{"id":102036,"date":"2018-04-01T18:10:48","date_gmt":"2018-04-01T23:10:48","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=102036"},"modified":"2026-07-10T12:01:09","modified_gmt":"2026-07-10T17:01:09","slug":"6th-annual-ecd-medical-symposium-orlando-fl","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/nl\/6th-annual-ecd-medical-symposium-orlando-fl\/","title":{"rendered":"6e jaarlijkse ECD Medical Symposium in Orlando, Florida"},"content":{"rendered":"

[et_pb_section fb_built=”1″ _builder_version=”4.27.6″ _module_preset=”default” custom_padding=”20px||0px||false|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||10px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_heading title=”6th Annual ECD Medical Symposium Orlando, FL” _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||0px||false|false” custom_padding=”||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_heading][\/et_pb_column][\/et_pb_row][et_pb_row module_class=”single-line-buttons ” _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_button button_text=”Julio Hahdenberg, MD” _builder_version=”4.27.7″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][et_pb_button button_text=”Orlando Health & University of Florida Health Cancer Center” _builder_version=”4.27.7″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||900″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][et_pb_button button_text=”Orlando, FL” _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||divi||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][et_pb_button button_text=”April 1, 2018″ _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/07\/6th-ms.png” title_text=”6th ms” align=”center” force_fullwidth=”on” module_class=”past-event-image” _builder_version=”4.27.7″ _module_preset=”default” hover_enabled=”0″ border_radii=”on|10px|10px|10px|10px” global_colors_info=”{}” theme_builder_area=”post_content” custom_margin=”||10px||false|false” sticky_enabled=”0″][\/et_pb_image][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” text_font_size=”14px” text_line_height=”-0.1em” text_orientation=”center” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

\n
\n

Orlando Medical Symposium Group Picture 2018<\/p>\n<\/div>\n<\/div>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.27.5″ _module_preset=”default” custom_padding=”0px||||false|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Symposium Summary<\/h2>\n

[\/et_pb_text][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”]Approximately 44 medical professionals from six countries attended the Annual ECD Medical Symposium in 2018. Ten oral abstracts were presented, along with an additional six poster presentations. As an invited speaker, Matthew Collin, delivered a talk titled \u201cErdheim-Chester Disease: Cancer, but not as we know it.\u201d An evening reception provided time for discussions supporting current and future collaborations among this highly knowledgeable group of physicians and scientists, all interested in learning more about Erdheim-Chester Disease. [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Attendee Experiences<\/h2>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_2,1_2″ _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||||false|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”1_2″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

\u201c[The ECD\u00a0Global Alliance] has helped me and my patients by] bringing experts together to make collaborative progress.\u201d <\/em><\/p>\n

\u2013 Ronald S. Go, MD, 2018 Attendee<\/strong><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.5″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#14b8a6″ global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Programs with Symposium Agenda<\/h2>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_3,1_3,1_3″ module_class=”single-line-buttons ” _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”1_3″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/2018-Orlando-MS-Program-Cover.jpg” title_text=”2018 Orlando MS Program Cover” url=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/2018-ECD-Medical-Program-Combo-Final.pdf” url_new_window=”on” _builder_version=”4.27.6″ _module_preset=”default” border_radii=”on|8px|8px|8px|8px” border_width_all=”1px” border_color_all=”#c1c1c1″ global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_image][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Presentations<\/h2>\n

[\/et_pb_text][et_pb_text module_class=”event-table” _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n\n\n\n\n\t\n\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t
Presenter<\/th>Presentation Slides<\/th>English Video<\/th>\n<\/tr>\n<\/thead>\n
Julio Hajdenberg, MD<\/td>Welcome Address<\/td>Not Available<\/td>\n<\/tr>\n
Matthew Collin, MD, PhD<\/td>Erdheim Chester Disease: Cancer, but not as we know it.<\/a><\/td>Not Available<\/td>\n<\/tr>\n
Eli L. Diamond, MD<\/td>Patient-reported outcomes in adults with Erdheim-Chester Disease: Early findings from the ECD Registry<\/a><\/td>Not Available<\/td>\n<\/tr>\n
Benjamin Durham, MD<\/td>Novel Activating Mutations in CSF1R and Additional Receptor Tyrosine Kinases in Histiocytic Neoplasms<\/a><\/td>Not Available<\/td>\n<\/tr>\n
Ran Weissman, M.Sc<\/td>The role of microRNAs in the Pathogenesis of Erdheim-Chester Disease and their Potential Use as Biomarkers for Diagnosis and Prognosis of the Disease<\/a><\/td>Not Available<\/td>\n<\/tr>\n
Julien Haroche, MD, PhD<\/td>Slide deck not available<\/td>Imaging aspect of cardiac involvement in Erdheim-Chester disease: cardiac CT and MRI of 188 patients<\/a><\/td>\n<\/tr>\n
Gaurav Goyal, MD<\/td>Tumor mutational burden and other immunotherapy markers in Erdheim-Chester disease and other histiocytic neoplasms<\/a><\/td>Tumor mutational burden and other immunotherapy markers in Erdheim-Chester disease and other histiocytic neoplasms<\/a><\/td>\n<\/tr>\n
Ana\u00efs Roeser, MD<\/td>Auto-immunity in L-group histiocytoses<\/a><\/td>Auto-immunity in L-group histiocytoses<\/a><\/td>\n<\/tr>\n
Roei Mazor, MD<\/td>Efficacy of Dual BRAF\/MAP2K1 Blockade in BRAF mutant Erdheim Chester Disease Patients<\/td>No Videos available<\/td>\n<\/tr>\n
Skand Shekhar, MD<\/td>Hypothyroidism in Erdheim-Chester Disease: Experience from the National Institutes of Health<\/a><\/td>No Videos available<\/td>\n<\/tr>\n
Gordon Ruan, MD<\/td>Acute Pancreatitis from treatment with BRAF-inhibitors in patients with Erdheim-Chester Disease<\/a><\/td>Acute Pancreatitis from treatment with BRAF-inhibitors in patients with Erdheim-Chester Disease<\/a><\/td>\n<\/tr>\n
Eli L. Diamond, MD<\/td>Panel Discussion: TOXICITY OF ECD THERAPIES<\/td>No Videos available<\/td>\n<\/tr>\n
Julio Hajdenberg, MD<\/td>Panel Discussion: COMPLEX CASE STUDIES<\/a><\/td>No Videos available<\/td>\n<\/tr>\n
Kathleen Brewer<\/td>ECDGA Announcements<\/a><\/td>No Videos available<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Photographs<\/h2>\n

[\/et_pb_text][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”20px||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Medical Symposium<\/h3>\n

[\/et_pb_text][et_pb_gallery gallery_ids=”30567,30579,31119,31107,31095,31083,31071,31059,31047,31035,31023,30999,30987,30975,30963,30951,30939,30927,30915,30903,30891,30879,30867,30855,30843,30831,30819,30807,30795,30783,30771,30759,30747,30735,30723,30711,30699,30687,30675,30663,30651,30639,30627,30615,30603,30591″ posts_number=”100″ orientation=”portrait” show_title_and_caption=”off” zoom_icon_color=”#FFFFFF” hover_overlay_color=”rgba(0,0,0,0.6)” hover_icon=”L||divi||400″ module_class=”event-gallery” _builder_version=”4.27.6″ _module_preset=”default” db_images_per_row=”5″ db_image_max_width=”95%” db_image_max_height=”88px” db_image_row_spacing=”1%” dbdb_version=”5.6″ db_image_object_fit=”cover” dbdb_enable_grid_slide_in=”off” border_radii_image=”on|8px|8px|8px|8px” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_gallery][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”20px||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Medical Meeting<\/h3>\n

[\/et_pb_text][et_pb_gallery gallery_ids=”31131,32007,31995,31983,31971,31959,31947,31935,31923,31911,31899,31887,31875,31863,31851,31839,31827,31815,31803,31791,31779,31767,31755,31743,31731,31719,31707,31695,31683,31671,31659,31647,31635,31623,31611,31599,31587,31575,31563,31551,31539,31527,31515,31503,31491,31479,31467,31455,31443,31431,31419,31407,31395,31383,31371,31359,31347,31335,31323,31311,31299,31287,31275,31263,31251,31239,31227,31203,31191,31179,31167,31155,31143″ posts_number=”100″ orientation=”portrait” show_title_and_caption=”off” module_class=”event-gallery” _builder_version=”4.27.6″ _module_preset=”default” db_images_per_row=”5″ db_image_max_width=”95%” db_image_max_height=”88px” db_image_row_spacing=”1%” dbdb_version=”5.6″ db_image_object_fit=”cover” border_radii_image=”on|8px|8px|8px|8px” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_gallery][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"

Orlando Medical Symposium Group Picture 2018 Symposium SummaryApproximately 44 medical professionals from six countries attended the Annual ECD Medical Symposium in 2018. Ten oral abstracts were presented, along with an […]<\/p>\n","protected":false},"author":20,"featured_media":172586,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"\"\"<\/a>Location:<\/strong> Orlando, FL\r\n\r\n\"[The ECD\u00a0Global Alliance] has helped me and my patients by] bringing experts together to make collaborative progress.\" -<\/em>\u00a0 Ronald S. Go, MD, 2018 Attendee\r\n

Presentations<\/h4>\r\nComing soon!\r\n\r\n\u00a0\r\n\r\n\u00a0\r\n\r\n\u00a0\r\n

Receptions Photos<\/h4>\r\n[gallery columns=\"4\" size=\"full\" ids=\"30567,30579,30591,30603,30615,30627,30639,30651,30663,30675,30687,30699,30711,30723,30735,30747,30759,30771,30783,30795,30807,30819,30831,30843,30855,30867,30879,30891,30903,30915,30927,30939,30951,30963,30975,30987,30999,31011,31023,31035,31047,31059,31071,31083,31095,31107,31119\"]\r\n

Medical Meeting Photos<\/h4>\r\n[gallery columns=\"4\" size=\"full\" ids=\"31131,31143,31155,31167,31179,31191,31203,31215,31227,31239,31251,31263,31275,31287,31299,31311,31323,31335,31347,31359,31371,31383,31395,31407,31419,31431,31443,31455,31467,31479,31491,31503,31515,31527,31539,31551,31563,31575,31587,31599,31611,31623,31635,31647,31659,31671,31683,31695,31707,31719,31731,31743,31755,31767,31779,31791,31803,31815,31827,31839,31851,31863,31875,31887,31899,31911,31923,31935,31947,31959,31971,31983,31995,32007\"]","_et_gb_content_width":"","cybocfi_hide_featured_image":"yes","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[4815],"tags":[],"class_list":["post-102036","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-medical-symposium"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/102036","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/comments?post=102036"}],"version-history":[{"count":4,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/102036\/revisions"}],"predecessor-version":[{"id":174021,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/102036\/revisions\/174021"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media\/172586"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media?parent=102036"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/categories?post=102036"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/tags?post=102036"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}