{"id":136777,"date":"2026-06-04T15:49:16","date_gmt":"2026-06-04T20:49:16","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?post_type=tribe_events&p=136777"},"modified":"2026-07-28T23:58:35","modified_gmt":"2026-07-29T04:58:35","slug":"%e0%a4%88%e0%a4%b8%e0%a5%80%e0%a4%a1%e0%a5%80-%e0%a4%a6%e0%a4%b0%e0%a5%8d%e0%a4%a6-%e0%a4%94%e0%a4%b0-%e0%a4%a5%e0%a4%95%e0%a4%be%e0%a4%a8-%e0%a4%95%e0%a4%be-%e0%a4%aa%e0%a5%8d%e0%a4%b0%e0%a4%ac","status":"publish","type":"tribe_events","link":"https:\/\/www.erdheim-chester.org\/hi\/event\/managing-ecd-pain-fatigue\/","title":{"rendered":"\u0935\u093f\u0937\u092f: \u0908\u0938\u0940\u0921\u0940 \u0926\u0930\u094d\u0926 \u0914\u0930 \u0925\u0915\u093e\u0928 \u0915\u093e \u092a\u094d\u0930\u092c\u0902\u0927\u0928"},"content":{"rendered":"
\u0935\u0915\u094d\u0924\u093e: \u0915\u0947\u0935\u093f\u0928 \u0913'\u092c\u094d\u0930\u093e\u092f\u0928
\n\u0906\u0930\u090f\u0928, \u090f\u092e\u090f\u0938-\u0938\u0940\u0906\u0930\u090f\u0928\u092a\u0940, \u0928\u0930\u094d\u0938 \u092a\u094d\u0930\u0948\u0915\u094d\u091f\u093f\u0936\u0928\u0930,
\n\u0928\u0948\u0926\u093e\u0928\u093f\u0915 \u0905\u0928\u094d\u0935\u0947\u0937\u0915, \u091c\u0940\u0928\u094b\u092e \u0905\u0928\u0941\u0938\u0902\u0927\u093e\u0928 \u0938\u0902\u0938\u094d\u0925\u093e\u0928,
\n\u0930\u093e\u0937\u094d\u091f\u094d\u0930\u0940\u092f \u0938\u094d\u0935\u093e\u0938\u094d\u0925\u094d\u092f \u0938\u0902\u0938\u094d\u0925\u093e\u0928<\/h5>\n

\u0926\u093f\u0928\u093e\u0902\u0915:<\/strong> \u0917\u0941\u0930\u0941\u0935\u093e\u0930, 25 \u091c\u0942\u0928, 2026
\n\u0938\u092e\u092f:<\/strong> \u0926\u094b\u092a\u0939\u0930 1:00 \u092c\u091c\u0947 \u0938\u0940\u0921\u0940\u091f\u0940<\/p>\n

\u0915\u0947\u0935\u093f\u0928 \u0913'\u092c\u094d\u0930\u093e\u092f\u0928 \u092e\u0948\u0930\u0940\u0932\u0948\u0902\u0921 \u0915\u0947 \u092c\u0947\u0925\u0947\u0938\u094d\u0921\u093e \u092e\u0947\u0902 \u0938\u094d\u0925\u093f\u0924 \u0930\u093e\u0937\u094d\u091f\u094d\u0930\u0940\u092f \u0938\u094d\u0935\u093e\u0938\u094d\u0925\u094d\u092f \u0938\u0902\u0938\u094d\u0925\u093e\u0928 (NIH) \u0915\u0947 \u0930\u093e\u0937\u094d\u091f\u094d\u0930\u0940\u092f \u092e\u093e\u0928\u0935 \u091c\u0940\u0928\u094b\u092e \u0905\u0928\u0941\u0938\u0902\u0927\u093e\u0928 \u0938\u0902\u0938\u094d\u0925\u093e\u0928 (NHGRI) \u092e\u0947\u0902 \u090f\u0915 \u0928\u0930\u094d\u0938 \u092a\u094d\u0930\u0948\u0915\u094d\u091f\u093f\u0936\u0928\u0930 \u0914\u0930 \u0915\u094d\u0932\u093f\u0928\u093f\u0915\u0932 \u091c\u093e\u0902\u091a\u0915\u0930\u094d\u0924\u093e \u0939\u0948\u0902\u0964 \u0909\u0928\u094d\u0939\u094b\u0902\u0928\u0947 \u091c\u0949\u0928\u094d\u0938 \u0939\u0949\u092a\u0915\u093f\u0928\u094d\u0938 \u0935\u093f\u0936\u094d\u0935\u0935\u093f\u0926\u094d\u092f\u093e\u0932\u092f \u0938\u0947 \u0935\u093f\u091c\u094d\u091e\u093e\u0928 \u0938\u094d\u0928\u093e\u0924\u0915 \u0915\u0940 \u0921\u093f\u0917\u094d\u0930\u0940 \u0914\u0930 \u092e\u0948\u0930\u0940\u0932\u0948\u0902\u0921 \u0935\u093f\u0936\u094d\u0935\u0935\u093f\u0926\u094d\u092f\u093e\u0932\u092f \u0938\u0947 \u0935\u093f\u091c\u094d\u091e\u093e\u0928 \u0938\u094d\u0928\u093e\u0924\u0915\u094b\u0924\u094d\u0924\u0930 \u090f\u0935\u0902 \u0928\u0930\u094d\u0938 \u092a\u094d\u0930\u0948\u0915\u094d\u091f\u093f\u0936\u0928\u0930 \u0915\u0940 \u0921\u093f\u0917\u094d\u0930\u0940 \u092a\u094d\u0930\u093e\u092a\u094d\u0924 \u0915\u0940\u0964.<\/p>\n

\u0915\u0947\u0935\u093f\u0928 \u0928\u0947 NHGRI \u0915\u0947 \u0928\u0948\u0926\u093e\u0928\u093f\u0915 \u0905\u0928\u0941\u0938\u0902\u0927\u093e\u0928 \u092e\u0947\u0902 \u092e\u0939\u0924\u094d\u0935\u092a\u0942\u0930\u094d\u0923 \u092d\u0942\u092e\u093f\u0915\u093e \u0928\u093f\u092d\u093e\u0908 \u0939\u0948, \u091c\u093f\u0938\u092e\u0947\u0902 \u092a\u094d\u0930\u094b\u091f\u094b\u0915\u0949\u0932 15-HG-0006 \u0936\u093e\u092e\u093f\u0932 \u0939\u0948, \u091c\u094b Erdheim-Chester \u0930\u094b\u0917 (ECD) \u0935\u093e\u0932\u0947 BRAF-\u0938\u0915\u093e\u0930\u093e\u0924\u094d\u092e\u0915 \u0930\u094b\u0917\u093f\u092f\u094b\u0902 \u092e\u0947\u0902 \u0921\u0948\u092c\u094d\u0930\u093e\u092b\u0947\u0928\u093f\u092c \u0914\u0930 \u091f\u094d\u0930\u093e\u092e\u0947\u0924\u093f\u0928\u093f\u092c \u0915\u0940 \u091c\u093e\u0902\u091a \u0915\u0930\u0928\u0947 \u0935\u093e\u0932\u093e \u090f\u0915 \u0928\u0948\u0926\u093e\u0928\u093f\u0915 \u092a\u0930\u0940\u0915\u094d\u0937\u0923 \u0939\u0948, \u0938\u093e\u0925 \u0939\u0940 ECD \u0915\u0947 \u092a\u094d\u0930\u093e\u0915\u0943\u0924\u093f\u0915 \u0907\u0924\u093f\u0939\u093e\u0938 \u0905\u0927\u094d\u092f\u092f\u0928 \u092e\u0947\u0902 \u092d\u0940\u0964. <\/p>\n

\u092f\u0939\u093e\u0901 \u092a\u0902\u091c\u0940\u0915\u0930\u0923 \u0915\u0930\u0947\u0902<\/a><\/span><\/p>","protected":false},"excerpt":{"rendered":"

Speaker: Kevin O’Brien RN, MS-CRNP, Nurse Practitioner, Clinical Investigator, Genome Research Institute, National Institutes of Health Date: Thursday, June 25, 2026 Time: 1:00 PM CDT Kevin O\u2019Brien is a nurse […]<\/p>\n","protected":false},"author":20,"featured_media":136778,"template":"","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","_tribe_events_status":"","_tribe_events_status_reason":"","_tribe_events_is_hybrid":"","_tribe_events_is_virtual":"","_tribe_events_virtual_video_source":"","_tribe_events_virtual_embed_video":"","_tribe_events_virtual_linked_button_text":"","_tribe_events_virtual_linked_button":"","_tribe_events_virtual_show_embed_at":"","_tribe_events_virtual_show_embed_to":[],"_tribe_events_virtual_show_on_event":"","_tribe_events_virtual_show_on_views":"","_tribe_events_virtual_url":"","wds_primary_tribe_events_cat":0,"footnotes":"","_links_to":"","_links_to_target":""},"tags":[],"tribe_events_cat":[361],"class_list":["post-136777","tribe_events","type-tribe_events","status-publish","has-post-thumbnail","hentry","tribe_events_cat-webinars","cat_webinars"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/tribe_events\/136777","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/tribe_events"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/types\/tribe_events"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/users\/20"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/tribe_events\/136777\/revisions"}],"predecessor-version":[{"id":174351,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/tribe_events\/136777\/revisions\/174351"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/media\/136778"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/media?parent=136777"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/tags?post=136777"},{"taxonomy":"tribe_events_cat","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/tribe_events_cat?post=136777"}],"curies":[{"name":"\u0921\u092c\u094d\u0932\u094d\u092f\u0942\u092a\u0940","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}