{"id":8552,"date":"2020-03-24T15:01:40","date_gmt":"2020-03-24T15:01:40","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=8552"},"modified":"2025-08-23T17:13:43","modified_gmt":"2025-08-23T21:13:43","slug":"%e0%a4%95%e0%a5%8b%e0%a4%b5%e0%a4%bf%e0%a4%a1-19-%e0%a4%95%e0%a5%87-%e0%a4%a6%e0%a5%8c%e0%a4%b0%e0%a4%be%e0%a4%a8-%e0%a4%b8%e0%a4%be%e0%a4%ae%e0%a5%81%e0%a4%a6%e0%a4%be%e0%a4%af%e0%a4%bf%e0%a4%95-2","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/hi\/community-connections-during-covid-19\/","title":{"rendered":"\u0915\u094b\u0935\u093f\u0921-19 \u0915\u0947 \u0926\u094c\u0930\u093e\u0928 \u0938\u093e\u092e\u0941\u0926\u093e\u092f\u093f\u0915 \u0938\u0902\u092a\u0930\u094d\u0915"},"content":{"rendered":"<p><span data-contrast=\"auto\">\u0939\u092e\u093e\u0930\u0947 \u092c\u094d\u0932\u0949\u0917 \u0915\u093e \u0909\u0926\u094d\u0926\u0947\u0936\u094d\u092f \u0905\u092a\u0921\u0947\u091f \u0915\u0930\u0928\u093e \u0939\u0948\u0964&nbsp;<\/span><span data-contrast=\"auto\">\u0939\u092e\u093e\u0930\u0947 \u0938\u0926\u0938\u094d\u092f&nbsp;<\/span><span data-contrast=\"auto\">\u092e\u0939\u0924\u094d\u0935\u092a\u0942\u0930\u094d\u0923 \u091c\u093e\u0928\u0915\u093e\u0930\u0940 \u0915\u0947 \u0938\u093e\u0925 \u091c\u094b \u0915\u0930 \u0938\u0915\u0924\u0940 \u0939\u0948&nbsp;<\/span><span data-contrast=\"auto\">\u092a\u094d\u092f\u093e\u0930\u093e<\/span><span data-contrast=\"auto\">\u0908\u0938\u0940\u0921\u0940 \u0930\u094b\u0917\u093f\u092f\u094b\u0902 \u0915\u0947 \u0926\u0948\u0928\u093f\u0915 \u091c\u0940\u0935\u0928 \u0915\u094b \u092a\u094d\u0930\u092d\u093e\u0935\u093f\u0924 \u0915\u0930\u0947\u0902<\/span><span data-contrast=\"auto\">&nbsp;\u0914\u0930 \u0909\u0928\u0915\u0947 \u092a\u0930\u093f\u0935\u093e\u0930<\/span><span data-contrast=\"auto\">. \u0939\u092e \u0938\u0939\u093e\u092f\u0924\u093e a \u0915\u0940 \u092e\u0926\u0926 \u0938\u0947 \u092f\u0939 \u091c\u093e\u0928\u0915\u093e\u0930\u0940 \u092a\u094d\u0930\u0926\u093e\u0928 \u0915\u0930\u0928\u0947 \u0915\u093e \u092a\u094d\u0930\u092f\u093e\u0938 \u0915\u0930\u0924\u0947 \u0939\u0948\u0902\u0964<\/span><span data-contrast=\"auto\">\u0914\u0930<\/span><span data-contrast=\"auto\">&nbsp;\u0939\u092e\u093e\u0930\u0947 \u092e\u093e\u0930\u094d\u0917\u0926\u0930\u094d\u0936\u0928&nbsp;<\/span><span data-contrast=\"auto\">\u0935\u093f\u0936\u094d\u0935\u0938\u0928\u0940\u092f&nbsp;<\/span><span data-contrast=\"auto\">\u091a\u093f\u0915\u093f\u0924\u094d\u0938\u093e \u092a\u0947\u0936\u0947\u0935\u0930\u0964.&nbsp;<\/span><span data-contrast=\"auto\">\u092c\u0915\u093e\u092f\u093e<\/span><span data-contrast=\"auto\">&nbsp;\u0926\u0941\u0928\u093f\u092f\u093e \u092d\u0930 \u092e\u0947\u0902 COVID-19 \u092e\u093e\u092e\u0932\u094b\u0902 \u092e\u0947\u0902 \u0935\u0943\u0926\u094d\u0927\u093f \u0914\u0930 \u0939\u092e\u093e\u0930\u0947 \u0938\u092d\u0940 \u091a\u093f\u0915\u093f\u0924\u094d\u0938\u093e \u092a\u0947\u0936\u0947\u0935\u0930\u094b\u0902 \u0915\u0947 \u0905\u0917\u094d\u0930\u093f\u092e \u092a\u0902\u0915\u094d\u0924\u093f \u092e\u0947\u0902 \u0930\u0939\u0928\u0947 \u0915\u0940 \u0906\u0935\u0936\u094d\u092f\u0915\u0924\u093e \u0915\u0947 \u0915\u093e\u0930\u0923<\/span><span data-contrast=\"auto\">&nbsp;<\/span><span data-contrast=\"auto\">\u0938\u0940\u092e\u093e\u0913\u0902 \u0915\u0947 \u0915\u093e\u0930\u0923, \u0939\u092e\u093e\u0930\u0947 \u092c\u094d\u0932\u0949\u0917 \u092a\u094b\u0938\u094d\u091f ECDGA \u091f\u0940\u092e \u0915\u0940 \u0915\u094d\u0937\u092e\u0924\u093e\u0913\u0902 \u0914\u0930 \u091c\u094d\u091e\u093e\u0928 \u0924\u0915 \u0939\u0940 \u0938\u0940\u092e\u093f\u0924 \u0939\u094b\u0902\u0917\u0947\u0964.&nbsp;<\/span><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><span data-ccp-props=\"{}\">&nbsp;<\/span><span data-contrast=\"auto\">\u0907\u0938 \u0938\u092a\u094d\u0924\u093e\u0939 \u091c\u092c \u0939\u0930 \u0915\u094b\u0908 \u0938\u093e\u092e\u093e\u091c\u093f\u0915 \u0926\u0942\u0930\u0940 \u0915\u093e \u0905\u092d\u094d\u092f\u093e\u0938 \u0915\u0930 \u0930\u0939\u093e \u0939\u0948<\/span><span data-contrast=\"auto\">,<\/span><span data-contrast=\"auto\">&nbsp;\u0939\u092e\u0947\u0902 \u0925\u094b\u0921\u093c\u093e \u0914\u0930 \u092e\u093f\u0932\u0924\u093e \u0939\u0948<\/span><span data-contrast=\"auto\">\u2013<\/span><span data-contrast=\"auto\">\u0928\u0939\u0940\u0902 \u092e\u093f\u0932\u0928\u0947 \u0915\u0947 \u092e\u0939\u0924\u094d\u0935 \u0915\u0940 \u0917\u0939\u0930\u093e\u0908&nbsp;<\/span><span data-contrast=\"auto\">\u0935\u093e\u0938\u094d\u0924\u0935 \u092e\u0947\u0902 \u090f\u0915-\u0926\u0942\u0938\u0930\u0947 \u0938\u0947 \u0905\u0932\u0917<\/span><span data-contrast=\"auto\">.&nbsp;<\/span><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><span data-ccp-props=\"{}\">&nbsp;<\/span><span data-contrast=\"auto\">Admitting to yourself about your diagnosis can be very difficult. It can be even harder&nbsp;<\/span><span data-contrast=\"auto\">\u0907\u0938\u0915\u0947 \u092c\u093e\u0930\u0947 \u092e\u0947\u0902 \u092a\u0930\u093f\u0935\u093e\u0930, \u0926\u094b\u0938\u094d\u0924\u094b\u0902 \u0914\u0930 \u0938\u0939\u0915\u0930\u094d\u092e\u093f\u092f\u094b\u0902 \u0938\u0947 \u092c\u093e\u0924 \u0915\u0930\u0928\u093e\u0964.&nbsp;<\/span><span data-contrast=\"auto\">&nbsp;<\/span><span data-contrast=\"auto\">\u0908\u0938\u0940\u0921\u0940 \u0917\u094d\u0932\u094b\u092c\u0932 \u0905\u0932\u093e\u092f\u0902\u0938 \u0906\u092a\u0915\u093e \u0938\u092e\u0930\u094d\u0925\u0928 \u0915\u0930\u0928\u0947, \u091c\u093e\u0928\u0915\u093e\u0930\u0940 \u092a\u094d\u0930\u0926\u093e\u0928 \u0915\u0930\u0928\u0947 \u0914\u0930 \u0906\u092a\u0915\u0940 \u0913\u0930 \u0938\u0947 \u0935\u0915\u093e\u0932\u0924 \u0915\u0930\u0928\u0947 \u0915\u0947 \u0932\u093f\u090f \u092f\u0939\u093e\u0901 \u0939\u0948\u0964<\/span><span data-contrast=\"auto\">, \u091c\u094b \u0909\u0928 \u092c\u093e\u0924\u091a\u0940\u0924 \u0915\u094b \u0925\u094b\u0921\u093c\u093e \u0906\u0938\u093e\u0928 \u092c\u0928\u093e \u0938\u0915\u0924\u093e \u0939\u0948<\/span><span data-contrast=\"auto\">.<\/span><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><span data-ccp-props=\"{}\">&nbsp;<\/span><span data-contrast=\"auto\">\u0939\u093e\u0932\u093e\u0902\u0915\u093f \u0906\u092a\u0915\u0940 \u092c\u0940\u092e\u093e\u0930\u0940 \u0926\u0941\u0930\u094d\u0932\u092d \u0939\u094b \u0938\u0915\u0924\u0940 \u0939\u0948, \u091c\u093e\u0928 \u0932\u0947\u0902 \u0915\u093f \u0906\u092a \u0905\u0915\u0947\u0932\u0947 \u0928\u0939\u0940\u0902 \u0939\u0948\u0902! ECDGA \u0915\u0947 \u092a\u093e\u0938 \u0915\u0908 \u0935\u093f\u0915\u0932\u094d\u092a \u0939\u0948\u0902 \u091c\u094b \u092e\u0930\u0940\u091c\u094b\u0902, \u092a\u0930\u093f\u0935\u093e\u0930\u094b\u0902 \u0914\u0930 \u0926\u0947\u0916\u092d\u093e\u0932 \u0915\u0930\u0928\u0947 \u0935\u093e\u0932\u094b\u0902 \u0915\u094b \u092e\u093f\u0932\u0928\u0947, \u0938\u0902\u0935\u093e\u0926 \u0915\u0930\u0928\u0947 \u0914\u0930 \u0906\u0936\u093e \u0916\u094b\u091c\u0928\u0947 \u0915\u0940 \u0938\u0941\u0935\u093f\u0927\u093e \u0926\u0947\u0924\u0947 \u0939\u0948\u0902\u0964 \u092f\u0947 \u0905\u0928\u094d\u092f \u092a\u0930\u093f\u0935\u093e\u0930 \u092e\u093f\u0924\u094d\u0930, \u0938\u0939\u092f\u094b\u0917\u0940, \u090f\u0915 \u0938\u092e\u0930\u094d\u0925\u0928 \u0928\u0947\u091f\u0935\u0930\u094d\u0915 \u0914\u0930 \u092f\u0939\u093e\u0902 \u0924\u0915 \u0915\u093f \u090f\u0915 \u0910\u0938\u093e \u0938\u094d\u0925\u093e\u0928 \u092c\u0928 \u091c\u093e\u090f\u0902\u0917\u0947 \u091c\u0939\u093e\u0901 \u0906\u092a \u0905\u092a\u0928\u093e \u092c\u0941\u0930\u093e \u0926\u093f\u0928 \u0935\u094d\u092f\u0915\u094d\u0924 \u0915\u0930 \u0938\u0915\u0947\u0902\u0964 \u0939\u092e \u0906\u092a\u0915\u094b \u0938\u093e\u091d\u093e \u0915\u0930\u0928\u0947 \u0915\u0947 \u0932\u093f\u090f \u092a\u094d\u0930\u094b\u0924\u094d\u0938\u093e\u0939\u093f\u0924 \u0915\u0930\u0924\u0947 \u0939\u0948\u0902\u0964&nbsp;<\/span><span data-contrast=\"auto\">\u092c\u0921\u093c\u093e \u0914\u0930&nbsp;<\/span><span data-contrast=\"auto\">\u091b\u094b\u091f\u0940-\u091b\u094b\u091f\u0940 \u091c\u0940\u0924\u0947\u0902&nbsp;<\/span><span data-contrast=\"auto\">\u090f\u0915 \u0926\u0942\u0938\u0930\u0947 \u0915\u0947 \u0938\u093e\u0925!<\/span><span data-contrast=\"auto\">&nbsp;<\/span><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><span data-ccp-props=\"{}\">&nbsp;<\/span><span data-contrast=\"auto\">\u0908\u0938\u0940\u0921\u0940 \u0917\u094d\u0932\u094b\u092c\u0932 \u0905\u0932\u093e\u092f\u0902\u0938 \u0915\u0947 \u0938\u093e\u0925 \u0938\u0902\u0935\u093e\u0926 \u0915\u0930\u0928\u0947 \u0915\u0947 \u0924\u0930\u0940\u0915\u0947<\/span><span data-contrast=\"auto\">&nbsp;\u092a\u0930\u093f\u0935\u093e\u0930\u2026<\/span><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><span data-ccp-props=\"{}\">&nbsp;<\/span><b><span data-contrast=\"auto\">\u0908\u0938\u0940\u0921\u0940\u091c\u0940\u090f \u091f\u0940\u092e&nbsp;<\/span><\/b><b><span data-contrast=\"auto\">\u0908\u092e\u0947\u0932<\/span><\/b><b><span data-contrast=\"auto\">s<\/span><\/b><span data-contrast=\"auto\">:&nbsp;<\/span><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><a class=\"reverse\" href=\"mailto:Support@erdheim-chester.org\"><span data-contrast=\"none\">Support@erdheim-chester.org<\/span><\/a><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><a class=\"reverse\" href=\"mailto:Jessica.Corkran@erdheim-chester.org\"><span data-contrast=\"none\">Jessica.Corkran@erdheim-chester.org<\/span><\/a><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><a class=\"reverse\" href=\"mailto:Chesnee.Green@erdheim-chester.org\"><span data-contrast=\"none\">Chesnee.Green@erdheim-chester.org<\/span><\/a><span data-contrast=\"auto\">&nbsp;<\/span><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><b><span data-contrast=\"auto\">\u0938\u094d\u0925\u093e\u0928\u0940\u092f \u0928\u0947\u091f\u0935\u0930\u094d\u0915\u093f\u0902\u0917<\/span><\/b><b><span data-contrast=\"auto\">:<\/span><\/b><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><span data-ccp-props=\"{}\">&nbsp;<\/span><span data-contrast=\"auto\">\u0908\u0938\u0940\u0921\u0940 \u0917\u094d\u0932\u094b\u092c\u0932 \u0917\u0920\u092c\u0902\u0927\u0928&nbsp;<\/span><span data-contrast=\"auto\">\u0938\u0915\u0924\u093e \u0939\u0948&nbsp;<\/span><span data-contrast=\"auto\">\u092a\u094d\u0930\u0926\u093e\u0928 \u0915\u0930\u0947\u0902&nbsp;<\/span><span data-contrast=\"auto\">\u0930\u094b\u0917\u093f\u092f\u094b\u0902 \u0914\u0930 \u0926\u0947\u0916\u092d\u093e\u0932 \u0915\u0930\u0928\u0947 \u0935\u093e\u0932\u094b\u0902 \u0915\u0947 \u0938\u093e\u0925&nbsp;<\/span><span data-contrast=\"auto\">\u0906\u092a\u0915\u0947 \u0932\u094b\u0915 \u0915\u0947 \u0932\u094b\u0917\u094b\u0902 \u0915\u0947 \u0932\u093f\u090f \u0938\u0902\u092a\u0930\u094d\u0915 \u091c\u093e\u0928\u0915\u093e\u0930\u0940<\/span><span data-contrast=\"auto\">\u0938\u092d\u0940 \u0915\u094d\u0937\u0947\u0924\u094d\u0930 \u091f\u0940<\/span><span data-contrast=\"auto\">\u0909\u0928\u094d\u0939\u094b\u0902\u0928\u0947 \u0905\u092a\u0928\u0940 \u091c\u093e\u0928\u0915\u093e\u0930\u0940 \u0905\u0928\u094d\u092f \u0938\u0926\u0938\u094d\u092f\u094b\u0902 \u0915\u0947 \u0938\u093e\u0925 \u0938\u093e\u091d\u093e \u0915\u0930\u0928\u0947 \u0915\u0947 \u0932\u093f\u090f \u0938\u0939\u092e\u0924\u093f \u0926\u0940 \u0939\u0948\u0964 \u0905\u0927\u093f\u0915 \u091c\u093e\u0928\u0915\u093e\u0930\u0940 \u0915\u0947 \u0932\u093f\u090f \u091a\u0947\u0938\u094d\u0928\u0940 \u092f\u093e \u091c\u0947\u0938\u093f\u0915\u093e \u0915\u094b \u0908\u092e\u0947\u0932 \u0915\u0930\u0947\u0902 (\u0908\u092e\u0947\u0932 \u092a\u0924\u0947 \u0926\u0947\u0916\u0947\u0902)<\/span><span data-contrast=\"auto\">\u090a\u092a\u0930).<\/span><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><b><span data-contrast=\"auto\">\u0938\u093e\u092e\u093e\u091c\u093f\u0915 \u092e\u0940\u0921\u093f\u092f\u093e<\/span><\/b><b><span data-contrast=\"auto\">:<\/span><\/b><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><span data-ccp-props=\"{}\">&nbsp;<\/span><b><i><span data-contrast=\"auto\">\u092b\u0947\u0938\u092c\u0941\u0915<\/span><\/i><\/b><span data-contrast=\"auto\">:&nbsp;<\/span><a href=\"https:\/\/www.facebook.com\/ErdheimChesterDisease\"><span data-contrast=\"none\">https:\/\/www.facebook.com\/ErdheimChesterDisease<\/span><\/a><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><span data-contrast=\"auto\">*This is the ECDGA\u2019s Facebook page that is updated with the most recent information available including all current events, publications, studies and trials, and so much more.&nbsp;<\/span><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><b><i><span data-contrast=\"auto\">\u092b\u0947\u0938\u092c\u0941\u0915 \u0938\u092e\u0942\u0939<\/span><\/i><\/b><span data-contrast=\"auto\">:&nbsp;<\/span><a href=\"https:\/\/www.facebook.com\/groups\/784637751599933\/\"><span data-contrast=\"none\">https:\/\/www.facebook.com\/groups\/784637751599933\/<\/span><\/a><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><span data-contrast=\"auto\">&nbsp;<\/span><span data-contrast=\"auto\">\u092f\u0939 ECDGA \u0915\u093e \u0928\u093f\u091c\u0940 \u0938\u092e\u0942\u0939 \u0939\u0948\u0964<\/span><span data-contrast=\"auto\">. If you are a current member of the ECDGA you can access to this group. In this group you have the opportunity to speak openly with other members about ECD.&nbsp;<\/span><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><b><i><span data-contrast=\"auto\">\u091f\u094d\u0935\u093f\u091f\u0930<\/span><\/i><\/b><span data-contrast=\"auto\">:&nbsp;<\/span><a href=\"https:\/\/twitter.com\/ECDGA\"><span data-contrast=\"none\">https:\/\/twitter.com\/ECDGA<\/span><\/a><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><span data-contrast=\"auto\">*This is the ECDGA\u2019s Twitter page that is updated with the most recent information available including all current events, publications, studies and trials, and so much more.&nbsp;<\/span><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><b><i><span data-contrast=\"auto\">\u092f\u0942\u091f\u094d\u092f\u0942\u092c<\/span><\/i><\/b><span data-contrast=\"auto\">:&nbsp;<\/span><a href=\"https:\/\/www.youtube.com\/channel\/UCYR3skRhqAFWC5PTOGv34JQ\"><span data-contrast=\"none\">https:\/\/www.youtube.com\/channel\/UCYR3skRhqAFWC5PTOGv34JQ<\/span><\/a><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><span data-contrast=\"auto\">\u092f\u0939 \u0939\u0948<\/span><span data-contrast=\"auto\">&nbsp;\u0906\u0927\u093f\u0915\u093e\u0930\u093f\u0915<\/span><span data-contrast=\"auto\">&nbsp;\u0908\u0938\u0940\u0921\u0940\u091c\u0940\u090f \u092f\u0942\u091f\u094d\u092f\u0942\u092c&nbsp;<\/span><span data-contrast=\"auto\">\u091a\u0948\u0928\u0932<\/span><span data-contrast=\"auto\">. Here you will find informative videos about ECD, the Founder of the ECD Global Alliance, and videos from annual events (including medical professionals from around the world).&nbsp;<\/span><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><b><i><span data-contrast=\"auto\">\u0932\u093f\u0902\u0915\u094d\u0921\u0907\u0928<\/span><\/i><\/b><span data-contrast=\"auto\">:<\/span><span data-contrast=\"auto\">&nbsp;<\/span><a href=\"https:\/\/www.linkedin.com\/company\/erdheim-chester-disease-global-alliance-npo\"><span data-contrast=\"none\">https:\/\/www.linkedin.com\/company\/erdheim-chester-disease-global-alliance-npo<\/span><\/a><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><span data-contrast=\"auto\">\u0939\u092e\u093e\u0930\u093e \u0932\u093f\u0902\u0915\u094d\u0921\u0907\u0928&nbsp;<\/span><span data-contrast=\"auto\">a<\/span><span data-contrast=\"auto\">ccount is our professional profile that is also updated with the most recent information available including all current events, publications, studies and trials, and&nbsp;<\/span><span data-contrast=\"auto\">\u0938\u092d\u0940 \u091a\u0940\u091c\u093c\u0947\u0902 \u091c\u093f\u0928\u092e\u0947\u0902 \u091a\u093f\u0915\u093f\u0924\u094d\u0938\u093e \u092a\u0947\u0936\u0947\u0935\u0930 \u092a\u0922\u093c\u0928\u0947 \u092e\u0947\u0902 \u0930\u0941\u091a\u093f \u0930\u0916 \u0938\u0915\u0924\u0947 \u0939\u0948\u0902\u0964<\/span><span data-contrast=\"auto\">.<\/span><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><b><i><span data-contrast=\"auto\">\u0907\u0902\u0938\u094d\u091f\u093e\u0917\u094d\u0930\u093e\u092e<\/span><\/i><\/b><span data-contrast=\"auto\">:&nbsp;<\/span><a href=\"https:\/\/www.instagram.com\/erdheim_chester\/?hl=en\"><span data-contrast=\"none\">https:\/\/www.instagram.com\/erdheim_chester\/?hl=en<\/span><\/a><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><span data-contrast=\"auto\">\u092f\u0939 \u0939\u0948&nbsp;<\/span><span data-contrast=\"auto\">o<\/span><span data-contrast=\"auto\">ECDGA \u0915\u0947 \u0932\u093f\u090f \u0906\u0927\u093f\u0915\u093e\u0930\u093f\u0915 \u0907\u0902\u0938\u094d\u091f\u093e\u0917\u094d\u0930\u093e\u092e \u092a\u0947\u091c\u0964 \u0907\u0902\u0938\u094d\u091f\u093e\u0917\u094d\u0930\u093e\u092e \u0915\u0940 \u092a\u094d\u0930\u0915\u0943\u0924\u093f \u0915\u0947 \u0915\u093e\u0930\u0923, \u091c\u093e\u0928\u0915\u093e\u0930\u0940 \u0938\u0940\u092e\u093f\u0924 \u0939\u0948\u0964<\/span><span data-contrast=\"auto\">d<\/span><span data-contrast=\"auto\">,<\/span><span data-contrast=\"auto\">&nbsp;\u0932\u0947\u0915\u093f\u0928 \u0932\u093f\u0902\u0915 \u0909\u092a\u0932\u092c\u094d\u0927 \u0939\u0948\u0902<\/span><span data-contrast=\"auto\">&nbsp;\u0939\u092e\u093e\u0930\u0947 \u092a\u094d\u0930\u094b\u092b\u093c\u093e\u0907\u0932 \u092a\u0947\u091c \u092e\u0947\u0902<\/span><span data-contrast=\"auto\">.&nbsp;<\/span><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><b><i><span data-contrast=\"auto\">\u0930\u0947\u092f\u0930\u0915\u0928\u0947\u0915\u094d\u091f<\/span><\/i><\/b><span data-contrast=\"auto\">:&nbsp;<\/span><a href=\"https:\/\/www.rareconnect.org\/en\/login?next=\/en\/community\/erdheim-chester-disease\"><span data-contrast=\"none\">https:\/\/www.rareconnect.org\/en\/login?next=\/en\/community\/erdheim-chester-disease<\/span><\/a><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><span data-contrast=\"auto\">\u0908\u0938\u0940\u0921\u0940\u091c\u0940\u090f \u0915\u0947 \u092a\u093e\u0938 \u0939\u0948&nbsp;<\/span><span data-contrast=\"auto\">\u0930\u0947\u092f\u0930\u0915\u0928\u0947\u0915\u094d\u091f<\/span><span data-contrast=\"auto\">&nbsp;profile. This site is updated with the most recent information available including all current events, publications, studies and trials,&nbsp;<\/span><span data-contrast=\"auto\">\u0906\u0926\u093f<\/span><span data-contrast=\"auto\">. \u092f\u0939 \u0909\u0928 \u0932\u094b\u0917\u094b\u0902 \u0915\u0947 \u0932\u093f\u090f \u092c\u0939\u0941\u0924 \u0905\u091a\u094d\u091b\u093e \u0939\u0948 \u091c\u094b \u0905\u0902\u0917\u094d\u0930\u0947\u091c\u093c\u0940 \u0915\u0947 \u0905\u0932\u093e\u0935\u093e \u0915\u093f\u0938\u0940 \u0905\u0928\u094d\u092f \u092d\u093e\u0937\u093e \u092e\u0947\u0902 \u092c\u094b\u0932\u0924\u0947 \u0939\u0948\u0902 \u0914\u0930 \u091c\u093f\u0928\u094d\u0939\u0947\u0902 \u0915\u0941\u091b \u0938\u093e\u092e\u0917\u094d\u0930\u0940 \u0938\u092e\u091d\u0928\u0947 \u092e\u0947\u0902 \u0915\u0920\u093f\u0928\u093e\u0908 \u0939\u094b \u0938\u0915\u0924\u0940 \u0939\u0948\u0964 \u0907\u0938 \u0938\u093e\u0907\u091f \u092a\u0930 \u0926\u0940 \u0917\u0908 \u091c\u093e\u0928\u0915\u093e\u0930\u0940 \u0906\u092a\u0915\u0947 \u092e\u0942\u0932 \u092d\u093e\u0937\u093e \u092e\u0947\u0902 \u0905\u0928\u0941\u0935\u093e\u0926\u093f\u0924 \u0915\u0940 \u091c\u093e\u090f\u0917\u0940\u0964&nbsp;<\/span><span data-contrast=\"auto\">by a human volunteer&nbsp;<\/span><span data-contrast=\"auto\">\u0938\u094d\u092a\u0937\u094d\u091f\u0924\u093e \u0915\u0947 \u0932\u093f\u090f\u0964.&nbsp;<\/span><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><span data-ccp-props=\"{}\">&nbsp;<\/span><b><span data-contrast=\"auto\">\u0911\u0928\u0932\u093e\u0907\u0928 \u0932\u093e\u0907\u0935&nbsp;<\/span><\/b><b><span data-contrast=\"auto\">\u091a\u0948\u091f:<\/span><\/b><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><span data-ccp-props=\"{}\">&nbsp;<\/span><b><i><span data-contrast=\"auto\">\u0930\u094b\u0917\u0940 \u0938\u0939\u093e\u092f\u0924\u093e<\/span><\/i><\/b><span data-contrast=\"auto\">&nbsp;\u2013&nbsp;<\/span><span data-contrast=\"auto\">\u091a\u0948\u091f\u094d\u091c\u093c\u0940<\/span><span data-contrast=\"auto\">:&nbsp;<\/span><a href=\"http:\/\/www.chatzy.com\/427437211406\"><span data-contrast=\"none\">http:\/\/www.chatzy.com\/427437211406<\/span><\/a><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><span data-contrast=\"auto\">\u092f\u0939 \u091a\u0948\u091f \u0939\u0930 \u0939\u092b\u094d\u0924\u0947 \u0936\u0928\u093f\u0935\u093e\u0930 \u0915\u094b \u0908\u0938\u094d\u091f\u0930\u094d\u0928 \u0938\u094d\u091f\u0948\u0902\u0921\u0930\u094d\u0921 \u091f\u093e\u0907\u092e \u0915\u0947 \u0905\u0928\u0941\u0938\u093e\u0930 \u0926\u094b\u092a\u0939\u0930 3 \u092c\u091c\u0947 \u0906\u092f\u094b\u091c\u093f\u0924 \u0915\u0940 \u091c\u093e\u0924\u0940 \u0939\u0948\u0964 \u0939\u093e\u0932\u093e\u0901\u0915\u093f \u092f\u0939 \u0928\u093f\u0930\u094d\u0927\u093e\u0930\u093f\u0924 \u0938\u092e\u092f \u0939\u0948, \u091a\u0948\u091f\u0930\u0942\u092e \u0939\u092e\u0947\u0936\u093e \u0916\u0941\u0932\u093e \u0930\u0939\u0924\u093e \u0939\u0948\u0964.&nbsp;<\/span><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><b><i><span data-contrast=\"auto\">\u0926\u0947\u0916\u092d\u093e\u0932\u0915\u0930\u094d\u0924\u093e \u0938\u0939\u093e\u092f\u0924\u093e<\/span><\/i><\/b><span data-contrast=\"auto\">&nbsp;<\/span><span data-contrast=\"auto\">\u2013<\/span><span data-contrast=\"auto\">&nbsp;<\/span><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><span data-contrast=\"auto\">*\u0908\u092e\u0947\u0932&nbsp;<\/span><a class=\"reverse\" href=\"mailto:support@erdheim-chester.org\"><span data-contrast=\"none\">support@erdheim-chester.org<\/span><\/a><span data-contrast=\"auto\">&nbsp;\u0939\u092e\u093e\u0930\u0947 \u0915\u0947\u092f\u0930\u0917\u093f\u0935\u0930 \u091f\u0940\u092e \u0932\u0940\u0921\u0930 \u0938\u0947 \u091c\u0941\u0921\u093c\u0947\u0902 \u0914\u0930 \u0905\u0917\u0932\u0947 \u0915\u0947\u092f\u0930\u0917\u093f\u0935\u0930 \u091a\u0948\u091f \u0938\u0924\u094d\u0930 \u0915\u093e \u0928\u093f\u092e\u0902\u0924\u094d\u0930\u0923 \u092a\u094d\u0930\u093e\u092a\u094d\u0924 \u0915\u0930\u0947\u0902\u0964.<\/span><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<p><span data-ccp-props=\"{}\">&nbsp;<\/span><\/p>\n<h4><span data-contrast=\"auto\">\u0915\u094d\u092f\u093e \u0906\u092a\u0928\u0947 \u0907\u0928 \u0938\u0902\u091a\u093e\u0930 \u0915\u0947 \u0924\u0930\u0940\u0915\u094b\u0902 \u092e\u0947\u0902 \u0938\u0947 \u0915\u093f\u0938\u0940 \u0915\u093e \u0909\u092a\u092f\u094b\u0917 \u0915\u093f\u092f\u093e \u0939\u0948? \u0906\u092a\u0915\u093e \u092a\u0938\u0902\u0926\u0940\u0926\u093e \u0915\u094c\u0928 \u0938\u093e \u0939\u0948?&nbsp;<\/span><span data-contrast=\"auto\">\u0906\u092a \u0914\u0930 \u0915\u093f\u0928 \u0924\u0930\u0940\u0915\u094b\u0902 \u0938\u0947 \u091c\u0941\u0921\u093c\u0928\u093e \u091a\u093e\u0939\u0947\u0902\u0917\u0947?<\/span><span data-ccp-props=\"{}\">&nbsp;<\/span><\/h4>","protected":false},"excerpt":{"rendered":"<p>The intent behind our blog is to update&nbsp;our members&nbsp;with important information that can&nbsp;affect the daily lives of ECD patients&nbsp;and their families. We try to provide this information with the assistance [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":8553,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[67,51],"tags":[83,80,81,84,77,56,82,52],"class_list":["post-8552","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-community-support","category-news","tag-blood-cancer","tag-caregiver","tag-communication","tag-corona-virus","tag-covid-19","tag-erdheim-chester","tag-rare-cancer","tag-rare-disease"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/posts\/8552","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/comments?post=8552"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/posts\/8552\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/media\/8553"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/media?parent=8552"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/categories?post=8552"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/tags?post=8552"}],"curies":[{"name":"\u0921\u092c\u094d\u0932\u094d\u092f\u0942\u092a\u0940","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}