{"id":136777,"date":"2026-06-04T15:49:16","date_gmt":"2026-06-04T20:49:16","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?post_type=tribe_events&#038;p=136777"},"modified":"2026-07-28T23:58:35","modified_gmt":"2026-07-29T04:58:35","slug":"gestione-del-dolore-e-dellaffaticamento-da-ecd","status":"publish","type":"tribe_events","link":"https:\/\/www.erdheim-chester.org\/it\/event\/managing-ecd-pain-fatigue\/","title":{"rendered":"Argomento: Gestione del dolore e dell'affaticamento nell'ECD"},"content":{"rendered":"<h5>Relatore: Kevin O\u2019Brien<br \/>\nInfermiera diplomata, MS-CRNP, infermiera specializzata,<br \/>\nRicercatore clinico, Istituto di ricerca sul genoma,<br \/>\nIstituti Nazionali di Sanit\u00e0<\/h5>\n<p><strong>Data:<\/strong> Gioved\u00ec 25 giugno 2026<br \/>\n<strong>Ora:<\/strong> 13:00 CDT<\/p>\n<p>Kevin O\u2019Brien \u00e8 infermiere specializzato e ricercatore clinico presso l\u2019Istituto Nazionale di Ricerca sul Genoma Umano (NHGRI) dei National Institutes of Health a Bethesda, nel Maryland. Ha conseguito la laurea triennale in Scienze presso la Johns Hopkins University e la laurea magistrale in Scienze e il titolo di infermiere specializzato presso l\u2019Universit\u00e0 del Maryland.<\/p>\n<p>Kevin ha svolto un ruolo fondamentale nella ricerca clinica dell\u2019NHGRI, in particolare nel protocollo 15-HG-0006, uno studio clinico volto a valutare l\u2019efficacia di dabrafenib e trametinib in pazienti BRAF-positivi affetti dalla malattia di Erdheim-Chester (ECD), nonch\u00e9 nello studio sulla storia naturale dell\u2019ECD. <\/p>\n<p><span class=\"register-here\"><a href=\"https:\/\/us02web.zoom.us\/webinar\/register\/WN_QGgE4DkuSISF3cuI6YeEXw\" target=\"_blank\" rel=\"noopener\">Registrati qui<\/a><\/span><\/p>","protected":false},"excerpt":{"rendered":"<p>Speaker: Kevin O&#8217;Brien RN, MS-CRNP, Nurse Practitioner, Clinical Investigator, Genome Research Institute, National Institutes of Health Date: Thursday, June 25, 2026 Time: 1:00 PM CDT Kevin O\u2019Brien is a nurse [&hellip;]<\/p>\n","protected":false},"author":20,"featured_media":136778,"template":"","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","_tribe_events_status":"","_tribe_events_status_reason":"","_tribe_events_is_hybrid":"","_tribe_events_is_virtual":"","_tribe_events_virtual_video_source":"","_tribe_events_virtual_embed_video":"","_tribe_events_virtual_linked_button_text":"","_tribe_events_virtual_linked_button":"","_tribe_events_virtual_show_embed_at":"","_tribe_events_virtual_show_embed_to":[],"_tribe_events_virtual_show_on_event":"","_tribe_events_virtual_show_on_views":"","_tribe_events_virtual_url":"","wds_primary_tribe_events_cat":0,"footnotes":"","_links_to":"","_links_to_target":""},"tags":[],"tribe_events_cat":[361],"class_list":["post-136777","tribe_events","type-tribe_events","status-publish","has-post-thumbnail","hentry","tribe_events_cat-webinars","cat_webinars"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/tribe_events\/136777","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/tribe_events"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/types\/tribe_events"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/users\/20"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/tribe_events\/136777\/revisions"}],"predecessor-version":[{"id":174351,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/tribe_events\/136777\/revisions\/174351"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/media\/136778"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/media?parent=136777"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/tags?post=136777"},{"taxonomy":"tribe_events_cat","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/tribe_events_cat?post=136777"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}