{"id":20137,"date":"2022-04-22T13:50:01","date_gmt":"2022-04-22T18:50:01","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/ecd-staging\/?p=20137"},"modified":"2026-08-19T06:06:56","modified_gmt":"2026-08-19T11:06:56","slug":"%e0%a4%b8%e0%a5%8d%e0%a4%b5%e0%a4%af%e0%a4%82%e0%a4%b8%e0%a5%87%e0%a4%b5%e0%a5%80-%e0%a4%b8%e0%a4%ae%e0%a4%b0%e0%a5%8d%e0%a4%a5%e0%a4%a8-%e0%a4%95%e0%a4%be-%e0%a4%ae%e0%a4%b9%e0%a4%a4%e0%a5%8d","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/hi\/the-importance-of-volunteer-support\/","title":{"rendered":"\u0938\u094d\u0935\u092f\u0902\u0938\u0947\u0935\u0915 \u0938\u092e\u0930\u094d\u0925\u0928 \u0915\u093e \u092e\u0939\u0924\u094d\u0935"},"content":{"rendered":"

 <\/p>\n

\"\"<\/a><\/p>\n

 <\/p>\n

\u0908\u0938\u0940\u0921\u0940 \u0917\u094d\u0932\u094b\u092c\u0932 \u0905\u0932\u093e\u092f\u0902\u0938 (ECDGA), \u090f\u0915 \u0917\u0948\u0930-\u0932\u093e\u092d\u0915\u093e\u0930\u0940 \u0938\u0902\u0938\u094d\u0925\u093e \u091c\u094b \u090f\u0930\u094d\u0921\u0939\u093e\u0907\u092e-\u091a\u0947\u0938\u094d\u091f\u0930 \u0930\u094b\u0917 (ECD) \u0928\u093e\u092e\u0915 \u0905\u0924\u093f-\u0926\u0941\u0930\u094d\u0932\u092d \u0930\u0915\u094d\u0924 \u0915\u0948\u0902\u0938\u0930 \u0938\u0947 \u092a\u094d\u0930\u092d\u093e\u0935\u093f\u0924 \u0932\u094b\u0917\u094b\u0902 \u0915\u093e \u0938\u092e\u0930\u094d\u0925\u0928 \u0915\u0930\u0928\u0947 \u0915\u0947 \u0932\u093f\u090f \u0938\u092e\u0930\u094d\u092a\u093f\u0924 \u0939\u0948, \u0930\u093e\u0937\u094d\u091f\u094d\u0930\u0940\u092f \u0938\u094d\u0935\u092f\u0902\u0938\u0947\u0935\u0915 \u0938\u092a\u094d\u0924\u093e\u0939 \u0915\u0947 \u0926\u094c\u0930\u093e\u0928 \u092f\u094b\u0917\u094d\u092f \u0938\u094d\u0935\u092f\u0902\u0938\u0947\u0935\u0915\u094b\u0902 \u0915\u094b \u0938\u092e\u094d\u092e\u093e\u0928\u093f\u0924 \u0915\u0930\u0924\u0940 \u0939\u0948\u0964. ECDGA \u0915\u0947 \u0938\u094d\u0935\u092f\u0902\u0938\u0947\u0935\u0915 \u0938\u0902\u0917\u0920\u0928 \u0915\u0940 \u091c\u0940\u0935\u0928 \u0936\u0915\u094d\u0924\u093f \u0939\u0948\u0902\u0964<\/strong>, \u0905\u092a\u0928\u0947 \u091b\u094b\u091f\u0947 \u0915\u0930\u094d\u092e\u091a\u093e\u0930\u093f\u092f\u094b\u0902 \u0915\u093e \u0938\u092e\u0930\u094d\u0925\u0928 \u0915\u0930\u0924\u0947 \u0939\u0941\u090f \u0914\u0930 \u0905\u0928\u0947\u0915 \u0915\u093e\u0930\u094d\u092f\u0915\u094d\u0930\u092e\u094b\u0902 \u0924\u0925\u093e \u0938\u0939\u093e\u092f\u0915 \u0915\u093e\u0930\u094d\u092f\u094b\u0902 \u092e\u0947\u0902 2,000 \u0918\u0902\u091f\u0947 \u0938\u0947 \u0905\u0927\u093f\u0915 \u0938\u0947\u0935\u093e \u0915\u093e \u092f\u094b\u0917\u0926\u093e\u0928 \u0915\u0930\u0924\u0947 \u0939\u0941\u090f\u0964.<\/p>\n

\u0930\u093e\u0937\u094d\u091f\u094d\u0930\u0940\u092f \u0938\u094d\u0935\u092f\u0902\u0938\u0947\u0935\u0915 \u0938\u092a\u094d\u0924\u093e\u0939 \u092a\u0942\u0930\u0947 \u0938\u092e\u0941\u0926\u093e\u092f \u0915\u0947 \u0932\u093f\u090f ECD \u0938\u0947 \u092a\u094d\u0930\u092d\u093e\u0935\u093f\u0924 \u0930\u094b\u0917\u093f\u092f\u094b\u0902 \u0914\u0930 \u0909\u0928\u0915\u0947 \u092a\u0930\u093f\u0935\u093e\u0930\u094b\u0902 \u0915\u0940 \u0938\u0947\u0935\u093e \u0915\u0930\u0928\u0947 \u0935\u093e\u0932\u094b\u0902 \u0915\u0947 \u092a\u094d\u0930\u0924\u093f \u0906\u092d\u093e\u0930 \u0935\u094d\u092f\u0915\u094d\u0924 \u0915\u0930\u0928\u0947 \u0915\u093e \u0905\u0935\u0938\u0930 \u0939\u0948\u0964 \u092f\u0939 \u0938\u0926\u0938\u094d\u092f\u094b\u0902 \u0915\u094b \u092a\u0930\u094d\u0926\u0947 \u0915\u0947 \u092a\u0940\u091b\u0947 \u0915\u093e\u092e \u0915\u0930\u0928\u0947 \u0935\u093e\u0932\u094b\u0902 \u0915\u094b \u0926\u0947\u0916\u0928\u0947 \u0915\u093e \u092e\u094c\u0915\u093e \u0926\u0947\u0924\u093e \u0939\u0948, \u091c\u094b \u0909\u0928\u094d\u0939\u0947\u0902 \u0935\u0939 \u0938\u092e\u0930\u094d\u0925\u0928 \u0914\u0930 \u091c\u093e\u0928\u0915\u093e\u0930\u0940 \u092a\u094d\u0930\u0926\u093e\u0928 \u0915\u0930\u0928\u0947 \u092e\u0947\u0902 \u092e\u0926\u0926 \u0915\u0930\u0924\u0947 \u0939\u0948\u0902, \u091c\u093f\u0928\u0915\u0947 \u0935\u0947 \u0939\u0915\u0926\u093e\u0930 \u0939\u0948\u0902\u0964. \u00a0\u0906\u0936\u093e \u0939\u0948 \u0915\u093f ECDGA \u0915\u0947 \u0938\u0926\u0938\u094d\u092f \u0907\u0938 \u092c\u093e\u0924 \u0938\u0947 \u0909\u0924\u094d\u0938\u093e\u0939\u093f\u0924 \u0914\u0930 \u092a\u094d\u0930\u094b\u0924\u094d\u0938\u093e\u0939\u093f\u0924 \u0939\u094b\u0902\u0917\u0947 \u0915\u093f \u0909\u0928\u0915\u0947 \u0932\u093f\u090f \u0939\u0930 \u0926\u093f\u0928 \u0932\u0921\u093c\u0928\u0947 \u0935\u093e\u0932\u0947 \u0938\u094d\u0935\u092f\u0902\u0938\u0947\u0935\u0915\u094b\u0902 \u0915\u093e \u090f\u0915 \u092e\u0939\u093e\u0928 \u0938\u092e\u0942\u0939 \u0939\u0948\u0964.<\/strong><\/p>\n

\u0908\u0938\u0940\u0921\u0940\u091c\u0940\u090f \u0928\u0947 2008 \u092e\u0947\u0902 \u0905\u092a\u0928\u0940 \u0938\u094d\u0925\u093e\u092a\u0928\u093e \u0915\u0947 \u092c\u093e\u0926 \u0938\u0947 \u092a\u094d\u0930\u0936\u093e\u0938\u0928\u093f\u0915 \u0916\u0930\u094d\u091a \u0915\u094b \u0928\u094d\u092f\u0942\u0928\u0924\u092e \u0930\u0916\u0928\u0947 \u0914\u0930 \u0926\u093e\u0928 \u0915\u0940 \u0930\u093e\u0936\u093f \u0915\u094b \u0905\u0927\u093f\u0915\u0924\u092e \u0915\u0930\u0928\u0947 \u0915\u0947 \u0932\u093f\u090f \u0938\u094d\u0935\u092f\u0902\u0938\u0947\u0935\u0915\u094b\u0902 \u092a\u0930 \u0928\u093f\u0930\u094d\u092d\u0930 \u0915\u093f\u092f\u093e \u0939\u0948\u0964 \u0908\u0938\u0940\u0921\u0940 \u0930\u094b\u0917\u0940, \u0926\u0947\u0916\u092d\u093e\u0932 \u0915\u0930\u0928\u0947 \u0935\u093e\u0932\u0947, \u0909\u0928\u0915\u0947 \u092a\u0930\u093f\u0935\u093e\u0930 \u0914\u0930 \u092e\u093f\u0924\u094d\u0930, \u0914\u0930 \u091a\u093f\u0915\u093f\u0924\u094d\u0938\u093e \u092a\u0947\u0936\u0947\u0935\u0930 \u0907\u0938 \u0917\u0920\u092c\u0902\u0927\u0928 \u0915\u0947 \u0909\u0926\u093e\u0930 \u0915\u093e\u0930\u094d\u092f\u092c\u0932 \u0915\u093e \u0917\u0920\u0928 \u0915\u0930\u0924\u0947 \u0939\u0948\u0902\u0964 \u092f\u094b\u0917\u0926\u093e\u0928\u0915\u0930\u094d\u0924\u093e \u090f\u0915\u0932 \u092a\u0930\u093f\u092f\u094b\u091c\u0928\u093e\u0913\u0902 \u092e\u0947\u0902 \u092f\u093e \u0938\u093e\u0932 \u092e\u0947\u0902 \u090f\u0915 \u092c\u093e\u0930 \u092e\u0926\u0926 \u0915\u0930\u0924\u0947 \u0939\u0948\u0902, \u091c\u092c\u0915\u093f \u0905\u0928\u094d\u092f \u0905\u0927\u093f\u0915 \u0928\u093f\u092f\u092e\u093f\u0924 \u0906\u0927\u093e\u0930 \u092a\u0930 \u092e\u0926\u0926 \u0915\u0930\u0924\u0947 \u0939\u0948\u0902\u0964 \u0938\u094d\u0935\u092f\u0902\u0938\u0947\u0935\u0915\u094b\u0902 \u0915\u0947 \u0915\u093e\u0930\u094d\u092f\u094b\u0902 \u092e\u0947\u0902 \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u092c\u0922\u093c\u093e\u0928\u0947 \u0938\u0947 \u0932\u0947\u0915\u0930 \u0935\u093f\u0924\u094d\u0924\u0940\u092f \u091f\u094d\u0930\u0948\u0915\u093f\u0902\u0917 \u0914\u0930 \u092b\u093e\u0907\u0932\u093f\u0902\u0917, \u0927\u0928 \u0909\u0917\u093e\u0939\u0928\u0947, \u0935\u093f\u0936\u0947\u0937-\u0915\u094c\u0936\u0932 \u0935\u093e\u0932\u0940 \u0938\u0947\u0935\u093e\u090f\u0901 \u092a\u094d\u0930\u0926\u093e\u0928 \u0915\u0930\u0928\u0947, \u0914\u0930 \u0905\u0928\u094d\u092f \u0938\u0926\u0938\u094d\u092f\u094b\u0902 \u0915\u093e \u0938\u092e\u0930\u094d\u0925\u0928 \u0915\u0930\u0928\u0947 \u0924\u0915 \u0936\u093e\u092e\u093f\u0932 \u0939\u0948\u0902\u0964 \u0938\u092e\u0930\u094d\u092a\u093f\u0924 \u0938\u094d\u0935\u092f\u0902\u0938\u0947\u0935\u0915\u094b\u0902 \u0926\u094d\u0935\u093e\u0930\u093e \u0915\u093f\u092f\u093e \u0917\u092f\u093e \u0915\u093e\u0930\u094d\u092f \u0926\u0941\u0928\u093f\u092f\u093e \u092d\u0930 \u092e\u0947\u0902 ECDGA \u0915\u0947 \u0938\u0926\u0938\u094d\u092f\u094b\u0902 \u0914\u0930 ECD \u0930\u094b\u0917\u093f\u092f\u094b\u0902 \u0915\u093e \u0938\u092e\u0930\u094d\u0925\u0928 \u0915\u0930\u0924\u093e \u0939\u0948\u0964.<\/p>\n

\u091a\u093f\u0915\u093f\u0924\u094d\u0938\u093e \u092a\u0947\u0936\u0947\u0935\u0930\u094b\u0902 \u0928\u0947 \u092d\u0940 \u0935\u093f\u0936\u0947\u0937\u091c\u094d\u091e\u0924\u093e \u0914\u0930 \u091c\u094d\u091e\u093e\u0928 \u092a\u094d\u0930\u0926\u093e\u0928 \u0915\u0930\u0915\u0947, \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u092c\u0922\u093c\u093e\u0915\u0930, \u0914\u0930 \u0938\u0902\u0917\u0920\u0928 \u0926\u094d\u0935\u093e\u0930\u093e \u0938\u0941\u0917\u092e \u090f\u0935\u0902 \u0928\u093f\u0937\u094d\u092a\u093e\u0926\u093f\u0924 \u0930\u094b\u0917\u0940-\u0926\u0947\u0916\u092d\u093e\u0932 \u092a\u0930\u093f\u092f\u094b\u091c\u0928\u093e\u0913\u0902 \u092e\u0947\u0902 \u092d\u093e\u0917 \u0932\u0947\u0915\u0930 ECDGA \u0915\u093e \u0938\u092e\u0930\u094d\u0925\u0928 \u0915\u093f\u092f\u093e \u0939\u0948\u0964. \u092f\u0939 \u0917\u0948\u0930-\u0932\u093e\u092d\u0915\u093e\u0930\u0940 \u0938\u0902\u0938\u094d\u0925\u093e \u0926\u0941\u0928\u093f\u092f\u093e \u092d\u0930 \u0938\u0947 \u0938\u0948\u0915\u0921\u093c\u094b\u0902 \u0932\u094b\u0917\u094b\u0902 \u0915\u0940 \u0938\u0939\u093e\u092f\u0924\u093e \u0915\u0930 \u0938\u0915\u0924\u0940 \u0939\u0948, \u0914\u0930 \u0907\u0938\u0915\u093e \u0936\u094d\u0930\u0947\u092f \u0915\u0908 \u091a\u093f\u0915\u093f\u0924\u094d\u0938\u093e \u092a\u0947\u0936\u0947\u0935\u0930\u094b\u0902 \u0914\u0930 \u0938\u0926\u0938\u094d\u092f \u0938\u094d\u0935\u092f\u0902\u0938\u0947\u0935\u0915\u094b\u0902 \u0915\u0947 \u092f\u094b\u0917\u0926\u093e\u0928 \u0915\u094b \u0926\u093f\u092f\u093e \u091c\u093e\u0924\u093e \u0939\u0948\u0964.\u00a0 <\/strong><\/p>\n

\u0938\u094d\u0935\u092f\u0902\u0938\u0947\u0935\u093e ECDGA \u0915\u094b \u0932\u093e\u092d\u093e\u0928\u094d\u0935\u093f\u0924 \u0915\u0930\u0924\u0940 \u0939\u0948, \u0932\u0947\u0915\u093f\u0928 \u0907\u0938\u0915\u093e \u0938\u094d\u0935\u092f\u0902\u0938\u0947\u0935\u0915\u094b\u0902 \u092a\u0930 \u092d\u0940 \u0938\u0915\u093e\u0930\u093e\u0924\u094d\u092e\u0915 \u092a\u094d\u0930\u092d\u093e\u0935 \u0939\u094b\u0924\u093e \u0939\u0948, \u091c\u093f\u0938\u0938\u0947 \u0909\u0928\u094d\u0939\u0947\u0902 \u0915\u093e\u0930\u094d\u092f \u0914\u0930 \u091c\u0940\u0935\u0928 \u092e\u0947\u0902 \u0915\u0908 \u0932\u093e\u092d \u092e\u093f\u0932\u0924\u0947 \u0939\u0948\u0902\u0964.<\/p>\n\n\n\n\n\n\n
\u00b7\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 Gain confidence<\/td>\n\u00b7\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 Make a difference<\/td>\n<\/tr>\n
\u00b7\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 Meet people<\/td>\n\u00b7\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 Be part of a community<\/td>\n<\/tr>\n
\u00b7\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 Learn new skills<\/td>\n\u00b7\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 Take on a challenge<\/td>\n<\/tr>\n
\u00b7\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 Have fun<\/td>\n\u00b7\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 Take action toward your cause<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n

 <\/p>\n

\u0938\u094d\u0935\u092f\u0902\u0938\u0947\u0935\u0915 \u092c\u0928\u0928\u093e \u091a\u093e\u0939\u0947\u0902\u0917\u0947?<\/strong>\u00a0 \u0908\u0938\u0940\u0921\u0940 \u0915\u0947 \u0916\u093f\u0932\u093e\u092b \u0932\u0921\u093c\u093e\u0908 \u092e\u0947\u0902 \u0939\u092e\u093e\u0930\u0947 \u0938\u093e\u0925 \u0936\u093e\u092e\u093f\u0932 \u0939\u094b\u0902!<\/p>\n

\u0939\u092e\u093e\u0930\u0947 \u092f\u0939\u093e\u0901 \u0906\u090f\u0901 \u0938\u094d\u0935\u092f\u0902\u0938\u0947\u0935\u0915 \u0935\u0947\u092c\u092a\u0947\u091c<\/a> \u092f\u093e \u0939\u092e\u093e\u0930\u0947 \u0935\u0930\u094d\u0924\u092e\u093e\u0928 \u0915\u0940 \u0938\u092e\u0940\u0915\u094d\u0937\u093e \u0915\u0930\u0947\u0902 2022 \u092e\u0947\u0902 \u0938\u094d\u0935\u092f\u0902\u0938\u0947\u0935\u0915 \u092d\u0942\u092e\u093f\u0915\u093e\u090f\u0901 \u0909\u092a\u0932\u092c\u094d\u0927 \u0939\u0948\u0902<\/a>!<\/p>\n

Donations can also support the organization\u2019s mission and project needs.\u00a0 Visit www.fundECD.org<\/a> \u092f\u093e \u0906\u092a ECD Global Alliance, P.O. Box 775, DeRidder, LA, 70634 \u092a\u0930 \u091a\u0947\u0915 \u0921\u093e\u0915 \u0938\u0947 \u092d\u0947\u091c\u0915\u0930 \u0926\u093e\u0928 \u0915\u0930 \u0938\u0915\u0924\u0947 \u0939\u0948\u0902\u0964.<\/p>\n

\u00a0<\/strong><\/p>\n

\u0908\u0938\u0940\u0921\u0940 \u0917\u094d\u0932\u094b\u092c\u0932 \u0905\u0932\u093e\u092f\u0902\u0938 \u0915\u0947 \u0915\u093e\u0930\u094d\u092f \u092e\u0947\u0902 \u092f\u094b\u0917\u0926\u093e\u0928 \u0926\u0947\u0928\u0947 \u0935\u093e\u0932\u0947 \u092a\u094d\u0930\u0924\u094d\u092f\u0947\u0915 \u0938\u094d\u0935\u092f\u0902\u0938\u0947\u0935\u0915 \u0915\u093e \u0927\u0928\u094d\u092f\u0935\u093e\u0926, \u0906\u092a \u0938\u0902\u0917\u0920\u0928 \u0915\u093e \u0928\u093f\u0930\u094d\u092e\u093e\u0923 \u0915\u0930\u0924\u0947 \u0939\u0948\u0902 \u0914\u0930 \u0939\u092e\u093e\u0930\u0947 \u0938\u092e\u0941\u0926\u093e\u092f \u0915\u094b \u0939\u0930 \u0926\u093f\u0928 \u092e\u091c\u092c\u0942\u0924 \u092c\u0928\u093e\u0924\u0947 \u0939\u0948\u0902!<\/strong><\/p>\n

 <\/p>","protected":false},"excerpt":{"rendered":"

    The ECD Global Alliance (ECDGA), a non-profit dedicated to supporting people affected by an ultra-rare blood cancer known as Erdheim-Chester Disease (ECD), honors deserving volunteers during National Volunteer […]<\/p>\n","protected":false},"author":14,"featured_media":20139,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[55,83,54,59,53,58,56,57,99,52,175],"class_list":["post-20137","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-advocacy","tag-blood-cancer","tag-blood-disorder","tag-bone-pain","tag-cancer","tag-diabetes-insipidus","tag-erdheim-chester","tag-hairy-kidney","tag-lifestyle","tag-rare-disease","tag-volunteer"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/posts\/20137","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/comments?post=20137"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/posts\/20137\/revisions"}],"predecessor-version":[{"id":175258,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/posts\/20137\/revisions\/175258"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/media\/20139"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/media?parent=20137"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/categories?post=20137"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/tags?post=20137"}],"curies":[{"name":"\u0921\u092c\u094d\u0932\u094d\u092f\u0942\u092a\u0940","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}