{"id":50801,"date":"2019-03-10T15:51:11","date_gmt":"2019-03-10T20:51:11","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/%e0%a4%aa%e0%a5%8d%e0%a4%b0%e0%a4%9a%e0%a4%be%e0%a4%b0-%e0%a4%95%e0%a5%80%e0%a4%9c%e0%a4%bf%e0%a4%af%e0%a5%87\/"},"modified":"2026-05-05T22:19:08","modified_gmt":"2026-05-06T03:19:08","slug":"%e0%a4%aa%e0%a5%8d%e0%a4%b0%e0%a4%9a%e0%a4%be%e0%a4%b0-%e0%a4%95%e0%a5%80%e0%a4%9c%e0%a4%bf%e0%a4%af%e0%a5%87","status":"publish","type":"page","link":"https:\/\/www.erdheim-chester.org\/hi\/%e0%a4%aa%e0%a5%8d%e0%a4%b0%e0%a4%9a%e0%a4%be%e0%a4%b0-%e0%a4%95%e0%a5%80%e0%a4%9c%e0%a4%bf%e0%a4%af%e0%a5%87\/","title":{"rendered":"\u092a\u094d\u0930\u091a\u093e\u0930 \u0915\u0940\u091c\u093f\u092f\u0947"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_image=&#8221;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/12\/Untitled-design-96-1.png&#8221; 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\u0938\u0902\u092a\u0930\u094d\u0915 \u0915\u0930\u0947\u0902&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_button=&#8221;on&#8221; button_text_size=&#8221;15px&#8221; button_text_color=&#8221;#C02E43&#8243; button_bg_color=&#8221;rgba(10,22,64,0.53)&#8221; button_border_width=&#8221;0px&#8221; button_icon=&#8221;&#xe60f;||divi||400&#8243; button_icon_color=&#8221;#C02E43&#8243; button_icon_placement=&#8221;left&#8221; button_on_hover=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221; filter_opacity__hover_enabled=&#8221;on|hover&#8221; filter_opacity__hover=&#8221;70%&#8221;][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;section&#8221; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text admin_label=&#8221;Text&#8221; _builder_version=&#8221;4.27.4&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; custom_margin=&#8221;||14px|||&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2><strong>Erdheim-Chester \u0930\u094b\u0917 \u0915\u0947 \u092c\u093e\u0930\u0947 \u092e\u0947\u0902 \u0926\u0942\u0938\u0930\u094b\u0902 \u0915\u094b \u0936\u093f\u0915\u094d\u0937\u093f\u0924 \u0915\u0930\u0928\u0947 \u0915\u0947 \u0932\u093f\u090f ECD \u0917\u094d\u0932\u094b\u092c\u0932 \u090f\u0932\u093e\u092f\u0902\u0938 \u0914\u0930 \u0939\u092e\u093e\u0930\u0947 \u0939\u091c\u093e\u0930\u094b\u0902 \u0938\u093e\u092e\u0941\u0926\u093e\u092f\u093f\u0915 \u0938\u092e\u0930\u094d\u0925\u0915\u094b\u0902 \u0915\u0947 \u0938\u093e\u0925 \u091c\u0941\u0921\u093c\u0947\u0902!  <\/strong><\/h2>\n<p>\u0939\u092e\u093e\u0930\u093e \u092e\u093e\u0928\u0928\u093e \u200b\u200b\u0939\u0948 \u0915\u093f \u091c\u0928\u0924\u093e, \u0935\u093f\u0936\u0947\u0937\u0915\u0930 \u091a\u093f\u0915\u093f\u0924\u094d\u0938\u093e \u092a\u0947\u0936\u0947\u0935\u0930\u094b\u0902 \u092e\u0947\u0902 \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u0932\u093e\u0928\u093e, \u0936\u0940\u0918\u094d\u0930 \u0928\u093f\u0926\u093e\u0928 \u0914\u0930 \u0905\u0938\u093e\u0927\u093e\u0930\u0923 \u0926\u0947\u0916\u092d\u093e\u0932 \u0915\u0947 \u0932\u093f\u090f \u092e\u0939\u0924\u094d\u0935\u092a\u0942\u0930\u094d\u0923 \u0939\u0948\u0964<\/p>\n<p>Erdheim-Chester \u0930\u094b\u0917 \u0915\u0940 \u0913\u0930 \u0927\u094d\u092f\u093e\u0928 \u0906\u0915\u0930\u094d\u0937\u093f\u0924 \u0915\u0930\u0928\u0947 \u0915\u0947 \u0906\u092a\u0915\u0947 \u092a\u094d\u0930\u092f\u093e\u0938\u094b\u0902 \u0915\u0947 \u0932\u093f\u090f \u0927\u0928\u094d\u092f\u0935\u093e\u0926, \u0924\u093e\u0915\u093f \u0921\u0949\u0915\u094d\u091f\u0930\u094b\u0902 \u0915\u094b \u0905\u0927\u093f\u0915 \u0936\u093f\u0915\u094d\u0937\u093e \u092e\u093f\u0932\u0947, \u0936\u094b\u0927 \u0915\u0947 \u0932\u093f\u090f \u0905\u0927\u093f\u0915 \u0927\u0928 \u092e\u093f\u0932\u0947, \u0924\u0925\u093e \u0907\u0938\u0938\u0947 \u091c\u0942\u091d \u0930\u0939\u0947 \u092a\u0930\u093f\u0935\u093e\u0930\u094b\u0902 \u0915\u094b \u0905\u0927\u093f\u0915 \u0909\u092e\u094d\u092e\u0940\u0926 \u092e\u093f\u0932\u0947! \u0907\u0928 \u0930\u094b\u0917\u093f\u092f\u094b\u0902 \u0914\u0930 \u0909\u0928\u0915\u0947 \u092a\u0930\u093f\u0935\u093e\u0930\u094b\u0902 \u0915\u094b \u0906\u0936\u093e \u092a\u093e\u0928\u0947 \u092e\u0947\u0902 \u092e\u0926\u0926 \u0915\u0930\u0928\u0947 \u0915\u0947 \u0932\u093f\u090f \u0906\u092a\u0915\u0940 \u092a\u094d\u0930\u0924\u093f\u092c\u0926\u094d\u0927\u0924\u093e \u0915\u0947 \u0932\u093f\u090f \u0939\u092e \u0906\u092a\u0915\u094b \u0927\u0928\u094d\u092f\u0935\u093e\u0926 \u0926\u0947\u0924\u0947 \u0939\u0948\u0902! <\/p>\n<p>&nbsp;<\/p>\n<h2 style=\"text-align: center;\">\u090f\u0915 \u0938\u093e\u0925 \u092e\u093f\u0932\u0915\u0930 \u0939\u092e <span style=\"color: #008080;\">ECD<\/span> \u0916\u093c\u0924\u094d\u092e \u0915\u0930 \u0938\u0915\u0924\u0947 \u0939\u0948\u0902!<\/h2>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=&#8221;3_4,1_4&#8243; make_equal=&#8221;on&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;3_4&#8243; module_class=&#8221;ds-vertical-align&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;default&#8221; hover_enabled=&#8221;0&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<em><strong>\u090f\u0915 ECD \u0938\u093e\u092e\u0941\u0926\u093e\u092f\u093f\u0915 \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u091a\u0948\u0902\u092a\u093f\u092f\u0928 \u092c\u0928\u0947\u0902<\/strong><\/em><br \/>\n\u090f\u0915 ECD \u0938\u093e\u092e\u0941\u0926\u093e\u092f\u093f\u0915 \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u091a\u0948\u0902\u092a\u093f\u092f\u0928 \u0935\u0939 \u0938\u092e\u0930\u094d\u0925\u0915 \u0939\u094b\u0924\u093e \u0939\u0948 \u091c\u094b \u0905\u092a\u0928\u0947 \u0915\u094d\u0937\u0947\u0924\u094d\u0930 \u092e\u0947\u0902 \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u092c\u0922\u093c\u093e\u0928\u0947 \u0915\u0947 \u0932\u093f\u090f \u092a\u094d\u0930\u0924\u093f\u092c\u0926\u094d\u0927 \u0939\u094b\u0924\u093e \u0939\u0948\u0964 \u0907\u0938\u092e\u0947\u0902 \u0910\u0938\u0940 \u0915\u094b\u0908 \u092d\u0940 \u0917\u0924\u093f\u0935\u093f\u0927\u093f \u0936\u093e\u092e\u093f\u0932 \u0939\u094b \u0938\u0915\u0924\u0940 \u0939\u0948 \u091c\u094b Erdheim-Chester Disease \u0915\u0947 \u092c\u093e\u0930\u0947 \u092e\u0947\u0902 \u091c\u093e\u0928\u0915\u093e\u0930\u0940 \u0909\u0928 \u0932\u094b\u0917\u094b\u0902 \u0924\u0915 \u092a\u0939\u0941\u0901\u091a\u093e\u090f \u091c\u094b \u0907\u0938\u0938\u0947 \u092a\u0930\u093f\u091a\u093f\u0924 \u0928\u0939\u0940\u0902 \u0939\u094b \u0938\u0915\u0924\u0947 \u0939\u0948\u0902\u0964 \u0906\u092a \u091a\u093f\u0915\u093f\u0924\u094d\u0938\u093e \u092a\u0947\u0936\u0947\u0935\u0930\u094b\u0902 \u0914\u0930 \u0905\u0928\u094d\u092f \u0907\u091a\u094d\u091b\u0941\u0915 \u092f\u093e ECD \u0915\u0947 \u092c\u093e\u0930\u0947 \u092e\u0947\u0902 \u091c\u093e\u0928\u0928\u0947 \u0935\u093e\u0932\u0947 \u0932\u094b\u0917\u094b\u0902 \u0915\u094b ECD \u092c\u094d\u0930\u094b\u0936\u0930 \u0926\u0947 \u0938\u0915\u0924\u0947 \u0939\u0948\u0902\u0964[\/et_pb_text][et_pb_button button_url=&#8221;https:\/\/www.erdheim-chester.org\/hi\/%e0%a4%ac%e0%a5%8d%e0%a4%b0%e0%a5%8b%e0%a4%b6%e0%a4%b0-%e0%a4%95%e0%a4%be-%e0%a4%85%e0%a4%a8%e0%a5%81%e0%a4%b0%e0%a5%8b%e0%a4%a7-%e0%a4%95%e0%a4%b0%e0%a5%87%e0%a4%82\/&#8221; button_text=&#8221;\u0905\u092a\u0928\u0947 \u092c\u094d\u0930\u094b\u0936\u0930 \u092f\u0939\u093e\u0901 \u092a\u094d\u0930\u093e\u092a\u094d\u0924 \u0915\u0930\u0947\u0902&#8221; _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;default&#8221; hover_enabled=&#8221;0&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;][\/et_pb_button][\/et_pb_column][et_pb_column type=&#8221;1_4&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_image src=&#8221;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/ECD-Champion-X-Background-300&#215;300-1.png&#8221; title_text=&#8221;ECD &#8211; \u091a\u0948\u0902\u092a\u093f\u092f\u0928-\u090f\u0915\u094d\u0938-\u092a\u0943\u0937\u094d\u0920\u092d\u0942\u092e\u093f-300&#215;300&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row admin_label=&#8221;\u092a\u0902\u0915\u094d\u0924\u093f&#8221; _builder_version=&#8221;4.16&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h5><em>\u0905\u092a\u0928\u0947 \u0938\u092e\u0941\u0926\u093e\u092f \u0915\u094b \u092d\u0940 \u0907\u0938\u092e\u0947\u0902 \u0936\u093e\u092e\u093f\u0932 \u0915\u0930\u0947\u0902!<\/em><\/h5>\n<ul>\n<li><strong>\u092f\u093e\u0930\u094d\u0921 \u0938\u093e\u0907\u0928\u094d\u0938<\/strong> &#8211; \u0915\u093f\u0938\u0940 \u0938\u094d\u0925\u093e\u0928\u0940\u092f \u092f\u093e \u0911\u0928\u0932\u093e\u0907\u0928 \u092a\u094d\u0930\u093f\u0902\u091f \u0936\u0949\u092a \u0938\u0947 \u200b\u200b\u0917\u094d\u0930\u093e\u092b\u093f\u0915 \u0932\u093e\u0928\u0947 \u0915\u093e \u0905\u0928\u0941\u0930\u094b\u0927 \u0915\u0930\u0947\u0902 \u0914\u0930 \u0905\u092a\u0928\u0947 \u092a\u0930\u093f\u0935\u093e\u0930 \u0914\u0930 \u0926\u094b\u0938\u094d\u0924\u094b\u0902 \u0938\u0947 \u0915\u0939\u0947\u0902 \u0915\u093f \u0935\u0947 \u0909\u0928\u094d\u0939\u0947\u0902 \u0905\u092a\u0928\u0947 \u0906\u0938-\u092a\u0921\u093c\u094b\u0938 \u092e\u0947\u0902 \u092b\u0948\u0932\u093e\u090f\u0902!<\/li>\n<li><strong>\u0930\u093f\u092c\u0928<\/strong> &#8211; \u0939\u092e\u093e\u0930\u0947 \u091c\u093c\u0947\u092c\u0930\u093e \u092a\u094d\u0930\u093f\u0902\u091f \u0930\u093f\u092c\u0928 \u0911\u0928\u0932\u093e\u0907\u0928 \u092f\u093e \u0905\u092a\u0928\u0947 \u0938\u094d\u0925\u093e\u0928\u0940\u092f \u0936\u093f\u0932\u094d\u092a \u0938\u094d\u091f\u094b\u0930 \u092a\u0930 \u092a\u093e\u090f\u0901\u0964 \u0905\u092a\u0928\u0940 \u0926\u0947\u0916\u092d\u093e\u0932 \u091f\u0940\u092e\u094b\u0902, \u0926\u094b\u0938\u094d\u0924\u094b\u0902, \u092a\u0921\u093c\u094b\u0938\u093f\u092f\u094b\u0902 \u092f\u093e \u0938\u0939\u0915\u0930\u094d\u092e\u093f\u092f\u094b\u0902 \u0915\u0947 \u0932\u093f\u090f \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u0930\u093f\u092c\u0928 \u0932\u0948\u092a\u0932 \u092a\u093f\u0928 \u092c\u0928\u093e\u0928\u093e, ECD \u0915\u0947 \u092c\u093e\u0930\u0947 \u092e\u0947\u0902 \u0932\u094b\u0917\u094b\u0902 \u0915\u094b \u092c\u0924\u093e\u0928\u0947 \u0915\u0947 \u0932\u093f\u090f \u0905\u092a\u0928\u0947 \u0938\u093e\u0925\u093f\u092f\u094b\u0902 \u0915\u0947 \u0938\u093e\u0925 \u0915\u0941\u091b \u0938\u093e\u091d\u093e \u0915\u0930\u0928\u0947 \u0915\u093e \u090f\u0915 \u0906\u0938\u093e\u0928 \u0924\u0930\u0940\u0915\u093e \u0939\u0948\u0964 \u0905\u0917\u0930 \u0906\u092a\u0915\u094b \u092c\u0921\u093c\u0947 \u0930\u093f\u092c\u0928 \u092e\u093f\u0932\u0924\u0947 \u0939\u0948\u0902, \u0924\u094b \u092f\u0947 \u0906\u092a\u0915\u0947 \u092f\u093e\u0930\u094d\u0921 \u0938\u093e\u0907\u0928 \u092a\u0930 \u092c\u0939\u0941\u0924 \u0905\u091a\u094d\u091b\u0947 \u0932\u0917\u0947\u0902\u0917\u0947!  <\/li>\n<li>ECD \u0915\u0947 \u0938\u093e\u0925 <strong>\u0905\u092a\u0928\u0947 \u091c\u0940\u0935\u0928 \u0915\u0947 \u092c\u093e\u0930\u0947 \u092e\u0947\u0902 \u0938\u094d\u0925\u093e\u0928\u0940\u092f \u0938\u092e\u093e\u091a\u093e\u0930\u094b\u0902 \u0915\u0947 \u0938\u093e\u0925 \u0938\u093e\u091d\u093e \u0915\u0930\u0947\u0902<\/strong> &#8211; \u0906\u092a\u0915\u093e \u0938\u092e\u093e\u091a\u093e\u0930 \u0906\u0909\u091f\u0932\u0947\u091f ECD \u0932\u094b\u0917\u094b\u0902 \u0924\u0915 \u092a\u0939\u0941\u0901\u091a\u093e\u0928\u0947 \u0915\u0947 \u0932\u093f\u090f \u090f\u0915 \u092c\u0947\u0939\u0924\u0930\u0940\u0928 \u0938\u0902\u0938\u093e\u0927\u0928 \u0939\u094b\u0917\u093e\u0964 \u091c\u0932\u094d\u0926 \u0939\u0940 \u090f\u0915 \u0935\u094d\u092f\u0915\u094d\u0924\u093f\u0917\u0924 \u0915\u0949\u0932 \u092f\u093e \u0938\u094d\u091f\u0942\u0921\u093f\u092f\u094b \u0915\u093e \u0926\u094c\u0930\u093e \u0906\u092a\u0915\u094b \u0938\u093f\u0924\u0902\u092c\u0930 \u0915\u0947 \u0932\u093f\u090f \u0932\u093e\u0907\u0935 \u0938\u094d\u092a\u0949\u091f \u092a\u093e\u0928\u0947 \u092e\u0947\u0902 \u092e\u0926\u0926 \u0915\u0930 \u0938\u0915\u0924\u093e \u0939\u0948 &#8211; \u091c\u093f\u0938\u0938\u0947 \u0906\u092a\u0915\u094b \u0924\u0948\u092f\u093e\u0930\u0940 \u0915\u0947 \u0932\u093f\u090f \u092a\u0930\u094d\u092f\u093e\u092a\u094d\u0924 \u0938\u092e\u092f \u092e\u093f\u0932 \u091c\u093e\u090f\u0917\u093e! <\/li>\n<\/ul>\n<h3><strong><img loading=\"lazy\" decoding=\"async\" class=\"alignright size-thumbnail wp-image-20255\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2022\/07\/super-shirt-150x150.jpg\" alt=\"\" width=\"150\" height=\"150\"><\/strong><\/h3>\n<h5><em>\u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u0917\u093f\u092f\u0930<\/em><\/h5>\n<p><a href=\"https:\/\/www.bonfire.com\/event\/ecd-support-squad\/?eType=EmailBlastContent&amp;eId=e5c90fc5-2da7-40d0-98b7-6e3085fed033\" target=\"_blank\" rel=\"noopener\"><strong>\u0928\u0908 ECD \u0938\u0941\u092a\u0930 \u0938\u092a\u094b\u0930\u094d\u091f \u0938\u094d\u0915\u094d\u0935\u093e\u0921 \u0936\u0930\u094d\u091f \u092a\u094d\u0930\u093e\u092a\u094d\u0924 \u0915\u0930\u0947\u0902!  <\/strong><br \/><\/a>\u0915\u0908 \u0938\u094d\u091f\u093e\u0907\u0932 \u0914\u0930 \u0930\u0902\u0917\u094b\u0902 \u092e\u0947\u0902 \u0938\u0947 \u091a\u0941\u0928\u0947\u0902\u0964 \u0936\u0930\u094d\u091f \u0915\u0940 \u092c\u093f\u0915\u094d\u0930\u0940 \u0938\u0947 \u0939\u094b\u0928\u0947 \u0935\u093e\u0932\u093e \u092e\u0941\u0928\u093e\u092b\u093e ECDGA \u0915\u094b \u091c\u093e\u0924\u093e \u0939\u0948! \u0905\u0902\u0924\u0930\u094d\u0930\u093e\u0937\u094d\u091f\u094d\u0930\u0940\u092f \u0936\u093f\u092a\u093f\u0902\u0917 \u0909\u092a\u0932\u092c\u094d\u0927 \u0939\u0948\u0964 \u0938\u0941\u091d\u093e\u0935: \u0915\u093f\u0938\u0940 \u0916\u0941\u0932\u0947 \u0905\u092d\u093f\u092f\u093e\u0928 \u0915\u0947 \u0926\u094c\u0930\u093e\u0928 \u0905\u092a\u0928\u093e \u0917\u093f\u092f\u0930 \u0916\u0930\u0940\u0926\u0928\u093e \u0938\u092c\u0938\u0947 \u0905\u091a\u094d\u091b\u093e \u0939\u0948, \u0935\u093f\u0935\u0930\u0923 \u0915\u0947 \u0932\u093f\u090f \u0939\u092e\u093e\u0930\u0940 \u091f\u0940\u092e \u0938\u0947 \u0938\u0902\u092a\u0930\u094d\u0915 \u0915\u0930\u0947\u0902\u0964   <\/p>\n<p>\u092f\u0939\u093e\u0902 \u0939\u092e\u093e\u0930\u0947 \u091f\u0940-\u0936\u0930\u094d\u091f \u0938\u094d\u091f\u094b\u0930 \u092a\u0930 \u091c\u093e\u090f\u0902: <a href=\"https:\/\/www.bonfire.com\/store\/ecd-global-alliance\/\" target=\"_blank\" rel=\"noopener\">https:\/\/www.bonfire.com\/store\/ecd-global-alliance\/<\/a> <a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2019\/03\/t-shirt.jpg\">.<\/a><\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h3><strong>\u0926\u0941\u0930\u094d\u0932\u092d \u0930\u094b\u0917 \u0926\u093f\u0935\u0938  <\/strong><\/h3>\n<p>\u0938\u092e\u0941\u0926\u093e\u092f \u092b\u0930\u0935\u0930\u0940 \u0915\u0947 \u0906\u0916\u093f\u0930\u0940 \u0926\u093f\u0928 \u0935\u093e\u0930\u094d\u0937\u093f\u0915 \u0926\u0941\u0930\u094d\u0932\u092d \u0930\u094b\u0917 \u0926\u093f\u0935\u0938 \u092e\u0947\u0902 \u092d\u0940 \u092d\u093e\u0917 \u0932\u0947\u0924\u093e \u0939\u0948\u0964 \u0906\u092a \u0907\u0928 \u0938\u092e\u092f\u094b\u0902 \u0915\u0947 \u0926\u094c\u0930\u093e\u0928 \u092f\u093e \u0938\u093e\u0932 \u0915\u0947 \u0915\u093f\u0938\u0940 \u092d\u0940 \u0938\u092e\u092f, \u0926\u0941\u0928\u093f\u092f\u093e \u092d\u0930 \u092e\u0947\u0902 Erdheim-Chester \u0930\u094b\u0917 \u092a\u0930\u093f\u0935\u093e\u0930\u094b\u0902 \u0915\u0947 \u0932\u093f\u090f \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u092b\u0948\u0932\u093e\u0915\u0930 \u0914\u0930 \u0938\u092e\u0930\u094d\u0925\u0928 \u091c\u0941\u091f\u093e\u0915\u0930 \u0935\u0948\u0936\u094d\u0935\u093f\u0915 \u092a\u094d\u0930\u092d\u093e\u0935 \u0921\u093e\u0932 \u0938\u0915\u0924\u0947 \u0939\u0948\u0902\u0964 \u0926\u0941\u0930\u094d\u0932\u092d \u0930\u094b\u0917 \u0926\u093f\u0935\u0938 \u092a\u094d\u0930\u0924\u094d\u092f\u0947\u0915 \u0935\u0930\u094d\u0937 \u092b\u0930\u0935\u0930\u0940 \u0915\u0947 \u0906\u0916\u093f\u0930\u0940 \u0926\u093f\u0928 \u092e\u0928\u093e\u092f\u093e \u091c\u093e\u0924\u093e \u0939\u0948\u0964 \u0926\u0941\u0930\u094d\u0932\u092d \u0930\u094b\u0917 \u0926\u093f\u0935\u0938 \u0915\u093e \u092e\u0941\u0916\u094d\u092f \u0909\u0926\u094d\u0926\u0947\u0936\u094d\u092f \u0906\u092e \u091c\u0928\u0924\u093e \u0914\u0930 \u0928\u093f\u0930\u094d\u0923\u092f\u0915\u0930\u094d\u0924\u093e\u0913\u0902 \u0915\u0947 \u092c\u0940\u091a \u0926\u0941\u0930\u094d\u0932\u092d \u0930\u094b\u0917\u094b\u0902 \u0914\u0930 \u0930\u094b\u0917\u093f\u092f\u094b\u0902 \u0915\u0947 \u091c\u0940\u0935\u0928 \u092a\u0930 \u0909\u0928\u0915\u0947 \u092a\u094d\u0930\u092d\u093e\u0935 \u0915\u0947 \u092c\u093e\u0930\u0947 \u092e\u0947\u0902 \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u092c\u0922\u093c\u093e\u0928\u093e \u0939\u0948\u0964   <\/p>\n<p>\u092f\u0939 \u0905\u092d\u093f\u092f\u093e\u0928 \u092e\u0941\u0916\u094d\u092f \u0930\u0942\u092a \u0938\u0947 \u0906\u092e \u091c\u0928\u0924\u093e \u0915\u094b \u0932\u0915\u094d\u0937\u094d\u092f \u0915\u0930\u0924\u093e \u0939\u0948 \u0924\u0925\u093e \u0928\u0940\u0924\u093f \u0928\u093f\u0930\u094d\u092e\u093e\u0924\u093e\u0913\u0902, \u0938\u093e\u0930\u094d\u0935\u091c\u0928\u093f\u0915 \u092a\u094d\u0930\u093e\u0927\u093f\u0915\u093e\u0930\u093f\u092f\u094b\u0902, \u0909\u0926\u094d\u092f\u094b\u0917 \u092a\u094d\u0930\u0924\u093f\u0928\u093f\u0927\u093f\u092f\u094b\u0902, \u0936\u094b\u0927\u0915\u0930\u094d\u0924\u093e\u0913\u0902, \u0938\u094d\u0935\u093e\u0938\u094d\u0925\u094d\u092f \u092a\u0947\u0936\u0947\u0935\u0930\u094b\u0902 \u0924\u0925\u093e \u0926\u0941\u0930\u094d\u0932\u092d \u0930\u094b\u0917\u094b\u0902 \u092e\u0947\u0902 \u0935\u093e\u0938\u094d\u0924\u0935\u093f\u0915 \u0930\u0941\u091a\u093f \u0930\u0916\u0928\u0947 \u0935\u093e\u0932\u0947 \u0938\u092d\u0940 \u0932\u094b\u0917\u094b\u0902 \u0915\u0947 \u092c\u0940\u091a \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u092c\u0922\u093c\u093e\u0928\u0947 \u0915\u093e \u092a\u094d\u0930\u092f\u093e\u0938 \u0915\u0930\u0924\u093e \u0939\u0948\u0964<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h3><strong>\u0915\u0948\u0938\u0947 \u0936\u093e\u092e\u093f\u0932 \u0939\u094b\u0902<\/strong><\/h3>\n<p>\u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u092c\u0922\u093c\u093e\u0928\u0947 \u0915\u0947 \u0932\u093f\u090f \u0906\u092a \u0915\u094d\u092f\u093e \u0915\u0930 \u0938\u0915\u0924\u0947 \u0939\u0948\u0902? \u091a\u093e\u0939\u0947 \u0906\u092a \u0939\u092e\u093e\u0930\u0947 \u0938\u0941\u091d\u093e\u0935\u094b\u0902 \u092e\u0947\u0902 \u0938\u0947 \u090f\u0915 \u092f\u093e \u0938\u092d\u0940 \u0915\u094b \u091a\u0941\u0928\u0947\u0902, \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u092c\u0922\u093c\u093e\u0928\u0947 \u0915\u0947 \u0932\u093f\u090f \u0915\u093f\u0938\u0940 \u0914\u0930 \u0915\u093e \u0907\u0902\u0924\u091c\u093c\u093e\u0930 \u0928 \u0915\u0930\u0947\u0902\u0964 \u0905\u0917\u0930 \u0906\u092a Erdheim-Chester \u0930\u094b\u0917 \u0938\u0947 \u092a\u0940\u0921\u093c\u093f\u0924 \u0915\u093f\u0938\u0940 \u0935\u094d\u092f\u0915\u094d\u0924\u093f \u0915\u0940 \u092a\u0930\u0935\u093e\u0939 \u0915\u0930\u0924\u0947 \u0939\u0948\u0902, \u0924\u094b \u0906\u092a \u0907\u0938 \u092c\u093e\u0930\u0947 \u092e\u0947\u0902 \u091c\u093e\u0928\u0915\u093e\u0930\u0940 \u092b\u0948\u0932\u093e\u0928\u0947 \u0915\u0947 \u0932\u093f\u090f \u0938\u092c\u0938\u0947 \u0905\u091a\u094d\u091b\u0947 \u0935\u0915\u0940\u0932 \u0939\u0948\u0902\u0964 ECD \u0915\u0947 \u0938\u093e\u0925 \u0905\u092a\u0928\u0947 \u0936\u0915\u094d\u0924\u093f\u0936\u093e\u0932\u0940 \u0905\u0928\u0941\u092d\u0935\u094b\u0902 \u0914\u0930 \u0915\u0928\u0947\u0915\u094d\u0936\u0928\u094b\u0902 \u0915\u094b \u0938\u093e\u091d\u093e \u0915\u0930\u0915\u0947, \u0906\u092a \u0930\u094b\u0917\u093f\u092f\u094b\u0902 \u0914\u0930 \u092a\u0930\u093f\u0935\u093e\u0930\u094b\u0902 \u0915\u0947 \u092d\u0935\u093f\u0937\u094d\u092f \u0915\u094b \u0909\u091c\u094d\u091c\u0935\u0932 \u092c\u0928\u093e\u0928\u0947 \u092e\u0947\u0902 \u092e\u0926\u0926 \u0915\u0930\u0924\u0947 \u0939\u0948\u0902\u0964   <\/p>\n<p>&nbsp;<\/p>\n<h4>\u0905\u092a\u0928\u0940 \u0915\u0939\u093e\u0928\u0940 \u0938\u093e\u091d\u093e \u0915\u0930\u0947\u0902<\/h4>\n<ul>\n<li>\u0926\u0941\u0930\u094d\u0932\u092d \u0930\u094b\u0917 \u0935\u0915\u093e\u0932\u0924 \u092a\u094d\u0930\u0915\u093e\u0936\u0928\u094b\u0902 \u091c\u0948\u0938\u0947 <a href=\"https:\/\/globalgenes.org\/category\/insights\/patient_stories\/\" target=\"_blank\" rel=\"noopener noreferrer\">\u0930\u0947\u0905\u0930\u0921\u0947\u0932\u0940<\/a> \u0915\u0947 \u0932\u093f\u090f \u090f\u0915 \u0932\u0947\u0916 \u0932\u093f\u0916\u0947\u0902\u0964<\/li>\n<li>\u0905\u092a\u0928\u0947 \u0938\u094d\u0925\u093e\u0928\u0940\u092f \u0938\u092e\u093e\u091a\u093e\u0930 \u092a\u0924\u094d\u0930, \u0930\u0947\u0921\u093f\u092f\u094b \u092f\u093e \u091f\u0947\u0932\u0940\u0935\u093f\u091c\u0928 \u0938\u094d\u091f\u0947\u0936\u0928 \u0915\u0947 \u0938\u0902\u092a\u093e\u0926\u0915 \u0915\u094b \u0932\u093f\u0916\u0947\u0902 \u0915\u093f ECD \u0906\u092a\u0915\u094b \u0914\u0930 \u0906\u092a\u0915\u0947 \u092a\u0930\u093f\u0935\u093e\u0930 \u0915\u094b \u0915\u093f\u0938 \u092a\u094d\u0930\u0915\u093e\u0930 \u092a\u094d\u0930\u092d\u093e\u0935\u093f\u0924 \u0915\u093f\u092f\u093e \u0939\u0948\u0964<\/li>\n<li>\u0905\u092a\u0928\u0947 \u0905\u0928\u0941\u092d\u0935 \u092e\u093f\u0924\u094d\u0930\u094b\u0902, \u092a\u0930\u093f\u0935\u093e\u0930 \u0914\u0930 \u0938\u092e\u0941\u0926\u093e\u092f \u0915\u0947 \u0938\u0926\u0938\u094d\u092f\u094b\u0902 \u0915\u094b \u092c\u0924\u093e\u090f\u0902\u0964<\/li>\n<li>\u092f\u0942\u091f\u094d\u092f\u0942\u092c \u092f\u093e \u0938\u094b\u0936\u0932 \u0938\u093e\u0907\u091f\u094d\u0938 \u0915\u0947 \u0932\u093f\u090f \u090f\u0915 \u0935\u0940\u0921\u093f\u092f\u094b \u092c\u0928\u093e\u090f\u0902 \u091c\u093f\u0938\u092e\u0947\u0902 \u0926\u0941\u0928\u093f\u092f\u093e \u0915\u094b \u092c\u0924\u093e\u090f\u0902 \u0915\u093f ECD \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u0906\u092a\u0915\u0947 \u0932\u093f\u090f \u0915\u094d\u092f\u094b\u0902 \u092e\u0939\u0924\u094d\u0935\u092a\u0942\u0930\u094d\u0923 \u0939\u0948\u0964<\/li>\n<li>\u0905\u092a\u0928\u0947 \u0908\u092e\u0947\u0932 \u0939\u0938\u094d\u0924\u093e\u0915\u094d\u0937\u0930 \u0915\u093e \u0909\u092a\u092f\u094b\u0917 \u0915\u093f\u0938\u0940 \u0935\u094d\u092f\u0915\u094d\u0924\u093f\u0917\u0924 \u092c\u094d\u0932\u0949\u0917 \u092f\u093e ECDGA \u0935\u0947\u092c\u0938\u093e\u0907\u091f \u0938\u0947 \u0939\u093e\u0907\u092a\u0930\u0932\u093f\u0902\u0915 \u0915\u0930\u0928\u0947 \u0915\u0947 \u0905\u0935\u0938\u0930 \u0915\u0947 \u0930\u0942\u092a \u092e\u0947\u0902 \u0915\u0930\u0947\u0902, \u091c\u093f\u0938\u0938\u0947 ECD \u0915\u0947 \u092c\u093e\u0930\u0947 \u092e\u0947\u0902 \u0906\u092a\u0915\u0947 \u0928\u0947\u091f\u0935\u0930\u094d\u0915 \u0915\u093e \u091c\u094d\u091e\u093e\u0928 \u092c\u0922\u093c \u0938\u0915\u0947\u0964<\/li>\n<li>\u0905\u0928\u094d\u092f ECD \u0930\u094b\u0917\u0940 \u0915\u0939\u093e\u0928\u093f\u092f\u093e\u0902 <a href=\"https:\/\/www.erdheim-chester.org\/news-printed-stories\/\">\u092f\u0939\u093e\u0902<\/a> \u092a\u093e\u090f\u0902\u0964<\/li>\n<\/ul>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;||6px|||&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h4>\u0938\u093e\u092e\u093e\u091c\u093f\u0915 \u092c\u0928\u0947\u0902<\/h4>\n<p>[\/et_pb_text][et_pb_social_media_follow _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;||13px|||&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_social_media_follow_network social_network=&#8221;facebook&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#3b5998&#8243; global_colors_info=&#8221;{}&#8221; follow_button=&#8221;off&#8221; url_new_window=&#8221;on&#8221;]facebook[\/et_pb_social_media_follow_network][et_pb_social_media_follow_network social_network=&#8221;twitter&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#000000&#8243; global_colors_info=&#8221;{}&#8221; follow_button=&#8221;off&#8221; url_new_window=&#8221;on&#8221;]X[\/et_pb_social_media_follow_network][et_pb_social_media_follow_network social_network=&#8221;instagram&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#ea2c59&#8243; global_colors_info=&#8221;{}&#8221; follow_button=&#8221;off&#8221; url_new_window=&#8221;on&#8221;]instagram[\/et_pb_social_media_follow_network][et_pb_social_media_follow_network social_network=&#8221;linkedin&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#007bb6&#8243; global_colors_info=&#8221;{}&#8221; follow_button=&#8221;off&#8221; url_new_window=&#8221;on&#8221;]linkedin[\/et_pb_social_media_follow_network][\/et_pb_social_media_follow][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<ul>\n<li>\u0939\u092e\u093e\u0930\u0947 \u0915\u093f\u0938\u0940 \u092d\u0940 \u092e\u0940\u0921\u093f\u092f\u093e \u092a\u0947\u091c \u092a\u0930 \u0939\u092e\u0947\u0902 \u092b\u0949\u0932\u094b \u0915\u0930\u0947\u0902 \u0914\u0930 \u092c\u093e\u0924\u091a\u0940\u0924 \u092e\u0947\u0902 \u0936\u093e\u092e\u093f\u0932 \u0939\u094b\u0902!<\/li>\n<li>#endECD #ECDAwareness \u0939\u0948\u0936\u091f\u0948\u0917 \u0915\u093e \u0909\u092a\u092f\u094b\u0917 \u0915\u0930\u0915\u0947 \u0905\u092a\u0928\u0940 \u0938\u094b\u0936\u0932 \u092e\u0940\u0921\u093f\u092f\u093e \u0938\u093e\u0907\u091f\u094b\u0902 \u092a\u0930 \u091c\u093e\u0928\u0915\u093e\u0930\u0940 \u0938\u093e\u091d\u093e \u0915\u0930\u0947\u0902\u0964<\/li>\n<\/ul>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;||3px|||&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h4>\u090f\u0915 \u0907\u0935\u0947\u0902\u091f \u0915\u0940 \u092e\u0947\u091c\u092c\u093e\u0928\u0940 \u0915\u0930\u0947\u0902<\/h4>\n<p>ECD \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u0938\u092a\u094d\u0924\u093e\u0939, <a href=\"https:\/\/www.rarediseaseday.org\/\" target=\"_blank\" rel=\"noopener noreferrer\">\u0926\u0941\u0930\u094d\u0932\u092d \u0930\u094b\u0917 \u0926\u093f\u0935\u0938<\/a> \u0914\u0930 <a href=\"https:\/\/www.worldcancerday.org\/?gclid=EAIaIQobChMIjLWI7J2B8gIVVP3jBx3zpwwfEAAYASAAEgJDB_D_BwE\" target=\"_blank\" rel=\"noopener noreferrer\">\u0935\u093f\u0936\u094d\u0935 \u0915\u0948\u0902\u0938\u0930 \u0926\u093f\u0935\u0938<\/a> \u0938\u092d\u0940 \u0906\u092a\u0915\u0947 \u092e\u093f\u0924\u094d\u0930\u094b\u0902 \u0914\u0930 \u092a\u0930\u093f\u0935\u093e\u0930\u094b\u0902 \u0915\u094b ECD \u0915\u0947 \u092e\u0939\u0924\u094d\u0935 \u092a\u0930 \u091a\u0930\u094d\u091a\u093e \u0915\u0930\u0928\u0947 \u0915\u0947 \u0932\u093f\u090f \u090f\u0915 \u0938\u093e\u0925 \u0932\u093e\u0928\u0947 \u0915\u0947 \u0932\u093f\u090f \u0936\u093e\u0928\u0926\u093e\u0930 \u092c\u0939\u093e\u0928\u0947 \u0939\u0948\u0902\u0964 \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u092a\u0948\u0926\u093e \u0915\u0930\u0928\u0947 \u0914\u0930 ECD \u0905\u0928\u0941\u0938\u0902\u0927\u093e\u0928 \u0915\u0947 \u0932\u093f\u090f \u0938\u0902\u092d\u093e\u0935\u093f\u0924 \u0930\u0942\u092a \u0938\u0947 \u0927\u0928 \u091c\u0941\u091f\u093e\u0928\u0947 \u0915\u0947 \u0932\u093f\u090f \u0915\u0908 \u0924\u0930\u0940\u0915\u0947 \u0914\u0930 \u092a\u094d\u0930\u0915\u093e\u0930 \u0915\u0940 \u0917\u0924\u093f\u0935\u093f\u0927\u093f\u092f\u093e\u0901 \u0906\u092f\u094b\u091c\u093f\u0924 \u0915\u0940 \u091c\u093e \u0938\u0915\u0924\u0940 \u0939\u0948\u0902\u0964 \u092f\u0926\u093f \u0906\u092a \u0915\u093f\u0938\u0940 \u0915\u093e\u0930\u094d\u092f\u0915\u094d\u0930\u092e \u0915\u0940 \u092e\u0947\u091c\u092c\u093e\u0928\u0940 \u0915\u0930\u0928\u0947 \u0915\u0940 \u092f\u094b\u091c\u0928\u093e \u092c\u0928\u093e \u0930\u0939\u0947 \u0939\u0948\u0902, \u0924\u094b \u0938\u0939\u093e\u092f\u0924\u093e \u092f\u093e \u092a\u094d\u0930\u0936\u094d\u0928\u094b\u0902 \u0915\u0947 \u0932\u093f\u090f \u0939\u092e\u0938\u0947 \u0938\u0902\u092a\u0930\u094d\u0915 \u0915\u0930\u0947\u0902\u0964 \u0915\u0943\u092a\u092f\u093e \u0926\u093e\u0928 ECD \u0917\u094d\u0932\u094b\u092c\u0932 \u0905\u0932\u093e\u092f\u0902\u0938, \u092a\u0940\u0913 775, \u0921\u0947\u0930\u093f\u0921\u0930, \u090f\u0932\u090f 70634 \u092f\u0942\u090f\u0938\u090f \u0915\u094b \u092d\u0947\u091c\u0947\u0902 \u092f\u093e <a href=\"https:\/\/secure.qgiv.com\/for\/erdheim-chesterdiseaseglobalalliance\" target=\"_blank\" rel=\"noopener\">\u092f\u0939\u093e\u0901<\/a> \u091c\u093e\u090f\u0901\u0964   <\/p>\n<p>\u0939\u092e\u0947\u0902 \u092c\u0924\u093e\u090f\u0902 \u0915\u093f \u0906\u092a\u0928\u0947 ECD \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u0915\u0947 \u0932\u093f\u090f \u0915\u094d\u092f\u093e \u092f\u094b\u091c\u0928\u093e \u092c\u0928\u093e\u0908 \u0939\u0948! \u0926\u0942\u0938\u0930\u094b\u0902 \u0915\u094b \u0907\u0938 \u092c\u093e\u0924 \u0915\u094b \u092b\u0948\u0932\u093e\u0928\u0947 \u092e\u0947\u0902 \u092e\u0926\u0926 \u0915\u0930\u0928\u0947 \u0915\u0947 \u0932\u093f\u090f \u0906\u092e\u0902\u0924\u094d\u0930\u093f\u0924 \u0915\u0930\u0947\u0902 \u0914\u0930 \u0926\u0942\u0938\u0930\u094b\u0902 \u0915\u094b \u0905\u092a\u0928\u0947 \u0938\u092e\u0941\u0926\u093e\u092f \u092e\u0947\u0902 \u0936\u093e\u092e\u093f\u0932 \u0939\u094b\u0928\u0947 \u0915\u0947 \u0932\u093f\u090f \u092a\u094d\u0930\u0947\u0930\u093f\u0924 \u0915\u0930\u0947\u0902\u0964 \u092f\u0939\u093e\u0901 \u0915\u0941\u091b \u0915\u093e\u0930\u094d\u092f\u0915\u094d\u0930\u092e \u0914\u0930 \u0917\u0924\u093f\u0935\u093f\u0927\u093f \u0935\u093f\u091a\u093e\u0930 \u0926\u093f\u090f \u0917\u090f \u0939\u0948\u0902:  <\/p>\n<ul>\n<li>\u090f\u0915 \u091c\u093e\u0928\u0915\u093e\u0930\u0940\u092a\u0942\u0930\u094d\u0923 \u0935\u094d\u092f\u093e\u0916\u094d\u092f\u093e\u0928 \u0915\u093e \u0906\u092f\u094b\u091c\u0928 \u0915\u0930\u0947\u0902<\/li>\n<li>\u0938\u0930\u0915\u093e\u0930\u0940 \u0938\u0939\u093e\u092f\u0924\u093e \u092a\u094d\u0930\u093e\u092a\u094d\u0924 \u092e\u0947\u0921\u093f\u0915\u0932 \u0938\u094d\u0915\u0942\u0932\u094b\u0902 \u0915\u0947 \u0932\u093f\u090f \u0936\u093f\u0915\u094d\u0937\u093e \u092a\u0930 \u091a\u0930\u094d\u091a\u093e \u0915\u0930\u0928\u0947 \u0915\u0947 \u0932\u093f\u090f \u0938\u094d\u0925\u093e\u0928\u0940\u092f \u092f\u093e \u0930\u093e\u0937\u094d\u091f\u094d\u0930\u0940\u092f \u092a\u094d\u0930\u093e\u0927\u093f\u0915\u093e\u0930\u093f\u092f\u094b\u0902 \u0938\u0947 \u092e\u093f\u0932\u0947\u0902<\/li>\n<li>\u0915\u093f\u0938\u0940 \u0938\u094d\u0925\u093e\u0928\u0940\u092f \u0938\u094d\u0915\u0942\u0932 \u092f\u093e \u0905\u0938\u094d\u092a\u0924\u093e\u0932 \u092e\u0947\u0902 \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u092a\u094d\u0930\u0926\u0930\u094d\u0936\u0928 \u0915\u093e \u0906\u092f\u094b\u091c\u0928 \u0915\u0930\u0947\u0902<\/li>\n<li>\u0938\u094d\u0925\u093e\u0928\u0940\u092f \u0938\u094d\u0915\u0942\u0932 \u092e\u0947\u0902 ECD \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u0932\u093e\u0928\u093e<\/li>\n<li>\u092e\u094c\u0928 \u0928\u0940\u0932\u093e\u092e\u0940, \u092c\u0947\u0915 \u0938\u0947\u0932, \u092d\u094b\u091c\u0928-\u0914\u0930-\u0926\u093e\u0928, \u092f\u093e \u090f\u0925\u0932\u0947\u091f\u093f\u0915 \u0915\u093e\u0930\u094d\u092f\u0915\u094d\u0930\u092e \u0915\u0940 \u092e\u0947\u091c\u092c\u093e\u0928\u0940 \u0915\u0930\u0947\u0902<\/li>\n<li>\u0905\u092a\u0928\u0947 \u0928\u091c\u093c\u0926\u0940\u0915 \u0915\u093f\u0938\u0940 \u0915\u093e\u0930\u094d\u092f\u0915\u094d\u0930\u092e \u092e\u0947\u0902 \u092d\u093e\u0917 \u0932\u0947\u0902<\/li>\n<li>\u0905\u0928\u094d\u092f <a href=\"https:\/\/www.erdheim-chester.org\/hi\/%e0%a4%a7%e0%a4%a8-%e0%a4%9c%e0%a5%81%e0%a4%9f%e0%a4%be%e0%a4%a8%e0%a5%87-%e0%a4%b5%e0%a4%be%e0%a4%b2%e0%a5%8b%e0%a4%82-%e0%a4%95%e0%a5%80-%e0%a4%ae%e0%a5%87%e0%a4%9c%e0%a4%ac%e0%a4%be%e0%a4%a8\/\">\u0927\u0928 \u0909\u0917\u093e\u0939\u0928\u0947 \u0915\u0947 \u0935\u093f\u091a\u093e\u0930<\/a> \u0914\u0930 \u0938\u0902\u0938\u093e\u0927\u0928<\/li>\n<\/ul>\n<h4>\u0936\u093f\u0915\u094d\u0937\u093f\u0924<\/h4>\n<p>\u0906\u092a\u0915\u0947 \u0907\u0932\u093e\u091c \u0915\u0930\u0928\u0947 \u0935\u093e\u0932\u0947 \u091a\u093f\u0915\u093f\u0924\u094d\u0938\u0915 \u0915\u094b Erdheim-Chester Disease \u0915\u0947 \u092c\u093e\u0930\u0947 \u092e\u0947\u0902 \u091c\u093e\u0928\u0915\u093e\u0930\u0940 \u0939\u094b \u0938\u0915\u0924\u0940 \u0939\u0948, \u0932\u0947\u0915\u093f\u0928 \u0905\u0938\u094d\u092a\u0924\u093e\u0932 \u0915\u0947 \u092c\u093e\u0915\u0940 \u0915\u0930\u094d\u092e\u091a\u093e\u0930\u093f\u092f\u094b\u0902 \u0915\u093e \u0915\u094d\u092f\u093e? \u092a\u0942\u091b\u0947\u0902 \u0915\u093f \u0915\u094d\u092f\u093e \u0906\u092a \u092a\u0947\u0936\u0947\u0935\u0930 \u0938\u0902\u091a\u093e\u0930 \u0915\u094d\u0937\u0947\u0924\u094d\u0930 \u092e\u0947\u0902 \u091a\u093f\u0915\u093f\u0924\u094d\u0938\u0915 \u092c\u094d\u0930\u094b\u0936\u0930 \u091b\u094b\u0921\u093c \u0938\u0915\u0924\u0947 \u0939\u0948\u0902\u0964 <\/p>\n<p>[\/et_pb_text][et_pb_button button_url=&#8221;https:\/\/www.erdheim-chester.org\/hi\/%e0%a4%ac%e0%a5%8d%e0%a4%b0%e0%a5%8b%e0%a4%b6%e0%a4%b0-%e0%a4%95%e0%a4%be-%e0%a4%85%e0%a4%a8%e0%a5%81%e0%a4%b0%e0%a5%8b%e0%a4%a7-%e0%a4%95%e0%a4%b0%e0%a5%87%e0%a4%82\/&#8221; button_text=&#8221;\u092c\u094d\u0930\u094b\u0936\u0930 \u0915\u093e \u0905\u0928\u0941\u0930\u094b\u0927 \u0915\u0930\u0947\u0902&#8221; _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;default&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_button][et_pb_text _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h4>\u0938\u094d\u0935\u092f\u0902\u0938\u0947\u0935\u0915<\/h4>\n<p>ECDGA \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u092c\u0922\u093c\u093e\u0928\u0947 \u092e\u0947\u0902 \u092e\u0926\u0926 \u0915\u0930\u0947\u0902, \u0907\u0938\u0915\u0947 \u0932\u093f\u090f \u0906\u092a \u0939\u092e\u093e\u0930\u0947 \u0915\u093f\u0938\u0940 \u092d\u0940 \u091a\u0932 \u0930\u0939\u0947 \u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u092a\u094d\u0930\u094b\u091c\u0947\u0915\u094d\u091f \u092e\u0947\u0902 \u0905\u092a\u0928\u093e \u0938\u092e\u092f \u0926\u0947 \u0938\u0915\u0924\u0947 \u0939\u0948\u0902 &#8211; \u091c\u0948\u0938\u0947 ECD \u092a\u0930 \u092e\u0947\u0921\u093f\u0915\u0932 \u092a\u094d\u0930\u0947\u091c\u0947\u0902\u091f\u0947\u0936\u0928 \u0915\u094b \u0938\u092e\u0928\u094d\u0935\u093f\u0924 \u0915\u0930\u0928\u0947 \u0915\u0947 \u0932\u093f\u090f \u091a\u093f\u0915\u093f\u0924\u094d\u0938\u0915\u094b\u0902 \u0938\u0947 \u0938\u0902\u092a\u0930\u094d\u0915 \u0915\u0930\u0928\u093e, ECD \u0935\u0940\u0921\u093f\u092f\u094b \u0915\u0947 \u0932\u093f\u090f \u0938\u092c\u091f\u093e\u0907\u091f\u0932\u093f\u0902\u0917 \u0938\u0902\u092a\u093e\u0926\u093f\u0924 \u0915\u0930\u0928\u093e, \u092f\u093e \u0935\u0948\u0936\u094d\u0935\u093f\u0915 ECD Facebook \u092a\u0947\u091c \u0905\u092a\u0921\u0947\u091f \u0915\u0930\u0928\u093e\u0964 <a href=\"https:\/\/www.erdheim-chester.org\/hi\/%e0%a4%b8%e0%a5%8d%e0%a4%b5%e0%a4%af%e0%a4%82%e0%a4%b8%e0%a5%87%e0%a4%b5%e0%a4%95-%e0%a4%ab%e0%a5%89%e0%a4%b0%e0%a5%8d%e0%a4%ae\/\">\u0938\u094d\u0935\u092f\u0902\u0938\u0947\u0935\u0940<\/a> \u0905\u0935\u0938\u0930\u094b\u0902 \u0915\u0947 \u092c\u093e\u0930\u0947 \u092e\u0947\u0902 \u0939\u092e\u0938\u0947 \u0938\u0902\u092a\u0930\u094d\u0915 \u0915\u0930\u0947\u0902\u0964 <\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#F2F2F2&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>\u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u0938\u0902\u0938\u093e\u0927\u0928<\/h2>\n<h4>\u091c\u093e\u0917\u0930\u0942\u0915\u0924\u093e \u092c\u0922\u093c\u093e\u0928\u0947 \u0915\u0947 \u0932\u093f\u090f \u092f\u0939\u093e\u0902 \u0915\u0941\u091b \u092c\u0947\u0939\u0924\u0930\u0940\u0928 \u0938\u0902\u0938\u093e\u0927\u0928 \u0926\u093f\u090f \u0917\u090f \u0939\u0948\u0902\u0964<\/h4>\n<p>\u0905\u092a\u0928\u0947 \u0938\u092e\u0941\u0926\u093e\u092f, \u092e\u093f\u0924\u094d\u0930\u094b\u0902, \u092a\u0930\u093f\u0935\u093e\u0930, \u0938\u094d\u0925\u093e\u0928\u0940\u092f \u091a\u093f\u0915\u093f\u0924\u094d\u0938\u093e \u0915\u093e\u0930\u094d\u092f\u093e\u0932\u092f\u094b\u0902 \u0914\u0930 \u0905\u0938\u094d\u092a\u0924\u093e\u0932\u094b\u0902 \u0924\u0915 \u0905\u092a\u0928\u0940 \u092c\u093e\u0924 \u092a\u0939\u0941\u0901\u091a\u093e\u0928\u0947 \u0915\u0947 \u0932\u093f\u090f \u092f\u0939\u093e\u0901 \u0915\u0941\u091b \u092c\u0947\u0939\u0924\u0930\u0940\u0928 \u0938\u0902\u0938\u093e\u0927\u0928 \u0926\u093f\u090f \u0917\u090f \u0939\u0948\u0902\u0964 \u0906\u092a\u0915\u0940 \u092e\u0926\u0926 \u0915\u0947 \u0932\u093f\u090f \u0927\u0928\u094d\u092f\u0935\u093e\u0926! <\/p>\n\n<table id=\"tablepress-30\" class=\"tablepress tablepress-id-30\">\n<thead>\n<tr class=\"row-1\">\n\t<th class=\"column-1\">Resource<\/th><th class=\"column-2\">Purpose\/Uses<\/th>\n<\/tr>\n<\/thead>\n<tbody class=\"row-striping row-hover\">\n<tr class=\"row-2\">\n\t<td class=\"column-1\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2020\/02\/2018-Printable-Fact-Cards.pdf\" target=\"_blank\">ECD Fact Cards<\/a><\/td><td class=\"column-2\">These cards give a short description of the disease and also list the website address. These are formatted to print in business card format.<\/td>\n<\/tr>\n<tr class=\"row-3\">\n\t<td class=\"column-1\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2019\/10\/2019-General-Fact-Flyer-FINAL.pdf\" target=\"_blank\">General Fact Flyer<\/a><\/td><td class=\"column-2\">This informational flyer is easy to print and can be used to educate any population about ECD year-round.<\/td>\n<\/tr>\n<tr class=\"row-4\">\n\t<td class=\"column-1\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2020\/09\/2020-AW-flyer.pdf\" target=\"_blank\">2020 Awareness Week Flyer<\/a><\/td><td class=\"column-2\">Print this flyer to post on your community bulletin boards or email a copy to medical institutions, friends, and family.<\/td>\n<\/tr>\n<tr class=\"row-5\">\n\t<td class=\"column-1\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2017\/05\/ECD_Shirt-Pocket_Guide-2017.pdf\" target=\"_blank\">Informational Guide 4.5\u201dx 9.5\u201d<\/a><\/td><td class=\"column-2\">This double-sided document is a great fact list to add to your awareness campaign.  This size document fits easily into a man\u2019s shirt pocket, making it easier to hold onto.<br \/>\n<br \/>\n(Fits in men\u2019s shirt pocket.)<\/td>\n<\/tr>\n<tr class=\"row-6\">\n\t<td class=\"column-1\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2017\/09\/2017-ECD-Awareness-Week-LA-Proclamation.pdf\" target=\"_blank\">Proclamation Template<\/a><br \/>\n<a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2017\/05\/Proclamation-and-Cover-Letter_2017_Template.pdf\" target=\"_blank\">Cover Letter<\/a><\/td><td class=\"column-2\">Use these templates to submit a request to your local city or state legislator to request the proclamation of  ECD Awareness Week.<\/td>\n<\/tr>\n<tr class=\"row-7\">\n\t<td class=\"column-1\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2020\/08\/2020-ECD-Medical-Brochure.pdf\" target=\"_blank\">ECD Medical Brochure<\/a><\/td><td class=\"column-2\">Raise physician awareness with this brochure.  Bring this pamphlet with you to all medical appointments, ECD-related or otherwise.<\/td>\n<\/tr>\n<tr class=\"row-8\">\n\t<td class=\"column-1\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2020\/07\/2020-PATIENT-Brochure.pdf\" target=\"_blank\">General Brochure<\/a><\/td><td class=\"column-2\">Share information about this disease and the organization with your friends, family, and community.<\/td>\n<\/tr>\n<tr class=\"row-9\">\n\t<td class=\"column-1\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2016\/03\/Letter-to-Doctor_Template_FINAL.docx\" target=\"_blank\">Letter to Your Doctor Template<\/a><\/td><td class=\"column-2\">Did your journey start out with a doctor that was unable to diagnose your ECD?  Write them a letter to give an update and offer education about your disease.<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<!-- #tablepress-30 from cache -->\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#35A4BB&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; text_text_color=&#8221;#FFFFFF&#8221; header_2_text_color=&#8221;#FFFFFF&#8221; text_orientation=&#8221;center&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>&#8220;\u0935\u0939 \u092a\u0930\u093f\u0935\u0930\u094d\u0924\u0928 \u0938\u094d\u0935\u092f\u0902 \u092c\u0928\u0947\u0902 \u091c\u094b \u0906\u092a \u0926\u0941\u0928\u093f\u092f\u093e \u092e\u0947\u0902 \u0926\u0947\u0916\u0928\u093e \u091a\u093e\u0939\u0924\u0947 \u0939\u0948\u0902&#8230;&#8221;<\/h2>\n<p>-\u092e\u0939\u093e\u0924\u094d\u092e\u093e \u0917\u093e\u0902\u0927\u0940<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>[et_pb_dmb_breadcrumbs _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; body_text_color=&#8221;#FFFFFF&#8221; body_font_size=&#8221;12px&#8221; link_text_color=&#8221;#35A4BB&#8221; custom_margin=&#8221;||5px||false|false&#8221; custom_padding=&#8221;||0px||false|false&#8221; body_font_size_tablet=&#8221;12px&#8221; body_font_size_phone=&#8221;10px&#8221; body_font_size_last_edited=&#8221;on|desktop&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_dmb_breadcrumbs]Erdheim-Chester \u0930\u094b\u0917 \u0915\u0947 \u092c\u093e\u0930\u0947 \u092e\u0947\u0902 \u0926\u0942\u0938\u0930\u094b\u0902 \u0915\u094b \u0936\u093f\u0915\u094d\u0937\u093f\u0924 \u0915\u0930\u0928\u0947 \u0915\u0947 \u0932\u093f\u090f ECD \u0917\u094d\u0932\u094b\u092c\u0932 \u090f\u0932\u093e\u092f\u0902\u0938 \u0914\u0930 \u0939\u092e\u093e\u0930\u0947 \u0939\u091c\u093e\u0930\u094b\u0902 \u0938\u093e\u092e\u0941\u0926\u093e\u092f\u093f\u0915 \u0938\u092e\u0930\u094d\u0925\u0915\u094b\u0902 [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":[],"cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-50801","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/pages\/50801","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/comments?post=50801"}],"version-history":[{"count":11,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/pages\/50801\/revisions"}],"predecessor-version":[{"id":130500,"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/pages\/50801\/revisions\/130500"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/hi\/wp-json\/wp\/v2\/media?parent=50801"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}