{"id":132228,"date":"2026-05-25T09:45:56","date_gmt":"2026-05-25T14:45:56","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=132228"},"modified":"2026-08-20T14:13:37","modified_gmt":"2026-08-20T19:13:37","slug":"11th-annual-ecd-medical-symposium-birmingham-al","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/nl\/11th-annual-ecd-medical-symposium-birmingham-al\/","title":{"rendered":"11e jaarlijks ECD Medical Symposium in Birmingham, AL"},"content":{"rendered":"

[et_pb_section fb_built=”1″ _builder_version=”4.27.6″ _module_preset=”default” custom_padding=”20px||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”60%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||10px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_heading title=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF90aXRsZSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IiIsImFmdGVyIjoiIn19@” _builder_version=”4.27.6″ _dynamic_attributes=”title” _module_preset=”default” custom_margin=”||0px||false|false” custom_padding=”||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_heading][\/et_pb_column][\/et_pb_row][et_pb_row module_class=”single-line-buttons ” _builder_version=”4.27.6″ _module_preset=”default” width=”60%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_button button_text=”Gaurav Goyal, MD” _builder_version=”4.27.7″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][et_pb_button button_text=”University of Alabama at Birmingham” _builder_version=”4.27.7″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||900″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][et_pb_button button_text=”Birmingham, Alabama US” _builder_version=”4.27.7″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||divi||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][et_pb_button button_text=”May 1, 2026″ _builder_version=”4.27.7″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”60%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/08\/MS-Images.png” title_text=”11th MS” align=”center” force_fullwidth=”on” module_class=”past-event-image” _builder_version=”4.27.7″ _module_preset=”default” custom_margin=”||10px||false|false” border_radii=”on|10px|10px|10px|10px” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_image][et_pb_text _builder_version=”4.27.7″ _module_preset=”default” text_font_size=”14px” text_line_height=”-0.1em” text_orientation=”center” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

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Birmingham Medical Symposium Group Picture 2026<\/p>\n<\/div>\n<\/div>\n

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Symposium Summary<\/h2>\n

[\/et_pb_text][et_pb_text _builder_version=”4.27.7″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”]Approximately 44 medical professionals from 6 countries attended the Annual ECD Medical Symposium in 2026. 15 oral abstracts were presented, along with an additional 9 poster presentations. The keynote speaker, Nicole Coufal, MD, PhD, delivered a talk titled \u201cDiversity and Degeneration in Neurohistiocytic Disease.\u201d An evening reception provided time for discussions supporting current and future collaborations among this highly knowledgeable group of physicians and scientists, all interested in learning more about Erdheim-Chester Disease.[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row disabled_on=”off|off|off” _builder_version=”4.27.7″ _module_preset=”default” width=”60%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.5″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#14b8a6″ global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Programs with Symposium Agenda<\/h2>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_3,1_3,1_3″ disabled_on=”off|off|off” module_class=”single-line-buttons ” _builder_version=”4.27.7″ _module_preset=”default” width=”60%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”1_3″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/08\/MS_Program_Guide_2026_Birmingham_Cover.png” title_text=”MS_Program_Guide_2026_Birmingham_Cover” url_new_window=”on” force_fullwidth=”on” _builder_version=”4.27.7″ _module_preset=”default” hover_enabled=”0″ locked=”off” global_colors_info=”{}” theme_builder_area=”post_content” url=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/08\/MS-Program-2026_with-cover.pdf” sticky_enabled=”0″][\/et_pb_image][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”60%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Agenda<\/h2>\n

[\/et_pb_text][et_pb_text module_class=”event-table” _builder_version=”4.27.7″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n\n\n\n\n\t\n\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t
Presenter<\/th>Presentation Slides<\/th>English Video<\/th>\n<\/tr>\n<\/thead>\n
Gaurav Goyal, MD<\/td>View Slide<\/a><\/td>Welcome to Birmingham and the 11th Annual Erdheim-Chester Disease International Conference<\/a><\/td>\n<\/tr>\n
Nicole Coufal, MD (Keynote Speaker)<\/td>View Slide<\/a><\/td>Diversity and Degeneration in Neurohistiocytic Disease<\/a><\/td>\n<\/tr>\n
Benjamin Durham, MD<\/td>View Slide<\/a><\/td>ARAF Mutations Drive Histiocytic Neoplasms In Vivo and Provide Insights into Cellular Origin<\/a><\/td>\n<\/tr>\n
Florian Houdu, MD<\/td>View Slide<\/a><\/td>Tracking BRAF V600E Persistence under MEK Inhibition in Histiocytoses: a B-cell\u2013enriched signal<\/a><\/td>\n<\/tr>\n
Irena Ungureanu, MD<\/td>View Slide<\/a><\/td>Distribution of MAP2K1 Variants Across Peripheral Blood Cells in Erdheim-Chester Disease and Other Histiocytoses<\/a><\/td>\n<\/tr>\n
Matthew Collin, MD<\/td>View Slide<\/a><\/td>The Clonal Origin and Evolution of High-Risk Multisystem Histiocytosis in Adults<\/td>\n<\/tr>\n
Dongni Yi, MD<\/td>View Slide<\/a><\/td>KRAS Mutations in Histiocytic Neoplasms: Mutation Spectrum and Response to MEK Inhibition<\/a><\/td>\n<\/tr>\n
Dongni Yi, MD<\/td>View Slide<\/a><\/td>Cyclin D1 Overexpression Drives Replication Stress and Creates Therapeutic Vulnerabilities in Histiocytic Neoplasms<\/a><\/td>\n<\/tr>\n
J\u00e9r\u00f4me Razanamahery, MD<\/td>View Slide<\/a><\/td>Clonal Hematopoiesis Predicts Response to Interferon-\u03b1 in Erdheim-Chester Disease and Myeloproliferative Neoplasms<\/a><\/td>\n<\/tr>\n
F\u00e9licien Triboulet, MD<\/td>View Slide<\/a><\/td>Impact of Additional Genetic Variants in the Course of Erdheim-Chester Disease\u2026 a Multicentric Longitudinal Study of 445 French Patients<\/a><\/td>\n<\/tr>\n
Guneet Janda, MD<\/td>View Slide<\/a><\/td>Patterns of Presentation and Outcomes in Adults Xanthogranulomas<\/a><\/td>\n<\/tr>\n
Mustafa Abomohsen, MD<\/td>View Slide<\/a><\/td>Not available<\/td>\n<\/tr>\n
Carla Isabel Borre, MD<\/td>View Slide<\/a><\/td>Real World Frontline Systemic Anti-Cancer Treatment Patterns and Outcomes in Erdheim\u2013Chester Disease<\/a><\/td>\n<\/tr>\n
Gaurav Goyal, MD<\/td>View Slide<\/a><\/td>Burden of Chronic Health Conditions After Diagnosis of Erdheim\u2013Chester Disease (ECD): Early Results from the Histiocytic Disorder Survivor Study<\/a><\/td>\n<\/tr>\n
Julien Haroche, MD, PhD<\/td>View Slide<\/a><\/td>Destombes-Rosai-Dorfman Disease: Clinical, Molecular Characteristics and Treatment Response: data from a retrospective cohort of 107 patients<\/a><\/td>\n<\/tr>\n
Anneka Johnston, MD<\/td>View Slide<\/a><\/td>Considerations for Assessment and Treatment of Neuropsychiatric Symptoms in ECD<\/a><\/td>\n<\/tr>\n
Matthew Collin, MD, PhD<\/td>View Slide<\/a><\/td>All that glitters: retro-orbital xanthogranuloma or ECD?<\/a><\/td>\n<\/tr>\n
Jithma Abeykoon, MD<\/td>View Slide<\/a><\/td>The Clue Was the Blood Pressure: Atypical Erdheim\u2013Chester Disease<\/a><\/td>\n<\/tr>\n
Jerome Henson<\/td>ECD Global Alliance into the Future<\/td>ECD Global Alliance into the Future<\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n\n

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Photographs<\/h2>\n

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Celebration Dinner<\/h3>\n

[\/et_pb_text][et_pb_gallery gallery_ids=”175550,175549,175548,175547,175546,175545,175544,175543,175542,175541,175540,175539,175538,175537,175536,175535,175534,175533,175532,175531,175530,175529,175528,175527,175526,175525,175524,175523,175522,175521,175520,175519,175518,175517,175516,175515,175514,175513,175512,175511,175510,175509,175508,175507,175506,175505,175504,175503,175502,175501,175500,175499,175498,175497,175496,175495,175494,175493,175492,175491,175490,175489,175488,175487,175486,175485,175484,175483,175482,175481,175480,175479,175478,175477,175476,175475,175474,175473,175472,175471,175470,175469,175468,175467,175466,175465,175463,175464″ posts_number=”150″ orientation=”portrait” show_title_and_caption=”off” module_class=”event-gallery” _builder_version=”4.27.7″ _module_preset=”default” db_images_per_row=”5″ db_image_max_width=”95%” db_image_max_height=”88px” db_image_row_spacing=”1%” dbdb_version=”5.8.1″ db_image_object_fit=”cover” border_radii_image=”on|8px|8px|8px|8px” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_gallery][et_pb_text _builder_version=”4.27.7″ _module_preset=”default” custom_margin=”20px||0px||false|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Medical Symposium<\/h3>\n

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Medical Reception<\/h3>\n

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Care Center Meeting<\/h3>\n

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Birmingham Medical Symposium Group Picture 2026 Symposium SummaryApproximately 44 medical professionals from 6 countries attended the Annual ECD Medical Symposium in 2026. 15 oral abstracts were presented, along with an […]<\/p>\n","protected":false},"author":20,"featured_media":109903,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"yes","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[4815],"tags":[],"class_list":["post-132228","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-medical-symposium"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/132228","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/comments?post=132228"}],"version-history":[{"count":11,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/132228\/revisions"}],"predecessor-version":[{"id":175651,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/132228\/revisions\/175651"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media\/109903"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media?parent=132228"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/categories?post=132228"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/tags?post=132228"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}