{"id":30074,"date":"2024-12-31T12:01:46","date_gmt":"2024-12-31T18:01:46","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=30074"},"modified":"2025-10-02T10:02:08","modified_gmt":"2025-10-02T15:02:08","slug":"%e0%a4%a8%e0%a5%88%e0%a4%b6%e0%a4%b5%e0%a4%bf%e0%a4%b2-%e0%a4%ae%e0%a5%87%e0%a4%82-%e0%a4%b0%e0%a4%bf%e0%a4%b2%e0%a5%87-%e0%a4%ab%e0%a5%89%e0%a4%b0-%e0%a4%b2%e0%a4%be%e0%a4%87%e0%a4%ab","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/hi\/relay-for-life-in-nashville\/","title":{"rendered":"\u0928\u0948\u0936\u0935\u093f\u0932 \u092e\u0947\u0902 \u0930\u093f\u0932\u0947 \u092b\u0949\u0930 \u0932\u093e\u0907\u092b\u093c"},"content":{"rendered":"<p><em>\u0938\u093e\u0932 \u0915\u0947 \u0938\u092c\u0938\u0947 \u092c\u0921\u093c\u0947 \u0905\u092e\u0947\u0930\u093f\u0915\u0940 \u0915\u0948\u0902\u0938\u0930 \u0938\u094b\u0938\u093e\u0907\u091f\u0940 \u0915\u093e\u0930\u094d\u092f\u0915\u094d\u0930\u092e\u094b\u0902 \u092e\u0947\u0902 \u0938\u0947 \u090f\u0915 \u092e\u0947\u0902 \u090f\u0930\u094d\u0921\u0939\u093e\u0907\u092e-\u091a\u0947\u0938\u094d\u091f\u0930 \u0930\u094b\u0917 \u091f\u0940\u092e \u0915\u0940 \u092e\u0947\u091c\u092c\u093e\u0928\u0940 \u0915\u0940 \u0917\u0908!<\/em><\/p>\n<p><em>\u091a\u0947\u0938\u094d\u0928\u0940 \u0917\u094d\u0930\u0940\u0928 \u0926\u094d\u0935\u093e\u0930\u093e<\/em>, \u0968\u0967 \u0938\u093f\u0924\u0902\u092c\u0930, \u0968\u0966\u0967\u096e, \u0928\u0948\u0936\u0935\u093f\u0932, \u091f\u0940\u090f\u0928\u0964 \u2013<\/p>\n<p>Erdheim-Chester Disease Global Alliance (ECDGA), DeRidder, LA \u092e\u0947\u0902 \u0938\u094d\u0925\u093f\u0924 \u090f\u0915 \u0917\u0948\u0930-\u0932\u093e\u092d\u0915\u093e\u0930\u0940 \u0938\u0902\u0938\u094d\u0925\u093e, \u0928\u093f\u0930\u0902\u0924\u0930 Erdheim-Chester Disease (ECD) \u0915\u093e \u0907\u0932\u093e\u091c \u0916\u094b\u091c\u0924\u0940 \u0930\u0939\u0924\u0940 \u0939\u0948\u0964\u00a0  \u0908\u0938\u0940\u0921\u0940 \u090f\u0915 \u0917\u0948\u0930-\u0932\u0948\u0902\u0917\u0930\u0939\u0902\u0938 \u0938\u0947\u0932 \u0939\u093f\u0938\u094d\u091f\u093f\u092f\u094b\u0938\u093e\u0907\u091f\u094b\u0938\u093f\u0938 \u0939\u0948, \u091c\u094b \u090f\u0915 \u092c\u0939\u0941\u0924 \u0939\u0940 \u0926\u0941\u0930\u094d\u0932\u092d \u0930\u0915\u094d\u0924 \u0915\u0948\u0902\u0938\u0930 \u0939\u0948 \u0914\u0930 \u091c\u094b \u0926\u0941\u0928\u093f\u092f\u093e \u092d\u0930 \u092e\u0947\u0902 \u090f\u0915 \u0939\u091c\u093e\u0930 \u0938\u0947 \u092d\u0940 \u0915\u092e \u0930\u094b\u0917\u093f\u092f\u094b\u0902 \u0915\u094b \u092a\u094d\u0930\u092d\u093e\u0935\u093f\u0924 \u0915\u0930\u0924\u093e \u0939\u0948\u0964   \u0907\u0938 \u092c\u0940\u092e\u093e\u0930\u0940 \u0938\u0947 \u092a\u0940\u0921\u093c\u093f\u0924 \u0930\u094b\u0917\u093f\u092f\u094b\u0902 \u0915\u093e \u0905\u0915\u094d\u0938\u0930 \u0915\u0908 \u0935\u0930\u094d\u0937\u094b\u0902 \u0924\u0915 \u0917\u0932\u0924 \u0928\u093f\u0926\u093e\u0928 \u0915\u093f\u092f\u093e \u091c\u093e\u0924\u093e \u0939\u0948\u0964   \u0907\u0924\u0928\u0940 \u0926\u0941\u0930\u094d\u0932\u092d \u092c\u0940\u092e\u093e\u0930\u0940 \u0915\u0947 \u0938\u0939\u0940 \u0928\u093f\u0926\u093e\u0928 \u0915\u0947 \u0932\u093f\u090f \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u092c\u0922\u093c\u093e\u0928\u093e \u0905\u0924\u094d\u092f\u0902\u0924 \u092e\u0939\u0924\u094d\u0935\u092a\u0942\u0930\u094d\u0923 \u0939\u0948\u0964.<\/p>\n<p>2015 \u092e\u0947\u0902, \u091c\u094b \u0932\u094b\u092b\u093e\u0930\u094b \u0915\u094b \u0907\u0938 \u0905\u0924\u094d\u092f\u0902\u0924 \u0926\u0941\u0930\u094d\u0932\u092d \u092c\u0940\u092e\u093e\u0930\u0940 \u0915\u093e \u0928\u093f\u0926\u093e\u0928 \u0939\u0941\u0906 \u0925\u093e \u0914\u0930 \u0935\u0939 ECD \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u092c\u0922\u093c\u093e\u0928\u0947 \u0915\u0947 \u092e\u0939\u0924\u094d\u0935 \u0915\u094b \u0938\u092e\u091d\u0924\u0947 \u0939\u0948\u0902\u0964  \u0928\u0945\u0936\u0935\u093f\u0932, \u091f\u0947\u0928\u0947\u0938\u0940 \u092e\u0947\u0902 22 \u0938\u093f\u0924\u0902\u092c\u0930 \u0915\u094b \u0939\u094b\u0928\u0947 \u0935\u093e\u0932\u0947 \u092b\u093e\u0926\u0930 \u0930\u092f\u093e\u0928 \u0930\u093f\u0932\u0947 \u092b\u0949\u0930 \u0932\u093e\u0907\u092b \u0915\u093e\u0930\u094d\u092f\u0915\u094d\u0930\u092e \u0915\u0940 \u0924\u0948\u092f\u093e\u0930\u0940 \u0915\u0947 \u0926\u094c\u0930\u093e\u0928, \u091c\u094b \u0928\u0947 \u090f\u0915 \u0926\u093f\u0928 \u092a\u0939\u0932\u0947 \u0936\u093e\u092e \u0915\u094b ECD \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u0915\u093e\u0930\u094d\u092f\u0915\u094d\u0930\u092e \u0906\u092f\u094b\u091c\u093f\u0924 \u0915\u0930\u0928\u0947 \u0915\u093e \u0905\u0935\u0938\u0930 \u0932\u093f\u092f\u093e\u0964\u00a0 \u092f\u0939 \u0915\u093e\u0930\u094d\u092f\u0915\u094d\u0930\u092e ECDGA \u0926\u094d\u0935\u093e\u0930\u093e \u0938\u093f\u0924\u0902\u092c\u0930 \u0915\u0947 \u0926\u0942\u0938\u0930\u0947 \u0938\u092a\u094d\u0924\u093e\u0939 \u092e\u0947\u0902 \u0906\u092f\u094b\u091c\u093f\u0924 ECD \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u0938\u092a\u094d\u0924\u093e\u0939 \u0915\u0947 \u092c\u093e\u0926 \u0939\u094b\u0917\u093e, \u0914\u0930 \u092a\u0942\u0930\u0947 \u092e\u0939\u0940\u0928\u0947 \u092e\u0928\u093e\u090f \u091c\u093e\u0928\u0947 \u0935\u093e\u0932\u0947 \u0939\u093f\u0938\u094d\u091f\u093f\u092f\u094b\u0938\u093e\u0907\u091f\u094b\u0938\u093f\u0938 \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u092e\u093e\u0939 \u0915\u0947 \u0938\u093e\u0925 \u092e\u0947\u0932 \u0916\u093e\u0924\u093e \u0939\u0948\u0964.<\/p>\n<p>\u0905\u092a\u0928\u0947 12 \u0938\u0939\u092a\u093e\u0920\u093f\u092f\u094b\u0902 \u0915\u0940 \u0909\u092a\u0938\u094d\u0925\u093f\u0924\u093f \u092e\u0947\u0902, \u091c\u094b \u0928\u0947 \u090f\u0915 \u0936\u093e\u0928\u0926\u093e\u0930 ECD \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u0921\u093f\u0928\u0930 \u0906\u092f\u094b\u091c\u093f\u0924 \u0915\u093f\u092f\u093e, \u091c\u093f\u0938\u092e\u0947\u0902 ECD \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u0936\u0930\u094d\u091f\u094d\u0938, \u091c\u093e\u0928\u0915\u093e\u0930\u0940, \u092d\u093e\u0908\u091a\u093e\u0930\u093e, \u0914\u0930 \u0915\u0939\u093e\u0928\u0940 \u0938\u093e\u091d\u093e \u0915\u0930\u0928\u0947 \u0915\u0947 \u0932\u093f\u090f \u090f\u0915 \u0938\u093e\u0930\u094d\u0935\u091c\u0928\u093f\u0915 \u092e\u093e\u092e\u0932\u094b\u0902 \u0915\u093e \u0930\u093f\u092a\u094b\u0930\u094d\u091f\u0930 \u0936\u093e\u092e\u093f\u0932 \u0925\u093e\u0964  \u0936\u093e\u092e \u092d\u0930, \u0926\u093e\u0928 \u092a\u093e\u0924\u094d\u0930 \u092e\u0947\u0902 $150 \u0938\u0947 \u0905\u0927\u093f\u0915 \u091c\u092e\u093e \u0939\u0941\u090f\u0964\u00a0 \u092e\u0947\u0932\u093f\u0902\u0921\u093e \u092c\u094d\u0930\u093e\u0909\u0928, \u091c\u094b \u0938\u094d\u0935\u092f\u0902 \u092d\u0940 ECD \u0930\u094b\u0917\u0940 \u0939\u0948\u0902 \u0914\u0930 \u092c\u0939\u0941\u0924 \u0915\u0930\u0940\u092c\u0940 \u092e\u093f\u0924\u094d\u0930 \u0939\u0948\u0902, \u0928\u0947 \u092d\u0940 \u0907\u0938 \u0915\u093e\u0930\u094d\u092f\u0915\u094d\u0930\u092e \u092e\u0947\u0902 \u092d\u093e\u0917 \u0932\u093f\u092f\u093e\u0964.<\/p>\n<p>\u0936\u0928\u093f\u0935\u093e\u0930 \u0915\u094b, \u091c\u094b \u0905\u092a\u0928\u0947 50 \u0905\u0928\u094d\u092f \u092e\u093f\u0924\u094d\u0930\u094b\u0902, \u092a\u0930\u093f\u0935\u093e\u0930 \u0915\u0947 \u0938\u0926\u0938\u094d\u092f\u094b\u0902 \u0914\u0930 \u0938\u092e\u0941\u0926\u093e\u092f \u0915\u0947 \u0938\u0926\u0938\u094d\u092f\u094b\u0902 \u0915\u0947 \u0938\u093e\u0925, \u0938\u092d\u0940 \u0928\u0947 ECD \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u091f\u0940\u092e \u0915\u0940 \u0936\u0930\u094d\u091f \u092a\u0939\u0928\u0940 \u0939\u0941\u0908 \u0925\u0940, \u0928\u0947 \u0909\u0928 \u0938\u092d\u0940 \u0915\u094b \u0938\u0942\u091a\u093f\u0924 \u0915\u0930\u0915\u0947 \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u092c\u0922\u093c\u093e\u0928\u0947 \u0915\u093e \u0905\u0935\u0938\u0930 \u0932\u093f\u092f\u093e \u091c\u094b ECD \u0915\u0947 \u092c\u093e\u0930\u0947 \u092e\u0947\u0902 \u0909\u0924\u094d\u0938\u0941\u0915 \u0925\u0947\u0964\u00a0 \u0926\u0941\u0930\u094d\u092d\u093e\u0917\u094d\u092f\u0935\u0936, \u0926\u093f\u0928 \u0926\u0947\u0930 \u0917\u0930\u094d\u092e\u093f\u092f\u094b\u0902 \u0915\u0940 \u092c\u093e\u0930\u093f\u0936 \u0915\u0947 \u0915\u093e\u0930\u0923 \u0938\u0902\u0915\u094d\u0937\u093f\u092a\u094d\u0924 \u0939\u094b \u0917\u092f\u093e, \u091c\u094b \u0936\u093e\u092e 5:00 \u092c\u091c\u0947 \u0938\u0947 \u0930\u093e\u0924 10:00 \u092c\u091c\u0947 \u0924\u0915 \u091a\u0932\u0940\u0964\u00a0 \u0939\u093e\u0932\u093e\u0902\u0915\u093f, ECD \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u092b\u0948\u0932\u093e\u0928\u0947 \u0915\u0947 \u0905\u0932\u093e\u0935\u093e, \u091c\u094b \u0915\u0940 \u091f\u0940\u092e \u0928\u0947 \u0905\u092e\u0947\u0930\u093f\u0915\u0928 \u0915\u0948\u0902\u0938\u0930 \u0938\u094b\u0938\u093e\u0907\u091f\u0940 \u0915\u0947 \u0932\u093f\u090f $250 \u091c\u0941\u091f\u093e\u0928\u0947 \u092e\u0947\u0902 \u0915\u093e\u092e\u092f\u093e\u092c\u0940 \u0939\u093e\u0938\u093f\u0932 \u0915\u0940, \u091c\u093f\u0938\u0938\u0947 \u0907\u0938 \u0935\u0930\u094d\u0937 \u0915\u0947 \u092b\u093e\u0926\u0930 \u0930\u092f\u093e\u0928 \u0915\u093e\u0930\u094d\u092f\u0915\u094d\u0930\u092e \u0915\u0947 \u0932\u093f\u090f \u0915\u0941\u0932 \u0930\u093e\u0936\u093f $203,000 \u0939\u094b \u0917\u0908\u0964\u00a0 \u0907\u0938 \u0938\u092e\u092f, \u092b\u093e\u0926\u0930 \u0930\u092f\u093e\u0928 \u0915\u093e \u091c\u0940\u0935\u0928 \u092d\u0930 \u0915\u093e \u0915\u0941\u0932 \u092f\u094b\u0917\u0926\u093e\u0928 \u090f\u0915 \u092e\u093f\u0932\u093f\u092f\u0928 \u0921\u0949\u0932\u0930 \u0938\u0947 \u0905\u0927\u093f\u0915 \u0939\u094b \u0917\u092f\u093e \u0939\u0948!<\/p>\n\n\t\t<style>\n\t\t\t#gallery-1 {\n\t\t\t\tmargin: auto;\n\t\t\t}\n\t\t\t#gallery-1 .gallery-item {\n\t\t\t\tfloat: left;\n\t\t\t\tmargin-top: 10px;\n\t\t\t\ttext-align: center;\n\t\t\t\twidth: 33%;\n\t\t\t}\n\t\t\t#gallery-1 img {\n\t\t\t\tborder: 2px solid #cfcfcf;\n\t\t\t}\n\t\t\t#gallery-1 .gallery-caption {\n\t\t\t\tmargin-left: 0;\n\t\t\t}\n\t\t\t\/* see gallery_shortcode() in wp-includes\/media.php *\/\n\t\t<\/style>\n\t\t<div id='gallery-1' class='gallery galleryid-30074 gallery-columns-3 gallery-size-full'><dl class='gallery-item'>\n\t\t\t<dt class='gallery-icon landscape'>\n\t\t\t\t<a href='https:\/\/www.erdheim-chester.org\/hi\/?attachment_id=3581'><img loading=\"lazy\" decoding=\"async\" width=\"960\" height=\"720\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2018\/10\/IMG_1006.jpg\" class=\"attachment-full size-full\" alt=\"\" srcset=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2018\/10\/IMG_1006.jpg 960w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2018\/10\/IMG_1006-300x225.jpg 300w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2018\/10\/IMG_1006-768x576.jpg 768w\" sizes=\"(max-width: 960px) 100vw, 960px\" \/><\/a>\n\t\t\t<\/dt><\/dl><dl class='gallery-item'>\n\t\t\t<dt class='gallery-icon landscape'>\n\t\t\t\t<a href='https:\/\/www.erdheim-chester.org\/hi\/?attachment_id=3579'><img loading=\"lazy\" decoding=\"async\" width=\"960\" height=\"720\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2018\/10\/IMG_1002.jpg\" class=\"attachment-full size-full\" alt=\"\" srcset=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2018\/10\/IMG_1002.jpg 960w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2018\/10\/IMG_1002-300x225.jpg 300w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2018\/10\/IMG_1002-768x576.jpg 768w\" sizes=\"(max-width: 960px) 100vw, 960px\" \/><\/a>\n\t\t\t<\/dt><\/dl><dl class='gallery-item'>\n\t\t\t<dt class='gallery-icon landscape'>\n\t\t\t\t<a href='https:\/\/www.erdheim-chester.org\/hi\/?attachment_id=3580'><img loading=\"lazy\" decoding=\"async\" width=\"960\" height=\"720\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2018\/10\/IMG_1004.jpg\" class=\"attachment-full size-full\" alt=\"\" srcset=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2018\/10\/IMG_1004.jpg 960w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2018\/10\/IMG_1004-300x225.jpg 300w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2018\/10\/IMG_1004-768x576.jpg 768w\" sizes=\"(max-width: 960px) 100vw, 960px\" \/><\/a>\n\t\t\t<\/dt><\/dl><br style=\"clear: both\" \/>\n\t\t<\/div>","protected":false},"excerpt":{"rendered":"<p>\u091c\u094b \u0928\u0947 50 \u0905\u0928\u094d\u092f \u092e\u093f\u0924\u094d\u0930\u094b\u0902, \u092a\u0930\u093f\u0935\u093e\u0930 \u0915\u0947 \u0938\u0926\u0938\u094d\u092f\u094b\u0902 \u0914\u0930 \u0938\u092e\u0941\u0926\u093e\u092f \u0915\u0947 \u0938\u0926\u0938\u094d\u092f\u094b\u0902 \u0915\u0947 \u0938\u093e\u0925, \u091c\u094b \u0938\u092d\u0940 ECD \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u091f\u0940\u092e \u0915\u0940 \u0936\u0930\u094d\u091f \u092a\u0939\u0928\u0947 \u0939\u0941\u090f \u0925\u0947, \u0909\u0928 \u0938\u092d\u0940 \u091c\u093f\u091c\u094d\u091e\u093e\u0938\u0941 \u0932\u094b\u0917\u094b\u0902 \u0915\u094b ECD \u0915\u0947 \u092c\u093e\u0930\u0947 \u092e\u0947\u0902 \u091c\u093e\u0928\u0915\u093e\u0930\u0940 \u0926\u0947\u0915\u0930 \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u092c\u0922\u093c\u093e\u0928\u0947 \u0915\u093e \u0905\u0935\u0938\u0930 \u0932\u093f\u092f\u093e\u0964.<\/p>","protected":false},"author":20,"featured_media":3578,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[272],"tags":[],"class_list":["post-30074","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-voices-of-ecd"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/posts\/30074","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/comments?post=30074"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/posts\/30074\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/media\/3578"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/media?parent=30074"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/categories?post=30074"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/tags?post=30074"}],"curies":[{"name":"\u0921\u092c\u094d\u0932\u094d\u092f\u0942\u092a\u0940","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}