[et_pb_section fb_built=”1″ _builder_version=”4.27.6″ _module_preset=”default” background_image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/12\/Untitled-design-96-1.png” background_position=”bottom_center” background_vertical_offset=”20%” custom_padding=”15px||15px||true|false” background_last_edited=”on|desktop” background_position_tablet=”bottom_right” background_position_phone=”center_right” global_module=”28071″ global_colors_info=”{}”][et_pb_row _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_heading title=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF90aXRsZSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IiIsImFmdGVyIjoiIn19@” _builder_version=”4.27.4″ _dynamic_attributes=”title” _module_preset=”default” title_font=”–et_global_heading_font|300|||||||” title_text_color=”#FFFFFF” title_font_size=”40px” custom_margin=”||3px|||” title_font_size_tablet=”” title_font_size_phone=”25px” title_font_size_last_edited=”on|phone” global_colors_info=”{}”][\/et_pb_heading][et_pb_button button_url=”https:\/\/www.erdheim-chester.org\/it\/contattaci\/” button_text=”Contattaci” _builder_version=”4.27.4″ _module_preset=”default” custom_button=”on” button_text_size=”15px” button_text_color=”#C02E43″ button_bg_color=”rgba(10,22,64,0.53)” button_border_width=”0px” button_icon=”||divi||400″ button_icon_color=”#C02E43″ button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” filter_opacity__hover_enabled=”on|hover” filter_opacity__hover=”70%”][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_row column_structure=”2_3,1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”2_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” custom_padding=”6px|||||” global_colors_info=”{}”]<\/p>\n
La ECD Global Alliance ospita ogni mese delle chat virtuali online per tutti coloro che fanno parte della comunit\u00e0 ECD. Questo include pazienti, caregiver\/assistenti, familiari, personale medico, ricercatori, ecc. <\/p>\n
Chi si registra a ECD Global Alliance ricever\u00e0 un’e-mail che annuncia ogni sessione di chat relativa al proprio ruolo. Se non ti sei ancora registrato al gruppo, ti consigliamo di farlo qui<\/a> per rimanere connesso e informato. <\/p>\n Le chat sono aperte a qualsiasi argomento di discussione, purch\u00e9 ragionevole. Spesso gli argomenti discussi includono problemi di diagnosi su ECD, trattamenti, test, medici competenti, sintomi, effetti collaterali dei trattamenti e, a volte, semplicemente discussioni amichevoli su cose piacevoli che accadono nella vita dei partecipanti. La maggior parte di coloro che partecipano alle sessioni hanno trovato dei legami e continuano a corrispondere anche al di fuori delle sessioni di chat. Gli incontri forniscono anche una struttura di supporto per coloro che sono interessati a imparare il pi\u00f9 possibile su ECD e a darsi reciproco sostegno. <\/a><\/p>\n [\/et_pb_text][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.4″ _module_preset=”default” background_color=”#35A4BB” custom_padding=”30px|30px|30px|30px|true|true” border_radii=”on|10px|10px|10px|10px” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” background_layout=”dark” global_colors_info=”{}”]<\/p>\n La perdita di una persona cara a causa della Malattia di Erdheim-Chester \u00e8 un viaggio incredibilmente doloroso e nessuno dovrebbe affrontarlo da solo. Anche se non programmiamo pi\u00f9 le Conversazioni sul lutto in anticipo, siamo qui per sostenerti quando ne hai pi\u00f9 bisogno. Contatta il nostro navigatore paziente per maggiori informazioni.<\/p>\n [\/et_pb_text][et_pb_button button_url=”mailto:Belinda.Cobb@erdheim-chester.org” button_text=”Contattaci” button_alignment=”center” _builder_version=”4.27.4″ _module_preset=”default” custom_button=”on” button_text_color=”#35A4BB” button_bg_color=”#FFFFFF” button_border_radius=”8px” button_use_icon=”off” custom_padding=”10px||10px||true|false” custom_css_main_element=”width: 100%;” global_colors_info=”{}”][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ module_class=”chat-sessions” _builder_version=”4.27.4″ _module_preset=”default” background_color=”#0A1640″ global_colors_info=”{}”][et_pb_row _builder_version=”4.27.4″ _module_preset=”default” custom_padding=”0px||0px||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_text_color=”#FFFFFF” background_layout=”dark” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_3,1_3,1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/04\/Peer-to-Peer-Chat.png” title_text=”Chat Peer-to-Peer” _builder_version=”4.27.4″ _module_preset=”default” border_radii=”on|8px|8px|8px|8px” global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font_size=”18px” text_line_height=”1.8em” text_orientation=”center” custom_css_main_element=”color: #ffffff;” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/04\/Caregiver-Chat.png” title_text=”Chat con i caregiver” _builder_version=”4.27.4″ _module_preset=”default” border_radii=”on|8px|8px|8px|8px” global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font_size=”18px” text_line_height=”1.8em” text_orientation=”center” custom_css_main_element=”color: #ffffff;” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.4″ _module_preset=”default” custom_padding=”||||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” background_layout=”dark” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_3,1_3,1_3″ _builder_version=”4.27.4″ _module_preset=”default” custom_padding=”0px||||false|false” global_colors_info=”{}”][et_pb_column type=”1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” background_layout=”dark” custom_margin=”||10px||false|false” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/08\/download-5.png” title_text=”scaricare (5)” _builder_version=”4.27.4″ _module_preset=”default” border_radii=”on|8px|8px|8px|8px” global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font_size=”18px” text_line_height=”1.8em” text_orientation=”center” custom_css_main_element=”color: #ffffff;” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” background_layout=”dark” custom_margin=”||10px||false|false” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/04\/Spanish-Chat.png” title_text=”Chat in spagnolo” _builder_version=”4.27.4″ _module_preset=”default” border_radii=”on|8px|8px|8px|8px” global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font_size=”18px” text_line_height=”1.8em” text_orientation=”center” custom_css_main_element=”color: #ffffff;” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” background_layout=”dark” custom_margin=”||10px||false|false” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/05\/australia-june.png” title_text=”Australia giugno” _builder_version=”4.27.6″ _module_preset=”default” hover_enabled=”0″ border_radii=”on|8px|8px|8px|8px” global_colors_info=”{}” sticky_enabled=”0″][\/et_pb_image][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font_size=”18px” text_line_height=”1.8em” text_orientation=”center” custom_css_main_element=”color: #ffffff;” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_3,1_3,1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” background_layout=”dark” custom_margin=”||10px||false|false” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/04\/Italian-Chat.png” title_text=”Chat italiana” _builder_version=”4.27.4″ _module_preset=”default” border_radii=”on|8px|8px|8px|8px” global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font_size=”18px” text_line_height=”1.8em” text_orientation=”center” custom_css_main_element=”color: #ffffff;” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” background_layout=”dark” custom_margin=”||10px||false|false” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/04\/French-Chat.png” title_text=”Chat francese” _builder_version=”4.27.4″ _module_preset=”default” border_radii=”on|8px|8px|8px|8px” global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font_size=”18px” text_line_height=”1.8em” text_orientation=”center” custom_css_main_element=”color: #ffffff;” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” background_layout=”dark” custom_margin=”||10px||false|false” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/04\/German-Chat.png” title_text=”Chat tedesca” _builder_version=”4.27.4″ _module_preset=”default” border_radii=”on|8px|8px|8px|8px” global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font_size=”18px” text_line_height=”1.8em” text_orientation=”center” custom_css_main_element=”color: #ffffff;” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_row _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_video src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/05\/Community-Chats.mp4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][\/et_pb_video][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/06\/Housekeeping.png” title_text=”Pulizie” _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_row _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n In precedenza, l’ECDGA ha condotto delle chat online digitate e in diretta per la comunit\u00e0. I riassunti delle precedenti sessioni di chat sono stati raccolti e archiviati qui<\/a>. <\/p>\n Prima di partecipare a una riunione o a un webinar di ECD Global Alliance, leggi la nostra Politica di partecipazione virtuale<\/a>.<\/p>\n NOTA: Controlla il tuo fuso orario qui: Convertitore di fuso orario<\/a>.<\/p>\nConnessione al lutto<\/h3>\n
Gruppi di lingua inglese<\/h2>\n
Gruppi internazionali<\/h2>\n
Chat della comunit\u00e0 canadese<\/h3>\n
Chat per chi parla espa\u00f1ol<\/h3>\n
Chat australiana e neozelandese<\/h3>\n
Chat della comunit\u00e0 italiana<\/span><\/span><\/span><\/h3>\n
Chat francofona<\/h3>\n
Chat Deutschsprachiger<\/h3>\n