{"id":171555,"date":"2026-06-25T12:07:19","date_gmt":"2026-06-25T17:07:19","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=171555"},"modified":"2026-07-03T12:07:39","modified_gmt":"2026-07-03T17:07:39","slug":"%e0%a4%88%e0%a4%b8%e0%a5%80%e0%a4%a1%e0%a5%80-%e0%a4%a6%e0%a4%b0%e0%a5%8d%e0%a4%a6-%e0%a4%94%e0%a4%b0-%e0%a4%a5%e0%a4%95%e0%a4%be%e0%a4%a8-%e0%a4%95%e0%a4%be-%e0%a4%aa%e0%a5%8d%e0%a4%b0%e0%a4%ac","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/hi\/managing-ecd-pain-fatigue\/","title":{"rendered":"\u0908\u0938\u0940\u0921\u0940 \u0926\u0930\u094d\u0926 \u0914\u0930 \u0925\u0915\u093e\u0928 \u0915\u093e \u092a\u094d\u0930\u092c\u0902\u0927\u0928"},"content":{"rendered":"<p><iframe loading=\"lazy\" title=\"\u0968\u0966\u0968\u096c - \u0935\u0947\u092c\u093f\u0928\u093e\u0930 - \u0908\u0938\u0940\u0921\u0940 \u0926\u0930\u094d\u0926 \u0914\u0930 \u0925\u0915\u093e\u0928 \u0915\u093e \u092a\u094d\u0930\u092c\u0902\u0927\u0928 - \u0915\u0947\u0935\u093f\u0928 \u0913&#039;\u092c\u094d\u0930\u093e\u092f\u0928\" width=\"1080\" height=\"608\" src=\"https:\/\/www.youtube.com\/embed\/0Fn66coP69k?feature=oembed\"  allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/p>\n<p>\u0907\u0938 \u0936\u0948\u0915\u094d\u0937\u093f\u0915 \u0935\u0947\u092c\u093f\u0928\u093e\u0930 \u092e\u0947\u0902, <strong>\u0915\u0947\u0935\u093f\u0928 \u0913'\u092c\u094d\u0930\u093e\u092f\u0928, \u0930\u093e\u0937\u094d\u091f\u094d\u0930\u0940\u092f \u0938\u094d\u0935\u093e\u0938\u094d\u0925\u094d\u092f \u0938\u0902\u0938\u094d\u0925\u093e\u0928 (\u090f\u0928\u0906\u0908\u090f\u091a) \u092e\u0947\u0902 \u0928\u0930\u094d\u0938 \u092a\u094d\u0930\u0948\u0915\u094d\u091f\u093f\u0936\u0928\u0930,<\/strong> \u092f\u0939 \u090f\u0930\u094d\u0921\u0939\u093e\u0907\u092e-\u091a\u0947\u0938\u094d\u091f\u0930 \u0930\u094b\u0917 (ECD) \u0938\u0947 \u092a\u094d\u0930\u092d\u093e\u0935\u093f\u0924 \u0932\u094b\u0917\u094b\u0902 \u092e\u0947\u0902 \u0926\u0930\u094d\u0926 \u0914\u0930 \u0925\u0915\u093e\u0928 \u0915\u0947 \u092a\u094d\u0930\u092c\u0902\u0927\u0928 \u0915\u093e \u0917\u0939\u0928 \u0905\u0935\u0932\u094b\u0915\u0928 \u092a\u094d\u0930\u0926\u093e\u0928 \u0915\u0930\u0924\u093e \u0939\u0948\u0964 \u092f\u0939 \u091c\u093e\u0928\u0915\u093e\u0930\u0940\u092a\u0942\u0930\u094d\u0923 \u0938\u0924\u094d\u0930 ECD-\u0938\u0902\u092c\u0902\u0927\u093f\u0924 \u0926\u0930\u094d\u0926 \u0914\u0930 \u0925\u0915\u093e\u0928 \u0938\u0947 \u091c\u0942\u091d \u0930\u0939\u0947 \u0932\u094b\u0917\u094b\u0902 \u0915\u0947 \u0932\u093f\u090f \u0935\u094d\u092f\u093e\u0935\u0939\u093e\u0930\u093f\u0915 \u092e\u093e\u0930\u094d\u0917\u0926\u0930\u094d\u0936\u0928 \u0914\u0930 \u091a\u093f\u0915\u093f\u0924\u094d\u0938\u0940\u092f \u0905\u0902\u0924\u0930\u094d\u0926\u0943\u0937\u094d\u091f\u093f \u092a\u094d\u0930\u0926\u093e\u0928 \u0915\u0930\u0924\u093e \u0939\u0948\u0964.<\/p>\n<p><strong>\u0907\u0938 \u0935\u0947\u092c\u093f\u0928\u093e\u0930 \u092e\u0947\u0902, \u0906\u092a \u0928\u093f\u092e\u094d\u0928\u0932\u093f\u0916\u093f\u0924 \u0915\u0947 \u092c\u093e\u0930\u0947 \u092e\u0947\u0902 \u091c\u093e\u0928\u0947\u0902\u0917\u0947:<\/strong><\/p>\n<ul>\n<li>\u0908\u0938\u0940\u0921\u0940 \u092e\u0947\u0902 \u0926\u0930\u094d\u0926 \u0915\u0947 \u0915\u093e\u0930\u0923\u094b\u0902 \u0915\u094b \u0938\u092e\u091d\u0928\u093e<\/li>\n<li>\u0926\u0930\u094d\u0926 \u092a\u094d\u0930\u092c\u0902\u0927\u0928 \u0914\u0930 \u0906\u0930\u093e\u092e \u092c\u0922\u093c\u093e\u0928\u0947 \u0915\u0940 \u0930\u0923\u0928\u0940\u0924\u093f\u092f\u093e\u0901<\/li>\n<li>\u0908\u0938\u0940\u0921\u0940 \u0930\u094b\u0917\u093f\u092f\u094b\u0902 \u092e\u0947\u0902 \u0925\u0915\u093e\u0928 \u0915\u093f\u0924\u0928\u0940 \u0906\u092e \u0939\u0948<\/li>\n<li>\u0925\u0915\u093e\u0928 \u0915\u0947 \u092a\u094d\u0930\u092c\u0902\u0927\u0928 \u0914\u0930 \u090a\u0930\u094d\u091c\u093e \u0938\u0902\u0930\u0915\u094d\u0937\u0923 \u0915\u0947 \u0935\u094d\u092f\u093e\u0935\u0939\u093e\u0930\u093f\u0915 \u0926\u0943\u0937\u094d\u091f\u093f\u0915\u094b\u0923<\/li>\n<\/ul>","protected":false},"excerpt":{"rendered":"<p>In this educational webinar, Kevin O&#8217;Brien, Nurse Practitioner at the National Institutes of Health (NIH), provides an in-depth overview of managing pain and fatigue in people living with Erdheim-Chester Disease (ECD).<\/p>","protected":false},"author":20,"featured_media":171556,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"yes","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[351],"tags":[],"class_list":["post-171555","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-webinar-recordings"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/posts\/171555","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/comments?post=171555"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/posts\/171555\/revisions"}],"predecessor-version":[{"id":171557,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/posts\/171555\/revisions\/171557"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/media\/171556"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/media?parent=171555"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/categories?post=171555"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/tags?post=171555"}],"curies":[{"name":"\u0921\u092c\u094d\u0932\u094d\u092f\u0942\u092a\u0940","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}