{"id":102190,"date":"2019-04-01T18:26:07","date_gmt":"2019-04-01T23:26:07","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=102190"},"modified":"2026-07-10T11:57:55","modified_gmt":"2026-07-10T16:57:55","slug":"7th-annual-ecd-medical-symposium-milan-italy","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/nl\/7th-annual-ecd-medical-symposium-milan-italy\/","title":{"rendered":"7e jaarlijks ECD-medisch symposium in Milaan, Itali\u00eb"},"content":{"rendered":"

[et_pb_section fb_built=”1″ _builder_version=”4.27.6″ _module_preset=”default” custom_padding=”20px||0px||false|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||10px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_heading title=”7th Annual ECD Medical Symposium Milan, Italy” _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||0px||false|false” custom_padding=”||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_heading][\/et_pb_column][\/et_pb_row][et_pb_row module_class=”single-line-buttons ” _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_button button_text=”Lorenzo Dagna, MD” _builder_version=”4.27.7″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][et_pb_button button_text=”San Raffaele Institute” _builder_version=”4.27.7″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||900″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][et_pb_button button_text=”Milan, Italy” _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||divi||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][et_pb_button button_text=”April 1, 2019″ _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/07\/7th-ms.png” title_text=”7th ms” align=”center” force_fullwidth=”on” module_class=”past-event-image” _builder_version=”4.27.7″ _module_preset=”default” hover_enabled=”0″ border_radii=”on|10px|10px|10px|10px” global_colors_info=”{}” theme_builder_area=”post_content” custom_margin=”||10px||false|false” sticky_enabled=”0″][\/et_pb_image][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” text_font_size=”14px” text_line_height=”-0.1em” text_orientation=”center” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

\n
\n

Milan Medical Symposium Group Picture 2019<\/p>\n<\/div>\n<\/div>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Symposium Summary<\/h2>\n

[\/et_pb_text][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”]Approximately 38 medical professionals from nine countries attended the Annual ECD Medical Symposium in 2019. Twelve oral abstracts were presented, along with an additional four poster presentations. As an invited speaker, Prof. Luigi Naldini, delivered a talk titled \u201cGenetic engineering of hematopoiesis to treat <\/p>\n

inherited diseases and cancer.\u201d An evening reception provided time for discussions supporting current and future collaborations among this highly knowledgeable group of physicians and scientists, all interested in learning more about Erdheim-Chester Disease.[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Attendee Experiences<\/h2>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.27.5″ _module_preset=”default” custom_padding=”0px||||false|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_row column_structure=”1_2,1_2″ _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||||false|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”1_2″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

\u201cECDGA provides important resources<\/a> for my patients that has led to faster diagnosis<\/a>. It also provides a community for patients with a rare disease to feel less alone.\u201d <\/em><\/p>\n

\u2013 Mark Heaney, MD, 2019 Attendee<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.5″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#14b8a6″ global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Programs with Symposium Agenda<\/h2>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_3,1_3,1_3″ module_class=”single-line-buttons ” _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”1_3″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/2019-MS-Program-Cover.jpg” title_text=”2019 MS Program Cover” url=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/2019-Med-Event-Program-FINAL-PRINT.pdf” url_new_window=”on” _builder_version=”4.27.6″ _module_preset=”default” border_radii=”on|8px|8px|8px|8px” border_width_all=”1px” border_color_all=”#bababa” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_image][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Presentations<\/h2>\n

[\/et_pb_text][et_pb_text module_class=”event-table” _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n\n\n\n\n\t\n\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t
Presenter<\/th>Presentation Slides<\/th>English Video<\/th>\n<\/tr>\n<\/thead>\n
Jithma P. Abeykoon, MD<\/td>Histopathologic Mimics of Erdheim-Chester Disease<\/a><\/td>No Videos available<\/td>\n<\/tr>\n
Benjamin H. Durham<\/td>Novel Alterations in CSF1R, RET, and Other Diverse Kinases in the Histiocytoses with Biochemical and Structural Insights into Their Mechanisms of Activation<\/a><\/td>No Videos available<\/td>\n<\/tr>\n
Marina Ferrarini, MD<\/td>Novel Alterations in CSF1R, RET, and Other Diverse Kinases in the Histiocytoses with Biochemical and Structural Insights into Their Mechanisms of Activation<\/a><\/td>No Videos available<\/td>\n<\/tr>\n
Filip Janku, MD, PhD<\/td>MEK inhibition with trametinib in patients with non-Langerhans cell histiocytosis irrespective of BRAF mutation status<\/a><\/td>No Videos available<\/td>\n<\/tr>\n
Francesco Pegoraro, MD<\/td>Erdheim-Chester with multiple lesions related to BRAF V600E mutation. A simple coincidence?<\/a><\/td>No Videos available<\/td>\n<\/tr>\n
Julien Haroche, MD, PhD<\/td>PD-1\/PD-L1 expression is frequent and correlates with inflammation in Erdheim-Chester disease<\/td>No Videos available<\/td>\n<\/tr>\n
Rikhia Chakraborty, MD<\/td>Targeted inhibition of the MAPK pathway in combination with immune checkpoint inhibitors restores immune dysfunction ex vivo and reduces disease burden in a mouse model of Langerhans cell histiocytosis<\/td>No Videos available<\/td>\n<\/tr>\n
Simonetta Gerevini, MD<\/td>CNS imaging in ECD Workshop<\/td>No Videos available<\/td>\n<\/tr>\n
Claudio Doglioni, MD<\/td>State of the Art of ECD Pathology Workshop<\/td>No Videos available<\/td>\n<\/tr>\n
Antonio Esposito, MD<\/td>Cardiac Imaging in ECD Workshop<\/td>No Videos available<\/td>\n<\/tr>\n
Kazuhiro Toyama, MD<\/td>Prognostic factors of Erdheim\u2013Chester Disease: A nationwide survey in Japan<\/td>No Videos available<\/td>\n<\/tr>\n
Eli L. Diamond, MD<\/td>Phase 2 Trial of Cobimetinib for Adults with Histiocytosis: Results in BRAFV600-wildtype and BRAFV600E-mutated patients<\/td>No Videos available<\/td>\n<\/tr>\n
Roei Mazor, MD<\/td>Diagnostic & Therapeutic Challenges of Mixed Histiocytosis in the Era of Precision Medicine<\/td>No Videos available<\/td>\n<\/tr>\n
Kathy Brewer and Lorenzo Dagna, MD<\/td>Closing<\/a><\/td>No Videos available<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Photographs<\/h2>\n

[\/et_pb_text][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”20px||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Reception<\/h3>\n

[\/et_pb_text][et_pb_gallery gallery_ids=”32021,32573,32549,32537,32525,32513,32501,32489,32477,32465,32453,32441,32429,32417,32405,32393,32381,32369,32357,32345,32333,32321,32309,32297,32285,32273,32261,32249,32237,32225,32213,32201,32189,32177,32165,32153,32141,32129,32117,32105,32093,32081,32069,32057,32045,32033″ posts_number=”100″ orientation=”portrait” show_title_and_caption=”off” module_class=”event-gallery” _builder_version=”4.27.6″ _module_preset=”default” db_images_per_row=”5″ db_image_max_width=”95%” db_image_max_height=”88px” db_image_row_spacing=”1%” dbdb_version=”5.6″ db_image_object_fit=”cover” border_radii_image=”on|8px|8px|8px|8px” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_gallery][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"

Milan Medical Symposium Group Picture 2019 Symposium SummaryApproximately 38 medical professionals from nine countries attended the Annual ECD Medical Symposium in 2019. Twelve oral abstracts were presented, along with an […]<\/p>\n","protected":false},"author":20,"featured_media":172587,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"\"\"<\/a>Location:<\/strong> Milan, Italy\r\n\r\n\"ECDGA provides important resources for my patients that has led to faster diagnosis. It also provides a community for patients with a rare disease to feel less alone.\" -\u00a0<\/em>Mark Heaney, MD, 2019 Attendee\r\n\r\n\u00a0\r\n\r\n\u00a0\r\n\r\n\u00a0\r\n

Presentations<\/h4>\r\n[table id=25 \/]\r\n

Reception Photos<\/h4>\r\n[gallery columns=\"4\" size=\"full\" ids=\"32021,32033,32045,32057,32069,32081,32093,32105,32117,32129,32141,32153,32165,32177,32189,32201,32213,32225,32237,32249,32261,32273,32285,32297,32309,32321,32333,32345,32357,32369,32381,32393,32405,32417,32429,32441,32453,32465,32477,32489,32501,32513,32525,32537,32549,32561,32573\"]","_et_gb_content_width":"","cybocfi_hide_featured_image":"yes","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[4815],"tags":[],"class_list":["post-102190","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-medical-symposium"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/102190","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/comments?post=102190"}],"version-history":[{"count":4,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/102190\/revisions"}],"predecessor-version":[{"id":174020,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/102190\/revisions\/174020"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media\/172587"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media?parent=102190"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/categories?post=102190"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/tags?post=102190"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}