{"id":162802,"date":"2026-06-25T14:03:41","date_gmt":"2026-06-25T19:03:41","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=162802"},"modified":"2026-06-25T14:03:41","modified_gmt":"2026-06-25T19:03:41","slug":"een-bericht-aan-onze-gemeenschap","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/nl\/a-message-to-our-community\/","title":{"rendered":"Een bericht aan onze gemeenschap"},"content":{"rendered":"

Als iemand te horen krijgt: \u201cU lijdt aan de ziekte van Erdheim-Chester\u201d, heeft hij of zij vaak meer vragen dan antwoorden.<\/p>\n

    \n
  1. Waar kan ik informatie vinden?<\/li>\n
  2. Wie kan mij helpen deze ziekte te begrijpen?<\/li>\n
  3. Welke behandelingsmogelijkheden zijn er?<\/li>\n
  4. Hoe kan ik andere mensen vinden die aan deze ziekte lijden?<\/li>\n<\/ol>\n

    ECDGA helpt elke dag bij het beantwoorden van die vragen.<\/p>\n

    Steun pati\u00ebnten en hun families door vandaag nog een \u2018matched gift\u2019 te doen.<\/p>\n

    We zijn er bijna: we hebben nog maar een klein stukje te gaan om onze Match Challenge van $10.000,00 te halen. We hebben nu $7261,00. Help ons om dit bedrag v\u00f3\u00f3r 30 juni bij elkaar te krijgen.<\/p>\n

    Doneer hier<\/a><\/span><\/p>","protected":false},"excerpt":{"rendered":"

    When someone hears the words “You have Erdheim-Chester Disease,” they often have more questions than answers. Where do I find information? Who can help me understand this disease? What treatment […]<\/p>\n","protected":false},"author":27,"featured_media":162987,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[387,2252,5985,376],"class_list":["post-162802","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-ecdga","tag-erdheimchester","tag-funrun","tag-raredisease"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/162802","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/users\/27"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/comments?post=162802"}],"version-history":[{"count":2,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/162802\/revisions"}],"predecessor-version":[{"id":162986,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/162802\/revisions\/162986"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media\/162987"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media?parent=162802"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/categories?post=162802"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/tags?post=162802"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}