{"id":20137,"date":"2022-04-22T13:50:01","date_gmt":"2022-04-22T18:50:01","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/ecd-staging\/?p=20137"},"modified":"2025-08-23T17:14:06","modified_gmt":"2025-08-23T21:14:06","slug":"the-importance-of-volunteer-support","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/nl\/the-importance-of-volunteer-support\/","title":{"rendered":"The Importance of Volunteer Support"},"content":{"rendered":"<p>&nbsp;<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image- blog-image-within-doc\" style=\"width: 560px; max-width: 640px;\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2022\/04\/volunteer-post-1-300x150.jpg&quot;\" alt=\"\" width=\"300\" height=\"280\"><\/p>\n<p>&nbsp;<\/p>\n<p>The ECD Global Alliance (ECDGA), a non-profit dedicated to supporting people affected by an ultra-rare blood cancer known as Erdheim-Chester Disease (ECD), honors deserving volunteers during National Volunteer Week. <strong>ECDGA volunteers are the life force of the organization<\/strong>, supporting its small staff and contributing more than 2,000 hours of service to numerous programs and supportive tasks.<\/p>\n<p>National Volunteer Week is an opportunity for the entire community to express gratitude for those serving the patients and families affected by ECD. It gives members a chance to see who is working behind the scenes, helping them to get the support and information they deserve. <strong>&nbsp;It is hoped that the ECDGA members are uplifted and encouraged by the knowledge that there is a great group of volunteers fighting for them every day.<\/strong><\/p>\n<p>The ECDGA has depended on volunteers since its inception in 2008 to keep the administrative overhead to a minimum, maximizing donation dollars. ECD patients, caregivers, their families and friends, and medical professionals make up the Alliance\u2019s generous workforce. Contributors help with single projects or once a year, while others help on a more consistent basis. Volunteer tasks range from raising awareness to financial tracking and filing, fundraising, providing special-skill services, and supporting other members. The work performed by dedicated volunteers supports the ECDGA\u2019s members and ECD patients all over the world.<\/p>\n<p>Medical professionals have also supported the ECDGA by offering expertise and knowledge, raising awareness, and participating in patient-care projects the organization facilitates and executes. <strong>The non-profit can support hundreds of people from around the globe, and this is credited to the contributions made by many medical professionals and member volunteers.&nbsp; <\/strong><\/p>\n<p>Volunteerism benefits the ECDGA, but it also has a positive impact on the volunteers, allowing them many benefits that affect them in work and life.<\/p>\n<table>\n<tbody>\n<tr>\n<td width=\"230\">\u00b7&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; Gain confidence<\/td>\n<td width=\"298\">\u00b7&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; Make a difference<\/td>\n<\/tr>\n<tr>\n<td width=\"230\">\u00b7&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; Meet people<\/td>\n<td width=\"298\">\u00b7&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; Be part of a community<\/td>\n<\/tr>\n<tr>\n<td width=\"230\">\u00b7&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; Learn new skills<\/td>\n<td width=\"298\">\u00b7&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; Take on a challenge<\/td>\n<\/tr>\n<tr>\n<td width=\"230\">\u00b7&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; Have fun<\/td>\n<td width=\"298\">\u00b7&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; Take action toward your cause<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<p>&nbsp;<\/p>\n<p><strong>Interested in becoming a volunteer?<\/strong>&nbsp; Join us in the fight against ECD!<\/p>\n<p>Visit our <a href=\"https:\/\/www.erdheim-chester.org\/nl\/volunteer\/\">volunteer webpage<\/a> or review our current <a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/12\/2022-Volunteer-Roles.pdf\" target=\"_blank\" rel=\"noopener\">volunteer roles available in 2022<\/a>!&nbsp;<\/p>\n<p>Donations can also support the organization\u2019s mission and project needs.&nbsp; Visit <a href=\"http:\/\/www.fundECD.org\">www.fundECD.org<\/a> or you can donate by mailing a check to ECD Global Alliance, P.O. Box 775, DeRidder, LA, 70634.<\/p>\n<p><strong>&nbsp;<\/strong><\/p>\n<p><strong>Thank you to each and every volunteer that has contributed to the work of the ECD Global Alliance, you build the organization up and make our community stronger every day!<\/strong><\/p>\n<p>&nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>&nbsp; &nbsp; The ECD Global Alliance (ECDGA), a non-profit dedicated to supporting people affected by an ultra-rare blood cancer known as Erdheim-Chester Disease (ECD), honors deserving volunteers during National Volunteer [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":20139,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[55,83,54,59,53,58,56,57,99,52,175],"class_list":["post-20137","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-advocacy","tag-blood-cancer","tag-blood-disorder","tag-bone-pain","tag-cancer","tag-diabetes-insipidus","tag-erdheim-chester","tag-hairy-kidney","tag-lifestyle","tag-rare-disease","tag-volunteer"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/20137","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/comments?post=20137"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/20137\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media\/20139"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media?parent=20137"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/categories?post=20137"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/tags?post=20137"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}