Groepsfoto Orlando International ECD Patient & Family Gathering 2018<\/p>\n<\/div>\n<\/div>\n
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Samenvatting pati\u00ebnten- en familiebijeenkomst<\/h2>\n
[\/et_pb_text][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”]De pati\u00ebnten- en familiebijeenkomst (PFG) van 2018 bracht 75 pati\u00ebnten en familieleden uit 4 landen samen. De pati\u00ebnten- en familiegemeenschap werd vergezeld door 44 clinici en wetenschappers met een passie voor de zorg voor pati\u00ebnten en het vergaren van meer kennis over Erdheim-Chester. Veertien clinici\/wetenschappers gaven presentaties over ECD en de behoeften aan ondersteuning bij ECD. Er werd genoten van een feestelijk diner met alle aanwezigen, wat tijd bood voor onderling contact en erkenning van gemeenschapsleiders die hun tijd en middelen inzetten om de ECD-gemeenschap te helpen. Zie de onderstaande informatie voor meer over de PFG-activiteiten en presentaties, evenals foto’s van de conferentie.[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”10px||20px||false|false” locked=”off” global_colors_info=”{}” width__hover_enabled=”off|desktop”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}”]<\/p>\n
Programma’s met de agenda van de bijeenkomst<\/h2>\n
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Presentatie<\/h2>\n
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<\/a>Location:<\/strong> Orlando, FL\r\n\r\nA total of 109 patients, family members, and physicians, from eight countries attended the 2018 Patient & Family Gathering.\r\n\r\nAttendees learned about the drug trial process, how to manage multiple medications, how to care for yourself with nutrition and exercise, and more about care management. Please see the event materials below for more on this successful event. Thank you to all participants!\r\n\r\nPresentation Slides<\/strong>\r\nComing soon!\r\n\r\nReception Photos<\/strong>\r\n\r\nThe following photos were taken during the ECD Patient & Family Gathering Reception with medical professionals and ECD families on November 15, 2018 at the Orlando Health Regional Medical Center. Thank you to all participants for attending and engaging with the community. You can find more photos on Facebook under the tag searches #ECDGA18 or directly in our