![\"Introducing](\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/09\/Mary-Picture-Sized.png\")
<\/a><\/figure>Introducing Mary Burgin Executive Director Erdheim-Chester Disease Global Alliance<\/h2><\/div>\u201cWe are excited to welcome Mary as our new Executive Director and look forward to the energy, experience, and passion she brings to our mission and our community.\u201d \u2013 Diane Schriner, President of the Board of Directors<\/p>\n
Leadership Announcement<\/strong><\/p>\nMary Burgin is honored to serve as the new Executive Director of the Erdheim-Chester Disease Global Alliance. With more than 24 years of healthcare operations experience, Mary has dedicated her career to improving organizational performance, advancing patient-centered initiatives, and supporting meaningful healthcare outcomes.<\/p>\n
Throughout a diverse healthcare leadership career, Mary has led operational strategy, strengthened organizational effectiveness, built high-performing teams, and directed programs designed to improve both patient and organizational success.<\/p>\n
In this role, Mary looks forward to partnering with patients, caregivers, healthcare professionals, researchers, industry partners, and advocates to further the Alliance\u2019s mission of improving the lives of individuals and families affected by Erdheim-Chester Disease. Mary is committed to fostering collaboration, supporting innovation, expanding community engagement, and helping guide the Alliance through its next stage of growth and impact.<\/p>\n
Key Focus Areas<\/p>\n
\n- Patient-centered advocacy<\/li>\n
- Community engagement and support<\/li>\n
- Research collaboration and awareness<\/li>\n
- Organizational growth and operational excellence<\/li>\n<\/ul>\n<\/div><\/article>
![\"Research](\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/09\/Sam-Reynolds-1800x1200px.png\")
<\/a><\/figure>Research Matters<\/h2><\/div>Dr. Sam Reynolds of Moffitt Cancer Center shares his perspective on the importance of research in advancing understanding and care for Erdheim-Chester Disease.<\/p>\n
Watch the video and help us recognize the researchers working toward better answers and outcomes for the ECD community.<\/p>\n
Learn more and connect with our global community at erdheim-chester.org<\/a>.<\/p>\nWatch Video<\/a><\/p>\n <\/p>\n<\/div><\/article>![\"Save](\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/08\/image-4.png\")
<\/a><\/figure>Save the Date: 2027 ECDGA Medical Symposium in Glasgow<\/h2><\/div>The ECD Global Alliance is pleased to announce that its 12th Annual Erdheim-Chester Disease Medical Symposium will be held August 27-29, 2027, in Glasgow, Scotland.<\/p>\n
Medical professionals, researchers, and members of the ECD community are invited to join us for important discussions about the latest developments in ECD research, diagnosis, treatment, and patient care.<\/p>\n
We are also pleased to partner with the Histiocyte Society, whose meeting will be held August 29-31. These meetings will create a valuable opportunity for collaboration and shared learning.<\/p>\n
Please save the following dates:<\/p>\n
ECDGA Medical Symposium: August 27-29, 2027
\nHistiocyte Society Meeting: August 29-31, 2027<\/p>\n
Additional information about registration, accommodations, and the program will be shared as details become available.<\/p>\n
We look forward to welcoming you to Glasgow!<\/p>\n
Sincerely,<\/p>\n
The ECD Global Alliance Team<\/p>\n
<\/p>\n<\/div><\/article>![\"Save](\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/08\/image-3.png\")
<\/a><\/figure>Save the Date: 2027 ECDGA Patient and Family Gathering<\/h2><\/div>We are excited to announce that the 12th Annual ECDGA Patient and Family Gathering will be held August 27-28, 2027, in Glasgow, Scotland!<\/p>\n
This special gathering will bring together patients, caregivers, family members, medical professionals, and supporters from around the world. It will offer opportunities to connect with others who understand the ECD journey, learn from leading experts, share experiences, and strengthen our global community.<\/p>\n
Please save the dates and begin making plans to join us in Glasgow. Registration, hotel information, and the complete agenda will be announced as details become available.<\/p>\n
We look forward to welcoming you to Scotland!<\/p>\n
Warmly,<\/p>\n
The ECD Global Alliance Team<\/p>\n
<\/p>\n<\/div><\/article>![\"Research](\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/09\/LOI-Graphic-edited1.png\")
<\/a><\/figure>Research Funding Opportunity<\/h2><\/div>The ECD Global Alliance is accepting Letters of Intent for its 2026 Early Career Investigator Grant. Up to $60,000 USD will be awarded for a two-year research project focused on Erdheim-Chester Disease or related adult histiocytic disorders.<\/p>\n
International submissions are welcome. Letters of Intent are due November 28, 2026.<\/p>\n
View the guidelines and apply: See information HERE<\/strong><\/a><\/p>\n<\/div><\/article>![\"ECD](\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/09\/LOI-Graphic-edited.png\")
<\/a><\/figure>ECD Global Alliance Accepting Letters of Intent for Early Career Investigator Grant<\/h2><\/div>Up to $60,000 USD is available for a two-year project advancing research into Erdheim-Chester Disease and related adult histiocytic disorders.<\/strong><\/p>\nThe ECD Global Alliance is now accepting letters of intent for its Early Career Investigator Grant, a research funding opportunity designed to support promising investigators studying Erdheim-Chester Disease and related adult histiocytic disorders.<\/p>\n
The grant will provide up to $60,000 USD for a two-year research project that advances scientific understanding and helps improve outcomes for people affected by ECD. International submissions are welcome.<\/p>\n
Eligible applicants must be within 10 years of completing their terminal research degree, postdoctoral training, medical residency, fellowship, or equivalent. Applicants who have previously received an ECDGA Early Career Investigator Grant are not eligible.<\/p>\n
Priority areas<\/strong><\/p>\n\n- Involve collaboration across institutions<\/li>\n
- Translate research findings into clinical settings<\/li>\n
- Use the ECD Patient Registry at Memorial Sloan Kettering<\/li>\n<\/ul>\n
Applicants must submit a single PDF using the ECDGA 2026 LOI Submission Form, along with a project budget prepared with the ECDGA LOI Budget Proposal template.<\/p>\n
Letters of intent are due November 28, 2026.<\/strong><\/p>\nView the complete grant guidelines<\/a> and submit a letter of inten<\/a>t through the ECDGA website.<\/p>\nFor questions, contact Diane Schriner, ECDGA Board President, at Diane.Schriner@Erdheim-Chester.org or +1 269-605-3680.<\/p>\n<\/div><\/article><\/figure>Dongni Yi<\/h2><\/div><\/div><\/article><\/figure>Sherry Gold<\/h2><\/div><\/div><\/article><\/figure>Paul Hendrie, MD, PhD<\/h2><\/div><\/div><\/article><\/figure>Gaurav Goyal, MD<\/h2><\/div><\/div><\/article><\/div><\/div><\/div><\/div>No results found.<\/div><\/div><\/div><\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div><\/p>\n","protected":false},"author":14,"featured_media":4676,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"Want to view the page below in a different language?\r\n\r\n[wpml_language_selector_widget]\r\n\r\nRegister Here<\/a>\r\n\r\nANNUAL INTERNATIONAL MEDICAL SYMPOSIUM<\/strong>\r\n\r\nMay 26-28, 2025 | Barcelona, Spain<\/strong>\r\n\r\n![\"\"](\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/10\/Picture1.jpg\")
<\/a>Medical professionals from around the world will gather in Barcelona May 26-28 to share scientific findings, patient outcomes, and case studies related to Erdheim-Chester Disease. We welcome you to join your professional colleagues to share and learn about new findings related to the science of ECD, the diagnostic details, and the care of those living with ECD. This is the only meeting where medical specialists from different fields join together to discuss ECD. We look forward to you joining in the discussions and hope you might find opportunities for collaboration.\r\n\r\nRegister Here<\/a>\r\n\r\nAbstract Submissions<\/strong>\r\n\r\nAbstracts related to ECD and\/or adult histiocytosis are being solicited for presentation at the Medical Symposium.\u00a0 Abstracts are being accepted<\/a> for oral and\/or poster presentation.\u00a0 This is a great opportunity to share your work and the work of your colleagues.\u00a0 Please let them know of the opportunity.\u00a0 Abstracts must be submitted no later than February 24, 2025.\r\n\r\nSubmit Abstract<\/a>\r\n\r\nSchedule of Events<\/strong>\r\n\r\nMonday, May 26, 2025 \u2013 Patient & Family Gathering.<\/u><\/strong>\r\n8 \u2013 8:30 am Registration & Continental Breakfast<\/strong>\r\nEnjoy a light breakfast with others and prepare for an informational day full of hope.<\/p>\r\n8:30 am \u2013 4:30 pm Patient & Family Gathering<\/strong>\r\nSpend the day learning more about ECD from medical professionals, patients, and others.<\/p>\r\n6 \u2013 8 pm Celebration Evening<\/strong>\r\nSpend time with patients, family members, friends, and medical professionals for an evening of hope and celebration.<\/p>\r\nTuesday, May 27, 2025 \u2013 Medical Symposium.<\/u><\/strong>\r\n8 \u2013 8:30 am Registration & Continental Breakfast<\/strong>\r\nEnjoy a light breakfast with others and prepare for an informational day full of hope.<\/p>\r\n8:30 am \u2013 4:30 pm Medical Symposium<\/strong>\r\nSpend the day learning more about ECD from other investigators and clinicians. Discover possible future collaboration opportunities.<\/p>\r\n6:30 \u2013 8:30 pm Medical Reception<\/strong>\r\nSpend time relaxing and meeting with friends.<\/p>\r\nWednesday, May 28, 2025 \u2013 Care Center Meeting.<\/u><\/strong>\r\n\r\n8 \u2013 11 am Care Center Meeting<\/strong>\r\nDiscuss patient care and opportunities to work together to improve patient outcomes.\r\n\r\nWho attends?<\/strong>\r\n\r\nThe event is open to the entire ECD community of medical professionals. Please feel free to invite your colleagues.\r\n\r\nRegister Here<\/a>\r\n\r\n![\"\"](\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/10\/Picture2.jpg\")
<\/a>Host<\/strong>\r\n\r\nXavier Solanich, MD, PhD is this year\u2019s host of the ECD Meeting. Dr. Solanich is a medical specialist in internal medicine at the University Hospital of Bellvitge where he has practiced since August 2010. He leads the ECD Referral Care Center at Bellvitge and in addition to ECD patients, he attends to patients with other rare diseases such as Rosai-Dorfman, primary immunodeficiencies, and some hereditary metabolic diseases (especially Gaucher). He sees patients with systemic autoimmune diseases, mainly systemic vasculitis, periaortitis \/ retroperitoneal fibrosis, and IgG4-related diseases. He is also a consultant to the ophthalmology service for diagnosis and management of patients with uveitis, immune \/ ischemic optic neuritis, and orbital pseudotumor.\r\n\r\nDr. Solanich also works in the Systemic Diseases and Aging group at the Bellvitge Biomedical Research Institute (IDIBELL). He has participated in multiple national and international research projects to study systemic autoimmune diseases, immunodeficiencies, and other rare diseases. He has also participated in several clinical trials as principal investigator or collaborator, obtaining competitive public funding. As a result of his research, he is the author of several articles published in indexed scientific journals.\r\n\r\nAgenda<\/strong>\r\n\r\nA detailed agenda will be available before the conference.\r\n\r\nHotel<\/strong>\r\n\r\nA room block has been set up for the Patient & Family Gathering at \u2013\r\n\r\nThe Renaissance Barcelona Fira Hotel<\/a>\r\nPlaza Europa, 50-52, L'Hospitalet de Llobregat,\r\nBarcelona, Spain, 08902\r\n\r\nPlease make your reservations using the link below before the hotel deadline.\r\n\r\nBook your group rate for ECD Global Alliance Conference<\/strong><\/a>\r\n\r\nGroup Room Rate: Single: 240 Euro\/night; Double: 260 Euro\/night\r\nHotel reservation deadline: April 21, 2025\r\n\r\nTravel<\/strong>\r\n\r\nBarcelona is served by the Josep Tarradellas Barcelona-El Prat Airport. Transportation options between the airport and the hotel include:\r\n\r\n \t- Subway<\/u>. Metro line L9 Sud connects the airport terminals T1 and T2 with the Renaissance Barcelona Fira Hotel. The hotel metro station is Europa Fira. The metro operates daily between 5 am and midnight.<\/li>\r\n \t
- Private Transfer.<\/u> The hotel website states that private transfer is available for 101 Eur (one way) on request.<\/li>\r\n<\/ul>\r\nScholarship Help<\/strong>\r\n\r\nWe have a limited number of scholarships available if a member of the ECD medical professional community would be unable to attend due to financial reasons. If a scholarship is needed, please contact the ECDGA at support@Erdheim-Chester.org<\/a> as early as possible. You will need to include your name, email address, position in the community (clinician, specialist, scientist, student, etc.), and a statement of your need. We will let everyone know what help we can provide by the end of February.\r\n\r\nAwareness Nomination Opportunity<\/strong>\r\n\r\nYou are encouraged to nominate leaders in the ECD community - https:\/\/ecdga.questionpro.com\/2025-ECDGA-Award-Nomination<\/a>. Submit a Mark Heaney Award nomination to honor the medical professional you believe has improved the lives of ECD patients by bringing awareness to ECD within the medical profession. Nominate anyone (patient, caregiver, medical professional, friend, etc.)who has volunteered their time to help improve the lives of all of those impacted by ECD. The award recipient will be announced at the ECD Celebration Evening on May 26.\r\n\r\nAttendee Experiences<\/strong>\r\n
\r\n\r\n\r\n\u201cECDGA is doing a phenomenal job. Thank you team ECDGA for all that you do to improve patient care.\u201d<\/em><\/strong>\r\n\r\n\u2013 Radiologist<\/em><\/strong><\/td>\r\n\u201cIt is my first ECDGA meeting and I really enjoyed it.\u201d<\/em><\/strong>\r\n\r\n\u2013 Basic Scientist<\/em><\/strong><\/td>\r\n\u201cThis is the first time to attend an ECD meeting. This is a very amazing event which will definitely change my practice and attitude.\u201d<\/em><\/strong>\r\n\r\n\u2013 Hematologist<\/em><\/strong><\/td>\r\n<\/tr>\r\n<\/tbody>\r\n<\/table>","_et_gb_content_width":"","cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-4364","page","type-page","status-publish","has-post-thumbnail","hentry"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/pages\/4364","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/comments?post=4364"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/pages\/4364\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/media\/4676"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/media?parent=4364"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}
\u201cWe are excited to welcome Mary as our new Executive Director and look forward to the energy, experience, and passion she brings to our mission and our community.\u201d \u2013 Diane Schriner, President of the Board of Directors<\/p>\n
Leadership Announcement<\/strong><\/p>\n Mary Burgin is honored to serve as the new Executive Director of the Erdheim-Chester Disease Global Alliance. With more than 24 years of healthcare operations experience, Mary has dedicated her career to improving organizational performance, advancing patient-centered initiatives, and supporting meaningful healthcare outcomes.<\/p>\n Throughout a diverse healthcare leadership career, Mary has led operational strategy, strengthened organizational effectiveness, built high-performing teams, and directed programs designed to improve both patient and organizational success.<\/p>\n In this role, Mary looks forward to partnering with patients, caregivers, healthcare professionals, researchers, industry partners, and advocates to further the Alliance\u2019s mission of improving the lives of individuals and families affected by Erdheim-Chester Disease. Mary is committed to fostering collaboration, supporting innovation, expanding community engagement, and helping guide the Alliance through its next stage of growth and impact.<\/p>\n Key Focus Areas<\/p>\n Dr. Sam Reynolds of Moffitt Cancer Center shares his perspective on the importance of research in advancing understanding and care for Erdheim-Chester Disease.<\/p>\n Watch the video and help us recognize the researchers working toward better answers and outcomes for the ECD community.<\/p>\n Learn more and connect with our global community at erdheim-chester.org<\/a>.<\/p>\n Watch Video<\/a><\/p>\n <\/p>\n<\/div><\/article> The ECD Global Alliance is pleased to announce that its 12th Annual Erdheim-Chester Disease Medical Symposium will be held August 27-29, 2027, in Glasgow, Scotland.<\/p>\n Medical professionals, researchers, and members of the ECD community are invited to join us for important discussions about the latest developments in ECD research, diagnosis, treatment, and patient care.<\/p>\n We are also pleased to partner with the Histiocyte Society, whose meeting will be held August 29-31. These meetings will create a valuable opportunity for collaboration and shared learning.<\/p>\n Please save the following dates:<\/p>\n ECDGA Medical Symposium: August 27-29, 2027 Additional information about registration, accommodations, and the program will be shared as details become available.<\/p>\n We look forward to welcoming you to Glasgow!<\/p>\n Sincerely,<\/p>\n The ECD Global Alliance Team<\/p>\n <\/p>\n<\/div><\/article> We are excited to announce that the 12th Annual ECDGA Patient and Family Gathering will be held August 27-28, 2027, in Glasgow, Scotland!<\/p>\n This special gathering will bring together patients, caregivers, family members, medical professionals, and supporters from around the world. It will offer opportunities to connect with others who understand the ECD journey, learn from leading experts, share experiences, and strengthen our global community.<\/p>\n Please save the dates and begin making plans to join us in Glasgow. Registration, hotel information, and the complete agenda will be announced as details become available.<\/p>\n We look forward to welcoming you to Scotland!<\/p>\n Warmly,<\/p>\n The ECD Global Alliance Team<\/p>\n <\/p>\n<\/div><\/article> The ECD Global Alliance is accepting Letters of Intent for its 2026 Early Career Investigator Grant. Up to $60,000 USD will be awarded for a two-year research project focused on Erdheim-Chester Disease or related adult histiocytic disorders.<\/p>\n International submissions are welcome. Letters of Intent are due November 28, 2026.<\/p>\n View the guidelines and apply: See information HERE<\/strong><\/a><\/p>\n<\/div><\/article> Up to $60,000 USD is available for a two-year project advancing research into Erdheim-Chester Disease and related adult histiocytic disorders.<\/strong><\/p>\n The ECD Global Alliance is now accepting letters of intent for its Early Career Investigator Grant, a research funding opportunity designed to support promising investigators studying Erdheim-Chester Disease and related adult histiocytic disorders.<\/p>\n The grant will provide up to $60,000 USD for a two-year research project that advances scientific understanding and helps improve outcomes for people affected by ECD. International submissions are welcome.<\/p>\n Eligible applicants must be within 10 years of completing their terminal research degree, postdoctoral training, medical residency, fellowship, or equivalent. Applicants who have previously received an ECDGA Early Career Investigator Grant are not eligible.<\/p>\n Priority areas<\/strong><\/p>\n Applicants must submit a single PDF using the ECDGA 2026 LOI Submission Form, along with a project budget prepared with the ECDGA LOI Budget Proposal template.<\/p>\n Letters of intent are due November 28, 2026.<\/strong><\/p>\n View the complete grant guidelines<\/a> and submit a letter of inten<\/a>t through the ECDGA website.<\/p>\n For questions, contact Diane Schriner, ECDGA Board President, at Diane.Schriner@Erdheim-Chester.org or +1 269-605-3680.<\/p>\n<\/div><\/article> 8 \u2013 8:30 am Registration & Continental Breakfast<\/strong>\r\nEnjoy a light breakfast with others and prepare for an informational day full of hope.<\/p>\r\n 8:30 am \u2013 4:30 pm Patient & Family Gathering<\/strong>\r\nSpend the day learning more about ECD from medical professionals, patients, and others.<\/p>\r\n 6 \u2013 8 pm Celebration Evening<\/strong>\r\nSpend time with patients, family members, friends, and medical professionals for an evening of hope and celebration.<\/p>\r\nTuesday, May 27, 2025 \u2013 Medical Symposium.<\/u><\/strong>\r\n 8 \u2013 8:30 am Registration & Continental Breakfast<\/strong>\r\nEnjoy a light breakfast with others and prepare for an informational day full of hope.<\/p>\r\n 8:30 am \u2013 4:30 pm Medical Symposium<\/strong>\r\nSpend the day learning more about ECD from other investigators and clinicians. Discover possible future collaboration opportunities.<\/p>\r\n 6:30 \u2013 8:30 pm Medical Reception<\/strong>\r\nSpend time relaxing and meeting with friends.<\/p>\r\nWednesday, May 28, 2025 \u2013 Care Center Meeting.<\/u><\/strong>\r\n\r\n8 \u2013 11 am Care Center Meeting<\/strong>\r\nDiscuss patient care and opportunities to work together to improve patient outcomes.\r\n\r\nWho attends?<\/strong>\r\n\r\nThe event is open to the entire ECD community of medical professionals. Please feel free to invite your colleagues.\r\n\r\nRegister Here<\/a>\r\n\r\n\n
<\/a><\/figure>Research Matters<\/h2><\/div>
<\/a><\/figure>Save the Date: 2027 ECDGA Medical Symposium in Glasgow<\/h2><\/div>
\nHistiocyte Society Meeting: August 29-31, 2027<\/p>\n<\/a><\/figure>Save the Date: 2027 ECDGA Patient and Family Gathering<\/h2><\/div>
<\/a><\/figure>Research Funding Opportunity<\/h2><\/div>
<\/a><\/figure>ECD Global Alliance Accepting Letters of Intent for Early Career Investigator Grant<\/h2><\/div>
\n
Dongni Yi<\/h2><\/div>
Sherry Gold<\/h2><\/div>
Paul Hendrie, MD, PhD<\/h2><\/div>
Gaurav Goyal, MD<\/h2><\/div>
<\/a>Medical professionals from around the world will gather in Barcelona May 26-28 to share scientific findings, patient outcomes, and case studies related to Erdheim-Chester Disease. We welcome you to join your professional colleagues to share and learn about new findings related to the science of ECD, the diagnostic details, and the care of those living with ECD. This is the only meeting where medical specialists from different fields join together to discuss ECD. We look forward to you joining in the discussions and hope you might find opportunities for collaboration.\r\n\r\nRegister Here<\/a>\r\n\r\nAbstract Submissions<\/strong>\r\n\r\nAbstracts related to ECD and\/or adult histiocytosis are being solicited for presentation at the Medical Symposium.\u00a0 Abstracts are being accepted<\/a> for oral and\/or poster presentation.\u00a0 This is a great opportunity to share your work and the work of your colleagues.\u00a0 Please let them know of the opportunity.\u00a0 Abstracts must be submitted no later than February 24, 2025.\r\n\r\nSubmit Abstract<\/a>\r\n\r\nSchedule of Events<\/strong>\r\n\r\nMonday, May 26, 2025 \u2013 Patient & Family Gathering.<\/u><\/strong>\r\n<\/a>Host<\/strong>\r\n\r\nXavier Solanich, MD, PhD is this year\u2019s host of the ECD Meeting. Dr. Solanich is a medical specialist in internal medicine at the University Hospital of Bellvitge where he has practiced since August 2010. He leads the ECD Referral Care Center at Bellvitge and in addition to ECD patients, he attends to patients with other rare diseases such as Rosai-Dorfman, primary immunodeficiencies, and some hereditary metabolic diseases (especially Gaucher). He sees patients with systemic autoimmune diseases, mainly systemic vasculitis, periaortitis \/ retroperitoneal fibrosis, and IgG4-related diseases. He is also a consultant to the ophthalmology service for diagnosis and management of patients with uveitis, immune \/ ischemic optic neuritis, and orbital pseudotumor.\r\n\r\nDr. Solanich also works in the Systemic Diseases and Aging group at the Bellvitge Biomedical Research Institute (IDIBELL). He has participated in multiple national and international research projects to study systemic autoimmune diseases, immunodeficiencies, and other rare diseases. He has also participated in several clinical trials as principal investigator or collaborator, obtaining competitive public funding. As a result of his research, he is the author of several articles published in indexed scientific journals.\r\n\r\nAgenda<\/strong>\r\n\r\nA detailed agenda will be available before the conference.\r\n\r\nHotel<\/strong>\r\n\r\nA room block has been set up for the Patient & Family Gathering at \u2013\r\n\r\nThe Renaissance Barcelona Fira Hotel<\/a>\r\nPlaza Europa, 50-52, L'Hospitalet de Llobregat,\r\nBarcelona, Spain, 08902\r\n\r\nPlease make your reservations using the link below before the hotel deadline.\r\n\r\nBook your group rate for ECD Global Alliance Conference<\/strong><\/a>\r\n\r\nGroup Room Rate: Single: 240 Euro\/night; Double: 260 Euro\/night\r\nHotel reservation deadline: April 21, 2025\r\n\r\nTravel<\/strong>\r\n\r\nBarcelona is served by the Josep Tarradellas Barcelona-El Prat Airport. Transportation options between the airport and the hotel include:\r\n\r\n \t
\r\n\r\n
\r\n \u201cECDGA is doing a phenomenal job. Thank you team ECDGA for all that you do to improve patient care.\u201d<\/em><\/strong>\r\n\r\n\u2013 Radiologist<\/em><\/strong><\/td>\r\n \u201cIt is my first ECDGA meeting and I really enjoyed it.\u201d<\/em><\/strong>\r\n\r\n\u2013 Basic Scientist<\/em><\/strong><\/td>\r\n \u201cThis is the first time to attend an ECD meeting. This is a very amazing event which will definitely change my practice and attitude.\u201d<\/em><\/strong>\r\n\r\n\u2013 Hematologist<\/em><\/strong><\/td>\r\n<\/tr>\r\n<\/tbody>\r\n<\/table>","_et_gb_content_width":"","cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-4364","page","type-page","status-publish","has-post-thumbnail","hentry"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/pages\/4364","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/comments?post=4364"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/pages\/4364\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/media\/4676"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/media?parent=4364"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}