[et_pb_section fb_built=”1″ _builder_version=”4.27.4″ _module_preset=”default” background_image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/12\/Untitled-design-96-1.png” background_position=”bottom_center” background_vertical_offset=”20%” custom_padding=”20px||20px||true|false” background_last_edited=”on|desktop” background_position_tablet=”bottom_right” background_position_phone=”center_right” global_module=”28071″ global_colors_info=”{}”][et_pb_row _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_dmb_breadcrumbs _builder_version=”4.27.4″ _module_preset=”default” body_text_color=”#FFFFFF” body_font_size=”12px” link_text_color=”#35A4BB” custom_margin=”||5px||false|false” custom_padding=”||0px||false|false” body_font_size_tablet=”12px” body_font_size_phone=”10px” body_font_size_last_edited=”on|desktop” global_colors_info=”{}”][\/et_pb_dmb_breadcrumbs][et_pb_heading title=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF90aXRsZSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IiIsImFmdGVyIjoiIn19@” _builder_version=”4.27.4″ _dynamic_attributes=”title” _module_preset=”default” title_font=”–et_global_heading_font|300|||||||” title_text_color=”#FFFFFF” title_font_size=”40px” custom_margin=”||3px|||” title_font_size_tablet=”” title_font_size_phone=”25px” title_font_size_last_edited=”on|phone” global_colors_info=”{}”][\/et_pb_heading][et_pb_button button_text=”Entre em contato conosco” _builder_version=”4.27.4″ _module_preset=”default” custom_button=”on” button_text_size=”15px” button_text_color=”#C02E43″ button_bg_color=”rgba(10,22,64,0.53)” button_border_width=”0px” button_icon=”||divi||400″ button_icon_color=”#C02E43″ button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” filter_opacity__hover_enabled=”on|hover” filter_opacity__hover=”70%”][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ admin_label=”section” _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row admin_label=”fila” _builder_version=”4.27.4″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” custom_padding=”||||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text admin_label=”Text” _builder_version=”4.27.4″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”]<\/p>\n
Encontre informa\u00e7\u00f5es sobre eventos relacionados ao ECD realizados em todo o mundo.<\/p>\n
[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_3,2_3″ _builder_version=”4.27.4″ _module_preset=”default” background_color=”#F2F2F2″ custom_padding=”40px|40px|40px|40px|true|true” border_radii=”on|20px|20px|20px|20px” global_colors_info=”{}”][et_pb_column type=”1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2016\/03\/2017-Patient-Caregiver-Attendees-Small-e1516487954105.jpg” _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][\/et_pb_image][\/et_pb_column][et_pb_column type=”2_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_blurb title=”ECD Reuni\u00e3o de pacientes e familiares” icon_alignment=”left” content_max_width=”100%” _builder_version=”4.27.4″ _module_preset=”default” custom_margin=”||12px|||” global_colors_info=”{}”]<\/p>\n
O site ECDGA organizou cinco Encontros de Pacientes e Familiares, reunindo fam\u00edlias, pacientes e profissionais da \u00e1rea m\u00e9dica para aprender mais sobre Erdheim-Chester a doen\u00e7a. Durante os eventos anteriores, apresenta\u00e7\u00f5es educacionais foram feitas por m\u00e9dicos experientes de todo o mundo do ECD. As sess\u00f5es forneceram estrat\u00e9gias e atualiza\u00e7\u00f5es sobre o gerenciamento da doen\u00e7a, permitindo que os pacientes e as fam\u00edlias se tornassem mais informados sobre a ECD; ajudando-os a serem defensores mais fortes. Al\u00e9m das oportunidades de aprendizado, os pacientes e suas fam\u00edlias desfrutaram de momentos de confraterniza\u00e7\u00e3o, o que lhes permitiu compartilhar suas hist\u00f3rias e experi\u00eancias uns com os outros. Esses eventos anuais provaram ser uma contribui\u00e7\u00e3o valiosa para essa forte comunidade ECD! Para saber mais sobre esses eventos, incluindo grava\u00e7\u00f5es e fotos das apresenta\u00e7\u00f5es e eventos futuros, selecione o bot\u00e3o Saiba mais abaixo. <\/p>\n
[\/et_pb_blurb][et_pb_button button_url=”https:\/\/www.erdheim-chester.org\/events\/category\/ecd-patient-family-gathering\/” button_text=”Saiba mais” _builder_version=”4.27.4″ _module_preset=”default” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″][\/et_pb_button][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_3,2_3″ _builder_version=”4.27.4″ _module_preset=”default” background_color=”#F2F2F2″ custom_margin=”50px||||false|false” custom_padding=”40px|40px|40px|40px|true|true” border_radii=”on|20px|20px|20px|20px” global_colors_info=”{}”][et_pb_column type=”1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2017\/11\/2017-MS-Group-Photo_All-attendees-300×200.jpg” _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][\/et_pb_image][\/et_pb_column][et_pb_column type=”2_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_blurb title=”ECD Simp\u00f3sio M\u00e9dico” icon_alignment=”left” content_max_width=”100%” _builder_version=”4.27.4″ _module_preset=”default” custom_margin=”||12px||false|false” global_colors_info=”{}”]<\/p>\n
Profissionais m\u00e9dicos de todo o mundo se re\u00fanem nesse evento anual para compartilhar descobertas cient\u00edficas, resultados de pacientes, estudos de caso e novos desenvolvimentos na pesquisa e no tratamento dessa doen\u00e7a. Isso tamb\u00e9m permite a colabora\u00e7\u00e3o entre cientistas e incentiva o desenvolvimento de uma rede mais forte de ECD Referral Care Centers. Voc\u00ea pode encontrar resumos de eventos anteriores e informa\u00e7\u00f5es sobre eventos futuros selecionando o bot\u00e3o Saiba mais. <\/p>\n
[\/et_pb_blurb][et_pb_button button_url=”https:\/\/www.erdheim-chester.org\/events\/category\/ecd-medical-symposium\/” button_text=”Saiba mais” _builder_version=”4.27.4″ _module_preset=”default” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"
[et_pb_dmb_breadcrumbs _builder_version=”4.27.4″ _module_preset=”default” body_text_color=”#FFFFFF” body_font_size=”12px” link_text_color=”#35A4BB” custom_margin=”||5px||false|false” custom_padding=”||0px||false|false” body_font_size_tablet=”12px” body_font_size_phone=”10px” body_font_size_last_edited=”on|desktop” global_colors_info=”{}”][\/et_pb_dmb_breadcrumbs]Encontre informa\u00e7\u00f5es sobre eventos relacionados ao ECD realizados em todo o mundo.O site ECDGA organizou cinco Encontros de Pacientes […]<\/p>\n","protected":false},"author":14,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-52499","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/pages\/52499","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/comments?post=52499"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/pages\/52499\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/media?parent=52499"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}