{"id":83709,"date":"2025-07-24T14:31:38","date_gmt":"2025-07-24T18:31:38","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=83709"},"modified":"2025-07-24T14:35:08","modified_gmt":"2025-07-24T18:35:08","slug":"%d7%94-ecdga-%d7%9e%d7%91%d7%a8%d7%9b%d7%aa-%d7%a2%d7%9c-%d7%a4%d7%aa%d7%99%d7%97%d7%aa%d7%95-%d7%a9%d7%9c-%d7%9e%d7%a8%d7%9b%d7%96-%d7%94%d7%98%d7%99%d7%a4%d7%95%d7%9c-%d7%94%d7%97%d7%93%d7%a9-%d7%91","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/he\/ecdga-welcomes-newest-care-center-in-london-uk\/","title":{"rendered":"\u05d4-ECDGA \u05de\u05d1\u05e8\u05db\u05ea \u05e2\u05dc \u05e4\u05ea\u05d9\u05d7\u05ea\u05d5 \u05e9\u05dc \u05de\u05e8\u05db\u05d6 \u05d4\u05d8\u05d9\u05e4\u05d5\u05dc \u05d4\u05d7\u05d3\u05e9 \u05d1\u05d9\u05d5\u05ea\u05e8 \u05d1\u05dc\u05d5\u05e0\u05d3\u05d5\u05df, \u05d1\u05e8\u05d9\u05d8\u05e0\u05d9\u05d4"},"content":{"rendered":"<p>\u05d4\u05d1\u05e8\u05d9\u05ea \u05d4\u05e2\u05d5\u05dc\u05de\u05d9\u05ea \u05dc\u05de\u05d7\u05dc\u05ea \u05d0\u05e8\u05d3\u05d4\u05d9\u05d9\u05dd-\u05e6'\u05e1\u05d8\u05e8 (ECDGA) \u05d2\u05d0\u05d4 \u05dc\u05d4\u05d5\u05d3\u05d9\u05e2 \u05e2\u05dc \u05d4\u05e6\u05d8\u05e8\u05e4\u05d5\u05ea\u05d5 \u05e9\u05dc <strong>\u05de\u05e8\u05db\u05d6 \u05d4\u05d8\u05d9\u05e4\u05d5\u05dc \u05d1-ECD \u05d1\u05d1\u05ea\u05d9 \u05d4\u05d7\u05d5\u05dc\u05d9\u05dd \u05e9\u05dc \u05d0\u05d5\u05e0\u05d9\u05d1\u05e8\u05e1\u05d9\u05d8\u05ea \u05dc\u05d5\u05e0\u05d3\u05d5\u05df (UCLH)<\/strong>, \u05d4\u05de\u05de\u05d5\u05e7\u05dd \u05d1- <strong>\u05dc\u05d5\u05e0\u05d3\u05d5\u05df, \u05d0\u05e0\u05d2\u05dc\u05d9\u05d4 (NW1 2PG)<\/strong>.<\/p>\n<p>\u05d6\u05d4\u05d5 \u05de\u05e8\u05db\u05d6 \u05d4\u05d8\u05d9\u05e4\u05d5\u05dc \u05d4-42 \u05d1\u05de\u05d7\u05dc\u05ea \u05d0\u05e8\u05d3\u05d4\u05d9\u05d9\u05dd-\u05e6'\u05e1\u05d8\u05e8 (ECD) \u05d1\u05e2\u05d5\u05dc\u05dd, \u05d5\u05d4\u05de\u05e8\u05db\u05d6 \u05d4\u05e9\u05dc\u05d9\u05e9\u05d9 \u05d4\u05de\u05d5\u05db\u05e8 \u05d1\u05d0\u05e0\u05d2\u05dc\u05d9\u05d4, \u05d3\u05d1\u05e8 \u05d4\u05de\u05e9\u05e7\u05e3 \u05d0\u05ea \u05d4\u05de\u05d0\u05de\u05e6\u05d9\u05dd \u05d4\u05de\u05ea\u05de\u05e9\u05db\u05d9\u05dd \u05dc\u05e9\u05e4\u05e8 \u05d0\u05ea \u05d4\u05e0\u05d2\u05d9\u05e9\u05d5\u05ea \u05dc\u05d8\u05d9\u05e4\u05d5\u05dc \u05de\u05d5\u05de\u05d7\u05d4 \u05d1\u05de\u05d7\u05dc\u05ea \u05d0\u05e8\u05d3\u05d4\u05d9\u05d9\u05dd-\u05e6'\u05e1\u05d8\u05e8 \u05d1\u05e8\u05d7\u05d1\u05d9 \u05d4\u05e2\u05d5\u05dc\u05dd.<\/p>\n<p>&nbsp;<\/p>\n<p><strong>\u05d0\u05d5\u05d3\u05d5\u05ea \u05de\u05e8\u05db\u05d6 \u05d4\u05d8\u05d9\u05e4\u05d5\u05dc \u05d4\u05d7\u05d3\u05e9<\/strong><\/p>\n<ul>\n<li><strong>\u05de\u05d5\u05e1\u05d3:<\/strong> \u05d1\u05ea\u05d9 \u05d4\u05d7\u05d5\u05dc\u05d9\u05dd \u05e9\u05dc \u05d0\u05d5\u05e0\u05d9\u05d1\u05e8\u05e1\u05d9\u05d8\u05ea \u05dc\u05d5\u05e0\u05d3\u05d5\u05df (UCLH)<\/li>\n<li><strong>\u05de\u05d9\u05e7\u05d5\u05dd:<\/strong> \u05dc\u05d5\u05e0\u05d3\u05d5\u05df, NW1 2PG<\/li>\n<li><strong>\u05e8\u05d5\u05e4\u05d0 \u05d0\u05d7\u05e8\u05d0\u05d9:<\/strong> \u05d3\"\u05e8 \u05e1\u05d0\u05d8\u05d9\u05d9\u05df \u05d2\u05d5\u05d4\u05d9\u05dc, \u05d4\u05de\u05d7\u05dc\u05e7\u05d4 \u05dc\u05d4\u05de\u05d8\u05d5\u05dc\u05d5\u05d2\u05d9\u05d4<\/li>\n<li><strong>\u05db\u05d9\u05e0\u05d5\u05d9:<\/strong> \u05de\u05e8\u05db\u05d6 \u05d8\u05d9\u05e4\u05d5\u05dc \u05de\u05e7\u05d9\u05e3 \u05dc\u05de\u05d8\u05d5\u05e4\u05dc\u05d9\u05dd \u05e9\u05d4\u05d5\u05e4\u05e0\u05d5<\/li>\n<\/ul>\n<p>\u05d3\"\u05e8 \u05d2\u05d5\u05d4\u05d9\u05dc \u05d5\u05e6\u05d5\u05d5\u05ea\u05d5 \u05de\u05d1\u05d9\u05d0\u05d9\u05dd \u05e2\u05de\u05dd \u05e0\u05d9\u05e1\u05d9\u05d5\u05df \u05e8\u05d1 \u05e2\u05e8\u05da \u05d1\u05d0\u05d1\u05d7\u05d5\u05df \u05d5\u05d1\u05d8\u05d9\u05e4\u05d5\u05dc \u05d1-ECD. \u05d1\u05d6\u05db\u05d5\u05ea \u05de\u05d7\u05d5\u05d9\u05d1\u05d5\u05ea\u05dd \u05d4\u05de\u05d5\u05db\u05d7\u05ea \u05dc\u05ea\u05de\u05d9\u05db\u05d4 \u05d1\u05e7\u05d4\u05d9\u05dc\u05ea \u05d4-ECD, \u05d4\u05de\u05e8\u05db\u05d6 \u05d4\u05d6\u05d4 \u05e2\u05d5\u05de\u05d3 \u05db\u05e2\u05ea \u05dc\u05e8\u05e9\u05d5\u05ea \u05de\u05d8\u05d5\u05e4\u05dc\u05d9\u05dd \u05d4\u05de\u05d1\u05e7\u05e9\u05d9\u05dd \u05d9\u05d9\u05e2\u05d5\u05e5 \u05d5\u05d8\u05d9\u05e4\u05d5\u05dc \u05de\u05d5\u05de\u05d7\u05d9\u05dd \u05d1\u05d1\u05e8\u05d9\u05d8\u05e0\u05d9\u05d4 \u05d5\u05de\u05d7\u05d5\u05e6\u05d4 \u05dc\u05d4.<\/p>\n<blockquote><p>&#8220;When dealing with a condition as rare as ECD, being able to find specialist doctors and nurses who know and care about the condition is essential. Being part of the ECD global alliance is a great resource for patients and shows that they are not alone; they can connect with others, and it is a source of strength when they finally have their diagnosis.&#8221;<br \/>\n<strong>\u05d3\"\u05e8 \u05e1\u05d0\u05d8\u05d9\u05d9\u05df \u05d2\u05d5\u05d4\u05d9\u05dc, \u05d4\u05de\u05d7\u05dc\u05e7\u05d4 \u05dc\u05d4\u05de\u05d8\u05d5\u05dc\u05d5\u05d2\u05d9\u05d4<\/strong><\/p><\/blockquote>\n<p>\u05ea\u05d5\u05e1\u05e4\u05ea \u05d6\u05d5 \u05de\u05e9\u05e7\u05e4\u05ea \u05d0\u05ea \u05de\u05e9\u05d9\u05de\u05ea\u05d4 \u05e9\u05dc \u05d4-ECDGA \u05dc\u05d4\u05e8\u05d7\u05d9\u05d1 \u05d0\u05ea \u05d4\u05e0\u05d2\u05d9\u05e9\u05d5\u05ea \u05dc\u05d8\u05d9\u05e4\u05d5\u05dc \u05d5\u05dc\u05d4\u05d1\u05d8\u05d9\u05d7 \u05e9\u05dc\u05de\u05d8\u05d5\u05e4\u05dc\u05d9\u05dd \u05d9\u05d4\u05d9\u05d5 \u05e0\u05d5\u05ea\u05e0\u05d9 \u05e9\u05d9\u05e8\u05d5\u05ea\u05d9\u05dd \u05d1\u05e2\u05dc\u05d9 \u05d9\u05d3\u05e2 \u05d1\u05d0\u05d6\u05d5\u05e8 \u05de\u05d2\u05d5\u05e8\u05d9\u05d4\u05dd. \u05db\u05e8\u05d2\u05d9\u05dc, \u05e6\u05e8\u05db\u05d9\u05d4\u05dd \u05e9\u05dc \u05d4\u05de\u05d8\u05d5\u05e4\u05dc\u05d9\u05dd \u05de\u05e9\u05ea\u05e0\u05d9\u05dd \u05de\u05d0\u05d3\u05dd \u05dc\u05d0\u05d3\u05dd, \u05d5\u05d0\u05e0\u05d5 \u05de\u05e2\u05d5\u05d3\u05d3\u05d9\u05dd \u05d0\u05ea \u05db\u05dc \u05de\u05d9 \u05e9\u05d0\u05d5\u05d1\u05d7\u05df \u05dc\u05d4\u05ea\u05d9\u05d9\u05e2\u05e5 \u05e2\u05dd \u05e0\u05d5\u05ea\u05e0\u05d9 \u05e9\u05d9\u05e8\u05d5\u05ea\u05d9 \u05d4\u05d1\u05e8\u05d9\u05d0\u05d5\u05ea \u05e9\u05dc\u05d4\u05dd \u05d1\u05e0\u05d5\u05d2\u05e2 \u05dc\u05d4\u05e4\u05e0\u05d9\u05d4 \u05d0\u05d5 \u05dc\u05d9\u05d9\u05e2\u05d5\u05e5 \u05e2\u05dd \u05db\u05dc \u05de\u05e8\u05db\u05d6 \u05d8\u05d9\u05e4\u05d5\u05dc.<\/p>\n<p><strong>Explore ECD Care Centers Near You<\/strong><\/p>\n<p>To learn more about recognized Care Centers and how to access expert care, visit the ECDGA Care Center Directory.<\/p>\n<p><em>\u05d4\u05d1\u05e8\u05d9\u05ea \u05d4\u05e2\u05d5\u05dc\u05de\u05d9\u05ea \u05dc\u05de\u05d7\u05dc\u05ea \u05d0\u05e8\u05d3\u05d4\u05d9\u05d9\u05dd-\u05e6'\u05e1\u05d8\u05e8 (ECDGA) \u05d0\u05d9\u05e0\u05d4 \u05de\u05e1\u05e4\u05e7\u05ea \u05d9\u05d9\u05e2\u05d5\u05e5 \u05e8\u05e4\u05d5\u05d0\u05d9, \u05d0\u05d1\u05d7\u05e0\u05d5\u05ea \u05d0\u05d5 \u05d8\u05d9\u05e4\u05d5\u05dc\u05d9\u05dd. \u05db\u05dc \u05d4\u05ea\u05d5\u05db\u05df \u05e0\u05d5\u05e2\u05d3 \u05dc\u05de\u05d8\u05e8\u05d5\u05ea \u05de\u05d9\u05d3\u05e2 \u05d1\u05dc\u05d1\u05d3. \u05d0\u05e0\u05d0 \u05e4\u05e0\u05d5 \u05dc\u05d0\u05d9\u05e9 \u05de\u05e7\u05e6\u05d5\u05e2 \u05d1\u05ea\u05d7\u05d5\u05dd \u05d4\u05d1\u05e8\u05d9\u05d0\u05d5\u05ea \u05d1\u05db\u05dc \u05e9\u05d0\u05dc\u05d4 \u05e8\u05e4\u05d5\u05d0\u05d9\u05ea.<\/em><\/p>","protected":false},"excerpt":{"rendered":"<p>The Erdheim-Chester Disease Global Alliance (ECDGA) is proud to announce the addition of a new ECD Care Center at University College London Hospitals (UCLH), located in London, England (NW1 2PG). [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":83723,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[4157,387,4160,4156,3614,4159,2495,3620,3292,379,3844,3475,4155,4158,3285],"class_list":["post-83709","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-communitypower","tag-ecdga","tag-endrare","tag-fundraisingforacause","tag-funrun2025","tag-globalimpact","tag-histiocytosisawareness","tag-hopeinmotion","tag-patientadvocacy","tag-rarebutstrong","tag-rarediseaseawareness","tag-rollforhope","tag-runforrare","tag-togetherwefight","tag-walkforhope"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/posts\/83709","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/comments?post=83709"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/posts\/83709\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/media\/83723"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/media?parent=83709"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/categories?post=83709"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/tags?post=83709"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}