{"id":95238,"date":"2025-09-12T09:12:27","date_gmt":"2025-09-12T14:12:27","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?post_type=tribe_events&#038;p=95238"},"modified":"2025-10-03T08:28:23","modified_gmt":"2025-10-03T13:28:23","slug":"argomento-sopravvivenza-nella-malattia-di-erdheim-chester-con-particolare-attenzione-al-punto-di-vista-dei-pazienti","status":"publish","type":"tribe_events","link":"https:\/\/www.erdheim-chester.org\/it\/event\/topic-survivorship-in-erdheim-chester-disease-incorporating-the-patient-voice\/","title":{"rendered":"Argomento: Sopravvivenza nella malattia di Erdheim-Chester: dare voce ai pazienti"},"content":{"rendered":"<p><strong>Data:<\/strong>\u00a023 settembre 2025<br \/>\n<strong>Ora:<\/strong>\u00a013:00 CT<\/p>\n<h3>Relatore: Gaurav Goyal, M.D.<br \/>\nUniversit\u00e0 dell'Alabama a Birmingham<\/h3>\n<p>Il dottor Goyal \u00e8 nato e cresciuto in India e ha completato la specializzazione in ematologia-oncologia presso la Mayo Clinic di Rochester, nel Minnesota. Durante la sua permanenza alla Mayo Clinic, ha sviluppato una specializzazione nei disturbi istiocitari, tra cui la malattia di Erdheim-Chester, l\u2019istiocitosi a cellule di Langerhans e la malattia di Rosai-Dorfman. Ha condotto numerosi studi sull\u2019istiocitosi e ha svolto un ruolo chiave nella costituzione del primo gruppo di lavoro multidisciplinare sull\u2019istiocitosi, volto a migliorare l\u2019assistenza alle persone affette da queste malattie rare.<\/p>\n<p>Il dottor Goyal \u00e8 poi entrato a far parte della Divisione di Ematologia-Oncologia dell\u2019Universit\u00e0 dell\u2019Alabama a Birmingham (UAB), dove ha fondato un centro di cura per la malattia di Erdheim-Chester. Presso l\u2019UAB ha inoltre avviato lo \u00abStudio sui sopravvissuti alle malattie istiocitiche\u00bb in collaborazione con l\u2019Erdheim-Chester Disease Global Alliance (ECDGA), promuovendo ulteriormente la ricerca e il sostegno ai pazienti affetti da malattie istiocitiche.<\/p>\n<p>&nbsp;<\/p>\n<h4><a href=\"https:\/\/us02web.zoom.us\/webinar\/register\/WN_bXelZbzKQrqT2_ermJIE0g\" target=\"_blank\" rel=\"noopener\">Registrati qui<\/a><\/h4>\n<p><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/download-8.jpeg\"><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-full wp-image-91910\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/download-8.jpeg\" alt=\"\" width=\"1080\" height=\"1080\" srcset=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/download-8.jpeg 1080w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/download-8-980x980.jpeg 980w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/download-8-480x480.jpeg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) 1080px, 100vw\" \/><\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>Date:\u00a0September 23, 2025 Time:\u00a01:00 PM CT Speaker: Gaurav Goyal, M.D. University of Alabama at Birmingham Dr. Goyal was born and raised in India and completed his Hematology-Oncology Fellowship at the [&hellip;]<\/p>\n","protected":false},"author":20,"featured_media":91910,"template":"","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"yes","_tribe_events_status":"","_tribe_events_status_reason":"","_tribe_events_is_hybrid":"","_tribe_events_is_virtual":"","_tribe_events_virtual_video_source":"","_tribe_events_virtual_embed_video":"","_tribe_events_virtual_linked_button_text":"","_tribe_events_virtual_linked_button":"","_tribe_events_virtual_show_embed_at":"","_tribe_events_virtual_show_embed_to":[],"_tribe_events_virtual_show_on_event":"","_tribe_events_virtual_show_on_views":"","_tribe_events_virtual_url":"","wds_primary_tribe_events_cat":0,"footnotes":"","_links_to":"","_links_to_target":""},"tags":[],"tribe_events_cat":[361],"class_list":["post-95238","tribe_events","type-tribe_events","status-publish","has-post-thumbnail","hentry","tribe_events_cat-webinars","cat_webinars"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/tribe_events\/95238","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/tribe_events"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/types\/tribe_events"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/users\/20"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/tribe_events\/95238\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/media\/91910"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/media?parent=95238"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/tags?post=95238"},{"taxonomy":"tribe_events_cat","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/tribe_events_cat?post=95238"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}