{"id":57514,"date":"2014-11-20T13:28:58","date_gmt":"2014-11-20T19:28:58","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/gemeenschap-chats\/"},"modified":"2026-05-26T07:17:53","modified_gmt":"2026-05-26T12:17:53","slug":"gemeenschap-chats","status":"publish","type":"page","link":"https:\/\/www.erdheim-chester.org\/nl\/gemeenschap-chats\/","title":{"rendered":"Gemeenschap chats"},"content":{"rendered":"

[et_pb_section fb_built=”1″ _builder_version=”4.27.6″ _module_preset=”default” background_image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/12\/Untitled-design-96-1.png” background_position=”bottom_center” background_vertical_offset=”20%” custom_padding=”15px||15px||true|false” background_last_edited=”on|desktop” background_position_tablet=”bottom_right” background_position_phone=”center_right” global_module=”28071″ global_colors_info=”{}”][et_pb_row _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_heading title=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF90aXRsZSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IiIsImFmdGVyIjoiIn19@” _builder_version=”4.27.4″ _dynamic_attributes=”title” _module_preset=”default” title_font=”–et_global_heading_font|300|||||||” title_text_color=”#FFFFFF” title_font_size=”40px” custom_margin=”||3px|||” title_font_size_tablet=”” title_font_size_phone=”25px” title_font_size_last_edited=”on|phone” global_colors_info=”{}”][\/et_pb_heading][et_pb_button button_url=”https:\/\/www.erdheim-chester.org\/nl\/neem-contact-met-ons-op\/” button_text=”Neem contact met ons op” _builder_version=”4.27.4″ _module_preset=”default” custom_button=”on” button_text_size=”15px” button_text_color=”#C02E43″ button_bg_color=”rgba(10,22,64,0.53)” button_border_width=”0px” button_icon=”||divi||400″ button_icon_color=”#C02E43″ button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” filter_opacity__hover_enabled=”on|hover” filter_opacity__hover=”70%”][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_row column_structure=”2_3,1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”2_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” custom_padding=”6px|||||” global_colors_info=”{}”]<\/p>\n

Online verbinding met uw gemeenschap<\/h2>\n

De ECD Global Alliance organiseert elke maand virtuele online chats voor iedereen in de ECD gemeenschap. Hieronder vallen pati\u00ebnten, verzorgers\/verzorgers, familieleden, medisch personeel, onderzoekers, enz. <\/p>\n

Als u zich registreert bij de ECD Global Alliance, ontvangt u een e-mail waarin elke chatsessie wordt aangekondigd die relevant is voor uw rol. Als u zich nog niet bij de groep hebt geregistreerd, raden we u aan dat hier<\/a> te doen om op de hoogte te blijven. <\/p>\n

De chats staan open voor elk discussieonderwerp dat redelijk is. Vaak besproken onderwerpen zijn ECD diagnose kwesties, behandelingen, tests, goed ge\u00efnformeerde artsen, symptomen, behandeling bijwerkingen, en soms gewoon vriendelijke discussies over leuke dingen die gebeuren in het leven van de deelnemers. De meesten die de sessies bijwonen, hebben connecties gevonden en blijven ook buiten de chatsessies corresponderen. De bijeenkomsten bieden ook een ondersteuningsstructuur voor degenen die zoveel mogelijk willen leren over ECD en elkaar willen steunen. <\/a><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.4″ _module_preset=”default” background_color=”#35A4BB” custom_padding=”30px|30px|30px|30px|true|true” border_radii=”on|10px|10px|10px|10px” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” background_layout=”dark” global_colors_info=”{}”]<\/p>\n

Rouw Verbinding<\/h3>\n

Het verlies van een dierbare aan de ziekte van Erdheim-Chester is een ongelooflijk pijnlijke reis en niemand zou deze alleen moeten doormaken. Hoewel we niet langer van tevoren rouwgesprekken plannen, zijn we er om je te steunen wanneer je dat het meest nodig hebt. Neem contact op met onze pati\u00ebntennavigator voor meer informatie.<\/p>\n

[\/et_pb_text][et_pb_button button_url=”mailto:Belinda.Cobb@erdheim-chester.org” button_text=”Neem contact met ons op” button_alignment=”center” _builder_version=”4.27.4″ _module_preset=”default” custom_button=”on” button_text_color=”#35A4BB” button_bg_color=”#FFFFFF” button_border_radius=”8px” button_use_icon=”off” custom_padding=”10px||10px||true|false” custom_css_main_element=”width: 100%;” global_colors_info=”{}”][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ module_class=”chat-sessions” _builder_version=”4.27.4″ _module_preset=”default” background_color=”#0A1640″ global_colors_info=”{}”][et_pb_row _builder_version=”4.27.4″ _module_preset=”default” custom_padding=”0px||0px||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_text_color=”#FFFFFF” background_layout=”dark” global_colors_info=”{}”]<\/p>\n

Engelstalige groepen<\/h2>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_3,1_3,1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/04\/Peer-to-Peer-Chat.png” title_text=”Peer-to-Peer Chat” _builder_version=”4.27.4″ _module_preset=”default” border_radii=”on|8px|8px|8px|8px” global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font_size=”18px” text_line_height=”1.8em” text_orientation=”center” custom_css_main_element=”color: #ffffff;” global_colors_info=”{}”]<\/p>\n

New events coming soon.<\/div>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/04\/Caregiver-Chat.png” title_text=”Chat met verzorgers” _builder_version=”4.27.4″ _module_preset=”default” border_radii=”on|8px|8px|8px|8px” global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font_size=”18px” text_line_height=”1.8em” text_orientation=”center” custom_css_main_element=”color: #ffffff;” global_colors_info=”{}”]<\/p>\n

New events coming soon.<\/div>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.4″ _module_preset=”default” custom_padding=”||||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” background_layout=”dark” global_colors_info=”{}”]<\/p>\n

Internationale groepen<\/h2>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_3,1_3,1_3″ _builder_version=”4.27.4″ _module_preset=”default” custom_padding=”0px||||false|false” global_colors_info=”{}”][et_pb_column type=”1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” background_layout=”dark” custom_margin=”||10px||false|false” global_colors_info=”{}”]<\/p>\n

Canadees chatten<\/h3>\n

[\/et_pb_text][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/08\/download-5.png” title_text=”download (5)” _builder_version=”4.27.4″ _module_preset=”default” border_radii=”on|8px|8px|8px|8px” global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font_size=”18px” text_line_height=”1.8em” text_orientation=”center” custom_css_main_element=”color: #ffffff;” global_colors_info=”{}”]<\/p>\n

New events coming soon.<\/div>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” background_layout=”dark” custom_margin=”||10px||false|false” global_colors_info=”{}”]<\/p>\n

Chat voor mensen die espa\u00f1ol spreken<\/h3>\n

[\/et_pb_text][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/04\/Spanish-Chat.png” title_text=”Spaanse chat” _builder_version=”4.27.4″ _module_preset=”default” border_radii=”on|8px|8px|8px|8px” global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font_size=”18px” text_line_height=”1.8em” text_orientation=”center” custom_css_main_element=”color: #ffffff;” global_colors_info=”{}”]<\/p>\n

New events coming soon.<\/div>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” background_layout=”dark” custom_margin=”||10px||false|false” global_colors_info=”{}”]<\/p>\n

Australische en Nieuw-Zeelandse chats<\/h3>\n

[\/et_pb_text][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/05\/australia-june.png” title_text=”Australi\u00eb juni” _builder_version=”4.27.6″ _module_preset=”default” hover_enabled=”0″ border_radii=”on|8px|8px|8px|8px” global_colors_info=”{}” sticky_enabled=”0″][\/et_pb_image][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font_size=”18px” text_line_height=”1.8em” text_orientation=”center” custom_css_main_element=”color: #ffffff;” global_colors_info=”{}”]<\/p>\n

New events coming soon.<\/div>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_3,1_3,1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” background_layout=”dark” custom_margin=”||10px||false|false” global_colors_info=”{}”]<\/p>\n

Italiaanse chat<\/span><\/span><\/span><\/h3>\n

[\/et_pb_text][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/04\/Italian-Chat.png” title_text=”Italiaanse chat” _builder_version=”4.27.4″ _module_preset=”default” border_radii=”on|8px|8px|8px|8px” global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font_size=”18px” text_line_height=”1.8em” text_orientation=”center” custom_css_main_element=”color: #ffffff;” global_colors_info=”{}”]<\/p>\n

New events coming soon.<\/div>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” background_layout=”dark” custom_margin=”||10px||false|false” global_colors_info=”{}”]<\/p>\n

Franstalige chat<\/h3>\n

[\/et_pb_text][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/04\/French-Chat.png” title_text=”Franse chat” _builder_version=”4.27.4″ _module_preset=”default” border_radii=”on|8px|8px|8px|8px” global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font_size=”18px” text_line_height=”1.8em” text_orientation=”center” custom_css_main_element=”color: #ffffff;” global_colors_info=”{}”]<\/p>\n

New events coming soon.<\/div>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” background_layout=”dark” custom_margin=”||10px||false|false” global_colors_info=”{}”]<\/p>\n

Deutschsprachiger Chat<\/h3>\n

[\/et_pb_text][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/04\/German-Chat.png” title_text=”Duitse chat” _builder_version=”4.27.4″ _module_preset=”default” border_radii=”on|8px|8px|8px|8px” global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font_size=”18px” text_line_height=”1.8em” text_orientation=”center” custom_css_main_element=”color: #ffffff;” global_colors_info=”{}”]<\/p>\n

New events coming soon.<\/div>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_row _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_video src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/05\/Community-Chats.mp4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][\/et_pb_video][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/06\/Housekeeping.png” title_text=”Huishouding” _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_row _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n

Voorheen hield de ECDGA live online chatsessies voor de gemeenschap. Samenvattingen van eerdere chatsessies zijn hier<\/a> verzameld en gearchiveerd. <\/p>\n

Lees ons beleid voor virtuele deelname<\/a> voordat u deelneemt aan een bijeenkomst of webinar van ECD Global Alliance.<\/p>\n

OPMERKING: Controleer je tijdzone hier: Tijdzoneconverter<\/a>.<\/p>\n

Er zal geen<\/u> medische professional zijn die helpt bij deze gesprekken. Elke pati\u00ebnt is uniek en medisch advies kan hier niet worden gegeven; we moedigen aan om alle idee\u00ebn met artsen te delen. Lees ons Beleid voor virtuele deelname.<\/a> <\/p>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"

Online verbinding met uw gemeenschap De ECD Global Alliance organiseert elke maand virtuele online chats voor iedereen in de ECD gemeenschap. Hieronder vallen pati\u00ebnten, verzorgers\/verzorgers, familieleden, medisch personeel, onderzoekers, enz. […]<\/p>\n","protected":false},"author":14,"featured_media":57518,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":[],"cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-57514","page","type-page","status-publish","has-post-thumbnail","hentry"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/pages\/57514","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/comments?post=57514"}],"version-history":[{"count":7,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/pages\/57514\/revisions"}],"predecessor-version":[{"id":134203,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/pages\/57514\/revisions\/134203"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media\/57518"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media?parent=57514"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}