{"id":113541,"date":"2026-02-01T11:11:23","date_gmt":"2026-02-01T17:11:23","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=113541"},"modified":"2026-02-11T16:49:43","modified_gmt":"2026-02-11T22:49:43","slug":"erdheim-chester-disease-explained-symptoms-diagnosis-research-advances","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/nl\/erdheim-chester-disease-explained-symptoms-diagnosis-research-advances\/","title":{"rendered":"Frans webinar met dr. Jerome Razanamahery: ECD \u2013 Inzicht in diagnose en behandelingen"},"content":{"rendered":"<p>In this special ECD webinar, <strong>Dr. Jerome Razanamahery,<\/strong> an internal medicine doctor at <strong>Dijon University Hospital<\/strong>, an <strong>ECD referral care center<\/strong>, talks about <strong>Erdheim-Chester Disease (ECD)<\/strong>. He explains what ECD is, why it can be hard to diagnose, and how new targeted treatments are helping improve patient outcomes.<\/p>\n<p><strong>This webinar is presented in French<\/strong>.<\/p>\n<p>This video includes a message from <strong>Prof. Julien Haroche,<\/strong> a lead physician at the <strong>ECD referral care center at H\u00f4pital Piti\u00e9-Salp\u00eatri\u00e8re in Paris, France<\/strong>. He is the head of the French Reference Center for Histiocytosis.<\/p>\n<p>The video also features a powerful patient story from <strong>Mr. Jacques Dutu,<\/strong> who bravely shares his journey with ECD, from feelings of anger and confusion to hope and empowerment.<\/p>\n<p><strong>You\u2019ll learn:<\/strong><\/p>\n<ul>\n<li>What makes ECD a rare and complex inflammatory blood cancer<\/li>\n<li>Why ECD is hard to diagnose early, and which symptoms to look out for<\/li>\n<li>How mutations like <strong>BRAFV600E<\/strong> affect treatment choices<\/li>\n<li>How targeted treatments, such as <strong>BRAF and MEK<\/strong> inhibitors, help patients<\/li>\n<li>Why mental health support and quality of life are important<\/li>\n<li>Why the <strong>ECD Global Alliance<\/strong> exists and how it helps patients and families worldwide<\/li>\n<\/ul>\n<p>This video is part of our ongoing mission to raise awareness, offer support, and help advance research for people affected by <strong>Erdheim-Chester Disease.<\/strong><\/p>","protected":false},"excerpt":{"rendered":"<p>In this special ECD webinar, Dr. Jerome Razanamahery, an internal medicine doctor at Dijon University Hospital, an ECD referral care center, talks about Erdheim-Chester Disease (ECD). He explains what ECD [&hellip;]<\/p>\n","protected":false},"author":20,"featured_media":113542,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"yes","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[351],"tags":[5676,5675,5678,387,5317,102,5674,5679,5677,116,4966,5673,4961,4958],"class_list":["post-113541","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-webinar-recordings","tag-braf-inhibitors","tag-brafv600e-mutation","tag-dr-jerome-razanamahery","tag-ecdga","tag-erdheim-chester-disease","tag-histiocytosis","tag-inflammatory-myeloid-neoplasm","tag-julien-haroche","tag-mek-inhibitors","tag-patient-support","tag-rare-blood-cancer","tag-rare-disease-awareness","tag-rare-disease-research","tag-targeted-therapy"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/113541","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/comments?post=113541"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/113541\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media\/113542"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media?parent=113541"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/categories?post=113541"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/tags?post=113541"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}