{"id":75744,"global_id":"www.erdheim-chester.org\/nb?id=75744","global_id_lineage":["www.erdheim-chester.org\/nb?id=75744"],"author":"14","status":"publish","date":"2025-06-06 10:24:33","date_utc":"2025-06-06 14:24:33","modified":"2025-06-17 09:31:08","modified_utc":"2025-06-17 13:31:08","url":"https:\/\/www.erdheim-chester.org\/nb\/event\/%ce%b5%cf%84%ce%bf%ce%b9%ce%bc%ce%b1%cf%83%cf%84%ce%b5%ce%af%cf%84%ce%b5-%ce%bd%ce%b1-%cf%84%cf%81%ce%ad%ce%be%ce%b5%cf%84%ce%b5-%ce%bd%ce%b1-%cf%80%ce%b5%cf%81%cf%80%ce%b1%cf%84%ce%ae%cf%83%ce%b5\/","rest_url":"https:\/\/www.erdheim-chester.org\/nb\/wp-json\/tribe\/events\/v1\/events\/75744","title":"\u0395\u03c4\u03bf\u03b9\u03bc\u03b1\u03c3\u03c4\u03b5\u03af\u03c4\u03b5 \u03bd\u03b1 \u03c4\u03c1\u03ad\u03be\u03b5\u03c4\u03b5, \u03bd\u03b1 \u03c0\u03b5\u03c1\u03c0\u03b1\u03c4\u03ae\u03c3\u03b5\u03c4\u03b5 \u03ba\u03b1\u03b9 \u03bd\u03b1 \u03ba\u03c5\u03bb\u03ae\u03c3\u03b5\u03c4\u03b5 \u03b3\u03b9\u03b1 \u03c4\u03b7\u03bd \u0395\u03bb\u03c0\u03af\u03b4\u03b1! \u03a4\u03bf 2025 Fun Run \u03b5\u03af\u03bd\u03b1\u03b9 \u03b5\u03b4\u03ce!","description":"<p>\u03a4\u03bf Erdheim-Chester Disease Global Alliance (ECDGA) \u03b5\u03af\u03bd\u03b1\u03b9 \u03b5\u03bd\u03b8\u03bf\u03c5\u03c3\u03b9\u03b1\u03c3\u03bc\u03ad\u03bd\u03b7 \u03c0\u03bf\u03c5 \u03b1\u03bd\u03b1\u03ba\u03bf\u03b9\u03bd\u03ce\u03bd\u03b5\u03b9 \u03c4\u03bf <strong>2025 Global Steps Towards Awareness &amp; Hope Virtual Fun Run, Walk &amp; Roll<\/strong>! \u0391\u03c0\u03cc <strong>\u03c4\u03b9\u03c2 16 \u0399\u03bf\u03c5\u03bd\u03af\u03bf\u03c5 \u03ad\u03c9\u03c2 \u03c4\u03b9\u03c2 15 \u0399\u03bf\u03c5\u03bb\u03af\u03bf\u03c5 2025<\/strong>, \u03c3\u03b1\u03c2 \u03c0\u03c1\u03bf\u03c3\u03ba\u03b1\u03bb\u03bf\u03cd\u03bc\u03b5 -\u03b1\u03c3\u03b8\u03b5\u03bd\u03b5\u03af\u03c2, \u03c6\u03c1\u03bf\u03bd\u03c4\u03b9\u03c3\u03c4\u03ad\u03c2, \u03c5\u03c0\u03bf\u03c3\u03c4\u03b7\u03c1\u03b9\u03ba\u03c4\u03ad\u03c2 \u03ba\u03b1\u03b9 \u03c3\u03c5\u03bd\u03b7\u03b3\u03cc\u03c1\u03bf\u03c5\u03c2 \u03c3\u03b5 \u03cc\u03bb\u03bf \u03c4\u03bf\u03bd \u03ba\u03cc\u03c3\u03bc\u03bf- \u03bd\u03b1 \u03c3\u03c5\u03bc\u03bc\u03b5\u03c4\u03ac\u03c3\u03c7\u03b5\u03c4\u03b5 \u03c3\u03c4\u03bf \u03b5\u03bd\u03c9\u03bc\u03ad\u03bd\u03bf \u03ba\u03af\u03bd\u03b7\u03bc\u03ac \u03bc\u03b1\u03c2 \u03b3\u03b9\u03b1 \u03b4\u03cd\u03bd\u03b1\u03bc\u03b7, \u03c0\u03c1\u03bf\u03b2\u03bf\u03bb\u03ae \u03ba\u03b1\u03b9 \u03b5\u03bb\u03c0\u03af\u03b4\u03b1.<\/p>\n<p>\u0391\u03c5\u03c4\u03ae \u03b7 \u03c0\u03bb\u03ae\u03c1\u03c9\u03c2 \u03b5\u03b9\u03ba\u03bf\u03bd\u03b9\u03ba\u03ae \u03b5\u03ba\u03b4\u03ae\u03bb\u03c9\u03c3\u03b7 \u03b5\u03af\u03bd\u03b1\u03b9 \u03b7 \u03b5\u03c5\u03ba\u03b1\u03b9\u03c1\u03af\u03b1 \u03c3\u03b1\u03c2 \u03bd\u03b1 \u03b1\u03c5\u03be\u03ae\u03c3\u03b5\u03c4\u03b5 \u03c4\u03b7\u03bd \u03b5\u03c5\u03b1\u03b9\u03c3\u03b8\u03b7\u03c4\u03bf\u03c0\u03bf\u03af\u03b7\u03c3\u03b7 \u03c3\u03c7\u03b5\u03c4\u03b9\u03ba\u03ac \u03bc\u03b5 Erdheim-Chester Disease (ECD), \u03b5\u03bd\u03cc\u03c2 \u03b5\u03be\u03b1\u03b9\u03c1\u03b5\u03c4\u03b9\u03ba\u03ac \u03c3\u03c0\u03ac\u03bd\u03b9\u03bf\u03c5 \u03ba\u03b1\u03b9 \u03c3\u03c5\u03c7\u03bd\u03ac \u03c0\u03b1\u03c1\u03b5\u03be\u03b7\u03b3\u03b7\u03bc\u03ad\u03bd\u03bf\u03c5 \u03ba\u03b1\u03c1\u03ba\u03af\u03bd\u03bf\u03c5 \u03c4\u03bf\u03c5 \u03b1\u03af\u03bc\u03b1\u03c4\u03bf\u03c2 \u03c0\u03bf\u03c5 \u03c0\u03bb\u03ae\u03c4\u03c4\u03b5\u03b9 \u03bc\u03cc\u03bb\u03b9\u03c2 \u03c0\u03ac\u03bd\u03c9 \u03b1\u03c0\u03cc \u03c7\u03af\u03bb\u03b9\u03b5\u03c2 \u03bf\u03b9\u03ba\u03bf\u03b3\u03ad\u03bd\u03b5\u03b9\u03b5\u03c2 \u03c0\u03b1\u03b3\u03ba\u03bf\u03c3\u03bc\u03af\u03c9\u03c2. \u0395\u03af\u03c4\u03b5 \u03b4\u03ad\u03bd\u03b5\u03c4\u03b5 \u03c4\u03b1 \u03b1\u03b8\u03bb\u03b7\u03c4\u03b9\u03ba\u03ac \u03c3\u03b1\u03c2 \u03c0\u03b1\u03c0\u03bf\u03cd\u03c4\u03c3\u03b9\u03b1, \u03b5\u03af\u03c4\u03b5 \u03c0\u03b5\u03c1\u03c0\u03b1\u03c4\u03ac\u03c4\u03b5 \u03c3\u03c4\u03b7 \u03b3\u03b5\u03b9\u03c4\u03bf\u03bd\u03b9\u03ac \u03c3\u03b1\u03c2, \u03b5\u03af\u03c4\u03b5 \u03c0\u03b5\u03c1\u03c0\u03b1\u03c4\u03ac\u03c4\u03b5 \u03bc\u03b9\u03b1 \u03b4\u03b9\u03b1\u03b4\u03c1\u03bf\u03bc\u03ae \u03bc\u03b5 \u03c4\u03b7\u03bd \u03bf\u03bc\u03ac\u03b4\u03b1 \u03c3\u03b1\u03c2, \u03ba\u03ac\u03b8\u03b5 \u03b2\u03ae\u03bc\u03b1 \u03c0\u03bf\u03c5 \u03ba\u03ac\u03bd\u03b5\u03c4\u03b5 \u03b2\u03bf\u03b7\u03b8\u03ac \u03c3\u03c4\u03b7\u03bd \u03b5\u03bd\u03af\u03c3\u03c7\u03c5\u03c3\u03b7 \u03c4\u03b7\u03c2 \u03b1\u03c0\u03bf\u03c3\u03c4\u03bf\u03bb\u03ae\u03c2 \u03bc\u03b1\u03c2: \u03b5\u03c5\u03b1\u03b9\u03c3\u03b8\u03b7\u03c4\u03bf\u03c0\u03bf\u03af\u03b7\u03c3\u03b7, \u03c5\u03c0\u03bf\u03c3\u03c4\u03ae\u03c1\u03b9\u03be\u03b7, \u03b5\u03ba\u03c0\u03b1\u03af\u03b4\u03b5\u03c5\u03c3\u03b7 \u03ba\u03b1\u03b9 \u03ad\u03c1\u03b5\u03c5\u03bd\u03b1 \u03b3\u03b9\u03b1 \u03cc\u03c3\u03bf\u03c5\u03c2 \u03b5\u03c0\u03b7\u03c1\u03b5\u03ac\u03b6\u03bf\u03bd\u03c4\u03b1\u03b9 \u03b1\u03c0\u03cc \u03c4\u03b7 \u03bd\u03cc\u03c3\u03bf ECD. <\/p>\n<p>&nbsp;<\/p>\n<div id=\"attachment_79410\" style=\"width: 194px\" class=\"wp-caption alignleft\"><a href=\"https:\/\/www.bonfire.com\/2025-virtual-fun-run-walk-or-roll\/\" target=\"_blank\" rel=\"noopener\"><img loading=\"lazy\" decoding=\"async\" aria-describedby=\"caption-attachment-79410\" class=\"wp-image-79410\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/06\/shutterstock_2518880865.jpg\" alt=\"\" width=\"184\" height=\"184\"><\/a><p id=\"caption-attachment-79410\" class=\"wp-caption-text\">\u03a0\u03b1\u03c1\u03b1\u03b3\u03b3\u03b5\u03af\u03bb\u03c4\u03b5 \u03c4\u03bf \u03b4\u03b9\u03ba\u03cc \u03c3\u03b1\u03c2 \u03c3\u03ae\u03bc\u03b5\u03c1\u03b1!<\/p><\/div>\n<p><strong>\u0392\u03b1\u03c3\u03b9\u03ba\u03ad\u03c2 \u03bb\u03b5\u03c0\u03c4\u03bf\u03bc\u03ad\u03c1\u03b5\u03b9\u03b5\u03c2 \u03c4\u03b7\u03c2 \u03b5\u03ba\u03b4\u03ae\u03bb\u03c9\u03c3\u03b7\u03c2:<\/strong><\/p>\n<ul>\n<li><strong>\u0397\u03bc\u03b5\u03c1\u03bf\u03bc\u03b7\u03bd\u03af\u03b5\u03c2 \u03b5\u03ba\u03b4\u03b7\u03bb\u03ce\u03c3\u03b5\u03c9\u03bd<\/strong>: 15 \u0399\u03bf\u03c5\u03bb\u03af\u03bf\u03c5 2025<\/li>\n<li><strong>\u0395\u03b3\u03b3\u03c1\u03b1\u03c6\u03ae<\/strong>: 20 \u03b4\u03bf\u03bb\u03ac\u03c1\u03b9\u03b1 \u03b1\u03bd\u03ac \u03ac\u03c4\u03bf\u03bc\u03bf<\/li>\n<li><strong>\u03a0\u03bf\u03cd<\/strong>: \u039f\u03c0\u03bf\u03c5\u03b4\u03ae\u03c0\u03bf\u03c4\u03b5 \u03c3\u03c4\u03bf\u03bd \u03ba\u03cc\u03c3\u03bc\u03bf &#8211; \u03b5\u03af\u03bd\u03b1\u03b9 \u03c0\u03bb\u03ae\u03c1\u03c9\u03c2 \u03b5\u03b9\u03ba\u03bf\u03bd\u03b9\u03ba\u03cc<\/li>\n<li>\u03a4\u03b1 \u03bc\u03c0\u03bb\u03bf\u03c5\u03b6\u03ac\u03ba\u03b9\u03b1 \u03b5\u03af\u03bd\u03b1\u03b9 \u03b4\u03b9\u03b1\u03b8\u03ad\u03c3\u03b9\u03bc\u03b1 \u03b3\u03b9\u03b1 \u03b1\u03b3\u03bf\u03c1\u03ac.<strong> <a href=\"https:\/\/www.bonfire.com\/2025-virtual-fun-run-walk-or-roll\/\" target=\"_blank\" rel=\"noopener\">\u03a0\u03b1\u03c1\u03b1\u03b3\u03b3\u03b5\u03af\u03bb\u03b5\u03c4\u03b5 \u03c3\u03ae\u03bc\u03b5\u03c1\u03b1!<\/a><\/strong><\/li>\n<li>\u03a3\u03c7\u03b7\u03bc\u03b1\u03c4\u03af\u03c3\u03c4\u03b5 \u03bc\u03b9\u03b1 \u03bf\u03bc\u03ac\u03b4\u03b1, \u03b5\u03ba\u03c0\u03c1\u03bf\u03c3\u03c9\u03c0\u03ae\u03c3\u03c4\u03b5 \u03c4\u03b7\u03bd \u03c0\u03bf\u03bb\u03b9\u03c4\u03b5\u03af\u03b1 \u03ae \u03c4\u03b7 \u03c7\u03ce\u03c1\u03b1 \u03c3\u03b1\u03c2 \u03ba\u03b1\u03b9 \u03c0\u03b5\u03c1\u03c0\u03b1\u03c4\u03ae\u03c3\u03c4\u03b5 \u03bc\u03b5 \u03c3\u03ba\u03bf\u03c0\u03cc<\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<p><em>\u038c\u03bb\u03b1 \u03c4\u03b1 \u03ba\u03b5\u03c6\u03ac\u03bb\u03b1\u03b9\u03b1 \u03c0\u03bf\u03c5 \u03c3\u03c5\u03b3\u03ba\u03b5\u03bd\u03c4\u03c1\u03ce\u03bd\u03bf\u03bd\u03c4\u03b1\u03b9 \u03c3\u03c4\u03b7\u03c1\u03af\u03b6\u03bf\u03c5\u03bd \u03c4\u03b7\u03bd \u03c0\u03b1\u03b3\u03ba\u03cc\u03c3\u03bc\u03b9\u03b1 \u03b1\u03c0\u03bf\u03c3\u03c4\u03bf\u03bb\u03ae \u03bc\u03b1\u03c2 \u03ba\u03b1\u03b9 \u03bc\u03b1\u03c2 \u03c6\u03ad\u03c1\u03bd\u03bf\u03c5\u03bd \u03c0\u03b9\u03bf \u03ba\u03bf\u03bd\u03c4\u03ac \u03c3\u03b5 \u03ba\u03b1\u03bb\u03cd\u03c4\u03b5\u03c1\u03b1 \u03b1\u03c0\u03bf\u03c4\u03b5\u03bb\u03ad\u03c3\u03bc\u03b1\u03c4\u03b1 \u03ba\u03b1\u03b9, \u03c4\u03b5\u03bb\u03b9\u03ba\u03ac, \u03c3\u03b5 \u03bc\u03b9\u03b1 \u03b8\u03b5\u03c1\u03b1\u03c0\u03b5\u03af\u03b1. \u0391\u03c2 \u03c3\u03c5\u03bd\u03b5\u03c7\u03af\u03c3\u03bf\u03c5\u03bc\u03b5 \u03bd\u03b1 \u03c0\u03c1\u03bf\u03c7\u03c9\u03c1\u03ac\u03bc\u03b5 \u03bc\u03c0\u03c1\u03bf\u03c3\u03c4\u03ac &#8211; \u03bc\u03b1\u03b6\u03af. <\/em><\/p>\n<p><span class=\"register-here\"><a href=\"https:\/\/secure.qgiv.com\/event\/2025virtualfunrunwalkorroll\/register\/form\/registration\" target=\"_blank\" rel=\"noopener\"><strong>\u0395\u03b3\u03b3\u03c1\u03b1\u03c6\u03b5\u03af\u03c4\u03b5 \u03c3\u03ae\u03bc\u03b5\u03c1\u03b1<\/strong><\/a><\/span><\/p>\n<p>\u0395\u03c1\u03c9\u03c4\u03ae\u03c3\u03b5\u03b9\u03c2; \u0395\u03c0\u03b9\u03ba\u03bf\u03b9\u03bd\u03c9\u03bd\u03ae\u03c3\u03c4\u03b5 \u03bc\u03b5 <a class=\"cursor-pointer\" rel=\"noopener\">\u03c4\u03bf Renita.Page@erdheim-chester.org<\/a> <\/p>\n<p>\u0391\u03c2 \u03c0\u03c1\u03bf\u03c7\u03c9\u03c1\u03ae\u03c3\u03bf\u03c5\u03bc\u03b5 \u03bc\u03c0\u03c1\u03bf\u03c3\u03c4\u03ac \u03bc\u03b5 \u03b4\u03cd\u03bd\u03b1\u03bc\u03b7. \u0391\u03c2 \u03c0\u03c1\u03bf\u03c7\u03c9\u03c1\u03ae\u03c3\u03bf\u03c5\u03bc\u03b5 \u03bc\u03b5 \u03b1\u03bd\u03b8\u03b5\u03ba\u03c4\u03b9\u03ba\u03cc\u03c4\u03b7\u03c4\u03b1. \u0391\u03c2 \u03c4\u03c1\u03ad\u03be\u03bf\u03c5\u03bc\u03b5 \u03bc\u03b5 \u03b5\u03bb\u03c0\u03af\u03b4\u03b1.  <\/p>\n<p>[usahtml5map id=&#8221;0&#8243;]<\/p>\n<p>[worldcountrieshtml5map id=&#8221;0&#8243;]<\/p>\n<div class=\"wp-block-pdfemb-pdf-embedder-viewer\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/06\/Approved-version.pdf\" class=\"pdfemb-viewer\" style=\"\" data-width=\"max\" data-height=\"max\" data-toolbar=\"bottom\" data-toolbar-fixed=\"off\">\u0395\u03b3\u03ba\u03b5\u03ba\u03c1\u03b9\u03bc\u03ad\u03bd\u03b7 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