{"id":51236,"date":"2019-04-04T13:13:11","date_gmt":"2019-04-04T18:13:11","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/medische-adviesraad\/"},"modified":"2026-05-06T07:30:24","modified_gmt":"2026-05-06T12:30:24","slug":"medische-adviesraad","status":"publish","type":"page","link":"https:\/\/www.erdheim-chester.org\/nl\/medische-adviesraad\/","title":{"rendered":"Medische adviesraad"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_image=&#8221;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/12\/Untitled-design-96-1.png&#8221; background_position=&#8221;bottom_center&#8221; background_vertical_offset=&#8221;20%&#8221; custom_padding=&#8221;0px||0px||true|false&#8221; background_last_edited=&#8221;on|desktop&#8221; background_position_tablet=&#8221;bottom_right&#8221; background_position_phone=&#8221;center_right&#8221; global_module=&#8221;28071&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_dmb_breadcrumbs _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; body_text_color=&#8221;#FFFFFF&#8221; body_font_size=&#8221;12px&#8221; link_text_color=&#8221;#35A4BB&#8221; custom_margin=&#8221;||5px||false|false&#8221; custom_padding=&#8221;||0px||false|false&#8221; body_font_size_tablet=&#8221;12px&#8221; body_font_size_phone=&#8221;10px&#8221; body_font_size_last_edited=&#8221;on|desktop&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_dmb_breadcrumbs][et_pb_heading title=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF90aXRsZSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IiIsImFmdGVyIjoiIn19@&#8221; _builder_version=&#8221;4.27.4&#8243; _dynamic_attributes=&#8221;title&#8221; _module_preset=&#8221;default&#8221; title_font=&#8221;&#8211;et_global_heading_font|300|||||||&#8221; title_text_color=&#8221;#FFFFFF&#8221; title_font_size=&#8221;40px&#8221; custom_margin=&#8221;||3px|||&#8221; title_font_size_tablet=&#8221;&#8221; title_font_size_phone=&#8221;25px&#8221; title_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_button button_url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/neem-contact-met-ons-op\/&#8221; button_text=&#8221;Neem contact met ons op&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_button=&#8221;on&#8221; button_text_size=&#8221;15px&#8221; button_text_color=&#8221;#C02E43&#8243; button_bg_color=&#8221;rgba(10,22,64,0.53)&#8221; button_border_width=&#8221;0px&#8221; button_icon=&#8221;&#xe60f;||divi||400&#8243; button_icon_color=&#8221;#C02E43&#8243; button_icon_placement=&#8221;left&#8221; button_on_hover=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221; filter_opacity__hover_enabled=&#8221;on|hover&#8221; filter_opacity__hover=&#8221;70%&#8221;][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;section&#8221; _builder_version=&#8221;4.16&#8243; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][dpdfg_filtergrid custom_query=&#8221;advanced&#8221; multiple_cpt=&#8221;members&#8221; use_taxonomy_terms=&#8221;on&#8221; multiple_taxonomies=&#8221;member_categories&#8221; include_terms=&#8221;249&#8243; post_number=&#8221;100&#8243; order=&#8221;ASC&#8221; orderby=&#8221;meta_value&#8221; meta_key=&#8221;last_name&#8221; thumbnail_size=&#8221;dfg_full&#8221; use_overlay=&#8221;off&#8221; show_post_meta=&#8221;off&#8221; show_content=&#8221;on&#8221; show_custom_fields=&#8221;on&#8221; custom_fields=&#8221;%91{%22naam%22:%22Functietitel%22,%22label%22:%22%22}%93&#8243; show_filters=&#8221;off&#8221; show_pagination=&#8221;off&#8221; items_width=&#8221;16%&#8221; column_gutter=&#8221;6em&#8221; primary_view=&#8221;%91{%22name%22:%22thumbnail%22,%22show%22:%22on%22},{%22name%22:%22overlay%22,%22show%22:%22on%22},{%22name%22:%22title%22,%22show%22:%22off%22},{%22name%22:%22meta%22,%22show%22:%22off%22},{%22name%22:%22ext%22,%22show%22:%22off%22},{%22name%22:%22action_button%22,%22show%22:%22off%22},{%22name%22:%22read_more_button%22,%22show%22:%22off%22},{%22name%22:%22custom_content%22,%22show%22:%22off%22},{%22name%22:%22content%22,%22show%22:%22off%22}%93&#8243; secondary_view=&#8221;%91{%22name%22:%22thumbnail%22,%22show%22:%22off%22},{%22name%22:%22title%22,%22show%22:%22on%22},{%22name%22:%22meta%22,%22show%22:%22on%22},{%22name%22:%22ext%22,%22show%22:%22on%22},{%22name%22:%22custom_content%22,%22show%22:%22on%22},{%22name%22:%22content%22,%22show%22:%22on%22},{%22name%22:%22action_button%22,%22show%22:%22on%22},{%22name%22:%22read_more_button%22,%22show%22:%22on%22}%93&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; dpdfg_entry_title_text_align=&#8221;center&#8221; dpdfg_entry_summary_text_align=&#8221;center&#8221; dpdfg_entry_custom_text_align=&#8221;center&#8221; dpdfg_entry_custom_text_color=&#8221;#0A1640&#8243; read_more_button_alignment=&#8221;left&#8221; border_width_all=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221;][\/dpdfg_filtergrid][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; theme_builder_area=&#8221;post_content&#8221; _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#F2F2F2&#8243; hover_enabled=&#8221;0&#8243; sticky_enabled=&#8221;0&#8243;][et_pb_row _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;default&#8221; theme_builder_area=&#8221;post_content&#8221;][et_pb_column _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;default&#8221; type=&#8221;4_4&#8243; theme_builder_area=&#8221;post_content&#8221;][et_pb_text _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;default&#8221; theme_builder_area=&#8221;post_content&#8221; hover_enabled=&#8221;0&#8243; sticky_enabled=&#8221;0&#8243;]<\/p>\n<h2>Voormalige Medische Adviesraad<\/h2>\n<ul>\n<li>Robert Arceci, MD, PhD<\/li>\n<li>Tom Colby, MD<\/li>\n<li>Juvianee Estrada-Veras, MD<\/li>\n<li>Mark Heaney, MD, PhD (voormalig voorzitter)<\/li>\n<li>Paul Scheel, MD<\/li>\n<li>Tim Vollmer, MD<\/li>\n<\/ul>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>[et_pb_dmb_breadcrumbs _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; body_text_color=&#8221;#FFFFFF&#8221; body_font_size=&#8221;12px&#8221; link_text_color=&#8221;#35A4BB&#8221; custom_margin=&#8221;||5px||false|false&#8221; custom_padding=&#8221;||0px||false|false&#8221; body_font_size_tablet=&#8221;12px&#8221; body_font_size_phone=&#8221;10px&#8221; body_font_size_last_edited=&#8221;on|desktop&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_dmb_breadcrumbs]<div class=\"et_pb_module dpdfg_filtergrid dpdfg_filtergrid_0\">\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t<div class=\"et_pb_module_inner\">\n\t\t\t\t\t<!-- DPDFG Start Main Container --><div class=\"dp-dfg-container dp-dfg-layout-grid dp-dfg-skin-default dp-dfg-skin-top-filters\" data-active-filter=\"all\" data-page=\"1\" data-found-posts=\"1016\" data-post-number=\"0\" data-default-filter=\"All\" data-link-filter=\"\" data-cache=\"off\" data-ratio=\"0\" data-show-thumb=\"on\" data-action=\"link\" data-new-window=\"off\" data-filters=\"off\" data-date-filters=\"off\" data-multifilter=\"off|OR\" data-multilevel=\"off|AND|off\" data-sorting=\"off\" data-order=\"&#8221;ASC&#8221;\" data-orderby=\"&#8221;meta_value&#8221;\" data-initorderby=\"&#8221;meta_value&#8221;\" data-url-navigation=\"off\" data-url-history=\"on|reload\" data-ajax-filters=\"off\" data-doing-ajax=\"off\" data-module=\"dpdfg_filtergrid_0\" data-search=\"off\" data-search-position=\"above\" data-terms-tags=\"on\" data-pagination=\"&#8221;off&#8221;\" data-filter-method=\"default\" data-third-party=\"\" data-lightbox=\"on|||\" data-video-preview=\"off\" data-no-init=\"off\" data-st=\"on\" data-no-results=\"off\"><div class=\"dp-dfg-items\"><article id=\"post-133898\" class=\"dp-dfg-item post-133898 post type-post status-publish format-standard has-post-thumbnail hentry category-ecdga-nieuws tag-ecd-nl tag-ecdga-nl tag-erdheimchester-nl tag-zeldzame-ziekte\"     data-position=\"0\"   data-new-tab=\"off\"   data-action-priority=\"item\"><figure class=\"dp-dfg-image entry-thumb\"><a href=\"https:\/\/www.erdheim-chester.org\/nl\/ziggy-presenteert-de-ecdga-2026-award-laureaten\/\" class=\"dp-dfg-image-link\" ><img loading=\"lazy\" decoding=\"async\" class=\"dp-dfg-featured-image\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/05\/Untitled-design-7.png\" alt=\"Ziggy presenteert de ECDGA 2026 Award-laureaten\" width=\"1800\" height=\"1200\" data-ratio=\"0.66666666666667\"\/><\/a><\/figure><div class=\"dp-dfg-header entry-header\"><h2 class=\"entry-title\">Ziggy presenteert de ECDGA 2026 Award-laureaten<\/h2><\/div><div class=\"dp-dfg-content entry-summary\">&nbsp;\n\nZiggy kondigt met trots de ECDGA 2026 Award-laureaten aan, personen wier leiderschap, toewijding en ...<\/div><\/article><!-- DPDFG End Post Item Container --><article id=\"post-115567\" class=\"dp-dfg-item post-115567 post type-post status-publish format-standard has-post-thumbnail hentry category-ecdga-nieuws tag-ecdga-nl tag-erdheimchester-nl tag-medischsymposium2026 tag-zeldzame-ziekte\"     data-position=\"1\"   data-new-tab=\"off\"   data-action-priority=\"item\"><figure class=\"dp-dfg-image entry-thumb\"><a href=\"https:\/\/www.erdheim-chester.org\/nl\/medisch-symposium-ecdga-gepland-voor-30-april-2-mei-2026-in-birmingham\/\" class=\"dp-dfg-image-link\" ><img loading=\"lazy\" decoding=\"async\" class=\"dp-dfg-featured-image\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/03\/Medical-Symposium-hd-v2.webp\" alt=\"Medisch symposium ECDGA gepland voor 30 april &#8211; 2 mei 2026 in Birmingham\" width=\"1800\" height=\"1200\" data-ratio=\"0.66666666666667\"\/><\/a><\/figure><div class=\"dp-dfg-header entry-header\"><h2 class=\"entry-title\">Medisch symposium ECDGA gepland voor 30 april &#8211; 2 mei 2026 in Birmingham<\/h2><\/div><div class=\"dp-dfg-content entry-summary\">De Erdheim-Chester Disease Global Alliance (ECDGA) nodigt artsen, onderzoekers en professionals in de ...<\/div><\/article><!-- DPDFG End Post Item Container --><article id=\"post-115591\" class=\"dp-dfg-item post-115591 post type-post status-publish format-standard has-post-thumbnail hentry category-ecdga-nieuws tag-ecdga-nl tag-histiocystose tag-pfg2026 tag-zeldzame-ziekte\"     data-position=\"2\"   data-new-tab=\"off\"   data-action-priority=\"item\"><figure class=\"dp-dfg-image entry-thumb\"><a href=\"https:\/\/www.erdheim-chester.org\/nl\/herinnering-registreer-voor-de-patient-familie-bijeenkomst-in-birmingham\/\" class=\"dp-dfg-image-link\" ><img loading=\"lazy\" decoding=\"async\" class=\"dp-dfg-featured-image\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/03\/Patient-Family-Gathering-hd-v2.webp\" alt=\"Herinnering: Registreer voor de Pati\u00ebnt &amp; Familie bijeenkomst in Birmingham\" width=\"1800\" height=\"1200\" data-ratio=\"0.66666666666667\"\/><\/a><\/figure><div class=\"dp-dfg-header entry-header\"><h2 class=\"entry-title\">Herinnering: Registreer voor de Pati\u00ebnt &amp; Familie bijeenkomst in Birmingham<\/h2><\/div><div class=\"dp-dfg-content entry-summary\">Inschrijving is geopend voor de Patient and Family Gathering die plaatsvindt op 29-30 april 2026 in Birmingham, ...<\/div><\/article><!-- DPDFG End Post Item Container --><article id=\"post-59116\" class=\"dp-dfg-item post-59116 post type-post status-publish format-standard has-post-thumbnail hentry category-partners-nl\"     data-position=\"3\"   data-new-tab=\"off\"   data-action-priority=\"item\"><figure class=\"dp-dfg-image entry-thumb\"><a href=\"https:\/\/www.erdheim-chester.org\/nl\/nih\/\" class=\"dp-dfg-image-link\" ><img loading=\"lazy\" decoding=\"async\" class=\"dp-dfg-featured-image\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/04\/Untitled-design-82.png\" alt=\"NIH\" width=\"800\" height=\"600\" data-ratio=\"0.75\"\/><\/a><\/figure><div class=\"dp-dfg-header entry-header\"><h2 class=\"entry-title\">NIH<\/h2><\/div><div class=\"dp-dfg-content entry-summary\"><\/div><\/article><!-- DPDFG End Post Item Container --><article id=\"post-62593\" class=\"dp-dfg-item post-62593 post type-post status-publish format-standard has-post-thumbnail hentry category-partners-nl\"     data-position=\"4\"   data-new-tab=\"off\"   data-action-priority=\"item\"><figure class=\"dp-dfg-image entry-thumb\"><a href=\"https:\/\/www.erdheim-chester.org\/nl\/lls\/\" class=\"dp-dfg-image-link\" ><img loading=\"lazy\" decoding=\"async\" class=\"dp-dfg-featured-image\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/07\/1-1.png\" alt=\"LLS\" width=\"800\" height=\"600\" data-ratio=\"0.75\"\/><\/a><\/figure><div class=\"dp-dfg-header entry-header\"><h2 class=\"entry-title\">LLS<\/h2><\/div><div class=\"dp-dfg-content entry-summary\"><\/div><\/article><!-- DPDFG End Post Item Container --><article id=\"post-62623\" class=\"dp-dfg-item post-62623 post type-post status-publish format-standard has-post-thumbnail hentry category-partners-nl\"     data-position=\"5\"   data-new-tab=\"off\"   data-action-priority=\"item\"><figure class=\"dp-dfg-image entry-thumb\"><a href=\"https:\/\/www.erdheim-chester.org\/nl\/nord\/\" class=\"dp-dfg-image-link\" ><img loading=\"lazy\" decoding=\"async\" class=\"dp-dfg-featured-image\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/07\/3-1.png\" alt=\"Nord\" width=\"800\" height=\"600\" data-ratio=\"0.75\"\/><\/a><\/figure><div class=\"dp-dfg-header entry-header\"><h2 class=\"entry-title\">Nord<\/h2><\/div><div class=\"dp-dfg-content entry-summary\"><\/div><\/article><!-- DPDFG End Post Item Container --><article id=\"post-62568\" class=\"dp-dfg-item post-62568 post type-post status-publish format-standard has-post-thumbnail hentry category-partners-nl\"     data-position=\"6\"   data-new-tab=\"off\"   data-action-priority=\"item\"><figure class=\"dp-dfg-image entry-thumb\"><a href=\"https:\/\/www.erdheim-chester.org\/nl\/wereldwijde-genen\/\" class=\"dp-dfg-image-link\" ><img loading=\"lazy\" decoding=\"async\" class=\"dp-dfg-featured-image\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/07\/2-1.png\" alt=\"Wereldwijde genen\" width=\"800\" height=\"600\" data-ratio=\"0.75\"\/><\/a><\/figure><div class=\"dp-dfg-header entry-header\"><h2 class=\"entry-title\">Wereldwijde genen<\/h2><\/div><div class=\"dp-dfg-content entry-summary\"><\/div><\/article><!-- DPDFG End Post Item Container --><article id=\"post-62564\" class=\"dp-dfg-item post-62564 post type-post status-publish format-standard has-post-thumbnail hentry category-partners-nl\"     data-position=\"7\"   data-new-tab=\"off\"   data-action-priority=\"item\"><figure class=\"dp-dfg-image entry-thumb\"><a href=\"https:\/\/www.erdheim-chester.org\/nl\/atleten-opbeuren\/\" class=\"dp-dfg-image-link\" ><img loading=\"lazy\" decoding=\"async\" class=\"dp-dfg-featured-image\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/12\/Untitled-design-56-1.png\" alt=\"Atleten opbeuren\" width=\"800\" height=\"600\" data-ratio=\"0.75\"\/><\/a><\/figure><div class=\"dp-dfg-header entry-header\"><h2 class=\"entry-title\">Atleten opbeuren<\/h2><\/div><div class=\"dp-dfg-content entry-summary\"><\/div><\/article><!-- DPDFG End Post Item Container --><article id=\"post-67959\" class=\"dp-dfg-item post-67959 post type-post status-publish format-standard has-post-thumbnail hentry category-partners-nl\"     data-position=\"8\"   data-new-tab=\"off\"   data-action-priority=\"item\"><figure class=\"dp-dfg-image entry-thumb\"><a href=\"https:\/\/www.erdheim-chester.org\/nl\/histiocytose-vereniging-2\/\" class=\"dp-dfg-image-link\" ><img loading=\"lazy\" decoding=\"async\" class=\"dp-dfg-featured-image\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/01\/Untitled-design-66.png\" alt=\"Histiocytose Vereniging\" width=\"800\" height=\"600\" data-ratio=\"0.75\"\/><\/a><\/figure><div class=\"dp-dfg-header entry-header\"><h2 class=\"entry-title\">Histiocytose Vereniging<\/h2><\/div><div class=\"dp-dfg-content entry-summary\"><\/div><\/article><!-- DPDFG End Post Item Container --><article id=\"post-113905\" class=\"dp-dfg-item post-113905 post type-post status-publish format-standard has-post-thumbnail hentry category-webinar-opnames tag-alliantie-erdheim-chester tag-betrokkenheid-van-de-nieren-bij-ecd tag-ecd-bewustzijn-nl tag-ecd-webinar tag-ecd-onderzoek tag-ecd-patientenvoorlichting tag-erdheim-chester-ziekte tag-harige-nier-ecd tag-histiocytose-nl tag-johns-hopkins-ecd tag-nefrologie-onderwijs tag-nierziekte-en-ecd tag-non-langerhans-histiocytose tag-voorlichting-over-zeldzame-ziekten tag-zeldzame-bloedkanker\"     data-position=\"9\"   data-new-tab=\"off\"   data-action-priority=\"item\"><figure class=\"dp-dfg-image entry-thumb\"><a href=\"https:\/\/www.erdheim-chester.org\/nl\/betrokkenheid-van-de-nieren-bij-de-ziekte-van-erdheim-chester-ecd-educatief-webinar\/\" class=\"dp-dfg-image-link\" ><img loading=\"lazy\" decoding=\"async\" class=\"dp-dfg-featured-image\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/02\/Dr._Mo_Atta-feat-img.jpg\" alt=\"Betrokkenheid van de nieren bij de ziekte van Erdheim-Chester (ECD): Educatief webinar\" width=\"1800\" height=\"1200\" data-ratio=\"0.66666666666667\"\/><\/a><\/figure><div class=\"dp-dfg-header entry-header\"><h2 class=\"entry-title\">Betrokkenheid van de nieren bij de ziekte van Erdheim-Chester (ECD): Educatief webinar<\/h2><\/div><div class=\"dp-dfg-content entry-summary\">In dit educatieve webinar geeft dr. Mohamed G. Atta, MD, een nierspecialist in het Johns Hopkins Hospital, een ...<\/div><\/article><!-- DPDFG End Post Item Container --><\/div><div class=\"dp-dfg-announcer screen-reader-text\" aria-live=\"polite\" aria-atomic=\"true\"><\/div><\/div><!-- DPDFG End Main Container --><div class=\"dp-dfg-data dp-dfg-hide\"><div class=\"dp-dfg-ajax-data\" 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