{"id":19654,"date":"2021-06-10T16:11:03","date_gmt":"2021-06-10T16:11:03","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/ecd-staging\/?p=19654"},"modified":"2025-08-23T17:14:22","modified_gmt":"2025-08-23T21:14:22","slug":"ecd-care-network-biedt-nu-zorg-aan-patienten-in-michigan","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/nl\/ecd-care-network-now-serves-michigan-patients\/","title":{"rendered":"ECD Care Network biedt nu zorg aan pati\u00ebnten in Michigan"},"content":{"rendered":"

De Erdheim-Chester Disease Global Alliance kondigt met trots aan dat het eerste ECD-verwijzingscentrum in Michigan zal worden gevestigd<\/strong><\/p>\n

De Erdheim-Chester Disease Global Alliance (ECDGA) is verheugd de nieuwste toevoeging aan het netwerk van ECD-verwijzingscentra te mogen presenteren, Rogel Kankercentrum van de Universiteit van Michigan, <\/strong>Ann Arbor, Michigan. The lead physician at this center is Dr. Asra Ahmed who specializes in hematology-oncology. Having an Erdheim-Chester Disease (ECD) referral center located in this region will not only be beneficial to the 12 Michigan-based patients currently registered with ECDGA but also allow access for more patients seeking a possible ECD diagnosis in the future. Forming this partnership ensures collaboration, education, improving early diagnosis, providing effective treatments, and support for the ECD patients in this part of the country.<\/p>\n

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\u201cDe ziekte van Erdheim-Chester komt uiterst zelden voor, wat betekent dat het voor pati\u00ebnten van cruciaal belang is om de juiste expertise te kunnen vinden om een passende behandeling te garanderen. We zijn verheugd dat we het enige verwijzingscentrum voor ECD in Michigan zijn en kijken ernaar uit om de zorg voor pati\u00ebnten in de hele staat en regio te co\u00f6rdineren\u201d, zegt dr. Asra Ahmed, assistent-hoogleraar interne geneeskunde bij Michigan Medicine, het academisch medisch centrum van de Universiteit van Michigan.<\/p>\n

De ECDGA erkent wereldwijd 35 expertisecentra. Alle instellingen zijn verplicht om met elkaar te communiceren en samen te werken om ervoor te zorgen dat pati\u00ebnten de meest actuele behandelingsopties en de best mogelijke zorg krijgen. Een ander essentieel aspect van het ECD Referral Care Center-netwerk is dat, mocht een pati\u00ebnt vanwege zijn of haar ziekte niet kunnen reizen, de ECD-artsen in deze centra overleg kunnen voeren over de casus van de pati\u00ebnt met diens lokale arts.<\/p>\n

Voor meer informatie over het netwerk van ECD Referral Care Centers en hoe u contact met hen kunt opnemen, gaat u naar www.erdheim-chester.org\/care-centers\/<\/a>.<\/p>","protected":false},"excerpt":{"rendered":"

The Erdheim-Chester Disease Global Alliance is proud to announce the first ECD Referral Care Center to be located in Michigan Erdheim-Chester Disease Global Alliance (ECDGA) is pleased to introduce the […]<\/p>\n","protected":false},"author":14,"featured_media":19655,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[55,115,101,83,54,59,53,58,56,69,57,116,82,52,114,113],"class_list":["post-19654","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-advocacy","tag-ann-arbor","tag-awareness","tag-blood-cancer","tag-blood-disorder","tag-bone-pain","tag-cancer","tag-diabetes-insipidus","tag-erdheim-chester","tag-fatigue","tag-hairy-kidney","tag-patient-support","tag-rare-cancer","tag-rare-disease","tag-rogel-cancer-center","tag-university-of-michigan"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/19654","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/comments?post=19654"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/19654\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media\/19655"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media?parent=19654"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/categories?post=19654"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/tags?post=19654"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}