The following link is to the protocol for an ECD study as announced by Dr. Augusto Vaglio of the University of Parma in Italy. ECD patients are invited to participate by sending in medical records. The study aims to gather medical records for 120 ECD patients and then analyze them to expand the knowledge on Erdheim-Chester Disease. The goal of the study is to allow earlier diagnosis, better classification of the different disease forms, and improved prediction of the patient prognosis.<\/p>\n
\u092f\u0939 \u092a\u094d\u0930\u0924\u094d\u092f\u0947\u0915 \u0930\u094b\u0917\u0940 \u0915\u0947 \u0932\u093f\u090f \u0907\u0938 \u092c\u0940\u092e\u093e\u0930\u0940 \u0915\u0947 \u092c\u093e\u0930\u0947 \u092e\u0947\u0902 \u0905\u0927\u093f\u0915 \u091c\u093e\u0928\u0928\u0947 \u0915\u0940 \u0916\u094b\u091c \u092e\u0947\u0902 \u092c\u0926\u0932\u093e\u0935 \u0932\u093e\u0928\u0947 \u0915\u093e \u0905\u0935\u0938\u0930 \u0939\u0948\u0964 \u092f\u0939 \u0915\u0941\u091b \u0910\u0938\u093e \u0939\u0948 \u091c\u094b \u092a\u094d\u0930\u0924\u094d\u092f\u0947\u0915 \u0930\u094b\u0917\u0940 \u0939\u092e\u093e\u0930\u0947 \u0909\u0926\u094d\u0926\u0947\u0936\u094d\u092f \u092e\u0947\u0902 \u092e\u0926\u0926 \u0915\u0930\u0928\u0947 \u0915\u0947 \u0932\u093f\u090f \u0915\u0930 \u0938\u0915\u0924\u093e \u0939\u0948\u0964.<\/p>\n
\u0915\u0943\u092a\u092f\u093e \u0938\u0902\u0932\u0917\u094d\u0928 \u091c\u093e\u0928\u0915\u093e\u0930\u0940 \u092a\u0922\u093c\u0947\u0902\u0964 \u092f\u0926\u093f \u0906\u092a \u0905\u0927\u094d\u092f\u092f\u0928 \u092e\u0947\u0902 \u092d\u093e\u0917 \u0932\u0947\u0928\u093e \u091a\u093e\u0939\u0924\u0947 \u0939\u0948\u0902, \u0924\u094b \u0906\u092a\u0915\u094b \u0905\u092a\u0928\u0947 \u091a\u093f\u0915\u093f\u0924\u094d\u0938\u093e \u0905\u092d\u093f\u0932\u0947\u0916, \u091c\u0948\u0938\u093e \u0915\u093f \u0932\u093f\u0902\u0915 \u0915\u093f\u090f \u0917\u090f \u0926\u0938\u094d\u0924\u093e\u0935\u0947\u091c\u093c \u201c\u092d\u0947\u091c\u0928\u0947 \u0915\u0947 \u0932\u093f\u090f \u0935\u0938\u094d\u0924\u0941\u0913\u0902 \u0915\u0940 \u091a\u0947\u0915\u0932\u093f\u0938\u094d\u091f\u201d \u092e\u0947\u0902 \u092a\u0930\u093f\u092d\u093e\u0937\u093f\u0924 \u0939\u0948\u0902, \u0907\u091f\u0932\u0940 \u092e\u0947\u0902 \u0921\u0949. \u0935\u0948\u0917\u094d\u0932\u093f\u092f\u094b \u0915\u0947 \u0915\u093e\u0930\u094d\u092f\u093e\u0932\u092f \u092f\u093e ECD \u0917\u094d\u0932\u094b\u092c\u0932 \u0905\u0932\u093e\u092f\u0902\u0938 \u0915\u094b \u092d\u0947\u091c\u0928\u0947 \u0939\u094b\u0902\u0917\u0947, \u091c\u094b \u092c\u093e\u0926 \u092e\u0947\u0902 \u0909\u0928\u094d\u0939\u0947\u0902 \u0921\u0949. \u0935\u0948\u0917\u094d\u0932\u093f\u092f\u094b \u0915\u094b \u0905\u0917\u094d\u0930\u0947\u0937\u093f\u0924 \u0915\u0930 \u0926\u0947\u0917\u093e\u0964 \u092f\u0926\u093f \u0906\u092a \u0907\u0928\u094d\u0939\u0947\u0902 \u0938\u0940\u0927\u0947 \u0921\u0949. \u0935\u0948\u0917\u094d\u0932\u093f\u092f\u094b \u0915\u094b \u092d\u0947\u091c\u0924\u0947 \u0939\u0948\u0902, \u0924\u094b \u0915\u0943\u092a\u092f\u093e \u0906\u092a \u091c\u094b \u0915\u0941\u091b \u092d\u0940 \u092d\u0947\u091c\u0924\u0947 \u0939\u0948\u0902 \u0909\u0938\u0915\u0940 \u090f\u0915 \u092a\u094d\u0930\u0924\u093f \u0905\u092a\u0928\u0947 \u092a\u093e\u0938 \u0930\u0916\u0947\u0902, \u0915\u094d\u092f\u094b\u0902\u0915\u093f \u0939\u092e\u0947\u0902 \u0909\u092e\u094d\u092e\u0940\u0926 \u0939\u0948 \u0915\u093f \u091c\u0932\u094d\u0926 \u0939\u0940 \u0914\u0930 \u0905\u0927\u094d\u092f\u092f\u0928 \u0936\u0941\u0930\u0942 \u0939\u094b\u0902\u0917\u0947 \u0914\u0930 \u0909\u0928\u094d\u0939\u0947\u0902 \u092d\u0940 \u0935\u0939\u0940 \u0930\u093f\u0915\u0949\u0930\u094d\u0921\u094d\u0938 \u091a\u093e\u0939\u093f\u090f \u0939\u094b \u0938\u0915\u0924\u0947 \u0939\u0948\u0902\u0964.<\/p>\n
\u092d\u0947\u091c\u0928\u0947 \u0915\u0947 \u0932\u093f\u090f \u0935\u0938\u094d\u0924\u0941\u0913\u0902 \u0915\u0940 \u091c\u093e\u0901\u091a-\u0938\u0942\u091a\u0940<\/a> The following link is to the protocol for an ECD study as announced by Dr. Augusto Vaglio of the University of Parma in Italy. ECD patients are invited to participate […]<\/p>\n","protected":false},"author":20,"featured_media":174698,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[],"class_list":["post-30219","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/posts\/30219","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/comments?post=30219"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/posts\/30219\/revisions"}],"predecessor-version":[{"id":174726,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/posts\/30219\/revisions\/174726"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/media\/174698"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/media?parent=30219"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/categories?post=30219"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/tags?post=30219"}],"curies":[{"name":"\u0921\u092c\u094d\u0932\u094d\u092f\u0942\u092a\u0940","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}
\n\u0938\u0939\u092e\u0924\u093f \u092a\u094d\u0930\u092a\u0924\u094d\u0930<\/a>
\n\u092a\u094d\u0930\u094b\u091f\u094b\u0915\u0949\u0932<\/a>
\n\u0905\u092a\u0928\u0947 \u092e\u0947\u0921\u093f\u0915\u0932 \u0930\u093f\u0915\u0949\u0930\u094d\u0921 \u0915\u0948\u0938\u0947 \u092a\u094d\u0930\u093e\u092a\u094d\u0924 \u0915\u0930\u0947\u0902<\/a><\/p>","protected":false},"excerpt":{"rendered":"