{"id":102085,"date":"2016-04-01T18:13:58","date_gmt":"2016-04-01T23:13:58","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/4%e0%a4%b5%e0%a4%be%e0%a4%82-%e0%a4%b5%e0%a4%be%e0%a4%b0%e0%a5%8d%e0%a4%b7%e0%a4%bf%e0%a4%95-%e0%a4%88%e0%a4%b8%e0%a5%80%e0%a4%a1%e0%a5%80-%e0%a4%ae%e0%a5%87%e0%a4%a1%e0%a4%bf%e0%a4%95%e0%a4%b2\/"},"modified":"2026-06-03T06:48:42","modified_gmt":"2026-06-03T11:48:42","slug":"4%e0%a4%b5%e0%a4%be%e0%a4%82-%e0%a4%b5%e0%a4%be%e0%a4%b0%e0%a5%8d%e0%a4%b7%e0%a4%bf%e0%a4%95-%e0%a4%88%e0%a4%b8%e0%a5%80%e0%a4%a1%e0%a5%80-%e0%a4%ae%e0%a5%87%e0%a4%a1%e0%a4%bf%e0%a4%95%e0%a4%b2","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/hi\/4%e0%a4%b5%e0%a4%be%e0%a4%82-%e0%a4%b5%e0%a4%be%e0%a4%b0%e0%a5%8d%e0%a4%b7%e0%a4%bf%e0%a4%95-%e0%a4%88%e0%a4%b8%e0%a5%80%e0%a4%a1%e0%a5%80-%e0%a4%ae%e0%a5%87%e0%a4%a1%e0%a4%bf%e0%a4%95%e0%a4%b2\/","title":{"rendered":"4\u0935\u093e\u0902 \u0935\u093e\u0930\u094d\u0937\u093f\u0915 \u0908\u0938\u0940\u0921\u0940 \u092e\u0947\u0921\u093f\u0915\u0932 \u0938\u0902\u0917\u094b\u0937\u094d\u0920\u0940 \u092a\u0947\u0930\u093f\u0938, \u092b\u094d\u0930\u093e\u0902\u0938"},"content":{"rendered":"

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\u092a\u0947\u0930\u093f\u0938 \u092e\u0947\u0921\u093f\u0915\u0932 \u0938\u093f\u092e\u094d\u092a\u094b\u091c\u093f\u092f\u092e \u0917\u094d\u0930\u0941\u092a \u092a\u093f\u0915\u094d\u091a\u0930 2016<\/p>\n<\/div>\n<\/div>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.27.5″ _module_preset=”default” custom_padding=”0px||||false|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”10px||||false|false” global_colors_info=”{}” width__hover_enabled=”off|desktop” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

\u0938\u0902\u0917\u094b\u0937\u094d\u0920\u0940 \u0915\u093e \u0938\u093e\u0930\u093e\u0902\u0936<\/h2>\n

[\/et_pb_text][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”]Erdheim-Chester Disease Global Alliance \u0915\u094b \u0907\u0938 \u0935\u0930\u094d\u0937 \u092a\u0947\u0930\u093f\u0938, \u092b\u094d\u0930\u093e\u0902\u0938 \u0915\u0947 H\u00f4pital Piti\u00e9-Salp\u00eatri\u00e8re \u092e\u0947\u0902 15 \u0938\u093f\u0924\u0902\u092c\u0930, 2016 \u0915\u094b \u0906\u092f\u094b\u091c\u093f\u0924 \u091a\u094c\u0925\u0947 \u0935\u093e\u0930\u094d\u0937\u093f\u0915 \u0905\u0902\u0924\u0930\u094d\u0930\u093e\u0937\u094d\u091f\u094d\u0930\u0940\u092f ECD \u092e\u0947\u0921\u093f\u0915\u0932 \u0938\u0902\u0917\u094b\u0937\u094d\u0920\u0940 \u092e\u0947\u0902 \u0926\u0940 \u0917\u0908 \u092a\u094d\u0930\u0938\u094d\u0924\u0941\u0924\u093f\u092f\u094b\u0902 \u0915\u093e \u0938\u093e\u0930\u093e\u0902\u0936 \u092a\u094d\u0930\u0926\u093e\u0928 \u0915\u0930\u0924\u0947 \u0939\u0941\u090f \u092a\u094d\u0930\u0938\u0928\u094d\u0928\u0924\u093e \u0939\u094b \u0930\u0939\u0940 \u0939\u0948\u0964 \u0907\u0938 \u092c\u0948\u0920\u0915 \u0928\u0947 \u091a\u093f\u0915\u093f\u0924\u094d\u0938\u093e \u092a\u0947\u0936\u0947\u0935\u0930\u094b\u0902 \u0915\u094b ECD \u0905\u0928\u0941\u0938\u0902\u0927\u093e\u0928 \u092a\u0930 \u0938\u0939\u092f\u094b\u0917 \u0915\u0930\u0928\u0947, \u091a\u093f\u0915\u093f\u0924\u094d\u0938\u093e \u0928\u093f\u0937\u094d\u0915\u0930\u094d\u0937\u094b\u0902 \u0915\u094b \u0938\u093e\u091d\u093e \u0915\u0930\u0928\u0947 \u0914\u0930 \u0930\u094b\u0917\u0940 \u0926\u0947\u0916\u092d\u093e\u0932 \u092a\u0930 \u091a\u0930\u094d\u091a\u093e \u0915\u0930\u0928\u0947 \u0915\u093e \u0905\u0935\u0938\u0930 \u0926\u093f\u092f\u093e\u0964 \u0907\u0938 \u0935\u0930\u094d\u0937 \u0915\u0947 \u0938\u0939-\u092e\u0947\u091c\u092c\u093e\u0928, \u092a\u094d\u0930\u094b\u092b\u0947\u0938\u0930 \u091c\u0942\u0932\u093f\u092f\u0928 \u0939\u093e\u0930\u094b\u091a\u0947, MD, PhD; \u092a\u0948\u0928\u0932 \u091a\u0930\u094d\u091a\u093e \u0915\u0947 \u0926\u094c\u0930\u093e\u0928 \u0905\u092a\u0928\u093e \u0921\u0947\u091f\u093e \u0914\u0930 \u0935\u093f\u0936\u0947\u0937\u091c\u094d\u091e\u0924\u093e \u0938\u093e\u091d\u093e \u0915\u0930\u0928\u0947 \u0935\u093e\u0932\u0947 \u0938\u092d\u0940 \u092a\u094d\u0930\u0938\u094d\u0924\u0941\u0924\u0915\u0930\u094d\u0924\u093e\u0913\u0902; ECD \u0915\u0947 \u092c\u093e\u0930\u0947 \u092e\u0947\u0902 \u0905\u0927\u093f\u0915 \u091c\u093e\u0928\u0928\u0947 \u092e\u0947\u0902 \u0930\u0941\u091a\u093f \u0930\u0916\u0928\u0947 \u0935\u093e\u0932\u0947 \u0938\u092d\u0940 \u0909\u092a\u0938\u094d\u0925\u093f\u0924 \u0932\u094b\u0917\u094b\u0902; \u0914\u0930 \u0907\u0938 \u0915\u093e\u0930\u094d\u092f\u0915\u094d\u0930\u092e \u0915\u0940 \u092f\u094b\u091c\u0928\u093e \u092c\u0928\u093e\u0928\u0947 \u0914\u0930 \u0907\u0938\u0947 \u0938\u092b\u0932 \u092c\u0928\u093e\u0928\u0947 \u092e\u0947\u0902 \u0936\u093e\u092e\u093f\u0932 \u0938\u092d\u0940 \u0932\u094b\u0917\u094b\u0902 \u0915\u094b \u0927\u0928\u094d\u092f\u0935\u093e\u0926\u0964 \u0909\u0928 \u0938\u094d\u0935\u092f\u0902\u0938\u0947\u0935\u0915\u094b\u0902 \u0915\u094b \u0935\u093f\u0936\u0947\u0937 \u0927\u0928\u094d\u092f\u0935\u093e\u0926 \u091c\u093f\u0928\u094d\u0939\u094b\u0902\u0928\u0947 \u0938\u092e\u0941\u0926\u093e\u092f \u0915\u0947 \u0932\u093f\u090f \u0914\u0930 \u0909\u0928 \u092a\u0947\u0936\u0947\u0935\u0930\u094b\u0902 \u0915\u0947 \u0932\u093f\u090f \u092f\u0939 \u0938\u093e\u0930\u093e\u0902\u0936 \u0924\u0948\u092f\u093e\u0930 \u0915\u093f\u092f\u093e \u091c\u094b \u0909\u092a\u0938\u094d\u0925\u093f\u0924 \u0939\u094b\u0928\u0947 \u092e\u0947\u0902 \u0905\u0938\u092e\u0930\u094d\u0925 \u0925\u0947\u0964[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||0px||false|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.5″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#14b8a6″ global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

\u0938\u0902\u0917\u094b\u0937\u094d\u0920\u0940 \u0915\u0947 \u0915\u093e\u0930\u094d\u092f\u0915\u094d\u0930\u092e \u0915\u0947 \u090f\u091c\u0947\u0902\u0921\u093e \u0938\u0939\u093f\u0924<\/h2>\n

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\u092a\u094d\u0930\u0938\u094d\u0924\u0941\u0924\u093f\u092f\u094b\u0902<\/h2>\n

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2016 \u0915\u0940 \u092c\u0948\u0920\u0915 \u092e\u0947\u0902 \u0928\u093f\u092e\u094d\u0928\u0932\u093f\u0916\u093f\u0924 \u092a\u094d\u0930\u0938\u094d\u0924\u0941\u0924\u093f\u092f\u093e\u0901 \u0926\u0940 \u0917\u0908 \u0925\u0940\u0902\u0964 \u0938\u092d\u0940 \u092a\u094d\u0930\u0915\u093e\u0936\u093f\u0924 ECD \u0938\u0902\u092c\u0902\u0927\u093f\u0924 \u0935\u0940\u0921\u093f\u092f\u094b<\/a> \u0926\u0947\u0916\u0928\u0947 \u0915\u0947 \u0932\u093f\u090f ECD \u0917\u094d\u0932\u094b\u092c\u0932 \u0905\u0932\u093e\u092f\u0902\u0938 \u092f\u0942\u091f\u094d\u092f\u0942\u092c \u091a\u0948\u0928\u0932<\/a> \u092a\u0930 \u091c\u093e\u090f\u0901\u0964 <\/p>\n

[\/et_pb_text][et_pb_text module_class=”event-table” _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n\n\n\n\n\t\n\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t
Presenter<\/th>Presentation Slides<\/th>Videos<\/th>\n<\/tr>\n<\/thead>\n
Corrado Campochiaro, MD<\/td>Management of ECD Symptoms and Side Effects of Treatments<\/a><\/td>Management of ECD Symptoms and Side Effects of Treatments<\/a><\/td>\n<\/tr>\n
Giulio Cavalli, MD<\/td>Adult Onset (Infratentorial) Leukoencephalopathy as Presenting Manifestation of Erdheim-Chester Disease<\/a><\/td>Adult Onset (Infratentorial) Leukoencephalopathy as Presenting Manifestation of Erdheim-Chester Disease<\/a><\/td>\n<\/tr>\n
Carine Courtillot, MD<\/td>Endocrine manifestations in Erdheim-Chester disease<\/a><\/td>Endocrine manifestations in Erdheim-Chester disease<\/a><\/td>\n<\/tr>\n
Benjamin Durham, MD<\/td>Insights into the Cell-of-Origin of the Histiocytoses Using Patient-Derived Xenograft Murine Models<\/a><\/td>Insights into the Cell-of-Origin of the Histiocytoses Using Patient-Derived Xenograft Murine Models<\/a><\/td>\n<\/tr>\n
Marina Ferrarini, MD<\/td>Tailoring Treatment for Erdheim-Chester Disease: Focus on ECD<\/a><\/td>Tailoring Treatment for Erdheim-Chester Disease: Focus on ECD<\/a><\/td>\n<\/tr>\n
Ronald Go, MD<\/td>Efficacy of Cladribine (2-CdA) in the Treatment of Erdheim-Chester Disease (ECD)<\/a><\/td>Efficacy of Cladribine (2-CdA) in the Treatment of Erdheim-Chester Disease (ECD)<\/a><\/td>\n<\/tr>\n
Filip Janku, MD, PhD<\/td>Encouraging activity of MEK inhibitor trametinib in patients with Erdheim-Chester disease irrespective of BRAF mutation statusClinical Molecular Profiling to Detect Targetable Alterations in Archival Tumor Tissue and Cell-free DNA from Patients with Erdheim-Chester Disease<\/a><\/td>Encouraging activity of MEK inhibitor trametinib in patients with Erdheim-Chester disease irrespective of BRAF mutation statusClinical Molecular Profiling to Detect Targetable Alterations in Archival Tumor Tissue and Cell-free DNA from Patients with Erdheim-Chester Disease<\/a><\/td>\n<\/tr>\n
Javier Martin, MD, PhD<\/td>Future Genetic Studies in Erdheim-Chester disease \u2013 GWAS Study<\/a><\/td>Future Genetic Studies in Erdheim-Chester disease \u2013 GWAS Study<\/a><\/td>\n<\/tr>\n
Kenneth McClain, MD, PhD<\/td>Elevated CSF Osteopontin and Circulating Cells with BRAF Mutations in Patients with Langerhans Cell Histiocytosis-Associated Neurodegeneration -A Model for ECD?<\/a><\/td>Elevated CSF Osteopontin and Circulating Cells with BRAF Mutations in Patients with Langerhans Cell Histiocytosis-Associated Neurodegeneration -A Model for ECD?<\/a><\/td>\n<\/tr>\n
Augusto Vaglio, MD, PhD<\/td>MRI evidence of cardiac involvement in Erdheim-Chester disease<\/a><\/td>MRI evidence of cardiac involvement in Erdheim-Chester disease<\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n\n

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\u092a\u0947\u0930\u093f\u0938 \u092e\u0947\u0921\u093f\u0915\u0932 \u0938\u093f\u092e\u094d\u092a\u094b\u091c\u093f\u092f\u092e \u0917\u094d\u0930\u0941\u092a \u092a\u093f\u0915\u094d\u091a\u0930 2016 \u0938\u0902\u0917\u094b\u0937\u094d\u0920\u0940 \u0915\u093e \u0938\u093e\u0930\u093e\u0902\u0936Erdheim-Chester Disease Global Alliance \u0915\u094b \u0907\u0938 \u0935\u0930\u094d\u0937 \u092a\u0947\u0930\u093f\u0938, \u092b\u094d\u0930\u093e\u0902\u0938 \u0915\u0947 H\u00f4pital Piti\u00e9-Salp\u00eatri\u00e8re \u092e\u0947\u0902 15 \u0938\u093f\u0924\u0902\u092c\u0930, 2016 \u0915\u094b \u0906\u092f\u094b\u091c\u093f\u0924 \u091a\u094c\u0925\u0947 \u0935\u093e\u0930\u094d\u0937\u093f\u0915 \u0905\u0902\u0924\u0930\u094d\u0930\u093e\u0937\u094d\u091f\u094d\u0930\u0940\u092f ECD […]<\/p>\n","protected":false},"author":20,"featured_media":135356,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":[],"cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[4826],"tags":[],"class_list":["post-102085","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-4826"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/posts\/102085","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/comments?post=102085"}],"version-history":[{"count":23,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/posts\/102085\/revisions"}],"predecessor-version":[{"id":136775,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/posts\/102085\/revisions\/136775"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/media\/135356"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/media?parent=102085"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/categories?post=102085"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/tags?post=102085"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}