{"id":20309,"date":"2022-09-21T11:03:13","date_gmt":"2022-09-21T16:03:13","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/ecd-staging\/?p=20309"},"modified":"2025-08-23T17:14:04","modified_gmt":"2025-08-23T21:14:04","slug":"ecd-ohio-regional-patient-family-gathering","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/hi\/ecd-ohio-regional-patient-family-gathering\/","title":{"rendered":"ECD Ohio Regional Patient &#038; Family Gathering"},"content":{"rendered":"<h2>Join us virtually on October 7, 2022!<\/h2>\n<p><a class=\"cont-btn\" href=\"https:\/\/us02web.zoom.us\/meeting\/register\/tZUud-GgpjMtGNL7nXQWTVhqdSzqwN4M0KIZ\" target=\"_blank\" rel=\"noopener noreferrer\">Register for Online Attendance<\/a><\/p>\n<p>&nbsp;<\/p>\n<p>Times are shown in Eastern U.S. Time.<\/p>\n<p>&nbsp;<\/p>\n<p><strong>10:00 am &#8211; Dr. Robert Franklin<\/strong><\/p>\n<p><em>Welcome to the University of Cincinnati!<\/em><br \/>\nInformation will be shared about the UC clinic, staff, specialists they work with, and what makes their center special.<\/p>\n<p>&nbsp;<\/p>\n<p><strong>10:15 am &#8211; Dr. Nishant Gupta\u00a0<\/strong><\/p>\n<p><em>How To Best Integrate The ECD Clinic Network In Your Care<\/em><br \/>\nDue to the complexity of the disease, ECD patients are often required to meet with multiple specialists to manage and monitor their care. Dr. Nishant Gupta will help us simplify this process to help patients keep their various care teams in sync with one another and their care.<\/p>\n<p>&nbsp;<\/p>\n<p><strong>10:45 am &#8211;\u00a0 Dr. Gaurav Goyal<\/strong><\/p>\n<p><em>Erdheim-Chester disease: Have we figured it all out?<br \/>\n<\/em>An overview of ECD, including the history and its status will be shared.\u00a0 Additional topics include the clinical aspects of the disease, current treatments used, and monitoring practices.<\/p>\n<p>&nbsp;<\/p>\n<p><strong>11:15 am &#8211; Dr. Robert Franklin<\/strong><\/p>\n<p><em>Managing MEK Targeted Therapies<br \/>\n<\/em>Learn about the MEK-Inhibitors used to treat ECD. Topics will include the most common side effects and ways to manage them, monitoring and dosage recommendations, and the financial burdens associated.<\/p>\n<p>&nbsp;<\/p>\n<p><strong>11:45 am &#8211; Dr. Ashish Kumar<\/strong><\/p>\n<p><em>How Do Inhibitors Work?!<br \/>\n<\/em>Dr. Kumar will be breaking down inhibitors used in Erdheim-Chester disease, how they slow the progression of the disease, and the process physicians use to prescribe the best medication for each patient.<\/p>\n<p>&nbsp;<\/p>\n<p><strong>12:15 pm &#8211; Closing and Evaluations\u00a0<\/strong><\/p>\n<p><em>Thank you for joining us! Please complete the survey at the end of your session to help us improve!\u00a0<\/em><\/p>","protected":false},"excerpt":{"rendered":"<p>Join us virtually on October 7, 2022! Register for Online Attendance &nbsp; Times are shown in Eastern U.S. Time. &nbsp; 10:00 am &#8211; Dr. Robert Franklin Welcome to the University [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":20315,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[67,51],"tags":[55,54,59,53,58,133,134,56,181,57,122,52,130],"class_list":["post-20309","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-community-support","category-news","tag-advocacy","tag-blood-disorder","tag-bone-pain","tag-cancer","tag-diabetes-insipidus","tag-disease-education","tag-ecd-awareness","tag-erdheim-chester","tag-gathering","tag-hairy-kidney","tag-histio","tag-rare-disease","tag-research"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/posts\/20309","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/comments?post=20309"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/posts\/20309\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/media\/20315"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/media?parent=20309"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/categories?post=20309"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/tags?post=20309"}],"curies":[{"name":"\u0921\u092c\u094d\u0932\u094d\u092f\u0942\u092a\u0940","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}