{"id":19865,"date":"2021-11-01T13:41:18","date_gmt":"2021-11-01T18:41:18","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/ecd-staging\/?p=19865"},"modified":"2026-08-19T06:49:13","modified_gmt":"2026-08-19T11:49:13","slug":"annuncio-della-riunione-annuale-dellecd-del-2022","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/it\/announcing-the-2022-annual-ecd-meeting\/","title":{"rendered":"Annuncio del Convegno annuale ECD 2022"},"content":{"rendered":"<h3><em>Una comunit\u00e0 davvero speciale si riunir\u00e0 per creare legami e imparare insieme.<\/em><\/h3>\n<p>Finally, the Erdheim-Chester Disease (ECD) community of patients, loved ones, and physicians will gather together again!\u00a0 During the challenges of the pandemic, serving our members remained the top priority.\u00a0 Through regularly scheduled chat sessions, education webinars, and a commitment to support, ECDGA has been able to keep our members connected during the test of the pandemic.<\/p>\n<p><strong>Il<\/strong> <strong>Gli eventi internazionali annuali dedicati alla malattia di Erdheim-Chester si terranno a Rochester, nel Minnesota, dal 6 all\u20198 aprile 2022<\/strong>. Nel corso di questa conferenza di tre giorni, si terranno incontri pensati su misura per ciascun membro della comunit\u00e0.<\/p>\n<div id=\"attachment_175278\" style=\"width: 310px\" class=\"wp-caption alignright\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/11\/go-and-goyal-300x200-1.png\"><img loading=\"lazy\" decoding=\"async\" aria-describedby=\"caption-attachment-175278\" class=\"wp-image-175278 size-full\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/11\/go-and-goyal-300x200-1.png\" alt=\"\" width=\"300\" height=\"200\" srcset=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/11\/go-and-goyal-300x200-1.png 300w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/11\/go-and-goyal-300x200-1-18x12.png 18w\" sizes=\"(max-width: 300px) 100vw, 300px\" \/><\/a><p id=\"caption-attachment-175278\" class=\"wp-caption-text\">I dottori Go e Goyal al Simposio di New York del 2017<\/p><\/div>\n<p>L'ECDGA \u00e8 onorata di poter contare sulla collaborazione dei co-organizzatori di quest'anno nella pianificazione e nella realizzazione dell'evento. <a href=\"https:\/\/www.mayo.edu\/research\/faculty\/go-ronald-s-m-d\/bio-20013527?eType=EmailBlastContent&amp;eId=44444444-4444-4444-4444-444444444444\" target=\"_blank\" rel=\"noopener\"><strong>Dott. Ronald Go<\/strong><\/a> is a hematology-oncologist at the Mayo Clinic in Rochester near the meeting location. Dr. Go is the leading physician for the ECD Care Center at his clinic. He has a passion for creating a better experience for all patients. \u00a0Dr. Go has also shown great care to the community by empowering upcoming physicians with inspiring and effective mentoring in the field of histiocytosis. Also hosting is <a href=\"https:\/\/providerdirectory.uabmedicine.org\/provider\/Gaurav+Goyal\/895892?unified=gaurav%20goyal&amp;sort=networks%2Crelevance%2Cavailability_density_best\" target=\"_blank\" rel=\"noopener\"><strong>Dott. Gaurav Goyal<\/strong><\/a><strong>,<\/strong> docente presso l\u2019Universit\u00e0 dell\u2019Alabama a Birmingham. Il dottor Goyal \u00e8 stato un membro attivo della comunit\u00e0 ECD sia a livello professionale che come volontario per l\u2019ECDGA. I suoi contributi hanno avuto un impatto positivo sulla ricerca e sugli standard di cura per i pazienti affetti da istiocitosi, oltre a garantire un\u2019assistenza eccezionale ai pazienti. Dopo aver lavorato come allievo del dottor Go, il dottor Goyal \u00e8 ora a capo di un centro di cura per l\u2019ECD a Birmingham. Sia il dottor Go che il dottor Goyal hanno svolto un ruolo fondamentale nella crescita e nel successo dell\u2019ECDGA.<\/p>\n<p>Il <strong>9<sup>th<\/sup> ECD<\/strong> <strong>Simposio medico <\/strong>\u00c8 in programma per il 6 aprile e offrir\u00e0 agli operatori sanitari l\u2019opportunit\u00e0 di incontrarsi e collaborare sui pi\u00f9 recenti risultati della ricerca sull\u2019ECD, oltre che di condividere le proprie conoscenze relative al trattamento e alla cura dei pazienti affetti da ECD. Tutti gli operatori sanitari interessati all\u2019ECD e all\u2019istiocitosi dell\u2019adulto, in particolare i medici alle prime armi nel trattamento dei pazienti affetti da ECD, sono vivamente invitati a partecipare.<\/p>\n<p>Il <strong>8<sup>th<\/sup><\/strong> <strong>ECD<\/strong> <strong>Incontro con i pazienti e le famiglie<\/strong> on April 8 is an event offered to all ECD patients, caregivers, and anyone interested in learning more about care and support for ECD patients. The patient meeting sets out to unite patients and family members, as well as increase their knowledge and understanding of ECD. During the meeting, physicians knowledgeable in ECD care offer their specialized expertise and provide answers to the families\u2019 questions. Many patients have reported successful adjustments in their care following these meetings.\u00a0 All ECD patients and their loved ones, especially those with a new diagnosis or who have never attended an ECD event, are strongly encouraged to consider this opportunity.<\/p>\n<p>There is also time available for the professionals and patients to mingle during a social reception held on April 7.\u00a0 This is a more informal setting for introductions, meeting new members, and enjoying fellowship with those that understand the struggles of living with ECD.<\/p>\n<p><strong>\u00a0<\/strong><strong>*Dichiarazione sul COVID:<\/strong> We are monitoring the sanitation ordinances for this location in hopes that the virus will be behind us in time to hold the meeting as planned.\u00a0 We will continue to monitor the situation and post updates if\u00a0anything changes.\u00a0 Meanwhile, we will continue planning for the dates of April 6 through April 8, 2022.<\/p>\n<p><strong>Per saperne di pi\u00f9:<\/strong><\/p>\n<ul>\n<li>Professionisti del settore medico: <a href=\"https:\/\/erdheim-chester.salsalabs.org\/scientificmeeting2022\">Scopri di pi\u00f9 e iscriviti.<\/a><\/li>\n<li>Pazienti e familiari: <a href=\"https:\/\/erdheim-chester.salsalabs.org\/ecdmeeting2022\">Qui puoi trovare i dettagli dell'evento e le modalit\u00e0 di iscrizione.<\/a><\/li>\n<li><a href=\"https:\/\/www.erdheim-chester.org\/it\/informazioni-su-ecd-2\/\">Che cos\u2019\u00e8 l\u2019ECD?<\/a><\/li>\n<li><a title=\"Chi siamo\" href=\"https:\/\/www.erdheim-chester.org\/it\/about-us-2\/\">Maggiori informazioni sull\u2019ECD Global Alliance<\/a><\/li>\n<\/ul>","protected":false},"excerpt":{"rendered":"<p>A rare community will join together to connect &amp; learn. Finally, the Erdheim-Chester Disease (ECD) community of patients, loved ones, and physicians will gather together again!\u00a0 During the challenges of [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":19868,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[55,54,59,53,58,133,134,56,57,122,135,52,130],"class_list":["post-19865","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-advocacy","tag-blood-disorder","tag-bone-pain","tag-cancer","tag-diabetes-insipidus","tag-disease-education","tag-ecd-awareness","tag-erdheim-chester","tag-hairy-kidney","tag-histio","tag-medical-symposium","tag-rare-disease","tag-research"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/posts\/19865","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/comments?post=19865"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/posts\/19865\/revisions"}],"predecessor-version":[{"id":175279,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/posts\/19865\/revisions\/175279"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/media\/19868"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/media?parent=19865"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/categories?post=19865"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/tags?post=19865"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}