Please read our Virtual Participation Policy<\/a> before joining an ECD Global Alliance webinar. To receive emails about these events, please sign up here<\/a>.<\/p>\n You can check your time zone here: Time Zone Converter<\/a>.<\/p>\n Expert-led webinars are scheduled as often as possible for all audiences. Stay tuned for more webinars this year!<\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.7″ _module_preset=”default” custom_margin=”||0px||false|false” custom_padding=”20px||0px||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.7″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.7″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.7″ _module_preset=”default” custom_padding=”0px||||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][dpdfg_filtergrid custom_query=”advanced” multiple_cpt=”tribe_events” use_taxonomy_terms=”on” multiple_taxonomies=”tribe_events_cat” include_terms=”361″ post_number=”2″ order=”ASC” thumbnail_action=”none” thumbnail_size=”dfg_full” use_overlay=”off” show_post_meta=”off” show_content=”on” content_length=”full” show_filters=”off” show_pagination=”off” items_layout=”dp-dfg-layout-list” _builder_version=”4.27.4″ _module_preset=”default” dpdfg_entry_title_font_size=”20px” box_shadow_style=”preset1″ box_shadow_color=”rgba(0,0,0,0.06)” global_colors_info=”{}”][\/dpdfg_filtergrid][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.27.4″ _module_preset=”default” background_color=”#F2F2F2″ global_colors_info=”{}”][et_pb_row _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.8″ _module_preset=”default” custom_margin=”||||false|false” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″]<\/p>\n The following videos are also posted to our YouTube Channel.<\/p>\n For more ECDGA videos, please see the complete ECDGA YouTube Channel list at – Click Here<\/a>[\/et_pb_text][dpdfg_filtergrid include_categories=”351″ post_number=”100″ thumbnail_size=”dfg_full” use_overlay=”off” title_link=”on” show_post_meta=”off” show_content=”on” truncate_content=”200″ read_more=”on” show_filters=”off” show_pagination=”off” items_width=”32%” primary_view=”%91{%22name%22:%22thumbnail%22,%22show%22:%22on%22},{%22name%22:%22overlay%22,%22show%22:%22on%22},{%22name%22:%22title%22,%22show%22:%22off%22},{%22name%22:%22custom_content%22,%22show%22:%22off%22},{%22name%22:%22meta%22,%22show%22:%22off%22},{%22name%22:%22ext%22,%22show%22:%22off%22},{%22name%22:%22content%22,%22show%22:%22off%22},{%22name%22:%22action_button%22,%22show%22:%22off%22},{%22name%22:%22read_more_button%22,%22show%22:%22off%22}%93″ bg_items=”RGBA(255,255,255,0)” module_class=”dfg-show-past-events” _builder_version=”4.27.7″ _module_preset=”default” dpdfg_entry_meta_font=”|600||on|||||” dpdfg_entry_meta_text_color=”#C02E43″ dpdfg_entry_meta_font_size=”13px” read_more_button_alignment=”left” global_colors_info=”{}”][\/dpdfg_filtergrid][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":" Upcoming Webinars & Recordings Watch previously recorded webinars below. Please read our Virtual Participation Policy before joining an ECD Global Alliance webinar. To receive emails about these events, please sign […]<\/p>\n","protected":false},"author":14,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":" My husband, Lance, was diagnosed in 1995, many years before the ECD Global Alliance was formed so effective treatments were not yet available. He was sick for 25 of the 27 years we were together. My role as his caregiver evolved over time\u2014 initially only attending appointments and treatments with him, to ultimately leaving my job to care for him full-time. I was with him through every stage, until he passed away in 2020.<\/span><\/p>\r\nTuesday, December 10, 2024<\/strong>\r\n\r\n1:00 PM Central Time (US and Canada)<\/strong>\r\n\r\nThis live conversation will be most beneficial to Caregivers\r\n\r\n\u00a0\r\n\r\n Impact on adult patients with LCH and Erdheim Chester, ongoing treatments, and studies<\/strong><\/a>\r\nDr. Gaurav Goyal, University of Alabama Birmingham, led the educational meeting by presenting the topic of Impact on adult patients with LCH and Erdheim-Chester, ongoing treatments, and studies.\u00a0 The talk included descriptions of adult histiocytic disorders and common clinical features and treatments that have been found effective. Diagnostic tips were shared to help physicians confirm an accurate diagnosis of these similar diseases.\u00a0\r\nRecorded September 2021<\/em><\/p>\r\nUnderstanding the NCCN Clinical Practice Guidelines for Histiocytic Neoplasms\r\n<\/a><\/strong>A review of the recently published National Comprehensive Cancer Network (NCCN) Guidelines\u00ae for Histiocytosis. The NCCN developed these new clinical practice guidelines to provide the latest evidence and expert consensus for diagnosing and treating the three most common forms of histiocytosis in adults: Langerhans cell histiocytosis (LCH), Erdheim-Chester disease (ECD), and Rosai-Dorfman disease.\u00a0\r\nRecorded June 2021<\/em>\r\n\r\nEndocrine Conditions in Erdheim-Chester Disease\r\n<\/strong><\/a>This webinar, co-hosted by the Histiocytosis Association and Erdheim-Chester Disease Global Alliance focused on ECD and covers endocrine conditions and their management across all histiocytic disorders.\u00a0\r\nRecorded March 2021<\/em>\r\n\r\nHistio Patient Needs: A Focus on the Eyes and Vision\r\n<\/strong><\/a>In this webinar, the doctors at Memorial Sloan Kettering Cancer Center (MSK) help further your understanding of how current eye involvement may affect daily life and how to obtain better outcomes and results. This will also be of interest to those patients that do not have any current eye involvement, but their upcoming treatments may cause eye concerns.\r\nRecorded February 2021<\/em>\r\n\r\nErdheim-Chester disease: A review of updated guidelines in the molecular era<\/strong><\/a>\r\nIn this review of the latest ECD Consensus Guidelines 2020, the presentation and discussion are tailored for the medical professional community. Please share with your colleagues or care team.\r\nRecorded November 2020<\/em>\r\n\r\nUsing ECD Consensus Recommendations:\u00a0Advocating for your health<\/strong><\/span><\/a>\r\nAn educational webinar was held to explain the newest Erdheim-Chester Disease (ECD) consensus document and learn how to use it for care and payer support.\u00a0 Questions answered following the meeting are posted here<\/a>.\r\nRecorded June 2020<\/em>\r\n\r\n\u00a0\r\n\r\n\u00a0","_et_gb_content_width":"","cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-19008","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/pages\/19008","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/comments?post=19008"}],"version-history":[{"count":9,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/pages\/19008\/revisions"}],"predecessor-version":[{"id":176248,"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/pages\/19008\/revisions\/176248"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/it\/wp-json\/wp\/v2\/media?parent=19008"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}Upcoming:<\/h3>\n
Recordings<\/strong><\/h3>\n
Upcoming Webinars & Recordings<\/h2>\r\nPlease read our Virtual Participation Policy<\/a> before joining an ECD Global Alliance webinar. To receive emails about these events, please sign-up here<\/a>.\r\n\r\nYou can check your time zone here: Time Zone Converter<\/a>.\r\n\r\nExpert-led webinars are scheduled as often as possible for all audiences. Stay tuned for more webinars this year!<\/span>\r\n
Upcoming:<\/strong><\/h3>\r\n\r\n
\r\n\r\n![\"\"](\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/11\/RuthAnn-300x300.png\")
<\/a>\r\nREGISTER HERE:<\/strong><\/a><\/h3>\r\n
Caring for yourself through the holidays<\/h4>\r\n
Speaker: RuthAnn Batchelder, Former ECD Caregiver<\/h4>\r\n
\r\n\r\nRecordings<\/strong><\/h3>\r\nThe following videos are also posted to our YouTube Channel.\r\n\r\nBEYOND THE OFFICE VISIT: Managing the Cost of Histio Care<\/strong><\/a>\r\nThis is the start of the Beyond the Office Visit virtual education series co-hosted with the Histiocytosis Association.\u00a0 Speakers Deandre Pate and Victoria Lassen from Memorial Sloan Kettering walk through ways to manage healthcare costs, find local assistance, and improve logistical burdens while living with a histiocytosis disorder.\r\nRecorded February 2022<\/em>\r\n