{"id":102363,"date":"2019-01-11T19:47:40","date_gmt":"2019-01-12T01:47:40","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/7e-internationale-ecd-patient-familie-bijeenkomst-milaan-italie\/"},"modified":"2026-05-25T10:22:11","modified_gmt":"2026-05-25T15:22:11","slug":"7e-internationale-ecd-patient-familie-bijeenkomst-milaan-italie","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/nl\/7e-internationale-ecd-patient-familie-bijeenkomst-milaan-italie\/","title":{"rendered":"7e Jaarlijkse ECD Pati\u00ebnt &#038; Familie bijeenkomst Milaan, Itali\u00eb"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;20px||0px||false|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; width=&#8221;65%&#8221; width_tablet=&#8221;80%&#8221; width_phone=&#8221;80%&#8221; 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custom_button=&#8221;on&#8221; button_text_size=&#8221;16px&#8221; button_text_color=&#8221;#000000&#8243; button_bg_color=&#8221;RGBA(255,255,255,0)&#8221; button_border_radius=&#8221;0px&#8221; button_icon=&#8221;&#xf274;||fa||400&#8243; button_icon_color=&#8221;#35A4BB&#8221; button_icon_placement=&#8221;left&#8221; button_on_hover=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_button][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; width=&#8221;65%&#8221; width_tablet=&#8221;80%&#8221; width_phone=&#8221;80%&#8221; width_last_edited=&#8221;on|phone&#8221; custom_padding=&#8221;0px||||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_image src=&#8221;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2017\/01\/BW-Family.jpg&#8221; title_text=&#8221;B&amp;W Familie&#8221; align=&#8221;center&#8221; force_fullwidth=&#8221;on&#8221; module_class=&#8221;event-image&#8221; _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; border_radii=&#8221;on|10px|10px|10px|10px&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][et_pb_text _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; text_font_size=&#8221;14px&#8221; text_line_height=&#8221;-0.1em&#8221; text_orientation=&#8221;center&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<div class=\"mb-10\">\n<div class=\"mb-8\">\n<p class=\"text-center text-gray-600 text-sm mt-3 italic\">Groepsfoto van de Milan International ECD Patient &#038; Family Gathering 2019<\/p>\n<\/div>\n<\/div>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;0px||||false|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; width=&#8221;65%&#8221; width_tablet=&#8221;80%&#8221; width_phone=&#8221;80%&#8221; width_last_edited=&#8221;on|phone&#8221; custom_padding=&#8221;10px||||false|false&#8221; global_colors_info=&#8221;{}&#8221; width__hover_enabled=&#8221;off|desktop&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;||15px||false|false&#8221; border_width_bottom=&#8221;2px&#8221; border_color_bottom=&#8221;#35A4BB&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Samenvatting pati\u00ebnten- en familiebijeenkomst<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Alle pati\u00ebnten en naasten die ge\u00efnteresseerd zijn om meer te leren <a href=\"https:\/\/www.erdheim-chester.org\/nl\/over-ecd\/\">over ECD<\/a> en andere families willen ontmoeten, worden aangemoedigd om de volgende <a href=\"https:\/\/www.erdheim-chester.org\/events\">evenementen<\/a> bij te wonen. Het inschrijfgeld voor het tweedaagse evenement omvat toegang tot alle conferentiesessies, het diner tijdens de receptie, evenals lunch en lichte versnaperingen tijdens de pauzes van de conferentie. De volgende vergadertijden zijn onder voorbehoud.  <\/p>\n<p>Hotel Rafael is de aanbevolen locatie voor uw verblijf tijdens het evenement. Dit hotel is gunstig gelegen aan de overkant van de binnenplaats bij de vergaderruimtes van het ziekenhuis. Er is geen kamerblok gecontracteerd door de ECDGA voor dit hotel; daarom raden wij u aan uw kamer zo spoedig mogelijk te boeken om zeker te zijn van de beschikbaarheid. Raadpleeg de website van het hotel voor meer informatie en om een <a href=\"http:\/\/www.rafaelhotel.it\/en\">reservering<\/a> te maken.   <\/p>\n<p><strong>Alle <a href=\"https:\/\/www.erdheim-chester.org\/events\">evenementen<\/a> vinden plaats in<\/strong><br \/><strong>IRCCS San Raffaele Scientific Institute<\/strong><br \/>Vita-Salute San Raffaele University<br \/>Via Olgettina, 60<br \/>I-20132 Milaan \u2013 Itali\u00eb<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; width=&#8221;65%&#8221; width_tablet=&#8221;80%&#8221; width_phone=&#8221;80%&#8221; width_last_edited=&#8221;on|phone&#8221; custom_padding=&#8221;||0px||false|false&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;||15px||false|false&#8221; border_width_bottom=&#8221;2px&#8221; border_color_bottom=&#8221;#35A4BB&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Presentatie<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]De volgende presentaties zijn toegevoegd in de hoop dat ze pati\u00ebnten, families en artsen zullen helpen die meer willen leren <a href=\"https:\/\/www.erdheim-chester.org\/nl\/over-ecd\/\">over ECD<\/a>. De ECDGA is dankbaar voor de inspanningen en bijdragen van de medische gemeenschap om de zorg voor ECD-pati\u00ebnten te verbeteren.[\/et_pb_text][et_pb_text module_class=&#8221;event-table&#8221; _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]\n<table id=\"tablepress-31\" class=\"tablepress tablepress-id-31 tablepress-responsive tablepress-responsive-stack-headers tablepress-responsive-stack-phone\">\n<thead>\n<tr class=\"row-1\">\n\t<th class=\"column-1\">DATE<\/th><th class=\"column-2\">TIME<\/th><th class=\"column-3\">EVENT<\/th><th class=\"column-4\">DESCRIPTION<\/th>\n<\/tr>\n<\/thead>\n<tbody class=\"row-striping row-hover\">\n<tr class=\"row-2\">\n\t<td class=\"column-1\">Thursday<br \/>\nJuly 11, 2019<br \/>\n<\/td><td class=\"column-2\">3 PM TO 5 PM<\/td><td class=\"column-3\">Group Activity<\/td><td class=\"column-4\">A group activity may be scheduled for this time frame to allow more social time for families in attendance.  This opportunity is still under consideration and will be announced once plans are firm.<\/td>\n<\/tr>\n<tr class=\"row-3\">\n\t<td class=\"column-1\">Thursday<br \/>\nJuly 11, 2019<br \/>\n<\/td><td class=\"column-2\">6 PM to 8 PM<\/td><td class=\"column-3\">Welcome Social<\/td><td class=\"column-4\">All event attendees are welcome to attend this social event to encourage connections between the families and medical professionals. Hor d\u2019oeuvres will be served.<\/td>\n<\/tr>\n<tr class=\"row-4\">\n\t<td class=\"column-1\">Friday<br \/>\nJuly 12, 2019<br \/>\n(Registration 8 \u2013 9 a.m.)<\/td><td class=\"column-2\">9 AM to 5 PM<\/td><td class=\"column-3\">Patient &amp; Family Gathering<\/td><td class=\"column-4\">Medical speakers experienced in ECD treatment will present the latest ECD care information to families and other treating physicians.<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<!-- #tablepress-31 from cache --><br \/>\n[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; width=&#8221;65%&#8221; width_tablet=&#8221;80%&#8221; width_phone=&#8221;80%&#8221; width_last_edited=&#8221;on|phone&#8221; custom_padding=&#8221;||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;||15px||false|false&#8221; border_width_bottom=&#8221;2px&#8221; border_color_bottom=&#8221;#35A4BB&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Ervaringen van deelnemers<\/h2>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; width=&#8221;65%&#8221; width_tablet=&#8221;80%&#8221; width_phone=&#8221;80%&#8221; width_last_edited=&#8221;on|phone&#8221; custom_padding=&#8221;0px||||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><em>\u201cHet was geweldig om getuige te zijn van de toewijding en inzet die deze artsen toonden met betrekking tot de diagnose, behandeling en onderzoeksinspanningen op het gebied van ECD. Ik ben dankbaar voor deze zeldzame kans.\u201d<\/em><\/p>\n<p><strong>\u2013 Leretha R. Thomas, ECD-verzorger<\/strong><\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><em>\u201cIk werk al meer dan 20 jaar in de gezondheidszorg en heb nog nooit zo&#8217;n zorgzame en toegewijde groep zorgverleners en vrijwilligers gezien of ervaren!\u201d<\/em><\/p>\n<p><strong>\u2013 Aanwezige ECD-pati\u00ebnt<\/strong><\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Groepsfoto van de Milan International ECD Patient &#038; Family Gathering 2019 Samenvatting pati\u00ebnten- en familiebijeenkomstAlle pati\u00ebnten en naasten die ge\u00efnteresseerd zijn om meer te leren over ECD en andere families [&hellip;]<\/p>\n","protected":false},"author":20,"featured_media":102941,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":[],"cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[4855],"tags":[],"class_list":["post-102363","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-bijeenkomst-voor-patient-en-familie"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/102363","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/comments?post=102363"}],"version-history":[{"count":11,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/102363\/revisions"}],"predecessor-version":[{"id":133493,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/102363\/revisions\/133493"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media\/102941"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media?parent=102363"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/categories?post=102363"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/tags?post=102363"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}