{"id":162802,"date":"2026-06-25T14:03:41","date_gmt":"2026-06-25T19:03:41","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=162802"},"modified":"2026-06-25T14:03:41","modified_gmt":"2026-06-25T19:03:41","slug":"en-melding-til-fellesskapet-vart","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/nb\/a-message-to-our-community\/","title":{"rendered":"En melding til v\u00e5rt lokalsamfunn"},"content":{"rendered":"

N\u00e5r noen f\u00e5r h\u00f8re ordene \u201cDu har Erdheim-Chester-syndromet\u201d, har de ofte flere sp\u00f8rsm\u00e5l enn svar.<\/p>\n

    \n
  1. Hvor finner jeg informasjon?<\/li>\n
  2. Hvem kan hjelpe meg med \u00e5 forst\u00e5 denne sykdommen?<\/li>\n
  3. Hvilke behandlingsalternativer finnes det?<\/li>\n
  4. Hvordan kan jeg finne andre som har denne sykdommen?<\/li>\n<\/ol>\n

    ECDGA bidrar til \u00e5 besvare disse sp\u00f8rsm\u00e5lene hver dag.<\/p>\n

    St\u00f8tt pasienter og p\u00e5r\u00f8rende ved \u00e5 gi et tilskudd i dag.<\/p>\n

    Vi er s\u00e5 n\u00e6r ved \u00e5 n\u00e5 v\u00e5rt Match Challenge-m\u00e5l p\u00e5 $10 000,00. Vi har samlet inn $7 261,00. Hjelp oss med \u00e5 n\u00e5 dette m\u00e5let f\u00f8r 30. juni.<\/p>\n

    Doner her<\/a><\/span><\/p>","protected":false},"excerpt":{"rendered":"

    When someone hears the words “You have Erdheim-Chester Disease,” they often have more questions than answers. Where do I find information? Who can help me understand this disease? What treatment […]<\/p>\n","protected":false},"author":27,"featured_media":162987,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[387,2252,5985,376],"class_list":["post-162802","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-ecdga","tag-erdheimchester","tag-funrun","tag-raredisease"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/posts\/162802","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/users\/27"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/comments?post=162802"}],"version-history":[{"count":2,"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/posts\/162802\/revisions"}],"predecessor-version":[{"id":162986,"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/posts\/162802\/revisions\/162986"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/media\/162987"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/media?parent=162802"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/categories?post=162802"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/wp\/v2\/tags?post=162802"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}