{"id":52320,"date":"2015-09-09T15:22:45","date_gmt":"2015-09-09T20:22:45","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/bronnen\/"},"modified":"2026-03-24T10:14:04","modified_gmt":"2026-03-24T15:14:04","slug":"bronnen","status":"publish","type":"page","link":"https:\/\/www.erdheim-chester.org\/nl\/bronnen\/","title":{"rendered":"Bronnen"},"content":{"rendered":"

[et_pb_section fb_built=”1″ _builder_version=”4.27.6″ _module_preset=”default” background_image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/12\/Untitled-design-96-1.png” background_position=”bottom_center” background_vertical_offset=”20%” custom_padding=”15px||15px||true|false” background_last_edited=”on|desktop” background_position_tablet=”bottom_right” background_position_phone=”center_right” global_module=”28071″ global_colors_info=”{}”][et_pb_row _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_heading title=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF90aXRsZSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IiIsImFmdGVyIjoiIn19@” _builder_version=”4.27.4″ _dynamic_attributes=”title” _module_preset=”default” title_font=”–et_global_heading_font|300|||||||” title_text_color=”#FFFFFF” title_font_size=”40px” custom_margin=”||3px|||” title_font_size_tablet=”” title_font_size_phone=”25px” title_font_size_last_edited=”on|phone” global_colors_info=”{}”][\/et_pb_heading][et_pb_button button_url=”https:\/\/www.erdheim-chester.org\/nl\/neem-contact-met-ons-op\/” button_text=”Neem contact met ons op” _builder_version=”4.27.4″ _module_preset=”default” custom_button=”on” button_text_size=”15px” button_text_color=”#C02E43″ button_bg_color=”rgba(10,22,64,0.53)” button_border_width=”0px” button_icon=”||divi||400″ button_icon_color=”#C02E43″ button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” filter_opacity__hover_enabled=”on|hover” filter_opacity__hover=”70%”][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ admin_label=”section” _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row admin_label=”rij” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text admin_label=”Text” _builder_version=”4.27.5″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” custom_margin=”||17px|||” global_colors_info=”{}”]<\/p>\n

Materiaal<\/h2>\n

Deze online bronnen worden vermeld om mogelijk nuttig advies en diensten aan te bieden die worden aangeboden door bedrijven in de gezondheidszorg, non-profitorganisaties en andere belangengroepen.<\/p>\n

De meeste van deze diensten worden aangeboden aan mensen die in de VS wonen. Als je nog meer hulpbronnen kent die in de lijst zouden moeten staan voor de VS of andere landen, neem dan contact op met de ECD Global Alliance. <\/p>\n

De meest recente, deskundige richtlijnen voor ECD zorg en behandeling zijn te vinden op Histiocytic Neoplasms – Guidelines Detail (nccn.org)<\/a> waar je moet klikken op ‘NCCN guidelines’. De site vereist een gratis account om toegang te krijgen tot het document, maar het is de moeite waard. <\/p>\n

Daarnaast biedt Survivorship Issues in Adult Patients with Histiocytic Neoplasms<\/a> richtlijnen voor het omgaan met enkele complicaties en uitdagingen die iemand die leeft met ECD kan tegenkomen.<\/p>\n

Medische ECD-experts in onze gemeenschap hebben geholpen bij het samenstellen van twee soorten brochures voor algemene educatie en bewustwordingsdoeleinden. De pati\u00ebntenbrochure is beschikbaar om nieuwe leden van de gemeenschap te helpen de basisprincipes van ECD te begrijpen. De medische brochure is beschikbaar om te delen met uw behandelteam of een medische professional. [\/et_pb_text][et_pb_button button_url=”https:\/\/www.erdheim-chester.org\/nl\/brochure-aanvragen\/” button_text=”Brochure aanvragen” _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.27.4″ _module_preset=”default” background_color=”rgba(200,200,200,0.3)” global_colors_info=”{}”][et_pb_row module_class=”resource-buttons” _builder_version=”4.27.6″ _module_preset=”default” custom_padding=”||0px||false|false” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″][et_pb_column type=”4_4″ _builder_version=”4.27.6″ _module_preset=”default” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″][et_pb_button button_url=”#medication” button_text=”Hulp bij medicatie” _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||10px||false|false” global_colors_info=”{}” button_bg_color__hover_enabled=”on|hover” button_bg_color__hover=”RGBA(255,255,255,0)” button_bg_enable_color__hover=”on”][\/et_pb_button][et_pb_button button_url=”#insurance” button_text=”Verzekering en financi\u00eble hulp” _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||10px||false|false” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_url=”#travel” button_text=”Hulp bij reizen” _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||10px||false|false” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_url=”#partner” button_text=”Partnerorganisaties voor belangenbehartiging” _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||10px||false|false” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_url=”#general” button_text=”Algemene bronnen” _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||10px||false|false” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_url=”#depression” button_text=”Hulp bij depressie en angst” _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||10px||false|false” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_url=”#apv” button_text=”APV-D Hulpmiddelen” _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||10px||false|false” global_colors_info=”{}”][\/et_pb_button][\/et_pb_column][\/et_pb_row][et_pb_row module_id=”medication” module_class=”blog-grid” _builder_version=”4.27.6″ _module_preset=”default” custom_padding=”10px||||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||17px|||” global_colors_info=”{}”]<\/p>\n

Hulp bij medicatie<\/h3>\n

Het vinden van een oplossing voor uw behoeften aan voorgeschreven medicijnen kan een uitdaging zijn. De volgende lijst bevat geneesmiddelenprogramma’s die mogelijk kunnen helpen om medicijnen betaalbaar te verkrijgen. U vindt ook hulp bij betalingen op onze webpagina <\/span>Beroep aantekenen bij de betaler<\/a>.<\/span><\/p>\n

[\/et_pb_text][dpdfg_filtergrid include_categories=”296″ thumbnail_action=”none” show_thumbnail=”off” use_overlay=”off” show_post_meta=”off” show_content=”on” content_length=”full” read_more=”on” read_more_text=”Bekijk” custom_content_container=”off” show_filters=”off” filter_layout=”select” show_pagination=”off” items_width=”24%” module_class=”my-dfg” _builder_version=”4.27.4″ _module_preset=”default” dpdfg_entry_title_text_align=”left” dpdfg_entry_summary_text_align=”left” dpdfg_filters_active_text_color=”#C02E43″ custom_read_more_button=”on” read_more_button_text_size=”13px” read_more_button_text_color=”#35A4BB” read_more_button_bg_color=”rgba(53,164,187,0.15)” read_more_button_icon=”$||divi||400″ read_more_button_on_hover=”off” read_more_button_alignment=”left” read_more_button_custom_padding=”0px|34px|0px|0px|true|false” border_width_all=”0px” global_colors_info=”{}” read_more_button_text_color__hover=”#FFFFFF” read_more_button_text_color__hover_enabled=”on|hover” read_more_button_bg_color__hover=”#35A4BB” read_more_button_bg_color__hover_enabled=”on|hover”][\/dpdfg_filtergrid][\/et_pb_column][\/et_pb_row][et_pb_row module_id=”insurance” _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||17px|||” global_colors_info=”{}”]<\/p>\n

Verzekering en financi\u00eble hulp<\/h3>\n

Financi\u00eble ondersteuning en ondersteuning in de gezondheidszorg kunnen beschikbaar zijn via de volgende bronnen.<\/span><\/p>\n

[\/et_pb_text][dpdfg_filtergrid include_categories=”297″ thumbnail_action=”none” show_thumbnail=”off” use_overlay=”off” show_post_meta=”off” show_content=”on” content_length=”full” read_more=”on” read_more_text=”Bekijk” show_filters=”off” show_pagination=”off” items_width=”24%” module_class=”blog-grid” _builder_version=”4.27.4″ _module_preset=”default” dpdfg_entry_title_text_align=”left” dpdfg_entry_summary_text_align=”left” custom_read_more_button=”on” read_more_button_text_size=”13px” read_more_button_text_color=”#35A4BB” read_more_button_bg_color=”rgba(53,164,187,0.15)” read_more_button_icon=”$||divi||400″ read_more_button_on_hover=”off” read_more_button_alignment=”left” read_more_button_custom_padding=”0px|34px|0px|0px|true|false” border_width_all=”0px” global_colors_info=”{}” read_more_button_text_color__hover=”#FFFFFF” read_more_button_text_color__hover_enabled=”on|hover” read_more_button_bg_color__hover=”#35A4BB” read_more_button_bg_color__hover_enabled=”on|hover”][\/dpdfg_filtergrid][\/et_pb_column][\/et_pb_row][et_pb_row module_id=”travel” _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||17px|||” global_colors_info=”{}”]<\/p>\n

Hulp bij reizen<\/h3>\n

[\/et_pb_text][dpdfg_filtergrid include_categories=”298″ thumbnail_action=”none” show_thumbnail=”off” use_overlay=”off” show_post_meta=”off” show_content=”on” content_length=”full” read_more=”on” read_more_text=”Bekijk” show_filters=”off” show_pagination=”off” items_width=”24%” module_class=”blog-grid” _builder_version=”4.27.4″ _module_preset=”default” dpdfg_entry_title_text_align=”left” dpdfg_entry_summary_text_align=”left” custom_read_more_button=”on” read_more_button_text_size=”13px” read_more_button_text_color=”#35A4BB” read_more_button_bg_color=”rgba(53,164,187,0.15)” read_more_button_icon=”$||divi||400″ read_more_button_on_hover=”off” read_more_button_alignment=”left” read_more_button_custom_padding=”0px|34px|0px|0px|true|false” border_width_all=”0px” global_colors_info=”{}” read_more_button_text_color__hover=”#FFFFFF” read_more_button_text_color__hover_enabled=”on|hover” read_more_button_bg_color__hover=”#35A4BB” read_more_button_bg_color__hover_enabled=”on|hover”][\/dpdfg_filtergrid][\/et_pb_column][\/et_pb_row][et_pb_row module_id=”partner” _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||17px|||” global_colors_info=”{}”]<\/p>\n

Partnerorganisaties voor belangenbehartiging<\/h3>\n

De volgende belangengroepen zijn actief op het gebied van histiocytose of zeldzame ziekten in het algemeen en kunnen u helpen op uw reis met ECD. <\/span>[\/et_pb_text][dpdfg_filtergrid include_categories=”299″ post_number=”100″ order=”ASC” orderby=”title” thumbnail_action=”none” show_thumbnail=”off” use_overlay=”off” show_post_meta=”off” show_content=”on” content_length=”full” read_more=”on” read_more_text=”Bekijk” show_filters=”off” show_pagination=”off” items_width=”24%” module_class=”blog-grid” _builder_version=”4.27.4″ _module_preset=”default” dpdfg_entry_title_text_align=”left” dpdfg_entry_summary_text_align=”left” custom_read_more_button=”on” read_more_button_text_size=”13px” read_more_button_text_color=”#35A4BB” read_more_button_bg_color=”rgba(53,164,187,0.15)” read_more_button_icon=”$||divi||400″ read_more_button_on_hover=”off” read_more_button_alignment=”left” read_more_button_custom_padding=”0px|34px|0px|0px|true|false” border_width_all=”0px” global_colors_info=”{}” read_more_button_text_color__hover=”#FFFFFF” read_more_button_text_color__hover_enabled=”on|hover” read_more_button_bg_color__hover=”#35A4BB” read_more_button_bg_color__hover_enabled=”on|hover”][\/dpdfg_filtergrid][\/et_pb_column][\/et_pb_row][et_pb_row module_id=”general” _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||17px|||” global_colors_info=”{}”]<\/p>\n

Algemene bronnen<\/h3>\n

[\/et_pb_text][dpdfg_filtergrid include_categories=”300″ thumbnail_action=”none” show_thumbnail=”off” use_overlay=”off” show_post_meta=”off” show_content=”on” content_length=”full” read_more=”on” read_more_text=”Bekijk” show_filters=”off” show_pagination=”off” items_width=”24%” module_class=”blog-grid” _builder_version=”4.27.4″ _module_preset=”default” dpdfg_entry_title_text_align=”left” dpdfg_entry_summary_text_align=”left” custom_read_more_button=”on” read_more_button_text_size=”13px” read_more_button_text_color=”#35A4BB” read_more_button_bg_color=”rgba(53,164,187,0.15)” read_more_button_icon=”$||divi||400″ read_more_button_on_hover=”off” read_more_button_alignment=”left” read_more_button_custom_padding=”0px|34px|0px|0px|true|false” border_width_all=”0px” global_colors_info=”{}” read_more_button_text_color__hover=”#FFFFFF” read_more_button_text_color__hover_enabled=”on|hover” read_more_button_bg_color__hover=”#35A4BB” read_more_button_bg_color__hover_enabled=”on|hover”][\/dpdfg_filtergrid][\/et_pb_column][\/et_pb_row][et_pb_row module_id=”depression” _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||17px|||” global_colors_info=”{}”]<\/p>\n

Hulp bij depressie en angst<\/h3>\n

Als je het gevoel hebt dat je jezelf of iemand anders iets zou kunnen aandoen, bel, sms of chat dan naar 988 om een crisisadviseur van de National Suicide and Crisis Prevention Hotline te bereiken. 24\/7 hulp. 988 Levenslijn<\/a><\/p>\n

[\/et_pb_text][dpdfg_filtergrid include_categories=”4828″ thumbnail_action=”none” show_thumbnail=”off” use_overlay=”off” show_post_meta=”off” show_content=”on” content_length=”full” read_more=”on” read_more_text=”Bekijk” show_filters=”off” show_pagination=”off” items_width=”24%” module_class=”blog-grid” _builder_version=”4.27.4″ _module_preset=”default” dpdfg_entry_title_text_align=”left” dpdfg_entry_summary_text_align=”left” custom_read_more_button=”on” read_more_button_text_size=”13px” read_more_button_text_color=”#35A4BB” read_more_button_bg_color=”rgba(53,164,187,0.15)” read_more_button_icon=”$||divi||400″ read_more_button_on_hover=”off” read_more_button_alignment=”left” read_more_button_custom_padding=”0px|34px|0px|0px|true|false” border_width_all=”0px” global_colors_info=”{}” read_more_button_text_color__hover=”#FFFFFF” read_more_button_text_color__hover_enabled=”on|hover” read_more_button_bg_color__hover=”#35A4BB” read_more_button_bg_color__hover_enabled=”on|hover”][\/dpdfg_filtergrid][\/et_pb_column][\/et_pb_row][et_pb_row module_id=”apv” _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||17px|||” global_colors_info=”{}”]<\/p>\n

APV-D Hulpmiddelen<\/h3>\n

[\/et_pb_text][dpdfg_filtergrid include_categories=”4829″ thumbnail_action=”none” show_thumbnail=”off” use_overlay=”off” show_post_meta=”off” show_content=”on” content_length=”full” read_more=”on” read_more_text=”Bekijk” show_filters=”off” show_pagination=”off” items_width=”24%” module_class=”blog-grid” _builder_version=”4.27.4″ _module_preset=”default” dpdfg_entry_title_text_align=”left” dpdfg_entry_summary_text_align=”left” custom_read_more_button=”on” read_more_button_text_size=”13px” read_more_button_text_color=”#35A4BB” read_more_button_bg_color=”rgba(53,164,187,0.15)” read_more_button_icon=”$||divi||400″ read_more_button_on_hover=”off” read_more_button_alignment=”left” read_more_button_custom_padding=”0px|34px|0px|0px|true|false” border_width_all=”0px” global_colors_info=”{}” read_more_button_text_color__hover=”#FFFFFF” read_more_button_text_color__hover_enabled=”on|hover” read_more_button_bg_color__hover=”#35A4BB” read_more_button_bg_color__hover_enabled=”on|hover”][\/dpdfg_filtergrid][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"

Materiaal Deze online bronnen worden vermeld om mogelijk nuttig advies en diensten aan te bieden die worden aangeboden door bedrijven in de gezondheidszorg, non-profitorganisaties en andere belangengroepen. De meeste van […]<\/p>\n","protected":false},"author":14,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"open","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":[],"cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-52320","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/pages\/52320","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/comments?post=52320"}],"version-history":[{"count":9,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/pages\/52320\/revisions"}],"predecessor-version":[{"id":122296,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/pages\/52320\/revisions\/122296"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media?parent=52320"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}