tijdens het feestdiner van de ECDGA"},"content":{"rendered":"<p>After a day filled with knowledge, shared stories, and powerful conversations at the\u00a0<strong>Pati\u00ebnten- en familiebijeenkomst 2025<\/strong>, the ECD Global Alliance invites all attendees to join us for a heartfelt and memorable\u00a0<strong>Celebration Dinner<\/strong>\u2014a time to pause, reflect, and honor the community that makes this journey more hopeful.<\/p>\n<p>Held on the evening of\u00a0<strong>May 26<\/strong>\u00a0at the beautiful\u00a0<strong>Renaissance Barcelona Fira Hotel<\/strong>, this special gathering offers more than just a meal. It\u2019s a chance to celebrate the strength and resilience of the global ECD community, forge deeper bonds, and take a moment to simply be together, no lectures, just real connection.<\/p>\n<h3>A Celebration Rooted in Purpose<\/h3>\n<p>The Patient &amp; Family Gathering is filled with moments of learning and discovery\u2014but the Celebration Dinner is where\u00a0<strong>hearts meet<\/strong>. This dinner is a time to recognize the courage it takes to live with or care for someone with Erdheim-Chester Disease. It\u2019s a time to raise a glass to the researchers, caregivers, and patients who continue to move the field\u2014and each other\u2014forward.<\/p>\n<p>You can expect a warm, welcoming atmosphere designed to nurture the emotional side of the ECD journey. Whether you\u2019re attending for the first time or reconnecting with familiar faces, this dinner creates space for everyone to feel seen, appreciated, and supported.<\/p>\n<h3 role=\"heading\">What the Evening Will Include<\/h3>\n<ul>\n<li><strong>A Relaxed, Warm Setting<\/strong>\u00a0\u2013 The dinner will take place in a comfortable space where casual conversation and meaningful connections can flourish. No formal dress code required\u2014just come as you are.<\/li>\n<li><strong>Reflections &amp; Tributes<\/strong>\u00a0\u2013 As part of the evening, there may be brief moments to honor the journey, remember those we\u2019ve lost, and celebrate the progress the community has made together.<\/li>\n<li><strong>Connection Without Agenda<\/strong>\u00a0\u2013 The dinner is about people, not presentations. It\u2019s a space to breathe deeply, enjoy a good meal, and simply connect without pressure or structure.<\/li>\n<li><strong>Celebrating Small Wins<\/strong>\u00a0\u2013 Living with ECD means embracing moments of joy wherever they come. The dinner is a reminder that, even in the midst of a difficult diagnosis,\u00a0<strong>there is still so much worth celebrating<\/strong>.<\/li>\n<\/ul>\n<h3>Why This Night Matters<\/h3>\n<p>The ECDGA Celebration Dinner is more than a social event\u2014it\u2019s a meaningful tradition that reinforces the very heart of the organization:\u00a0<strong>community, compassion, and connection<\/strong>. As the day winds down, this evening brings lightness to a heavy topic and allows attendees to carry the day\u2019s inspiration into lasting relationships.<\/p>\n<p>Whether you\u2019ve made new friends, found new insights, or simply want to share a quiet smile with someone who understands,\u00a0you\u2019ll find a seat at this table.<\/p>\n<h3>Join Us in Barcelona<\/h3>\n<p>De\u00a0<a href=\"\/nl\/ecd-patient-family-gathering\/\" aria-label=\"ECD Global Alliance 2025 Patient &amp; Family Gathering\"><strong>ECD Global Alliance 2025 Patient &amp; Family Gathering<\/strong><\/a>\u00a0will take place on\u00a0<strong>May 26<\/strong>\u00a0at the Bellvitge University Hospital. This event brings together patients, family members, carers, clinicians, researchers, and members of support organizations to share knowledge and experiences related to ECD diagnosis, treatment, and daily living. The Celebration Dinner will follow the day\u2019s sessions, offering time to wind down, connect, and celebrate the power of unity.<\/p>\n<p>We look forward to sharing this unforgettable evening with you.\u00a0<a href=\"\/nl\/ecd-patient-family-gathering\/\" aria-label=\"Learn more about the Barcelona Conference.\">Learn more about the Barcelona Conference.<\/a><\/p>\n<p><em>De Erdheim-Chester Disease Global Alliance (ECDGA) geeft geen medisch advies, stelt geen diagnoses en biedt geen behandelingen aan. Alle inhoud is uitsluitend bedoeld ter informatie. Raadpleeg bij medische vragen een zorgverlener.<\/em><\/p>","protected":false},"excerpt":{"rendered":"<p>After a day filled with knowledge, shared stories, and powerful conversations at the\u00a02025 Patient &amp; Family Gathering, the ECD Global Alliance invites all attendees to join us for a heartfelt [&hellip;]<\/p>\n","protected":false},"author":20,"featured_media":48252,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[],"class_list":["post-48251","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/48251","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/comments?post=48251"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/48251\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media\/48252"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media?parent=48251"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/categories?post=48251"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/tags?post=48251"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}