{"id":95398,"date":"2025-09-12T12:08:15","date_gmt":"2025-09-12T17:08:15","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=95398"},"modified":"2026-08-13T10:49:01","modified_gmt":"2026-08-13T15:49:01","slug":"ziggy-sebraen-som-bidrar-til-a-oke-bevisstheten-en-dag-om-gangen","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/nb\/ziggy-the-zebra-spreading-awareness-one-day-at-a-time\/","title":{"rendered":"Ziggy, sebraen, som sprer bevissthet | En dag om gangen!"},"content":{"rendered":"<div style=\"width: 1080px;\" class=\"wp-video\"><video class=\"wp-video-shortcode\" id=\"video-95398-1\" width=\"1080\" height=\"608\" preload=\"metadata\" controls=\"controls\"><source type=\"video\/mp4\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/2025-Awareness-Spreading-Awareness-One-D.mp4?_=1\" \/><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/2025-Awareness-Spreading-Awareness-One-D.mp4\">https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/2025-Awareness-Spreading-Awareness-One-D.mp4<\/a><\/video><\/div>\n<p class=\"p1\">Ziggy, sebraen, er tilbake med en spesiell utfordring i forbindelse med bevissthetsuken for Erdheim-Chester-syndromet \u2013 ta p\u00e5 deg stripene dine!<\/p>\n<p class=\"p1\">Ved \u00e5 kle deg i striper denne uken viser du solidaritet med ECD-samfunnet og bidrar til \u00e5 \u00f8ke bevisstheten om denne ekstremt sjeldne sykdommen. Hver eneste stripete skjorte, skjerf, slips eller sl\u00f8yfe setter i gang samtaler som kan f\u00f8re til st\u00f8rre forst\u00e5else, tidligere diagnoser og mer st\u00f8tte til pasienter og familier over hele verden.<\/p>\n<p class=\"p1\">Erdheim-Chester Disease Global Alliance (ECDGA) arbeider for \u00e5 \u00f8ke bevisstheten om, gi st\u00f8tte, informere om og drive forskning p\u00e5 ECD. Med din hjelp kan vi synliggj\u00f8re denne sjeldne sykdommen og vise pasientene at de ikke er alene.<\/p>\n<p class=\"p1\">Bli med p\u00e5 utfordringen:<\/p>\n<ul>\n<li>G\u00e5 i striper denne uken.<\/li>\n<li>Del et bilde eller en video.<\/li>\n<li>Bruk stemmen din til \u00e5 \u00f8ke bevisstheten.<\/li>\n<\/ul>\n<p class=\"p1\">Sammen kan vi gj\u00f8re en forskjell \u2013 \u00e9n stripe om gangen.<\/p>","protected":false},"excerpt":{"rendered":"<p>Ziggy the Zebra is back with a special challenge for Erdheim-Chester Disease Awareness Week\u2014wear your stripes! By putting on stripes this week, you\u2019re showing solidarity with the ECD community and [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":174661,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"yes","footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[4365,4786,3190,387,2252,374,3284,4360,4362,376,3844,4364,2402,4363],"class_list":["post-95398","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-awarenessmatters","tag-birmingham","tag-ecd","tag-ecdga","tag-erdheimchester","tag-erdheimchesterdisease","tag-globalawareness","tag-nonprofitlife","tag-patientvoices","tag-raredisease","tag-rarediseaseawareness","tag-spreadhope","tag-teamecdga","tag-unitedforecd"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/posts\/95398","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/comments?post=95398"}],"version-history":[{"count":4,"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/posts\/95398\/revisions"}],"predecessor-version":[{"id":174704,"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/posts\/95398\/revisions\/174704"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/media\/174661"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/media?parent=95398"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/categories?post=95398"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/tags?post=95398"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}