{"id":19865,"date":"2021-11-01T13:41:18","date_gmt":"2021-11-01T18:41:18","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/ecd-staging\/?p=19865"},"modified":"2026-08-19T06:49:13","modified_gmt":"2026-08-19T11:49:13","slug":"kunngjoring-av-det-arlige-ecd-motet-i-2022","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/nb\/announcing-the-2022-annual-ecd-meeting\/","title":{"rendered":"Kunngj\u00f8ring av ECDs \u00e5rsm\u00f8te 2022"},"content":{"rendered":"

Et unikt fellesskap vil samles for \u00e5 knytte b\u00e5nd og l\u00e6re av hverandre.<\/em><\/h3>\n

Finally, the Erdheim-Chester Disease (ECD) community of patients, loved ones, and physicians will gather together again!\u00a0 During the challenges of the pandemic, serving our members remained the top priority.\u00a0 Through regularly scheduled chat sessions, education webinars, and a commitment to support, ECDGA has been able to keep our members connected during the test of the pandemic.<\/p>\n

Den<\/strong> De \u00e5rlige internasjonale arrangementene om Erdheim-Chester-sykdommen vil finne sted i Rochester, MN, fra 6. til 8. april 2022<\/strong>. I l\u00f8pet av denne tre dager lange konferansen vil det bli avholdt m\u00f8ter som er skreddersydd for hvert enkelt medlem av fellesskapet.<\/p>\n

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Dr. Go og Dr. Goyal p\u00e5 New York-symposiet i 2017<\/p><\/div>\n

ECDGA er be\u00e6ret over at \u00e5rets medarrang\u00f8rer bidrar til planleggingen og gjennomf\u00f8ringen. Dr. Ronald Go<\/strong><\/a> is a hematology-oncologist at the Mayo Clinic in Rochester near the meeting location. Dr. Go is the leading physician for the ECD Care Center at his clinic. He has a passion for creating a better experience for all patients. \u00a0Dr. Go has also shown great care to the community by empowering upcoming physicians with inspiring and effective mentoring in the field of histiocytosis. Also hosting is Dr. Gaurav Goyal<\/strong><\/a>,<\/strong> adjunkt ved University of Alabama i Birmingham. Dr. Goyal har v\u00e6rt et engasjert medlem av ECD-milj\u00f8et, b\u00e5de i sin profesjonelle rolle og som frivillig i ECDGA. Hans bidrag har hatt en positiv innvirkning p\u00e5 forskningen og behandlingsstandardene for pasienter med histiocytose, i tillegg til at han har ytt enest\u00e5ende pasientomsorg. Etter sin tid som mentor under dr. Go leder dr. Goyal n\u00e5 et ECD-behandlingssenter i Birmingham. B\u00e5de dr. Go og dr. Goyal har spilt en avgj\u00f8rende rolle i ECDGA-organisasjonens vekst og suksess.<\/p>\n

Den 9th<\/sup> ECD<\/strong> Medisinsk symposium <\/strong>arrangeres 6. april og gir helsepersonell muligheten til \u00e5 knytte kontakter og samarbeide om de nyeste forskningsresultatene innen ECD, samt dele kunnskap om behandling og omsorg for ECD-pasienter. Alt helsepersonell som er interessert i ECD og histiocytose hos voksne, spesielt klinikere som er nye i behandlingen av ECD-pasienter, oppfordres p\u00e5 det sterkeste til \u00e5 delta.<\/p>\n

Den 8th<\/sup><\/strong> ECD<\/strong> Samling for pasienter og p\u00e5r\u00f8rende<\/strong> on April 8 is an event offered to all ECD patients, caregivers, and anyone interested in learning more about care and support for ECD patients. The patient meeting sets out to unite patients and family members, as well as increase their knowledge and understanding of ECD. During the meeting, physicians knowledgeable in ECD care offer their specialized expertise and provide answers to the families\u2019 questions. Many patients have reported successful adjustments in their care following these meetings.\u00a0 All ECD patients and their loved ones, especially those with a new diagnosis or who have never attended an ECD event, are strongly encouraged to consider this opportunity.<\/p>\n

There is also time available for the professionals and patients to mingle during a social reception held on April 7.\u00a0 This is a more informal setting for introductions, meeting new members, and enjoying fellowship with those that understand the struggles of living with ECD.<\/p>\n

\u00a0<\/strong>*Erkl\u00e6ring om COVID:<\/strong> We are monitoring the sanitation ordinances for this location in hopes that the virus will be behind us in time to hold the meeting as planned.\u00a0 We will continue to monitor the situation and post updates if\u00a0anything changes.\u00a0 Meanwhile, we will continue planning for the dates of April 6 through April 8, 2022.<\/p>\n

Les mer:<\/strong><\/p>\n