{"id":24031,"date":"2014-11-19T08:51:39","date_gmt":"2014-11-19T14:51:39","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/home\/"},"modified":"2026-06-15T16:14:01","modified_gmt":"2026-06-15T21:14:01","slug":"home","status":"publish","type":"page","link":"https:\/\/www.erdheim-chester.org\/nl\/","title":{"rendered":"Home"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; fullwidth=&#8221;on&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_fullwidth_slider module_class=&#8221;home-slider&#8221; _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; header_level=&#8221;h1&#8243; header_font=&#8221;&#8211;et_global_heading_font|700|||||||&#8221; header_text_color=&#8221;#0A1640&#8243; header_font_size=&#8221;50px&#8221; header_line_height=&#8221;1.4em&#8221; body_font=&#8221;&#8211;et_global_body_font||||||||&#8221; body_text_color=&#8221;#0A1640&#8243; body_font_size=&#8221;31px&#8221; 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button_text=&#8221;Doneer&#8221; button_link=&#8221;https:\/\/secure.qgiv.com\/for\/erdheim-chesterdiseaseglobalalliance&#8221; url_new_window=&#8221;on&#8221; alignment=&#8221;bottom&#8221; _builder_version=&#8221;4.27.6&#8243; _dynamic_attributes=&#8221;heading&#8221; _module_preset=&#8221;default&#8221; background_enable_color=&#8221;off&#8221; use_background_color_gradient=&#8221;on&#8221; background_color_gradient_stops=&#8221;rgba(255,255,255,0.82) 65%|rgba(53,164,187,0.6) 100%&#8221; background_color_gradient_overlays_image=&#8221;on&#8221; background_image=&#8221;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/01\/shutterstock_2558547307-scaled.jpg&#8221; background_enable_image=&#8221;on&#8221; link_option_url=&#8221;https:\/\/secure.qgiv.com\/for\/erdheim-chesterdiseaseglobalalliance&#8221; link_option_url_new_window=&#8221;on&#8221; custom_css_slide_image=&#8221;max-width: 250px;||&#8221; border_radii_image=&#8221;on|10px|10px|10px|10px&#8221; box_shadow_style_image=&#8221;preset1&#8243; global_colors_info=&#8221;{}&#8221; sticky_transition=&#8221;on&#8221;]<\/p>\n<p>Maak een verschil!<\/p>\n<p>[\/et_pb_slide][et_pb_slide heading=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9tZXRhX2tleSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IkNoYXQgbWV0IG9ucyBtZWUhIiwiYWZ0ZXIiOiIiLCJtZXRhX2tleSI6IiIsImVuYWJsZV9odG1sIjoib2ZmIn19@&#8221; button_text=&#8221;Word vandaag nog lid&#8221; button_link=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjgzIn19@&#8221; alignment=&#8221;bottom&#8221; _builder_version=&#8221;4.27.5&#8243; _dynamic_attributes=&#8221;heading,button_link,link_option_url&#8221; _module_preset=&#8221;default&#8221; background_enable_color=&#8221;off&#8221; use_background_color_gradient=&#8221;on&#8221; background_color_gradient_stops=&#8221;rgba(255,255,255,0.82) 65%|rgba(53,164,187,0.6) 100%&#8221; background_color_gradient_overlays_image=&#8221;on&#8221; background_image=&#8221;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/shutterstock_2510723165.jpg&#8221; 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global_colors_info=&#8221;{}&#8221;][\/et_pb_blurb][et_pb_blurb title=&#8221;Zorgcentra&#8221; url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/zorgcentra\/&#8221; image=&#8221;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/Untitled-design-30.png&#8221; image_icon_width=&#8221;50px&#8221; content_max_width=&#8221;100%&#8221; module_class=&#8221;small-blurb&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; header_font=&#8221;|300|||||||&#8221; header_font_size=&#8221;14px&#8221; background_color=&#8221;#F2F2F2&#8243; image_icon_custom_margin=&#8221;||0px||false|false&#8221; image_icon_custom_padding=&#8221;||0px||false|false&#8221; text_orientation=&#8221;center&#8221; custom_padding=&#8221;20px||20px||true|false&#8221; link_option_url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/zorgcentra\/&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_blurb][et_pb_blurb title=&#8221;Hulpmiddelen voor pati\u00ebnten&#8221; url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/bronnen\/&#8221; image=&#8221;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/Untitled-design-29.png&#8221; image_icon_width=&#8221;50px&#8221; content_max_width=&#8221;100%&#8221; module_class=&#8221;small-blurb&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; header_font=&#8221;|300|||||||&#8221; header_font_size=&#8221;14px&#8221; background_color=&#8221;#F2F2F2&#8243; image_icon_custom_margin=&#8221;||0px||false|false&#8221; image_icon_custom_padding=&#8221;||0px||false|false&#8221; text_orientation=&#8221;center&#8221; custom_padding=&#8221;20px||20px||true|false&#8221; link_option_url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/bronnen\/&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_blurb][et_pb_blurb title=&#8221;Brochure aanvragen&#8221; url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/brochure-aanvragen\/&#8221; image=&#8221;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/Untitled-design-32.png&#8221; image_icon_width=&#8221;50px&#8221; content_max_width=&#8221;100%&#8221; module_class=&#8221;small-blurb&#8221; _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; header_font=&#8221;|300|||||||&#8221; header_font_size=&#8221;14px&#8221; background_color=&#8221;#F2F2F2&#8243; image_icon_custom_margin=&#8221;||0px||false|false&#8221; image_icon_custom_padding=&#8221;||0px||false|false&#8221; text_orientation=&#8221;center&#8221; custom_padding=&#8221;20px||20px||true|false&#8221; link_option_url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/brochure-aanvragen\/&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_blurb][et_pb_blurb _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#FFFFFF&#8221; min_height=&#8221;245px&#8221; custom_padding=&#8221;20px|10px||10px|false|true&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Ons doel is om mensen die getroffen zijn door Erdheim-Chester ziekte met kennis en ondersteuning. Hier vindt u betrouwbare informatie over ECD, behandelingsopties, omgaan met symptomen en contact met specialisten. Ontdek bronnen die speciaal zijn gemaakt om pati\u00ebnten en gezinnen te helpen vol vertrouwen en hoop hun weg te vinden.  <\/p>\n<p>[\/et_pb_blurb][\/et_pb_column][et_pb_column type=&#8221;1_3&#8243; module_class=&#8221;blurb-grids&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_enable_color=&#8221;off&#8221; custom_padding=&#8221;||20px||false|false&#8221; border_radii=&#8221;on|6px|6px|6px|6px&#8221; border_width_all=&#8221;6px&#8221; border_color_all=&#8221;#FFFFFF&#8221; box_shadow_style=&#8221;preset3&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_blurb title=&#8221;Informatie voor familie\/verzorger&#8221; url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/ondersteuning-voor-mantelzorgers\/&#8221; image=&#8221;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/batch_pexels-kampus-7551607-1.jpg&#8221; content_max_width=&#8221;100%&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; header_level=&#8221;h3&#8243; 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text_orientation=&#8221;center&#8221; custom_padding=&#8221;20px||20px||true|false&#8221; link_option_url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/over-ecd\/&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_blurb][et_pb_blurb title=&#8221;Zorgcentra&#8221; url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/zorgcentra\/&#8221; image=&#8221;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/Untitled-design-30.png&#8221; image_icon_width=&#8221;50px&#8221; content_max_width=&#8221;100%&#8221; module_class=&#8221;small-blurb&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; header_font=&#8221;|300|||||||&#8221; header_font_size=&#8221;14px&#8221; background_color=&#8221;#F2F2F2&#8243; image_icon_custom_margin=&#8221;||0px||false|false&#8221; image_icon_custom_padding=&#8221;||0px||false|false&#8221; text_orientation=&#8221;center&#8221; custom_padding=&#8221;20px||20px||true|false&#8221; link_option_url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/zorgcentra\/&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_blurb][et_pb_blurb title=&#8221;Medische bronnen&#8221; url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/medische-bronnen\/&#8221; image=&#8221;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-2.svg&#8221; image_icon_width=&#8221;50px&#8221; content_max_width=&#8221;100%&#8221; module_class=&#8221;small-blurb&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; header_font=&#8221;|300|||||||&#8221; header_font_size=&#8221;14px&#8221; background_color=&#8221;#F2F2F2&#8243; image_icon_custom_margin=&#8221;||0px||false|false&#8221; image_icon_custom_padding=&#8221;||0px||false|false&#8221; text_orientation=&#8221;center&#8221; custom_padding=&#8221;20px||20px||true|false&#8221; link_option_url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/medische-bronnen\/&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_blurb][et_pb_blurb title=&#8221;Onderzoeken en proeven&#8221; url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/onderzoeken-en-proeven\/&#8221; image=&#8221;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-18-1.svg&#8221; image_icon_width=&#8221;50px&#8221; content_max_width=&#8221;100%&#8221; module_class=&#8221;small-blurb&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; header_font=&#8221;|300|||||||&#8221; header_font_size=&#8221;14px&#8221; background_color=&#8221;#F2F2F2&#8243; image_icon_custom_margin=&#8221;||0px||false|false&#8221; image_icon_custom_padding=&#8221;||0px||false|false&#8221; text_orientation=&#8221;center&#8221; custom_padding=&#8221;20px||20px||true|false&#8221; link_option_url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/onderzoeken-en-proeven\/&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_blurb][et_pb_blurb _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#FFFFFF&#8221; min_height=&#8221;245px&#8221; custom_padding=&#8221;20px|10px||10px|false|true&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Vind hulpmiddelen en informatie ter ondersteuning van uw werk met ECD pati\u00ebnten. Krijg toegang tot actuele klinische richtlijnen, inzichten in medische specialismen en financieringsmogelijkheden voor onderzoek. Onze hulpmiddelen zijn gemaakt om zorgverleners in staat te stellen de best mogelijke zorg te verlenen en betere resultaten te behalen voor mensen die leven met Erdheim-Chester Ziekte.  <\/p>\n<p>[\/et_pb_blurb][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=&#8221;1_3,1_3,1_3&#8243; use_custom_gutter=&#8221;on&#8221; gutter_width=&#8221;2&#8243; make_equal=&#8221;on&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; width=&#8221;88%&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_3&#8243; module_class=&#8221;blurb-grids&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_enable_color=&#8221;off&#8221; custom_padding=&#8221;||20px||false|false&#8221; border_radii=&#8221;on|6px|6px|6px|6px&#8221; border_width_all=&#8221;6px&#8221; border_color_all=&#8221;#FFFFFF&#8221; box_shadow_style=&#8221;preset3&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_blurb title=&#8221;Financiering en onderzoek&#8221; url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/ondersteuning-voor-mantelzorgers\/&#8221; image=&#8221;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/batch_Grant-Research-Erdheim-Chester-Disease-Global-Alliance.jpg&#8221; content_max_width=&#8221;100%&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; header_level=&#8221;h3&#8243; header_line_height=&#8221;2em&#8221; background_color=&#8221;#35A4BB&#8221; background_enable_image=&#8221;off&#8221; text_orientation=&#8221;center&#8221; background_layout=&#8221;dark&#8221; custom_margin=&#8221;||0px||false|false&#8221; link_option_url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/ondersteuning-voor-mantelzorgers\/&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_blurb][et_pb_blurb title=&#8221;Financiering van onderzoek&#8221; url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/financiering-van-onderzoek\/&#8221; image=&#8221;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/How-to-Fundraise-1.svg&#8221; image_icon_width=&#8221;50px&#8221; content_max_width=&#8221;100%&#8221; module_class=&#8221;small-blurb&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; header_font=&#8221;|300|||||||&#8221; header_font_size=&#8221;14px&#8221; background_color=&#8221;#F2F2F2&#8243; image_icon_custom_margin=&#8221;||0px||false|false&#8221; image_icon_custom_padding=&#8221;||0px||false|false&#8221; text_orientation=&#8221;center&#8221; custom_padding=&#8221;20px||20px||true|false&#8221; link_option_url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/financiering-van-onderzoek\/&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_blurb][et_pb_blurb title=&#8221;Eerder toegekende subsidies&#8221; url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/financiering-van-onderzoek\/#past-awards&#8221; image=&#8221;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-18-1.svg&#8221; image_icon_width=&#8221;50px&#8221; content_max_width=&#8221;100%&#8221; module_class=&#8221;small-blurb&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; header_font=&#8221;|300|||||||&#8221; header_font_size=&#8221;14px&#8221; background_color=&#8221;#F2F2F2&#8243; image_icon_custom_margin=&#8221;||0px||false|false&#8221; image_icon_custom_padding=&#8221;||0px||false|false&#8221; text_orientation=&#8221;center&#8221; custom_padding=&#8221;20px||20px||true|false&#8221; link_option_url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/financiering-van-onderzoek\/#past-awards&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_blurb][et_pb_blurb title=&#8221;Onderzoeken en proeven&#8221; url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/onderzoeken-en-proeven\/&#8221; image=&#8221;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-18-1.svg&#8221; image_icon_width=&#8221;50px&#8221; content_max_width=&#8221;100%&#8221; module_class=&#8221;small-blurb&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; header_font=&#8221;|300|||||||&#8221; header_font_size=&#8221;14px&#8221; background_color=&#8221;#F2F2F2&#8243; image_icon_custom_margin=&#8221;||0px||false|false&#8221; image_icon_custom_padding=&#8221;||0px||false|false&#8221; text_orientation=&#8221;center&#8221; custom_padding=&#8221;20px||20px||true|false&#8221; link_option_url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/onderzoeken-en-proeven\/&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_blurb][et_pb_blurb title=&#8221;Registers en enqu\u00eates&#8221; url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/registers-en-enquetes\/&#8221; image=&#8221;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-22-1.svg&#8221; image_icon_width=&#8221;50px&#8221; content_max_width=&#8221;100%&#8221; module_class=&#8221;small-blurb&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; header_font=&#8221;|300|||||||&#8221; header_font_size=&#8221;14px&#8221; background_color=&#8221;#F2F2F2&#8243; image_icon_custom_margin=&#8221;||0px||false|false&#8221; image_icon_custom_padding=&#8221;||0px||false|false&#8221; text_orientation=&#8221;center&#8221; custom_padding=&#8221;20px||20px||true|false&#8221; link_option_url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/registers-en-enquetes\/&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_blurb][et_pb_blurb _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#FFFFFF&#8221; min_height=&#8221;346px&#8221; custom_padding=&#8221;20px|10px||10px|false|true&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Ontdek financieringsmogelijkheden om onderzoek en initiatieven te ondersteunen om meer te weten te komen over Erdheim-Chester Ziekte om de resultaten voor pati\u00ebnten en zorgverleners te verbeteren. Verken open klinische onderzoeken voor ECD pati\u00ebnten. <\/p>\n<p>[\/et_pb_blurb][\/et_pb_column][et_pb_column type=&#8221;1_3&#8243; module_class=&#8221;blurb-grids&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_enable_color=&#8221;off&#8221; custom_padding=&#8221;||20px||false|false&#8221; border_radii=&#8221;on|6px|6px|6px|6px&#8221; border_width_all=&#8221;6px&#8221; border_color_all=&#8221;#FFFFFF&#8221; box_shadow_style=&#8221;preset3&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_blurb title=&#8221;Activiteiten van de Gemeenschap&#8221; url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/ondersteuning-voor-mantelzorgers\/&#8221; image=&#8221;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/batch_Community-Activities-1.png&#8221; content_max_width=&#8221;100%&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; header_level=&#8221;h3&#8243; header_line_height=&#8221;2em&#8221; background_color=&#8221;#35A4BB&#8221; background_enable_image=&#8221;off&#8221; text_orientation=&#8221;center&#8221; background_layout=&#8221;dark&#8221; custom_margin=&#8221;||0px||false|false&#8221; link_option_url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/ondersteuning-voor-mantelzorgers\/&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_blurb][et_pb_blurb title=&#8221;Gemeenschap chats&#8221; url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/gemeenschap-chats\/&#8221; image=&#8221;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-10.svg&#8221; image_icon_width=&#8221;50px&#8221; content_max_width=&#8221;100%&#8221; module_class=&#8221;small-blurb&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; header_font=&#8221;|300|||||||&#8221; header_font_size=&#8221;14px&#8221; background_color=&#8221;#F2F2F2&#8243; image_icon_custom_margin=&#8221;||0px||false|false&#8221; image_icon_custom_padding=&#8221;||0px||false|false&#8221; text_orientation=&#8221;center&#8221; custom_padding=&#8221;20px||20px||true|false&#8221; link_option_url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/gemeenschap-chats\/&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_blurb][et_pb_blurb title=&#8221;Evenementen in de gemeenschap&#8221; url=&#8221;https:\/\/www.erdheim-chester.org\/community-events\/&#8221; image=&#8221;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-11-1.svg&#8221; image_icon_width=&#8221;50px&#8221; content_max_width=&#8221;100%&#8221; module_class=&#8221;small-blurb&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; header_font=&#8221;|300|||||||&#8221; header_font_size=&#8221;14px&#8221; background_color=&#8221;#F2F2F2&#8243; image_icon_custom_margin=&#8221;||0px||false|false&#8221; image_icon_custom_padding=&#8221;||0px||false|false&#8221; text_orientation=&#8221;center&#8221; custom_padding=&#8221;20px||20px||true|false&#8221; link_option_url=&#8221;https:\/\/www.erdheim-chester.org\/community-events\/&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_blurb][et_pb_blurb title=&#8221;Webinars aansluiten&#8221; url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/webinars\/&#8221; image=&#8221;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-15-1.svg&#8221; image_icon_width=&#8221;50px&#8221; content_max_width=&#8221;100%&#8221; module_class=&#8221;small-blurb&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; header_font=&#8221;|300|||||||&#8221; header_font_size=&#8221;14px&#8221; background_color=&#8221;#F2F2F2&#8243; image_icon_custom_margin=&#8221;||0px||false|false&#8221; image_icon_custom_padding=&#8221;||0px||false|false&#8221; text_orientation=&#8221;center&#8221; custom_padding=&#8221;20px||20px||true|false&#8221; link_option_url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/webinars\/&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_blurb][et_pb_blurb title=&#8221;Zorgverlener&#8221; url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/contactpersoon-verzorger\/&#8221; image=&#8221;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-6.svg&#8221; image_icon_width=&#8221;50px&#8221; content_max_width=&#8221;100%&#8221; module_class=&#8221;small-blurb&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; header_font=&#8221;|300|||||||&#8221; header_font_size=&#8221;14px&#8221; background_color=&#8221;#F2F2F2&#8243; image_icon_custom_margin=&#8221;||0px||false|false&#8221; image_icon_custom_padding=&#8221;||0px||false|false&#8221; text_orientation=&#8221;center&#8221; custom_padding=&#8221;20px||20px||true|false&#8221; link_option_url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/contactpersoon-verzorger\/&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_blurb][et_pb_blurb _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#FFFFFF&#8221; min_height=&#8221;345px&#8221; custom_padding=&#8221;20px|10px||10px|false|true&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Samen maken we een echte impact in de strijd tegen Erdheim-Chester Ziekte. Ontdek de prestaties die mogelijk zijn gemaakt door de toewijding en vrijgevigheid van onze gemeenschap, van het bevorderen van onderzoek en het verbeteren van pati\u00ebntenzorg tot het stimuleren van wereldwijde verbindingen en ondersteuning. Zie hoe uw betrokkenheid zinvolle veranderingen teweegbrengt en hoop inspireert voor mensen die getroffen zijn door ECD.  <\/p>\n<p>[\/et_pb_blurb][\/et_pb_column][et_pb_column type=&#8221;1_3&#8243; module_class=&#8221;blurb-grids&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_enable_color=&#8221;off&#8221; custom_padding=&#8221;||20px||false|false&#8221; border_radii=&#8221;on|6px|6px|6px|6px&#8221; border_width_all=&#8221;6px&#8221; border_color_all=&#8221;#FFFFFF&#8221; box_shadow_style=&#8221;preset3&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_blurb title=&#8221;Awards&#8221; url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/medische-bronnen\/&#8221; image=&#8221;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/batch_AdobeStock_253395317.jpeg&#8221; content_max_width=&#8221;100%&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; header_level=&#8221;h3&#8243; header_line_height=&#8221;2em&#8221; background_color=&#8221;#35A4BB&#8221; background_enable_image=&#8221;off&#8221; text_orientation=&#8221;center&#8221; background_layout=&#8221;dark&#8221; custom_margin=&#8221;||0px||false|false&#8221; link_option_url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/medische-bronnen\/&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_blurb][et_pb_blurb title=&#8221;Subsidiemogelijkheden&#8221; url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/financiering-van-onderzoek\/&#8221; image=&#8221;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-12.svg&#8221; image_icon_width=&#8221;50px&#8221; content_max_width=&#8221;100%&#8221; module_class=&#8221;small-blurb&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; header_font=&#8221;|300|||||||&#8221; header_font_size=&#8221;14px&#8221; background_color=&#8221;#F2F2F2&#8243; image_icon_custom_margin=&#8221;||0px||false|false&#8221; image_icon_custom_padding=&#8221;||0px||false|false&#8221; text_orientation=&#8221;center&#8221; custom_padding=&#8221;20px||20px||true|false&#8221; link_option_url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/financiering-van-onderzoek\/&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_blurb][et_pb_blurb title=&#8221;In het verleden toegekende subsidies&#8221; url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjQ2MjQwIn19@&#8221; image=&#8221;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-13.svg&#8221; image_icon_width=&#8221;50px&#8221; content_max_width=&#8221;100%&#8221; module_class=&#8221;small-blurb&#8221; _builder_version=&#8221;4.27.4&#8243; _dynamic_attributes=&#8221;url,link_option_url&#8221; _module_preset=&#8221;default&#8221; header_font=&#8221;|300|||||||&#8221; header_font_size=&#8221;14px&#8221; background_color=&#8221;#F2F2F2&#8243; image_icon_custom_margin=&#8221;||0px||false|false&#8221; image_icon_custom_padding=&#8221;||0px||false|false&#8221; text_orientation=&#8221;center&#8221; custom_padding=&#8221;20px||20px||true|false&#8221; link_option_url=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjQ2MjQwIn19@&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_blurb][et_pb_blurb title=&#8221;Nomineren voor Award&#8221; url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/onderscheidingen-van-de-gemeenschap\/&#8221; image=&#8221;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-14.svg&#8221; image_icon_width=&#8221;50px&#8221; content_max_width=&#8221;100%&#8221; module_class=&#8221;small-blurb&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; header_font=&#8221;|300|||||||&#8221; header_font_size=&#8221;14px&#8221; background_color=&#8221;#F2F2F2&#8243; image_icon_custom_margin=&#8221;||0px||false|false&#8221; image_icon_custom_padding=&#8221;||0px||false|false&#8221; text_orientation=&#8221;center&#8221; custom_padding=&#8221;20px||20px||true|false&#8221; link_option_url=&#8221;https:\/\/www.erdheim-chester.org\/nl\/onderscheidingen-van-de-gemeenschap\/&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_blurb][et_pb_blurb title=&#8221;Onderscheidingen in het verleden&#8221; url=&#8221;\/past-awards\/&#8221; image=&#8221;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-15.svg&#8221; image_icon_width=&#8221;50px&#8221; content_max_width=&#8221;100%&#8221; module_class=&#8221;small-blurb&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; header_font=&#8221;|300|||||||&#8221; header_font_size=&#8221;14px&#8221; background_color=&#8221;#F2F2F2&#8243; image_icon_custom_margin=&#8221;||0px||false|false&#8221; image_icon_custom_padding=&#8221;||0px||false|false&#8221; text_orientation=&#8221;center&#8221; custom_padding=&#8221;20px||20px||true|false&#8221; link_option_url=&#8221;\/past-awards\/&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_blurb][et_pb_blurb _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#FFFFFF&#8221; min_height=&#8221;346px&#8221; height=&#8221;346px&#8221; custom_padding=&#8221;20px|10px||10px|false|true&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>De ECD Global Alliance financiert Erdheim-Chester Ziekteonderzoek sinds het in 2010 voor het eerst een 501(c)3 status kreeg (met terugwerkende kracht tot 2009). De organisatie kent gewoonlijk jaarlijks een beurs voor jonge onderzoekers toe ter waarde van $50.000 &#8211; $60.000. Waar mogelijk financiert de organisatie ook grotere projecten zoals het opzetten van de ECD pati\u00ebntenregistratie, overlevingsstudies en een onderzoek naar de oorsprong van ECD.  <\/p>\n<p>[\/et_pb_blurb][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;rgba(10,22,64,0.9)&#8221; background_enable_image=&#8221;off&#8221; background_blend=&#8221;multiply&#8221; custom_padding=&#8221;10px||10px||true|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; width=&#8221;88%&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; header_2_font=&#8221;|600|||||||&#8221; header_2_font_size=&#8221;50px&#8221; background_layout=&#8221;dark&#8221; custom_margin=&#8221;||10px||false|false&#8221; header_2_font_size_tablet=&#8221;50px&#8221; header_2_font_size_phone=&#8221;36px&#8221; header_2_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2><span class=\"border-text\">Aankondigingen<\/span><\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;||||||||&#8221; background_layout=&#8221;dark&#8221; custom_margin=&#8221;||-23px||false|false&#8221; custom_padding=&#8221;25px||||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Er is een netwerk van ECD-expertisecentra beschikbaar om pati\u00ebnten te helpen bij het vinden van deskundige artsen voor het bevestigen van een diagnose en voor het bieden van behandelingen en voortdurende zorg. Deze instellingen zetten zich in om een team van specialisten beschikbaar te stellen voor de best mogelijke zorg aan ECD-pati\u00ebnten.  Daarnaast zijn er lopende ECD-trials\/studies die momenteel ECD-pati\u00ebnten accepteren. Neem contact op met onze <a href=\"mailto:Belinda.Cobb@erdheim-chester.org\" target=\"_blank\" rel=\"noopener\">Pati\u00ebnten-navigator<\/a> voor meer informatie. <\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; width=&#8221;88%&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][dgcm_cptgrid post_type=&#8221;post&#8221; posts_number=&#8221;4&#8243; post_display=&#8221;by_tax&#8221; tax_for_post=&#8221;category&#8221; post_terms_category=&#8221;51&#8243; column=&#8221;4&#8243; equal_height=&#8221;on&#8221; item_outer_background_bgcolor=&#8221;#FFFFFF&#8221; item_wrapper_padding=&#8221;15px|15px|15px|15px|true|true&#8221; column_tablet=&#8221;2&#8243; column_phone=&#8221;1&#8243; column_last_edited=&#8221;on|phone&#8221; _builder_version=&#8221;4.27.5&#8243; 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custom_padding=&#8221;||20px||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><a href=\"mailto:support@erdheim-chester.org\">support@erdheim-chester.org<\/a><\/p>\n<p>[\/et_pb_blurb][\/et_pb_column_inner][et_pb_column_inner type=&#8221;1_2&#8243; saved_specialty_column_type=&#8221;1_2&#8243; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_blurb title=&#8221;Bel ons&#8221; content_max_width=&#8221;100%&#8221; _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; header_level=&#8221;h3&#8243; header_text_color=&#8221;#35A4BB&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p><a href=\"tel:+1-337-202-5200\">+1-337-202-5200<\/a><\/p>\n<p>[\/et_pb_blurb][\/et_pb_column_inner][\/et_pb_row_inner][et_pb_row_inner custom_padding_last_edited=&#8221;on|tablet&#8221; _builder_version=&#8221;4.27.0&#8243; _module_preset=&#8221;default&#8221; width=&#8221;100%&#8221; 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Box 775, DeRidder, LA 70634 USA<\/p>\n<p>[\/et_pb_blurb][\/et_pb_column_inner][\/et_pb_row_inner][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][\/et_pb_column][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>1 juni tot 30 juni 2026Maak een verschil!Samenkomen als gemeenschap.ECD Global Alliance &#8211; Ondersteuning bieden!Sluit je aan bij de beweging en zorg voor doorbraken.Meer informatie over zorgcentraEvenementen<div class=\"et_pb_module dgcm_cptgrid dgcm_cptgrid_0\">\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t<div class=\"et_pb_module_inner\">\n\t\t\t\t\t<div class=\"dg_cptgrid_container et_pb_ajax_pagination_container\" data-settings='{\"layout\":\"grid\"}'><\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div><\/p>\n","protected":false},"author":14,"featured_media":59431,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-24031","page","type-page","status-publish","has-post-thumbnail","hentry"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/pages\/24031","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/comments?post=24031"}],"version-history":[{"count":20,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/pages\/24031\/revisions"}],"predecessor-version":[{"id":156231,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/pages\/24031\/revisions\/156231"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media\/59431"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media?parent=24031"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}