{"id":20009,"date":"2021-12-16T10:55:16","date_gmt":"2021-12-16T16:55:16","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/ecd-staging\/?p=20009"},"modified":"2026-08-19T06:21:47","modified_gmt":"2026-08-19T11:21:47","slug":"nyheter-ved-utgangen-av-2021","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/nb\/2021-year-end-news\/","title":{"rendered":"Nyheter ved utgangen av 2021"},"content":{"rendered":"<h2>Et nytt \u00e5r fullt av h\u00e5p ligger i vente for ECD-fellesskapet!<\/h2>\n<p><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/08\/2021-Year-End-Newsletter-online.pdf\">Les nyhetsbrevet for slutten av \u00e5ret 2021.<\/a><\/p>\n<p>ECD Global Alliance n\u00e5r nye h\u00f8yder n\u00e5r det gjelder st\u00f8tte til dem som kjemper mot Erdheim-Chester-syndromet, gjennom en kampanje med gavefordobling via<strong> 31. desember 2021<\/strong>!\u00a0 Thanks to an <strong>$80 000 i tilskudd<\/strong> fra en gruppe sjener\u00f8se styremedlemmer og st\u00f8ttespillere i ECDGA \u2013 vil din innsats for v\u00e5rt viktige arbeid gi DOBBELT s\u00e5 stor effekt.<\/p>\n<p>Med ditt bidrag kan vi skape en lysere fremtid for alle som er rammet av ECD. Gi et bidrag i dag for \u00e5 styrke arbeidet v\u00e5rt i \u00e5ret som kommer\u2026 og v\u00e6r sikker p\u00e5 at du vil gj\u00f8re dobbelt s\u00e5 mye godt! \u00a0<strong><a href=\"https:\/\/www.erdheim-chester.org\/nb\/donate-2\/\">F\u00e5 dobbelt s\u00e5 mye igjen for gaven din i dag!<\/a>\u00a0<\/strong><\/p>\n<p>Hva din gave bidrar til:<\/p>\n<ul>\n<li><strong>Forskning \u2013 <\/strong>\u00c5 finansiere forskning p\u00e5 Erdheim-Chester-syndromet st\u00e5r i sentrum for v\u00e5rt oppdrag. Vinneren av ECD-forskningsstipendet for 2021 vil snart bli kunngjort!<\/li>\n<li><strong>Utdanning \u2013 <\/strong>L\u00e6geutdanningen gjennomf\u00f8res blant annet ved hjelp av internasjonale konferanser, nettbaserte webinarer, opps\u00f8kende virksomhet innen medisinske spesialiteter og mye mer.<\/li>\n<li><strong>St\u00f8tte \u2013 <\/strong>Det er uvurderlig \u00e5 kunne gi pasienter og deres p\u00e5r\u00f8rende de verkt\u00f8yene og kontaktene de trenger for \u00e5 kunne st\u00e5 opp for seg selv. Deres donasjoner bidrar ikke bare til at v\u00e5rt fellesskap for sjeldne sykdommer kan blomstre. Deres bidrag gir ogs\u00e5 forskningsmidler som bidrar til fremskritt innen kreftforskningen p\u00e5 tvers av vitenskapsfeltene.<\/li>\n<\/ul>\n<div id=\"attachment_175267\" style=\"width: 235px\" class=\"wp-caption alignright\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/12\/Noah-Barone-3-225x300-1.jpg\"><img loading=\"lazy\" decoding=\"async\" aria-describedby=\"caption-attachment-175267\" class=\"wp-image-175267 size-full\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/12\/Noah-Barone-3-225x300-1.jpg\" alt=\"\" width=\"225\" height=\"300\" srcset=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/12\/Noah-Barone-3-225x300-1.jpg 225w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/12\/Noah-Barone-3-225x300-1-9x12.jpg 9w\" sizes=\"(max-width: 225px) 100vw, 225px\" \/><\/a><p id=\"caption-attachment-175267\" class=\"wp-caption-text\">Noah er klar for h\u00f8ytiden! Les historien om ham i ECD i nyhetsbrevet.<\/p><\/div>\n<h2>Koble til i 2022<\/h2>\n<p>Over the last two years, the ECD Global Alliance adjusted to the new norms of distancing and travel bans with more online connections.\u00a0 The Annual Patient &amp; Family Gathering was put on hold during this time, making the July 2019 event the last time our ECD family was able to join face-to-face.\u00a0We will continue to press forward with online connections for those that still cannot travel, but will also be offering a live meeting April 7-8, 2022!\u00a0 <a title=\"\u00c5rlig pasientm\u00f8te\" href=\"https:\/\/www.erdheim-chester.org\/nb\/samling-for-pasienter-og-parorende-ved-ecd\/\">Les mer om dette arrangementet her.<\/a><\/p>\n<p>As we reflect on the trials and triumphs of our community members, we want to thank the supporters that come through for those fighting every single day.\u00a0 Your support is not just about your loved one, but about the future for all families faced with Erdheim-Chester Disease.\u00a0 Your provisions have come in all forms, and we appreciate everything you do!<\/p>\n<h3><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/12\/2021-Year-End-Newsletter-online.pdf\">Les mer om oppdateringene i v\u00e5rt nyhetsbrev ved \u00e5rets slutt!<\/a><\/h3>\n<p>&nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>A new year of hope is on the horizon for the ECD community! View the 2021 Year-End Newsletter. The ECD Global Alliance is reaching new levels of support for those [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":20008,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[67,51,70],"tags":[55,101,83,58,56,103,57,122,168,82,52],"class_list":["post-20009","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-community-support","category-news","category-research-awareness","tag-advocacy","tag-awareness","tag-blood-cancer","tag-diabetes-insipidus","tag-erdheim-chester","tag-fundraiser","tag-hairy-kidney","tag-histio","tag-matching-gift","tag-rare-cancer","tag-rare-disease"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/posts\/20009","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/comments?post=20009"}],"version-history":[{"count":2,"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/posts\/20009\/revisions"}],"predecessor-version":[{"id":175268,"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/posts\/20009\/revisions\/175268"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/media\/20008"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/media?parent=20009"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/categories?post=20009"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/tags?post=20009"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}