{"id":110164,"date":"2025-12-16T09:17:23","date_gmt":"2025-12-16T15:17:23","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=110164"},"modified":"2025-12-31T09:18:30","modified_gmt":"2025-12-31T15:18:30","slug":"ziggy-la-zebra-parla-dellimportanza-di-rimanere-in-contatto","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/it\/ziggy-the-zebra-talks-about-staying-connected\/","title":{"rendered":"Ziggy la zebra parla dell'importanza di rimanere in contatto"},"content":{"rendered":"<p><iframe loading=\"lazy\" title=\"Ziggy la zebra parla dell&#039;importanza di rimanere in contatto\" width=\"1080\" height=\"608\" src=\"https:\/\/www.youtube.com\/embed\/v56aYI_LF28?feature=oembed\"  allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/p>\n<p class=\"p3\">We\u2019re excited to share a new animated short featuring Ziggy the Zebra, the ECD community\u2019s friendly mascot. In this brief video, Ziggy explains how the ECD Global Alliance hosts monthly online chats and webinars to help patients, caregivers, families, researchers, and medical professionals stay connected and informed.<\/p>\n<p class=\"p3\">These virtual gatherings provide a safe and welcoming space to discuss a wide range of topics related to Erdheim-Chester Disease, including diagnosis, treatment, symptoms, and quality of life. They also offer an opportunity for community members to build lasting relationships and find support through shared experiences.<\/p>\n<p class=\"p3\">Se non ti sei ancora registrato presso l\u2019ECD Global Alliance, ti invitiamo a farlo all\u2019indirizzo www.erdheim-chester.org per ricevere notifiche sulle prossime chat relative al tuo ruolo.<\/p>\n<p class=\"p3\">Guarda subito il video per scoprire come la comunit\u00e0 ECD si riunisce da ogni parte del mondo attraverso il dialogo, il sostegno reciproco e la comprensione condivisa.<\/p>\n<p class=\"p1\"><b>L'Erdheim-Chester Disease Global Alliance (ECDGA) non fornisce consulenza medica, diagnosi o trattamenti. Tutti i contenuti sono da intendersi esclusivamente a scopo informativo. Per qualsiasi questione di natura medica, si prega di rivolgersi a un operatore sanitario.<\/b><\/p>","protected":false},"excerpt":{"rendered":"<p>We\u2019re excited to share a new animated short featuring Ziggy the Zebra, the ECD community\u2019s friendly mascot. In this brief video, Ziggy explains how the ECD Global Alliance hosts monthly online chats and webinars to help patients, caregivers, families, researchers, and medical professionals stay connected and informed.<\/p>","protected":false},"author":14,"featured_media":110177,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"yes","footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[],"class_list":["post-110164","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/posts\/110164","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/comments?post=110164"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/posts\/110164\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/media\/110177"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/media?parent=110164"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/categories?post=110164"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/tags?post=110164"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}