{"id":19654,"date":"2021-06-10T16:11:03","date_gmt":"2021-06-10T16:11:03","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/ecd-staging\/?p=19654"},"modified":"2025-08-23T17:14:22","modified_gmt":"2025-08-23T21:14:22","slug":"ecd-care-network-betjener-na-pasienter-i-michigan","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/nb\/ecd-care-network-now-serves-michigan-patients\/","title":{"rendered":"ECD Care Network betjener n\u00e5 pasienter i Michigan"},"content":{"rendered":"<p><strong>Erdheim-Chester Disease Global Alliance er stolt over \u00e5 kunngj\u00f8re at det f\u00f8rste ECD-henvisningssenteret skal ligge i Michigan<\/strong><\/p>\n<p>Erdheim-Chester Disease Global Alliance (ECDGA) har gleden av \u00e5 presentere det nyeste tilskuddet til nettverket av ECD-henvisningssentre, <strong>Rogel kreftsenter ved University of Michigan, <\/strong>Ann Arbor, Michigan. The lead physician at this center is Dr. Asra Ahmed who specializes in hematology-oncology. Having an Erdheim-Chester Disease (ECD) referral center located in this region will not only be beneficial to the 12 Michigan-based patients currently registered with ECDGA but also allow access for more patients seeking a possible ECD diagnosis in the future. Forming this partnership ensures collaboration, education, improving early diagnosis, providing effective treatments, and support for the ECD patients in this part of the country.<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignright  wp-image-19659\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/06\/Asra_Zareen_Ahmed_MD-240x300.jpg\" alt=\"\" width=\"178\" height=\"223\" srcset=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/06\/Asra_Zareen_Ahmed_MD-240x300.jpg 240w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/06\/Asra_Zareen_Ahmed_MD-819x1024.jpg 819w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/06\/Asra_Zareen_Ahmed_MD-768x960.jpg 768w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/06\/Asra_Zareen_Ahmed_MD.jpg 1200w\" sizes=\"(max-width: 178px) 100vw, 178px\" \/><\/p>\n<p>\u201cErdheim-Chester-syndromet er ekstremt sjeldent, noe som betyr at det er avgj\u00f8rende for pasientene \u00e5 kunne finne den rette kompetansen for \u00e5 sikre riktig behandling. Vi er glade for \u00e5 v\u00e6re det eneste henvisningssenteret for ECD i Michigan og ser frem til \u00e5 koordinere behandlingen for pasienter i hele delstaten og regionen\u201d, sier Asra Ahmed, M.D., f\u00f8rsteamanuensis i indremedisin ved Michigan Medicine, det akademiske medisinske senteret ved University of Michigan.<\/p>\n<p>ECDGA anerkjenner 35 kompetansesentre over hele verden. Alle institusjonene er p\u00e5lagt \u00e5 kommunisere og samarbeide med hverandre for \u00e5 sikre at pasientene f\u00e5r de aller nyeste behandlingsalternativene og den beste omsorgen som finnes. Et annet viktig aspekt ved ECD Referral Care Center-nettverket er \u00e5 sikre at dersom en pasient ikke kan reise p\u00e5 grunn av sykdom, kan ECD-legene ved disse sentrene r\u00e5df\u00f8re seg med pasientens lokale lege om pasientens tilfelle.<\/p>\n<p>For mer informasjon om nettverket ECD Referral Care Center og hvordan du kan kontakte dem, kan du g\u00e5 til <a href=\"https:\/\/www.erdheim-chester.org\/nb\/omsorgssentre-2\/\">www.erdheim-chester.org\/care-centers\/<\/a>.<\/p>","protected":false},"excerpt":{"rendered":"<p>The Erdheim-Chester Disease Global Alliance is proud to announce the first ECD Referral Care Center to be located in Michigan Erdheim-Chester Disease Global Alliance (ECDGA) is pleased to introduce the [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":19655,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[55,115,101,83,54,59,53,58,56,69,57,116,82,52,114,113],"class_list":["post-19654","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-advocacy","tag-ann-arbor","tag-awareness","tag-blood-cancer","tag-blood-disorder","tag-bone-pain","tag-cancer","tag-diabetes-insipidus","tag-erdheim-chester","tag-fatigue","tag-hairy-kidney","tag-patient-support","tag-rare-cancer","tag-rare-disease","tag-rogel-cancer-center","tag-university-of-michigan"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/posts\/19654","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/comments?post=19654"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/posts\/19654\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/media\/19655"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/media?parent=19654"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/categories?post=19654"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/tags?post=19654"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}