{"id":176029,"date":"2026-09-08T04:34:47","date_gmt":"2026-09-08T09:34:47","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=176029"},"modified":"2026-09-08T04:34:47","modified_gmt":"2026-09-08T09:34:47","slug":"%e0%a4%a6%e0%a5%81%e0%a4%b0%e0%a5%8d%e0%a4%b2%e0%a4%ad-%e0%a4%95%e0%a4%be-%e0%a4%ae%e0%a4%a4%e0%a4%b2%e0%a4%ac-%e0%a4%85%e0%a4%a6%e0%a5%83%e0%a4%b6%e0%a5%8d%e0%a4%af-%e0%a4%95%e0%a4%ad%e0%a5%80","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/hi\/rare-should-never-mean-invisible\/","title":{"rendered":"\u0926\u0941\u0930\u094d\u0932\u092d \u0915\u093e \u092e\u0924\u0932\u092c \u0915\u092d\u0940 \u092d\u0940 \u0905\u0926\u0943\u0936\u094d\u092f \u0928\u0939\u0940\u0902 \u0939\u094b\u0928\u093e \u091a\u093e\u0939\u093f\u090f\u0964."},"content":{"rendered":"<p>\u092a\u094d\u0930\u093f\u092f ECDGA \u0938\u092e\u0941\u0926\u093e\u092f,<\/p>\n<p><strong>\u0926\u0941\u0930\u094d\u0932\u092d \u0915\u093e \u092e\u0924\u0932\u092c \u0915\u092d\u0940 \u092d\u0940 \u0905\u0926\u0943\u0936\u094d\u092f \u0928\u0939\u0940\u0902 \u0939\u094b\u0928\u093e \u091a\u093e\u0939\u093f\u090f\u0964.<\/strong><\/p>\n<p>\u092f\u0939 \u0938\u092a\u094d\u0924\u093e\u0939 2 \u0915\u093e \u0939\u0948\u00a0 <strong>\u0908\u0938\u0940\u0921\u0940 \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u092e\u093e\u0939<\/strong>, \u0914\u0930 \u0939\u092e \u0905\u092a\u0928\u0947 \u092a\u0942\u0930\u0947 \u0935\u0948\u0936\u094d\u0935\u093f\u0915 \u0938\u092e\u0941\u0926\u093e\u092f \u0938\u0947 \u0905\u0928\u0941\u0930\u094b\u0927 \u0915\u0930 \u0930\u0939\u0947 \u0939\u0948\u0902 \u0915\u093f \u0935\u0947 \u0914\u0930 \u0905\u0927\u093f\u0915 \u0932\u094b\u0917\u094b\u0902 \u0915\u094b \u090f\u0930\u094d\u0921\u0939\u093e\u0907\u092e-\u091a\u0947\u0938\u094d\u091f\u0930 \u0930\u094b\u0917 \u0915\u094b \u0926\u0947\u0916\u0928\u0947, \u0938\u092e\u091d\u0928\u0947 \u0914\u0930 \u092a\u0939\u091a\u093e\u0928\u0928\u0947 \u092e\u0947\u0902 \u092e\u0926\u0926 \u0915\u0930\u0947\u0902\u0964.<\/p>\n<p><strong>\u0939\u092e \u092e\u093f\u0932\u0915\u0930 \u0926\u0941\u0930\u094d\u0932\u092d \u0915\u094b \u0926\u0943\u0936\u094d\u092f\u092e\u093e\u0928 \u092c\u0928\u093e\u0924\u0947 \u0939\u0948\u0902\u0964.<\/strong><\/p>\n<p>\u0907\u0938 \u0938\u092a\u094d\u0924\u093e\u0939 \u0915\u0947 \u0939\u0930 \u0926\u093f\u0928, \u0939\u092e ECD \u092f\u093e\u0924\u094d\u0930\u093e \u0915\u0947 \u090f\u0915 \u0905\u0932\u0917 \u0939\u093f\u0938\u094d\u0938\u0947 \u092a\u0930 \u092a\u094d\u0930\u0915\u093e\u0936 \u0921\u093e\u0932\u0947\u0902\u0917\u0947:<\/p>\n<p><strong>\u0938\u094b\u092e\u0935\u093e\u0930:<\/strong> \u0908\u0938\u0940\u0921\u0940 \u0915\u094d\u092f\u093e \u0939\u0948?<br \/>\n<strong>\u092e\u0902\u0917\u0932\u0935\u093e\u0930:<\/strong> Recognizing Symptoms<br \/>\n<strong>\u092c\u0941\u0927\u0935\u093e\u0930:<\/strong> \u0935\u093f\u0936\u0947\u0937\u091c\u094d\u091e \u0926\u0947\u0916\u092d\u093e\u0932 \u0916\u094b\u091c\u0928\u093e<br \/>\n<strong>\u0917\u0941\u0930\u0941\u0935\u093e\u0930:<\/strong> \u0930\u094b\u0917\u0940 \u0914\u0930 \u0926\u0947\u0916\u092d\u093e\u0932\u0915\u0930\u094d\u0924\u093e \u0915\u0940 \u0915\u0939\u093e\u0928\u093f\u092f\u093e\u0901<br \/>\n<strong>\u0936\u0941\u0915\u094d\u0930\u0935\u093e\u0930:<\/strong> \u0905\u0928\u0941\u0938\u0902\u0927\u093e\u0928 \u0906\u0936\u093e \u0932\u093e\u0924\u093e \u0939\u0948<br \/>\n<strong>\u0936\u0928\u093f\u0935\u093e\u0930:<\/strong> \u0935\u0948\u0936\u094d\u0935\u093f\u0915 \u0908\u0938\u0940\u0921\u0940 \u0938\u092e\u0941\u0926\u093e\u092f<br \/>\n<strong>\u0930\u0935\u093f\u0935\u093e\u0930:<\/strong> \u0939\u0930 \u0915\u094b\u0908 \u0915\u0948\u0938\u0947 \u092e\u0926\u0926 \u0915\u0930 \u0938\u0915\u0924\u093e \u0939\u0948<\/p>\n<p>Behind every one of these topics are real people. People who searched for answers. Families who needed support. Physicians working to understand a rare disease. Researchers searching for better treatments. And a worldwide community determined to make a difference.<\/p>\n<p><strong>\u0907\u0938 \u0938\u092a\u094d\u0924\u093e\u0939 \u0939\u092e\u0947\u0902 \u0906\u092a\u0915\u0940 \u092e\u0926\u0926 \u091a\u093e\u0939\u093f\u090f\u0964.<\/strong><\/p>\n<p>\u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u092c\u0922\u093c\u093e\u0928\u0947 \u0915\u0947 \u0932\u093f\u090f \u0906\u092a\u0915\u094b ECD \u0935\u093f\u0936\u0947\u0937\u091c\u094d\u091e \u0939\u094b\u0928\u0947 \u0915\u0940 \u0906\u0935\u0936\u094d\u092f\u0915\u0924\u093e \u0928\u0939\u0940\u0902 \u0939\u0948\u0964 \u0906\u092a\u0915\u094b \u092c\u0938 \u0915\u093f\u0938\u0940 \u0914\u0930 \u0915\u094b \u092f\u0939 \u091c\u093e\u0928\u0928\u0947 \u092e\u0947\u0902 \u092e\u0926\u0926 \u0915\u0930\u0928\u0940 \u0939\u0948 \u0915\u093f ECD \u092e\u094c\u091c\u0942\u0926 \u0939\u0948\u0964.<\/p>\n<p><strong>\u0908\u0938\u0940\u0921\u0940 \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u091a\u0941\u0928\u094c\u0924\u0940 \u0932\u0947\u0902:<\/strong><\/p>\n<ul>\n<li><strong>\u0938\u0940\u0916\u0947\u0902<\/strong><br \/>\nFollow along each day and learn one new thing about ECD.<\/li>\n<li><strong>\u0938\u093e\u091d\u093e \u0915\u0930\u0947\u0902<br \/>\n<\/strong>\u0905\u092a\u0928\u0940 \u0938\u094b\u0936\u0932 \u0928\u0947\u091f\u0935\u0930\u094d\u0915, \u092a\u0930\u093f\u0935\u093e\u0930, \u0926\u094b\u0938\u094d\u0924\u094b\u0902 \u092f\u093e \u0938\u0939\u0915\u0930\u094d\u092e\u093f\u092f\u094b\u0902 \u0915\u0947 \u0938\u093e\u0925 \u0915\u092e \u0938\u0947 \u0915\u092e \u090f\u0915 ECDGA \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u092a\u094b\u0938\u094d\u091f \u0938\u093e\u091d\u093e \u0915\u0930\u0947\u0902\u0964.<\/li>\n<li><strong>\u0915\u093f\u0938\u0940 \u0915\u094b \u092c\u0924\u093e\u090f\u0902<br \/>\n<\/strong>Erdheim-Chester \u0930\u094b\u0917 \u0915\u0947 \u092c\u093e\u0930\u0947 \u092e\u0947\u0902 \u0915\u093f\u0938\u0940 \u0910\u0938\u0947 \u0935\u094d\u092f\u0915\u094d\u0924\u093f \u0915\u094b \u092c\u0924\u093e\u090f\u0902 \u091c\u093f\u0938\u0928\u0947 \u092a\u0939\u0932\u0947 \u0915\u092d\u0940 \u0907\u0938\u0915\u0947 \u092c\u093e\u0930\u0947 \u092e\u0947\u0902 \u0928\u0939\u0940\u0902 \u0938\u0941\u0928\u093e \u0939\u094b\u0964.<\/li>\n<li><strong>\u0915\u093f\u0938\u0940 \u0915\u094b \u0905\u0902\u0926\u0930 \u092c\u0941\u0932\u093e\u0913<br \/>\n<\/strong>\u0915\u093f\u0938\u0940 \u0915\u094b ECDGA \u0915\u094b \u092b\u0949\u0932\u094b \u0915\u0930\u0928\u0947 \u0915\u0947 \u0932\u093f\u090f \u092a\u094d\u0930\u094b\u0924\u094d\u0938\u093e\u0939\u093f\u0924 \u0915\u0930\u0947\u0902 \u0914\u0930 \u0907\u0938 \u0935\u0948\u0936\u094d\u0935\u093f\u0915 \u0938\u092e\u0941\u0926\u093e\u092f \u0915\u0947 \u092e\u0930\u0940\u091c\u094b\u0902, \u092a\u0930\u093f\u0935\u093e\u0930\u094b\u0902, \u091a\u093f\u0915\u093f\u0924\u094d\u0938\u0915\u094b\u0902, \u0936\u094b\u0927\u0915\u0930\u094d\u0924\u093e\u0913\u0902 \u0914\u0930 \u0938\u094d\u0935\u092f\u0902\u0938\u0947\u0935\u0915\u094b\u0902 \u0915\u0947 \u092c\u093e\u0930\u0947 \u092e\u0947\u0902 \u0914\u0930 \u091c\u093e\u0928\u0947\u0902\u0964.<\/li>\n<\/ul>\n<p>\u090f\u0915 \u092a\u094b\u0938\u094d\u091f\u0964 \u090f\u0915 \u092c\u093e\u0924\u091a\u0940\u0924\u0964 \u090f\u0915 \u0928\u092f\u093e \u0935\u094d\u092f\u0915\u094d\u0924\u093f \u091c\u093f\u0938\u0947 \u0928\u093e\u092e \u092a\u0924\u093e \u0939\u0948\u0964 <strong>\u090f\u0930\u094d\u0921\u0939\u093e\u0907\u092e-\u091a\u0947\u0938\u094d\u091f\u0930 \u0930\u094b\u0917.<\/strong><\/p>\n<p>\u092f\u0939\u0940 \u0924\u0930\u0940\u0915\u093e \u0939\u0948 \u091c\u093f\u0938\u0938\u0947 \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u092c\u0922\u093c\u0924\u0940 \u0939\u0948\u0964.<\/p>\n<p>\u0914\u0930 \u091c\u092c \u0939\u092e \u092e\u0947\u0902 \u0938\u0947 \u0939\u091c\u093e\u0930\u094b\u0902 \u0932\u094b\u0917 \u090f\u0915 \u0938\u093e\u0925 \u0910\u0938\u093e \u0915\u0930\u0924\u0947 \u0939\u0948\u0902, \u0924\u094b \u090f\u0915 \u0926\u0941\u0930\u094d\u0932\u092d \u092c\u0940\u092e\u093e\u0930\u0940 \u0915\u094b \u0905\u0928\u0926\u0947\u0916\u093e \u0915\u0930\u0928\u093e \u0914\u0930 \u092d\u0940 \u092e\u0941\u0936\u094d\u0915\u093f\u0932 \u0939\u094b \u091c\u093e\u0924\u093e \u0939\u0948\u0964.<\/p>\n<p>Whether you are a patient, caregiver, family member, physician, researcher, volunteer, donor, or friend of ECDGA, <strong>\u0906\u092a \u0926\u0941\u0930\u094d\u0932\u092d \u0915\u094b \u0926\u0943\u0936\u094d\u092f\u092e\u093e\u0928 \u092c\u0928\u093e\u0928\u0947 \u092e\u0947\u0902 \u092e\u0926\u0926 \u0915\u0930 \u0938\u0915\u0924\u0947 \u0939\u0948\u0902\u0964.<\/strong><\/p>\n<p>\u0907\u0938 \u0938\u092a\u094d\u0924\u093e\u0939, \u0915\u0947\u0935\u0932 \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u092e\u093e\u0939 \u0915\u093e \u0905\u0928\u0941\u0938\u0930\u0923 \u0928 \u0915\u0930\u0947\u0902\u0964.<\/p>\n<p><strong>\u0907\u0938\u0915\u093e \u0939\u093f\u0938\u094d\u0938\u093e \u092c\u0928\u0947\u0902\u0964.<\/strong><\/p>\n<p><strong>\u0939\u092e \u092e\u093f\u0932\u0915\u0930 \u0926\u0941\u0930\u094d\u0932\u092d \u0915\u094b \u0926\u0943\u0936\u094d\u092f\u092e\u093e\u0928 \u092c\u0928\u093e\u0924\u0947 \u0939\u0948\u0902\u0964.<\/strong><\/p>\n<p><strong>\u0906\u091c \u0915\u093e \u091c\u094d\u091e\u093e\u0928\u0964 \u0915\u0932 \u0915\u0940 \u0906\u0936\u093e\u0964.<\/strong><\/p>\n<p>\u0915\u0943\u0924\u091c\u094d\u091e\u0924\u093e \u0938\u0939\u093f\u0924,<br \/>\n<strong>\u090f\u0930\u094d\u0921\u0939\u093e\u0907\u092e-\u091a\u0947\u0938\u094d\u091f\u0930 \u0930\u094b\u0917 \u0935\u0948\u0936\u094d\u0935\u093f\u0915 \u0917\u0920\u092c\u0902\u0927\u0928<\/strong><\/p>\n<p>&nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>Dear ECDGA Community, Rare should never mean invisible. This is week 2 of\u00a0 ECD Awareness Month, and we are asking our entire global community to help more people see, understand, [&hellip;]<\/p>\n","protected":false},"author":27,"featured_media":176110,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[],"class_list":["post-176029","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/posts\/176029","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/users\/27"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/comments?post=176029"}],"version-history":[{"count":2,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/posts\/176029\/revisions"}],"predecessor-version":[{"id":176112,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/posts\/176029\/revisions\/176112"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/media\/176110"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/media?parent=176029"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/categories?post=176029"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/tags?post=176029"}],"curies":[{"name":"\u0921\u092c\u094d\u0932\u094d\u092f\u0942\u092a\u0940","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}