{"id":174397,"date":"2026-09-03T09:00:35","date_gmt":"2026-09-03T14:00:35","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=174397"},"modified":"2026-09-08T04:14:09","modified_gmt":"2026-09-08T09:14:09","slug":"hoe-zeldzaam-is-ecd","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/nl\/how-rare-is-ecd\/","title":{"rendered":"Hoe zeldzaam is ECD?"},"content":{"rendered":"<p><strong>Ziggy weet het\u2026<\/strong><\/p>\n<p>ECD wordt als uiterst zeldzaam beschouwd. Onderzoekers hebben vastgesteld dat in de VS in de jaren 2021 en 2022 bij ongeveer 1 tot 2 op de 10 miljoen mensen voor het eerst de diagnose ECD werd gesteld.<\/p>\n<p>Veel zorgverleners zullen tijdens hun loopbaan wellicht nooit een pati\u00ebnt met ECD tegenkomen, waardoor bewustwording des te belangrijker is.<\/p>\n<p><strong>Ook zeldzame ziekten verdienen erkenning.<\/strong><\/p>","protected":false},"excerpt":{"rendered":"<p>Ziggy Knows&#8230; ECD is considered\u00a0ultra-rare.\u00a0Researchers found that about 1 to 2 out of every 10 million people were newly diagnosed with ECD in the US during 2021 and 2022. Many [&hellip;]<\/p>\n","protected":false},"author":27,"featured_media":174398,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[387,2252,6154,376],"class_list":["post-174397","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-ecdga","tag-erdheimchester","tag-knowecd","tag-raredisease"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/174397","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/users\/27"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/comments?post=174397"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/174397\/revisions"}],"predecessor-version":[{"id":174444,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/174397\/revisions\/174444"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media\/174398"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media?parent=174397"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/categories?post=174397"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/tags?post=174397"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}