{"id":102060,"date":"2018-04-01T18:10:48","date_gmt":"2018-04-01T23:10:48","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/6e-jaarlijkse-ecd-medisch-symposium-orlando-fl\/"},"modified":"2026-07-07T11:38:28","modified_gmt":"2026-07-07T16:38:28","slug":"6e-jaarlijkse-ecd-medisch-symposium-orlando-fl","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/nl\/6e-jaarlijkse-ecd-medisch-symposium-orlando-fl\/","title":{"rendered":"6e jaarlijkse ECD medisch symposium Orlando, FL"},"content":{"rendered":"

[et_pb_section fb_built=”1″ _builder_version=”4.27.6″ _module_preset=”default” custom_padding=”20px||0px||false|false” locked=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||10px||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_heading title=”6e jaarlijkse ECD medisch symposium Orlando, FL” _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||0px||false|false” custom_padding=”||0px||false|false” global_colors_info=”{}”][\/et_pb_heading][\/et_pb_column][\/et_pb_row][et_pb_row module_class=”single-line-buttons ” _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||0px||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”][et_pb_button button_text=”Julio Hahdenberg, MD” _builder_version=”4.27.7″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_text=”Orlando Health & University of Florida Health Cancer Center” _builder_version=”4.27.7″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||900″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_text=”Orlando, FL” _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||divi||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_text=”1 april 2018″ _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}”][\/et_pb_button][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/6th-Annual-ECD-Medical-Symposium-Orlando-FL.jpg” title_text=”6e jaarlijkse ECD medisch symposium Orlando, FL” align=”center” force_fullwidth=”on” module_class=”event-image” _builder_version=”4.27.7″ _module_preset=”default” border_radii=”on|10px|10px|10px|10px” global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” text_font_size=”14px” text_line_height=”-0.1em” text_orientation=”center” global_colors_info=”{}”]<\/p>\n

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Groepsfoto Medisch Symposium Orlando 2018<\/p>\n<\/div>\n<\/div>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.27.5″ _module_preset=”default” custom_padding=”0px||||false|false” locked=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” locked=”off” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}”]<\/p>\n

Samenvatting symposium<\/h2>\n

[\/et_pb_text][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”]Ongeveer 44 medische professionals uit zes landen woonden in 2018 het jaarlijkse medisch symposium over ECD bij. Er werden tien mondelinge abstracts gepresenteerd, samen met nog eens zes posterpresentaties. Als gastspreker hield Matthew Collin een lezing getiteld \u201cErdheim-Chester Disease: Cancer, but not as we know it.\u201d Een avondreceptie bood tijd voor discussies ter ondersteuning van huidige en toekomstige samenwerkingen binnen deze zeer deskundige groep artsen en wetenschappers, die er allemaal op gebrand zijn meer te leren over de ziekte van Erdheim-Chester. [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” locked=”off” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}”]<\/p>\n

Ervaringen van deelnemers<\/h2>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_2,1_2″ _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||||false|false” locked=”off” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n

\u201c[De ECD Global Alliance] heeft mij en mijn pati\u00ebnten geholpen door experts samen te brengen om gezamenlijk vooruitgang te boeken.\u201d <\/em><\/p>\n

\u2013 Ronald S. Go, MD, deelnemer in 2018<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” locked=”off” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.5″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#14b8a6″ global_colors_info=”{}”]<\/p>\n

Programma’s met symposiumagenda<\/h2>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_3,1_3,1_3″ module_class=”single-line-buttons ” _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” locked=”off” global_colors_info=”{}”][et_pb_column type=”1_3″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/2018-Orlando-MS-Program-Cover.jpg” title_text=”Omslag programma MS Orlando 2018″ url=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/2018-ECD-Medical-Program-Combo-Final.pdf” url_new_window=”on” _builder_version=”4.27.6″ _module_preset=”default” border_radii=”on|8px|8px|8px|8px” border_width_all=”1px” border_color_all=”#c1c1c1″ global_colors_info=”{}”][\/et_pb_image][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” locked=”off” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}”]<\/p>\n

Presentaties<\/h2>\n

[\/et_pb_text][et_pb_text module_class=”event-table” _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n\n\n\n\n\t\n\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t
Presenter<\/th>Presentation Slides<\/th>English Video<\/th>\n<\/tr>\n<\/thead>\n
Julio Hajdenberg, MD<\/td>Welcome Address<\/td>Not Available<\/td>\n<\/tr>\n
Matthew Collin, MD, PhD<\/td>Erdheim Chester Disease: Cancer, but not as we know it.<\/a><\/td>Not Available<\/td>\n<\/tr>\n
Eli L. Diamond, MD<\/td>Patient-reported outcomes in adults with Erdheim-Chester Disease: Early findings from the ECD Registry<\/a><\/td>Not Available<\/td>\n<\/tr>\n
Benjamin Durham, MD<\/td>Novel Activating Mutations in CSF1R and Additional Receptor Tyrosine Kinases in Histiocytic Neoplasms<\/a><\/td>Not Available<\/td>\n<\/tr>\n
Ran Weissman, M.Sc<\/td>The role of microRNAs in the Pathogenesis of Erdheim-Chester Disease and their Potential Use as Biomarkers for Diagnosis and Prognosis of the Disease<\/a><\/td>Not Available<\/td>\n<\/tr>\n
Julien Haroche, MD, PhD<\/td>Slide deck not available<\/td>Imaging aspect of cardiac involvement in Erdheim-Chester disease: cardiac CT and MRI of 188 patients<\/a><\/td>\n<\/tr>\n
Gaurav Goyal, MD<\/td>Tumor mutational burden and other immunotherapy markers in Erdheim-Chester disease and other histiocytic neoplasms<\/a><\/td>Tumor mutational burden and other immunotherapy markers in Erdheim-Chester disease and other histiocytic neoplasms<\/a><\/td>\n<\/tr>\n
Ana\u00efs Roeser, MD<\/td>Auto-immunity in L-group histiocytoses<\/a><\/td>Auto-immunity in L-group histiocytoses<\/a><\/td>\n<\/tr>\n
Roei Mazor, MD<\/td>Efficacy of Dual BRAF\/MAP2K1 Blockade in BRAF mutant Erdheim Chester Disease Patients<\/td>No Videos available<\/td>\n<\/tr>\n
Skand Shekhar, MD<\/td>Hypothyroidism in Erdheim-Chester Disease: Experience from the National Institutes of Health<\/a><\/td>No Videos available<\/td>\n<\/tr>\n
Gordon Ruan, MD<\/td>Acute Pancreatitis from treatment with BRAF-inhibitors in patients with Erdheim-Chester Disease<\/a><\/td>Acute Pancreatitis from treatment with BRAF-inhibitors in patients with Erdheim-Chester Disease<\/a><\/td>\n<\/tr>\n
Eli L. Diamond, MD<\/td>Panel Discussion: TOXICITY OF ECD THERAPIES<\/td>No Videos available<\/td>\n<\/tr>\n
Julio Hajdenberg, MD<\/td>Panel Discussion: COMPLEX CASE STUDIES<\/a><\/td>No Videos available<\/td>\n<\/tr>\n
Kathleen Brewer<\/td>ECDGA Announcements<\/a><\/td>No Videos available<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}”]<\/p>\n

Foto’s<\/h2>\n

[\/et_pb_text][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”20px||0px||false|false” global_colors_info=”{}”]<\/p>\n

Medisch Symposium<\/h3>\n

[\/et_pb_text][et_pb_gallery gallery_ids=”30569,30581,31121,31109,31097,31085,31073,31061,31049,31037,31025,31001,30989,30977,30965,30953,30941,30929,30917,30905,30893,30881,30869,30857,30845,30833,30821,30809,30797,30785,30773,30761,30749,30737,30725,30713,30701,30689,30677,30665,30653,30641,30629,30617,30605,30593″ posts_number=”100″ orientation=”portrait” show_title_and_caption=”off” zoom_icon_color=”#FFFFFF” hover_overlay_color=”rgba(0,0,0,0.6)” hover_icon=”L||divi||400″ module_class=”event-gallery” _builder_version=”4.27.6″ _module_preset=”default” db_images_per_row=”5″ db_image_max_width=”95%” db_image_max_height=”88px” db_image_row_spacing=”1%” dbdb_version=”5.5″ db_image_object_fit=”cover” dbdb_enable_grid_slide_in=”off” border_radii_image=”on|8px|8px|8px|8px” global_colors_info=”{}”][\/et_pb_gallery][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”20px||0px||false|false” global_colors_info=”{}”]<\/p>\n

Medische bijeenkomst<\/h3>\n

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Groepsfoto Medisch Symposium Orlando 2018 Samenvatting symposiumOngeveer 44 medische professionals uit zes landen woonden in 2018 het jaarlijkse medisch symposium over ECD bij. Er werden tien mondelinge abstracts gepresenteerd, samen […]<\/p>\n","protected":false},"author":20,"featured_media":173029,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"\"\"<\/a>Location:<\/strong> Orlando, FL\r\n\r\n\"[The ECD\u00a0Global Alliance] has helped me and my patients by] bringing experts together to make collaborative progress.\" -<\/em>\u00a0 Ronald S. Go, MD, 2018 Attendee\r\n

Presentations<\/h4>\r\nComing soon!\r\n\r\n\u00a0\r\n\r\n\u00a0\r\n\r\n\u00a0\r\n

Receptions Photos<\/h4>\r\n[gallery columns=\"4\" size=\"full\" ids=\"30567,30579,30591,30603,30615,30627,30639,30651,30663,30675,30687,30699,30711,30723,30735,30747,30759,30771,30783,30795,30807,30819,30831,30843,30855,30867,30879,30891,30903,30915,30927,30939,30951,30963,30975,30987,30999,31011,31023,31035,31047,31059,31071,31083,31095,31107,31119\"]\r\n

Medical Meeting Photos<\/h4>\r\n[gallery columns=\"4\" size=\"full\" ids=\"31131,31143,31155,31167,31179,31191,31203,31215,31227,31239,31251,31263,31275,31287,31299,31311,31323,31335,31347,31359,31371,31383,31395,31407,31419,31431,31443,31455,31467,31479,31491,31503,31515,31527,31539,31551,31563,31575,31587,31599,31611,31623,31635,31647,31659,31671,31683,31695,31707,31719,31731,31743,31755,31767,31779,31791,31803,31815,31827,31839,31851,31863,31875,31887,31899,31911,31923,31935,31947,31959,31971,31983,31995,32007\"]","_et_gb_content_width":"","cybocfi_hide_featured_image":"yes","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[4825],"tags":[],"class_list":["post-102060","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-medisch-symposium"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/102060","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/comments?post=102060"}],"version-history":[{"count":48,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/102060\/revisions"}],"predecessor-version":[{"id":173103,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/102060\/revisions\/173103"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media\/173029"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media?parent=102060"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/categories?post=102060"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/tags?post=102060"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}