{"id":102148,"date":"2015-04-01T18:15:18","date_gmt":"2015-04-01T23:15:18","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/3-simposio-medico-annuale-ecd-houston-tx\/"},"modified":"2026-06-12T09:32:35","modified_gmt":"2026-06-12T14:32:35","slug":"3-simposio-medico-annuale-ecd-houston-tx","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/it\/3-simposio-medico-annuale-ecd-houston-tx\/","title":{"rendered":"3\u00b0 Simposio medico annuale ECD Houston, TX"},"content":{"rendered":"

[et_pb_section fb_built=”1″ _builder_version=”4.27.6″ _module_preset=”default” custom_padding=”20px||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||10px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_heading title=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF90aXRsZSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IiIsImFmdGVyIjoiIn19@” _builder_version=”4.27.6″ _dynamic_attributes=”title” _module_preset=”default” custom_margin=”||0px||false|false” custom_padding=”||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_heading][\/et_pb_column][\/et_pb_row][et_pb_row module_class=”single-line-buttons ” _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_button button_text=”Xavier Solanich, MD, PHD” _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][et_pb_button button_text=”The University of Texas MD Anderson Cancer Center” _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||900″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][et_pb_button button_text=”Houston, TX” _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||divi||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][et_pb_button button_text=”8 ottobre 2015″ _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/2015-MS-Houston-scaled.jpg” title_text=”2015 MS Houston” align=”center” force_fullwidth=”on” module_class=”event-image” _builder_version=”4.27.6″ _module_preset=”default” hover_enabled=”0″ border_radii=”on|10px|10px|10px|10px” global_colors_info=”{}” theme_builder_area=”post_content” sticky_enabled=”0″][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.27.6″ _module_preset=”default” custom_padding=”0px||||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”10px||||false|false” global_colors_info=”{}” width__hover_enabled=”off|desktop” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Sintesi del simposio<\/h2>\n

[\/et_pb_text][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”]Circa 52 professionisti medici provenienti da otto paesi hanno partecipato all’Annual ECD Medical Symposium nel 2015. Sono stati presentati dodici abstract orali. In qualit\u00e0 di relatori invitati, Omar Abdel-Wahab, MD, PhD, ha tenuto un discorso dal titolo \u201cDiverse and Targetable Kinase Alterations Drive Histiocytic Neoplasms\u201d e Timothy Craig Allen, MD, JD ha presentato \u201cSocial Media in the Rare Disease World\u201d. Un ricevimento serale ha offerto l’occasione per discussioni a sostegno delle collaborazioni attuali e future tra questo gruppo di medici e scienziati estremamente esperti, tutti interessati a saperne di pi\u00f9 sulla malattia di Erdheim-Chester. [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#14b8a6″ global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Programmi con l’agenda del simposio<\/h2>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row module_class=”single-line-buttons ” _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” locked=”off” global_colors_info=”{}” column_structure=”1_3,1_3,1_3″ theme_builder_area=”post_content”][et_pb_column type=”1_3″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/2015-Houston-Graphics.jpg” title_text=”2015 Houston Grafica” url=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/ECD-MEDICAL-PROGRAM-V4.pdf” url_new_window=”on” _builder_version=”4.27.6″ _module_preset=”default” hover_enabled=”0″ global_colors_info=”{}” theme_builder_area=”post_content” sticky_enabled=”0″][\/et_pb_image][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Presentazioni<\/h2>\n

[\/et_pb_text][et_pb_text module_class=”event-table” _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n\n\n\n\n\t\n\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t
Presenter<\/th>Presentation Slides<\/th>English Video<\/th>\n<\/tr>\n<\/thead>\n
Filip Janku, MD PhD<\/td>Opening\/Welcome\/Introduction<\/td>No Video available<\/td>\n<\/tr>\n
Omar Abdel-Wahab, MD, PhD<\/td>Diverse and Targetable Kinase Alterations Drive Histiocytic Neoplasms<\/td>No Video available<\/td>\n<\/tr>\n
Lorenzo Dagna, MD, Marina Ferrarini, MD<\/td>Tocilizumab for ECD<\/td>No Video available<\/td>\n<\/tr>\n
Julien Haroche, MD, PhD, Zahir Amoura, MD<\/td>BRAF inhibitors in ECD ad overlap histiocytoses, an update 2015<\/td>No Video available<\/td>\n<\/tr>\n
Irina Eberle-Ayres, Stephen Cutler, PhD, David Bell, MSc, PhD<\/td>Targeted Delivery of Hemoglobin-Cladribine Conjugate Inhibits Proliferation of Cells Originating from Human Histiocytic Lymphomas<\/td>No Video available<\/td>\n<\/tr>\n
Roei Mazor, MD<\/td>Analysis of the neuro-radiological phenotypes, objective CNS responses to treatment and the long-term neuroradiological evolution of the ECD<\/td>No Video available<\/td>\n<\/tr>\n
Thomas Colby, MD<\/td>Does the absence of classic histology exclude ECD?<\/td>No Video available<\/td>\n<\/tr>\n
Filip Janku, MD PhD<\/td>Low \u2013frequency KRAS mutations in patients with BRAF-mutated ECD<\/td>No Video available<\/td>\n<\/tr>\n
Adrianna Muniz, PhD, Mark Erlander, PhD<\/td>CLIA laboratory testing of urinary BRAF V600E DNA mutations: application in the management of patients with histiocytic disease<\/td>No Video available<\/td>\n<\/tr>\n
Susan Robertson, PhD<\/td>Accepting Illness When Loss of Function is Permanent: A Model of Functional Adaptation<\/td>No Video available<\/td>\n<\/tr>\n
Juvianee Estrada-Veras, MD, Pamela Gardner, DMD<\/td>Oral manifestation of ECD<\/td>No Video available<\/td>\n<\/tr>\n
Juvianee Estrada-Veras, MD, William Gahl, MD, PhD<\/td>Cardiac health in ECD<\/td>No Video available<\/td>\n<\/tr>\n
Eli Diamond, MD<\/td>Diffuse reduction of cerebral grey matter volumes in ECD<\/td>No Video available<\/td>\n<\/tr>\n
Eli Diamond, MD, Filip Janku, MD, PhD, Juvianee I. Estrada-Veras, MD, Augusto Vaglio, MD, PhD, Lorenzo Dagna, MD<\/td>Panel discussion: Clinical Trials in ECD<\/td>No Video available<\/td>\n<\/tr>\n
Timothy Craig Allen, MD, JD<\/td>Social Media in the Rare Disease World<\/td>No Video available<\/td>\n<\/tr>\n
Filip Janku, MD, PhD, Kathleen Brewer<\/td>Symposium Conclusion<\/td>No Video available<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n\n

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