{"id":102275,"date":"2025-05-26T18:49:08","date_gmt":"2025-05-26T23:49:08","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/10e-jaarlijkse-ecd-medisch-symposium-barcelona-spanje\/"},"modified":"2026-07-07T11:37:09","modified_gmt":"2026-07-07T16:37:09","slug":"10e-jaarlijkse-ecd-medisch-symposium-barcelona-spanje","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/nl\/10e-jaarlijkse-ecd-medisch-symposium-barcelona-spanje\/","title":{"rendered":"10e jaarlijkse ECD Medisch Symposium Barcelona, Spanje"},"content":{"rendered":"

[et_pb_section fb_built=”1″ _builder_version=”4.27.6″ _module_preset=”default” custom_padding=”20px||0px||false|false” global_colors_info=”{}”][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”60%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||10px||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_heading title=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF90aXRsZSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IiIsImFmdGVyIjoiIn19@” _builder_version=”4.27.6″ _dynamic_attributes=”title” _module_preset=”default” custom_margin=”||0px||false|false” custom_padding=”||0px||false|false” global_colors_info=”{}”][\/et_pb_heading][\/et_pb_column][\/et_pb_row][et_pb_row module_class=”single-line-buttons ” _builder_version=”4.27.6″ _module_preset=”default” width=”60%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||0px||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”][et_pb_button button_text=”Xavier Solanich, MD, PHD” _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_text=”Academisch ziekenhuis Bellvitage” _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||900″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_text=”Barcelona, Spanje” _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||divi||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_text=”26 mei 2025″ _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}”][\/et_pb_button][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”60%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/10th-Annual-ECD-Medical-Symposium-Barcelona-Spain.jpg” title_text=”10e jaarlijkse ECD Medisch Symposium Barcelona, Spanje” align=”center” force_fullwidth=”on” module_class=”past-event-image” _builder_version=”4.27.7″ _module_preset=”default” border_radii=”on|10px|10px|10px|10px” global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.27.5″ _module_preset=”default” text_font_size=”14px” text_line_height=”-0.1em” text_orientation=”center” global_colors_info=”{}”]<\/p>\n

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Medisch Symposium Barcelona Groepsfoto 2025<\/p>\n<\/div>\n<\/div>\n

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Samenvatting symposium<\/h2>\n

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Ongeveer 54 medische professionals uit 8 landen woonden het jaarlijkse medische ECD-symposium in 2025 bij. Er werden achttien mondelinge abstracts gepresenteerd, samen met nog eens 8 posterpresentaties. Als gastspreker hield Manel Juan, MD, een presentatie getiteld \u201cCAR-T-cell Immunoherapies: driving therapies beyond Hematological Cancers, through the Barcelona model.\u201d Een avondreceptie bood tijd voor discussies ter ondersteuning van huidige en toekomstige samenwerkingen tussen deze zeer deskundige groep artsen en wetenschappers, die allemaal meer wilden weten over de ziekte van Erdheim-Chester. <\/p>\n

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Programma’s met symposiumagenda<\/h2>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_3,1_3,1_3″ module_class=”single-line-buttons ” _builder_version=”4.27.6″ _module_preset=”default” width=”60%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||0px||false|false” global_colors_info=”{}”][et_pb_column type=”1_3″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/03\/Picture1.png” title_text=”Afbeelding1″ url=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/Barecelona-MS-Program-for-Website.pdf” url_new_window=”on” force_fullwidth=”on” _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”][\/et_pb_image][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”60%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}”]<\/p>\n

Agenda<\/h2>\n

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Presenter<\/th>Presentation Title & Slides<\/th>Video<\/th>\n<\/tr>\n<\/thead>\n
Xavier Solanich, Paul Hendrie<\/td>Welcome to Barcelona and the 10th Annual Erdheim-Chester Disease International Conference<\/td>Watch (1)<\/a>
\n
\nWatch (2)<\/a><\/td>\n<\/tr>\n
Manel Juan<\/td>CAR-T-cell Immunoherapies: driving
\ntherapies beyond Hematological Cancers,
\nthrough the Barcelona model.<\/td>		Watch<\/a>
\n<\/td>\n<\/tr>\n
Oshrat Hershkovitz-Rokah<\/td>Advanced proteomic profiling for biomarker discovery in Erdheim-Chester Disease<\/td>Watch<\/a><\/td>\n<\/tr>\n
Benjamin Durham<\/td>RAF-independent MEK mutations drive refractory histiocytic neoplasms but respond to ERK inhibition<\/td>Watch<\/a>
\n<\/td>\n<\/tr>\n
Julien Haroche<\/td>BCL-2 immunohistochemistry expression in patients with histiocytosis<\/td>Watch<\/a><\/td>\n<\/tr>\n
Lindsay Hill<\/td>Comparative Genetic Analysis of Primary versus Secondary Histiocytic Sarcoma: A Single Institution Case Series<\/td>Watch<\/a><\/td>\n<\/tr>\n
Carla Isabel Borre<\/td>Comparative Efficacy of Frontline Targeted Therapies Versus Chemotherapy in MAPK-Pathway Altered Histiocytic Neoplasms<\/td>Watch<\/a><\/td>\n<\/tr>\n
Francesco Pegoraro<\/td>Second cancer in Erdheim-Chester disease<\/td>Watch<\/a><\/td>\n<\/tr>\n
Jerome Razanamahery<\/td>Glomeruloid angioma in Erdheim-Chester disease: an atypical skin manifestation associated with elevated VEGF-A<\/td>Watch<\/a><\/td>\n<\/tr>\n
Francesco Catamer\u00f2<\/td>Treatment Holidays in Patients with Erdheim-Chester Disease Receiving Vemurafenib: A Prospective Pilot Study<\/td>Watch<\/a>
\n<\/td>\n<\/tr>\n
Brinda Shukla<\/td>Don\u2019t Dish Out Old Therapies: Use of Pegylated-Interferon-Alpha in a case of Erdheim-Chester Disease with congestive heart failure<\/a><\/td>
\nWatch<\/a><\/td>\n<\/tr>\n
Eli Diamond<\/td>Symptoms, unmet needs, and quality of life in Erdheim-Chester disease: A longitudinal registry-based analysis<\/a><\/td>Watch<\/a><\/td>\n<\/tr>\n
Pudis Michal<\/td>Diagnostic Impact of 18F-FDG PET\/MRI over PET\/CT in Histiocytoses: A Prospective Comparative Study<\/td>Watch<\/a><\/td>\n<\/tr>\n
Francesco Pegoraro<\/td>Natural history of Erdheim-Chester disease. A preliminary analysis on 1044 patients within the ECDGA network<\/td>Watch<\/a>
\n<\/td>\n<\/tr>\n
Mia Poleksic<\/td>Erdheim-Chester Disease: Evolving Insights and Improved Survival Over Time<\/td>Watch<\/a><\/td>\n<\/tr>\n
Gaurav Goyal<\/td>Real-World Efficacy and Toxicity of MEK Inhibitors in Histiocytic Neoplasms<\/td>Watch<\/a><\/td>\n<\/tr>\n
Jerome Razanamahery<\/td>MAPK-kinase mutations and aortic lesions are associated with the distribution of circulating monocytes in histiocytosis<\/td>Watch<\/a><\/td>\n<\/tr>\n
Abdou Malik Da Silva<\/td>Deciphering ALK-positive histiocytosis and mimickers using single cell RNAsequencing<\/td>Watch<\/a><\/td>\n<\/tr>\n
Matthew Collin<\/td>The clonal origin and evolution of highrisk multisystem histiocytosis in adults<\/td>Watch<\/a><\/td>\n<\/tr>\n
Polyzois Makras<\/td>Mapping Erdheim-Chester Disease in Europe through the Core Registry<\/td>Watch<\/a>
\n<\/td>\n<\/tr>\n
Jerome Razanamahery<\/td>Layers of Complexity: ECD Diagnosis and management in the presence of confounding comorbidities Jerome Razanamahery Dijon University Hospital, Dijon, France Closing Remarks & Student Abstract<\/td>Watch<\/a><\/td>\n<\/tr>\n
Diane Schriner<\/td>ECD Global Alliance into the Future<\/td>Watch<\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.5″ _module_preset=”default” width=”60%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}”]<\/p>\n

Foto’s<\/h2>\n

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Medisch Symposium<\/h3>\n

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Medisch Symposium Barcelona Groepsfoto 2025 Samenvatting symposiumOngeveer 54 medische professionals uit 8 landen woonden het jaarlijkse medische ECD-symposium in 2025 bij. Er werden achttien mondelinge abstracts gepresenteerd, samen met nog […]<\/p>\n","protected":false},"author":20,"featured_media":172675,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"Medical professionals from around the world will gather in Barcelona May 26-28 to share scientific findings, patient outcomes, and case studies related to Erdheim-Chester Disease. We welcome you to join your professional colleagues to share and learn about new findings related to the science of ECD, the diagnostic details, and the care of those living with ECD. This is the only meeting where medical specialists from different fields join together to discuss ECD. We look forward to you joining in the discussions and hope you might find opportunities for collaboration.\r\n\r\n\"\"<\/a>\r\n\r\nAbstract Submissions<\/strong> Abstracts related to ECD and\/or adult histiocytosis are being solicited for presentation at the Medical Symposium.\u00a0 Abstracts are being accepted<\/a> for oral and\/or poster presentation.\u00a0 This is a great opportunity to share your work and the work of your colleagues.\u00a0 Please let them know of the opportunity.\u00a0 Abstracts must be submitted no later than February 24, 2025.\r\n\r\nSubmit Abstract<\/a><\/span>\r\n\r\nSchedule of Events<\/strong> Sunday, May 25, 2025 \u2013 Pre-Meeting Activity<\/u><\/strong>\r\n

5 \u2013 6 pm Catholic Mass<\/strong> Anyone interested is invited to a Catholic Mass before the beginning of the conference. Father Charles Balnaves, the sponsor of the Patient & Family Gathering, will celebrate the Mass.<\/p>\r\nMonday, May 26, 2025 \u2013 Patient & Family Gathering.<\/u><\/strong>\r\n

8 \u2013 8:30 am Registration & Continental Breakfast<\/strong> Enjoy a light breakfast with others and prepare for an informational day full of hope.<\/p>\r\n

8:30 am \u2013 4:30 pm Patient & Family Gathering<\/strong> Spend the day learning more about ECD from medical professionals, patients, and others.<\/p>\r\n

6 \u2013 8 pm Celebration Evening<\/strong> Spend time with patients, family members, friends, and medical professionals for an evening of hope and celebration.<\/p>\r\nTuesday, May 27, 2025 \u2013 Medical Symposium.<\/u><\/strong>\r\n

8 \u2013 8:30 am Registration & Continental Breakfast<\/strong> Enjoy a light breakfast with others and prepare for an informational day full of hope.<\/p>\r\n

8:30 am \u2013 4:30 pm Medical Symposium<\/strong> Spend the day learning more about ECD from other investigators and clinicians. Discover possible future collaboration opportunities.<\/p>\r\n

6:30 \u2013 8:30 pm Medical Reception<\/strong> Spend time relaxing and meeting with friends.<\/p>\r\nWednesday, May 28, 2025 \u2013 Care Center Meeting.<\/u><\/strong> 8 \u2013 11 am Care Center Meeting<\/strong> Discuss patient care and opportunities to work together to improve patient outcomes. Who attends?<\/strong> The event is open to the entire ECD community of medical professionals. Please feel free to invite your colleagues.\r\n\r\nHost<\/strong> \"\"<\/a>Xavier Solanich, MD, PhD is this year\u2019s host of the ECD Meeting. Dr. Solanich is a medical specialist in internal medicine at the University Hospital of Bellvitge where he has practiced since August 2010. He leads the ECD Referral Care Center at Bellvitge and in addition to ECD patients, he attends to patients with other rare diseases such as Rosai-Dorfman, primary immunodeficiencies, and some hereditary metabolic diseases (especially Gaucher). He sees patients with systemic autoimmune diseases, mainly systemic vasculitis, periaortitis \/ retroperitoneal fibrosis, and IgG4-related diseases. He is also a consultant to the ophthalmology service for diagnosis and management of patients with uveitis, immune \/ ischemic optic neuritis, and orbital pseudotumor. Dr. Solanich also works in the Systemic Diseases and Aging group at the Bellvitge Biomedical Research Institute (IDIBELL). He has participated in multiple national and international research projects to study systemic autoimmune diseases, immunodeficiencies, and other rare diseases. He has also participated in several clinical trials as principal investigator or collaborator, obtaining competitive public funding. As a result of his research, he is the author of several articles published in indexed scientific journals.\r\n\r\nAgenda<\/strong>\r\n\r\nA detailed agenda will be available before the conference. Hotel<\/strong> A room block has been set up for the Patient & Family Gathering at \u2013 The Renaissance Barcelona Fira Hotel<\/a> Plaza Europa, 50-52, L'Hospitalet de Llobregat, Barcelona, Spain, 08902 Please make your reservations using the link below before the hotel deadline. Book your group rate for the ECD Global Alliance Conference<\/strong><\/a> Group Room Rate: Single: 240 Euro\/night; Double: 260 Euro\/night Hotel reservation deadline: April 21, 2025\r\n\r\nTravel<\/strong> Barcelona is served by the Josep Tarradellas Barcelona-El Prat Airport. Transportation options between the airport and the hotel include:\r\n