{"id":136777,"date":"2026-06-04T15:49:16","date_gmt":"2026-06-04T20:49:16","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?post_type=tribe_events&p=136777"},"modified":"2026-07-28T23:58:35","modified_gmt":"2026-07-29T04:58:35","slug":"handtering-av-smerter-og-utmattelse-ved-ecd","status":"publish","type":"tribe_events","link":"https:\/\/www.erdheim-chester.org\/nb\/event\/managing-ecd-pain-fatigue\/","title":{"rendered":"Tema: H\u00e5ndtering av smerter og utmattelse ved ECD"},"content":{"rendered":"
Foredragsholder: Kevin O\u2019Brien
\nSykepleier (RN), MS-CRNP, spesialsykepleier,
\nKlinisk forsker, Institutt for genomforskning,
\nNational Institutes of Health<\/h5>\n

Dato:<\/strong> Torsdag 25. juni 2026
\nTid:<\/strong> 13:00 CDT<\/p>\n

Kevin O\u2019Brien er sykepleier med spesialkompetanse og klinisk forsker ved National Human Genome Research Institute (NHGRI), som er en del av National Institutes of Health i Bethesda, Maryland. Han tok sin bachelorgrad i naturvitenskap ved Johns Hopkins University og sin mastergrad i naturvitenskap samt utdanningen som sykepleier med spesialkompetanse ved University of Maryland.<\/p>\n

Kevin har spilt en sentral rolle i NHGRIs kliniske forskning, blant annet i protokoll 15-HG-0006 \u2013 en klinisk studie som unders\u00f8ker dabrafenib og trametinib hos BRAF-positive pasienter med Erdheim-Chester-syndrom (ECD) \u2013 samt i studien \u00abNatural History of ECD\u00bb. <\/p>\n

Registrer deg her<\/a><\/span><\/p>","protected":false},"excerpt":{"rendered":"

Speaker: Kevin O’Brien RN, MS-CRNP, Nurse Practitioner, Clinical Investigator, Genome Research Institute, National Institutes of Health Date: Thursday, June 25, 2026 Time: 1:00 PM CDT Kevin O\u2019Brien is a nurse […]<\/p>\n","protected":false},"author":20,"featured_media":136778,"template":"","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","_tribe_events_status":"","_tribe_events_status_reason":"","_tribe_events_is_hybrid":"","_tribe_events_is_virtual":"","_tribe_events_virtual_video_source":"","_tribe_events_virtual_embed_video":"","_tribe_events_virtual_linked_button_text":"","_tribe_events_virtual_linked_button":"","_tribe_events_virtual_show_embed_at":"","_tribe_events_virtual_show_embed_to":[],"_tribe_events_virtual_show_on_event":"","_tribe_events_virtual_show_on_views":"","_tribe_events_virtual_url":"","wds_primary_tribe_events_cat":0,"footnotes":"","_links_to":"","_links_to_target":""},"tags":[],"tribe_events_cat":[361],"class_list":["post-136777","tribe_events","type-tribe_events","status-publish","has-post-thumbnail","hentry","tribe_events_cat-webinars","cat_webinars"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/tribe_events\/136777","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/tribe_events"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/types\/tribe_events"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/users\/20"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/tribe_events\/136777\/revisions"}],"predecessor-version":[{"id":174351,"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/tribe_events\/136777\/revisions\/174351"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/media\/136778"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/media?parent=136777"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/tags?post=136777"},{"taxonomy":"tribe_events_cat","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/tribe_events_cat?post=136777"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}