{"id":5072,"date":"2020-02-25T23:30:43","date_gmt":"2020-02-25T23:30:43","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=5072"},"modified":"2025-08-23T20:21:24","modified_gmt":"2025-08-24T00:21:24","slug":"%e0%a4%a6%e0%a5%81%e0%a4%b0%e0%a5%8d%e0%a4%b2%e0%a4%ad-%e0%a4%b0%e0%a5%8b%e0%a4%97-%e0%a4%a6%e0%a4%bf%e0%a4%b5%e0%a4%b8-2023","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/hi\/rare-disease-day-2020\/","title":{"rendered":"\u0926\u0941\u0930\u094d\u0932\u092d \u0930\u094b\u0917 \u0926\u093f\u0935\u0938 2020"},"content":{"rendered":"<h4>\u0938\u092d\u0940 \u0905\u0927\u093f\u0935\u0915\u094d\u0924\u093e\u0913\u0902 \u0915\u094b \u092c\u0941\u0932\u093e\u0935\u093e!<\/h4>\n<p><em>29 \u092b\u0930\u0935\u0930\u0940, 2020<\/em>, \u092f\u0939 EURORDIS \u0926\u094d\u0935\u093e\u0930\u093e \u0938\u092e\u0928\u094d\u0935\u093f\u0924 30\u0935\u093e\u0902 \u0905\u0902\u0924\u0930\u094d\u0930\u093e\u0937\u094d\u091f\u094d\u0930\u0940\u092f \u0926\u0941\u0930\u094d\u0932\u092d \u0930\u094b\u0917 \u0926\u093f\u0935\u0938 \u0939\u094b\u0917\u093e\u0964 \u0907\u0938 \u0926\u093f\u0928 \u0914\u0930 \u0907\u0938\u0915\u0947 \u0906\u0938\u092a\u093e\u0938, \u0926\u0941\u0928\u093f\u092f\u093e \u092d\u0930 \u0915\u0947 \u0926\u0947\u0936\u094b\u0902 \u0914\u0930 \u0915\u094d\u0937\u0947\u0924\u094d\u0930\u094b\u0902 \u0915\u0940 \u0938\u0948\u0915\u0921\u093c\u094b\u0902 \u0930\u094b\u0917\u0940 \u0938\u0902\u0917\u0920\u0928 \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u092c\u0922\u093c\u093e\u0928\u0947 \u0935\u093e\u0932\u0940 \u0917\u0924\u093f\u0935\u093f\u0927\u093f\u092f\u093e\u0901 \u0906\u092f\u094b\u091c\u093f\u0924 \u0915\u0930\u0947\u0902\u0917\u0947\u0964.&nbsp;&nbsp;<\/p>\n<p>\u0932\u0917\u092d\u0917 300 \u092e\u093f\u0932\u093f\u092f\u0928 \u0932\u094b\u0917 (\u091c\u0928\u0938\u0902\u0916\u094d\u092f\u093e \u0915\u093e \u0932\u0917\u092d\u0917 5%) \u090f\u0915 \u0926\u0941\u0930\u094d\u0932\u092d \u092c\u0940\u092e\u093e\u0930\u0940 \u0938\u0947 \u092a\u0940\u0921\u093c\u093f\u0924 \u0939\u0948\u0902\u0964 \u0909\u0938 5% \u092e\u0947\u0902, \u0935\u093f\u0936\u094d\u0935\u092d\u0930 \u092e\u0947\u0902 1,000 \u0938\u0947 \u092d\u0940 \u0915\u092e \u0932\u094b\u0917 \u090f\u0930\u094d\u0921\u0939\u093e\u0907\u092e-\u091a\u0947\u0938\u094d\u091f\u0930 \u0930\u094b\u0917 \u0938\u0947 \u092a\u0940\u0921\u093c\u093f\u0924 \u0939\u0948\u0902\u0964.&nbsp;&nbsp;<\/p>\n<p><strong>J<\/strong><strong>ECD \u0915\u0947 \u0938\u093e\u0925 \u0905\u092a\u0928\u0947 \u0905\u0928\u0941\u092d\u0935 \u0915\u094b \u0938\u093e\u091d\u093e \u0915\u0930\u0915\u0947 \u0926\u0941\u0930\u094d\u0932\u092d \u092c\u0940\u092e\u093e\u0930\u093f\u092f\u094b\u0902 \u0915\u0947 \u092a\u094d\u0930\u0924\u093f \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u092b\u0948\u0932\u093e\u0928\u0947 \u092e\u0947\u0902 ECD \u0917\u094d\u0932\u094b\u092c\u0932 \u0905\u0932\u093e\u092f\u0902\u0938 \u092e\u0947\u0902 \u0936\u093e\u092e\u093f\u0932 \u0939\u094b\u0902\u0964.<\/strong>&nbsp;&nbsp;<\/p>\n<p>\u0926\u0941\u0930\u094d\u0932\u092d \u0930\u094b\u0917 \u0926\u093f\u0935\u0938 2020 \u0915\u093e \u0927\u094d\u092f\u093e\u0928 \u201c<em>\u0926\u0941\u0930\u094d\u0932\u092d \u0930\u094b\u0917 \u0938\u0947 \u092a\u0940\u0921\u093c\u093f\u0924 \u0932\u093e\u0916\u094b\u0902 \u0932\u094b\u0917\u094b\u0902 \u0915\u0947 \u0932\u093f\u090f \u0938\u092e\u093e\u0928\u0924\u093e!<\/em>\u201d&nbsp;&nbsp;<\/p>\n<ul>\n<li>\u0938\u094d\u0935\u093e\u0938\u094d\u0925\u094d\u092f \u0938\u0947\u0935\u093e\u0913\u0902 \u0915\u093e \u0932\u093e\u092d \u0909\u0920\u093e\u0928\u0947 \u092e\u0947\u0902 \u0906\u092a\u0915\u094b \u0915\u093f\u0928 \u092c\u093e\u0927\u093e\u0913\u0902 \u0915\u093e \u0938\u093e\u092e\u0928\u093e \u0915\u0930\u0928\u093e \u092a\u0921\u093c\u093e?&nbsp;<\/li>\n<li>\u0938\u093e\u092e\u093e\u091c\u093f\u0915 \u0905\u0902\u0924\u0903\u0915\u094d\u0930\u093f\u092f\u093e\u0913\u0902 \u0914\u0930 \u0917\u0924\u093f\u0935\u093f\u0927\u093f\u092f\u094b\u0902 \u0915\u0947 \u0938\u0902\u0926\u0930\u094d\u092d \u092e\u0947\u0902 \u0906\u092a\u0915\u0947 \u092a\u0930\u093f\u0935\u093e\u0930 \u092a\u0930 \u0915\u094c\u0928 \u0938\u0947 \u092c\u094b\u091d \u092a\u0921\u093c\u0924\u0947 \u0939\u0948\u0902?&nbsp;<\/li>\n<li>\u0906\u092a \u0926\u0941\u0928\u093f\u092f\u093e \u0915\u094b \u090f\u0930\u094d\u0921\u0939\u093e\u0907\u092e-\u091a\u0947\u0938\u094d\u091f\u0930 \u0930\u094b\u0917 \u0915\u0947 \u0938\u093e\u0925 \u091c\u0940\u0935\u0928 \u0915\u0947 \u092c\u093e\u0930\u0947 \u092e\u0947\u0902 \u0915\u094d\u092f\u093e \u092c\u0924\u093e\u0928\u093e \u091a\u093e\u0939\u0924\u0947 \u0939\u0948\u0902?<\/li>\n<\/ul>\n<p>How will you show your stripes? Share with us on the media, by tagging @ECDGA on Facebook and #ECDawareness&nbsp;on any site. Contact us to put your story, quote, photo, and\/or post on our public Facebook page.<\/p>\n<p>\u0907\u0938 \u092b\u094d\u0932\u093e\u092f\u0930 \u0915\u094b \u0905\u092a\u0928\u0947 \u092e\u0940\u0921\u093f\u092f\u093e \u092a\u0947\u091c\u094b\u0902 \u092a\u0930 \u092f\u093e \u0905\u092a\u0928\u0947 \u0938\u0902\u092a\u0930\u094d\u0915\u094b\u0902 \u0915\u094b \u0908\u092e\u0947\u0932 \u0915\u0947 \u092e\u093e\u0927\u094d\u092f\u092e \u0938\u0947 \u0938\u093e\u091d\u093e \u0915\u0930\u0947\u0902!&nbsp;<a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2020\/02\/Facebook-RDD-2020.png\" target=\"_blank\" rel=\"noopener\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter wp-image-5074 size-medium\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2020\/02\/Facebook-RDD-2020-300x251.png\" alt=\"\" width=\"300\" height=\"251\"><\/a><\/p>\n<p>&nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>CALLING ALL ADVOCATES! February 29, 2020, will be the 30th International Rare Disease Day coordinated by EURORDIS. On and around this day, hundreds of patient organizations from countries and regions [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":5073,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[55,54,59,53,58,56,69,57,68,75],"class_list":["post-5072","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-advocacy","tag-blood-disorder","tag-bone-pain","tag-cancer","tag-diabetes-insipidus","tag-erdheim-chester","tag-fatigue","tag-hairy-kidney","tag-pain","tag-rare-disease-day"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/posts\/5072","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/comments?post=5072"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/posts\/5072\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/media\/5073"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/media?parent=5072"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/categories?post=5072"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/tags?post=5072"}],"curies":[{"name":"\u0921\u092c\u094d\u0932\u094d\u092f\u0942\u092a\u0940","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}