{"id":102149,"date":"2015-04-01T18:15:18","date_gmt":"2015-04-01T23:15:18","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/3e-jaarlijkse-ecd-medisch-symposium-houston-tx\/"},"modified":"2026-06-12T09:27:44","modified_gmt":"2026-06-12T14:27:44","slug":"3e-jaarlijkse-ecd-medisch-symposium-houston-tx","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/nl\/3e-jaarlijkse-ecd-medisch-symposium-houston-tx\/","title":{"rendered":"3e jaarlijkse ECD medisch symposium Houston, TX"},"content":{"rendered":"

[et_pb_section fb_built=”1″ _builder_version=”4.27.6″ _module_preset=”default” custom_padding=”20px||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||10px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_heading title=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF90aXRsZSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IiIsImFmdGVyIjoiIn19@” _builder_version=”4.27.6″ _dynamic_attributes=”title” _module_preset=”default” custom_margin=”||0px||false|false” custom_padding=”||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_heading][\/et_pb_column][\/et_pb_row][et_pb_row module_class=”single-line-buttons ” _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_button button_text=”Xavier Solanich, MD, PHD” _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][et_pb_button button_text=”The University of Texas MD Anderson Cancer Center” _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||900″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][et_pb_button button_text=”Houston, TX” _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||divi||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][et_pb_button button_text=”8 oktober 2015″ _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/2015-MS-Houston-scaled.jpg” title_text=”2015 MS Houston” align=”center” force_fullwidth=”on” module_class=”event-image” _builder_version=”4.27.6″ _module_preset=”default” hover_enabled=”0″ border_radii=”on|10px|10px|10px|10px” global_colors_info=”{}” theme_builder_area=”post_content” sticky_enabled=”0″][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.27.6″ _module_preset=”default” custom_padding=”0px||||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”10px||||false|false” global_colors_info=”{}” width__hover_enabled=”off|desktop” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Samenvatting symposium<\/h2>\n

[\/et_pb_text][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”]Ongeveer 52 medische professionals uit acht landen woonden het jaarlijkse medische ECD-symposium in 2015 bij. Er werden twaalf mondelinge abstracts gepresenteerd. Als gastsprekers hield Omar Abdel-Wahab, MD, PhD, een presentatie getiteld \u201cDiverse and Targetable Kinase Alterations Drive Histiocytic Neoplasms\u201d en presenteerde Timothy Craig Allen, MD, JD \u201cSocial Media in the Rare Disease World.\u201d Een avondreceptie bood tijd voor discussies ter ondersteuning van huidige en toekomstige samenwerkingen binnen deze zeer deskundige groep artsen en wetenschappers, die allen ge\u00efnteresseerd zijn om meer te leren over Erdheim-Chester. [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#14b8a6″ global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Programma’s met symposiumagenda<\/h2>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row module_class=”single-line-buttons ” _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” locked=”off” global_colors_info=”{}” column_structure=”1_3,1_3,1_3″ theme_builder_area=”post_content”][et_pb_column type=”1_3″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/2015-Houston-Graphics.jpg” title_text=”2015 Houston Graphics” url=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/ECD-MEDICAL-PROGRAM-V4.pdf” url_new_window=”on” _builder_version=”4.27.6″ _module_preset=”default” hover_enabled=”0″ global_colors_info=”{}” theme_builder_area=”post_content” sticky_enabled=”0″][\/et_pb_image][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Presentaties<\/h2>\n

[\/et_pb_text][et_pb_text module_class=”event-table” _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n\n\n\n\n\t\n\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t
Presenter<\/th>Presentation Slides<\/th>English Video<\/th>\n<\/tr>\n<\/thead>\n
Filip Janku, MD PhD<\/td>Opening\/Welcome\/Introduction<\/td>No Video available<\/td>\n<\/tr>\n
Omar Abdel-Wahab, MD, PhD<\/td>Diverse and Targetable Kinase Alterations Drive Histiocytic Neoplasms<\/td>No Video available<\/td>\n<\/tr>\n
Lorenzo Dagna, MD, Marina Ferrarini, MD<\/td>Tocilizumab for ECD<\/td>No Video available<\/td>\n<\/tr>\n
Julien Haroche, MD, PhD, Zahir Amoura, MD<\/td>BRAF inhibitors in ECD ad overlap histiocytoses, an update 2015<\/td>No Video available<\/td>\n<\/tr>\n
Irina Eberle-Ayres, Stephen Cutler, PhD, David Bell, MSc, PhD<\/td>Targeted Delivery of Hemoglobin-Cladribine Conjugate Inhibits Proliferation of Cells Originating from Human Histiocytic Lymphomas<\/td>No Video available<\/td>\n<\/tr>\n
Roei Mazor, MD<\/td>Analysis of the neuro-radiological phenotypes, objective CNS responses to treatment and the long-term neuroradiological evolution of the ECD<\/td>No Video available<\/td>\n<\/tr>\n
Thomas Colby, MD<\/td>Does the absence of classic histology exclude ECD?<\/td>No Video available<\/td>\n<\/tr>\n
Filip Janku, MD PhD<\/td>Low \u2013frequency KRAS mutations in patients with BRAF-mutated ECD<\/td>No Video available<\/td>\n<\/tr>\n
Adrianna Muniz, PhD, Mark Erlander, PhD<\/td>CLIA laboratory testing of urinary BRAF V600E DNA mutations: application in the management of patients with histiocytic disease<\/td>No Video available<\/td>\n<\/tr>\n
Susan Robertson, PhD<\/td>Accepting Illness When Loss of Function is Permanent: A Model of Functional Adaptation<\/td>No Video available<\/td>\n<\/tr>\n
Juvianee Estrada-Veras, MD, Pamela Gardner, DMD<\/td>Oral manifestation of ECD<\/td>No Video available<\/td>\n<\/tr>\n
Juvianee Estrada-Veras, MD, William Gahl, MD, PhD<\/td>Cardiac health in ECD<\/td>No Video available<\/td>\n<\/tr>\n
Eli Diamond, MD<\/td>Diffuse reduction of cerebral grey matter volumes in ECD<\/td>No Video available<\/td>\n<\/tr>\n
Eli Diamond, MD, Filip Janku, MD, PhD, Juvianee I. Estrada-Veras, MD, Augusto Vaglio, MD, PhD, Lorenzo Dagna, MD<\/td>Panel discussion: Clinical Trials in ECD<\/td>No Video available<\/td>\n<\/tr>\n
Timothy Craig Allen, MD, JD<\/td>Social Media in the Rare Disease World<\/td>No Video available<\/td>\n<\/tr>\n
Filip Janku, MD, PhD, Kathleen Brewer<\/td>Symposium Conclusion<\/td>No Video available<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n\n

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Samenvatting symposiumOngeveer 52 medische professionals uit acht landen woonden het jaarlijkse medische ECD-symposium in 2015 bij. Er werden twaalf mondelinge abstracts gepresenteerd. Als gastsprekers hield Omar Abdel-Wahab, MD, PhD, een […]<\/p>\n","protected":false},"author":20,"featured_media":135378,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"yes","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[4825],"tags":[],"class_list":["post-102149","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-medisch-symposium"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/102149","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/comments?post=102149"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/102149\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media\/135378"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media?parent=102149"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/categories?post=102149"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/tags?post=102149"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}