{"id":54181,"date":"2014-11-25T11:19:32","date_gmt":"2014-11-25T16:19:32","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/nieuw-gediagnosticeerd-met-ecd\/"},"modified":"2025-05-07T15:51:34","modified_gmt":"2025-05-07T19:51:34","slug":"nieuw-gediagnosticeerd-met-ecd","status":"publish","type":"page","link":"https:\/\/www.erdheim-chester.org\/nl\/nieuw-gediagnosticeerd-met-ecd\/","title":{"rendered":"Nieuw gediagnosticeerd met ECD"},"content":{"rendered":"

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De eerste stappen<\/h2>\n

Een diagnose van Erdheim-Chester Ziekte kan heel beangstigend zijn. Weet dat je er niet alleen voor staat. De ECD Global Alliance is er om je te helpen de informatie te krijgen die je nodig hebt. We hebben leden die al tientallen jaren met ECD leven. Hieronder vindt u enkele suggesties die u kunnen helpen de ziekte beter te begrijpen en welke acties u zou willen ondernemen. <\/p>\n