{"id":174479,"date":"2026-09-11T09:00:05","date_gmt":"2026-09-11T14:00:05","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=174479"},"modified":"2026-09-11T16:49:12","modified_gmt":"2026-09-11T21:49:12","slug":"verhalen-van-patienten-en-zorgverleners","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/nl\/patient-and-caregiver-stories\/","title":{"rendered":"Verhalen van pati\u00ebnten en zorgverleners"},"content":{"rendered":"<p>Achter elke ECD-diagnose schuilt een verhaal.<\/p>\n<p>Sommige verhalen beginnen met jarenlange onbeantwoorde vragen.<br \/>\nAnderen zijn juist vol veerkracht, moed en hoop.<\/p>\n<p>Vandaag brengen we hulde aan elke pati\u00ebnt, elke zorgverlener en elke familie wier ervaring ons eraan herinnert waarom bewustwording zo belangrijk is.<\/p>\n<p>We horen graag jouw verhaal. Hoe lang duurde het voordat jij of een dierbare de diagnose ECD kreeg? Deel je ervaring in de reacties. Jouw verhaal kan iemand anders helpen om zich minder alleen te voelen.<\/p>\n<p><strong>Samen maken we het zeldzame zichtbaar.<\/strong><\/p>","protected":false},"excerpt":{"rendered":"<p>Every ECD diagnosis has a story. Some stories begin with years of unanswered questions. Others are filled with resilience, courage, and hope. Today we honor every patient, every caregiver, and [&hellip;]<\/p>\n","protected":false},"author":27,"featured_media":174480,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[6167,387,2252,6154,4558,376],"class_list":["post-174479","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-caregiversupport","tag-ecdga","tag-erdheimchester","tag-knowecd","tag-patientstories","tag-raredisease"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/174479","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/users\/27"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/comments?post=174479"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/174479\/revisions"}],"predecessor-version":[{"id":174496,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/174479\/revisions\/174496"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media\/174480"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media?parent=174479"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/categories?post=174479"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/tags?post=174479"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}