Vaccination Statement
The ECD medical community strongly encourages that COVID vaccinations be pursued by everyone. Conversations are advised between individuals and their medical teams about specific situations for ECD patients, and others with underlying health conditions that might be cause for a possible vaccine exception.
For more information about what people with cancer need to know about coronavirus and COVID-19, please see https://www.cancer.net/blog/2020-12/coronavirus-and-covid-19-what-people-with-cancer-need-know.
NCCN: Cancer and COVID-19 Vaccination
This information was authored by a group of ECD physicians specifically for the Erdheim-Chester Community. Posted on March 30, 2020.
If you are a patient and have not already taken this survey or have new information since your last submission, please submit this survey. Posted May 2020.
In May 2020, ninety-six (96) ECD patients from seven (7) different countries responded to the COVID-19 survey conducted by the ECD Global Alliance. See the results and summary. Posted June 30, 2020.
Do you still want to know more about COVID-19 and ECD? Here is a helpful article from a medical member of our community.
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